Dollars for Profs

Dig Into University Researchers' Outside Income and Conflicts of Interest

Published Dec. 6, 2019

This database was last updated in December 2019 and should only be used as a historical snapshot. There may be new or amended records not reflected here.

Financial doc
Filing Type

Conflict of Interest

Institutions must file significant disclosures to the National Institutes of Health if they determine financial relationships could affect the design, conduct or reporting of the NIH-funded research. The NIH provided us with their entire financial conflict of interest database, with filings from 2012 through 2019.

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Donald Kohn

Boston Children's Hospital, Department: Na

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Disclosed Conflict of Interest with

Orchard Therapeutics

Disclosed Value
Listed Reason
Reimbursed or sponsored travel

Dr. Kohn serves on the Scientific Advisory Board of Orchard Therapeutics, a biotechnology company that aims to develop gene therapies and is providing the funding for the vector production in this trial. The trial is an investigator-initiated, multi-institutional trial with an independent DSMB and independent monitor consultant. The trial was designed and developed by the multi-investigator team with no representation from Orchard. Because of his expertise in the area, Dr. Kohn acts as a paid consultant and provides advice and guidance to the Company.

Listed Research Project
Gene therapy for SCID-X1 with low dose busulfan and a SIN-lentiviral vector

Project Narrative Severe combined immunodeficiency (SCID) is a fatal genetic disorder in which babies are born missing T lymphocytes, a key component of the immune system. Now that more than 75% of babies are screened at birth through universal newborn screening for SCID, we have the chance to identify and treat SCID before death from infection. This study will test whether gene therapy can safely and effectively treat the X-linked form of SCID, SCID-X1.

Filed on April 23, 2018.

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Name Institution Type Company Disclosed Value
Donald Kohn Boston Children's Hospital Conflict of Interest Orchard Therapeutics $150,000 - $199,999
Donald Kohn University of California Los Angeles Conflict of Interest Orchard Therapeutics Value cannot be readily determined
Donald Kohn University of California Los Angeles Conflict of Interest Orchard Therapeutics Value cannot be readily determined
Donald Kohn University of California Los Angeles Conflict of Interest Orchard Therapeutics Value cannot be readily determined
Donald Kohn University of California Los Angeles Conflict of Interest Orchard Therapeutics Value cannot be readily determined
If you see an error in the database or a reason we should not disclose a record, please contact us at [email protected] and we'll evaluate it on a case-by-case basis.
Sources: National Institutes of Health, public records requests filed at multiple public state universities

Notes: When a more specific filing date is not available for an individual financial disclosure or conflict of interest form, we use the year the form was filed. If the year was not disclosed, we report the range of years covered by our public records requests. In a few cases, a start date was provided instead of a filing date. In those cases, we use the start date instead.

Fewer than 10% of records from the University of Florida and fewer than 1% of records from the University of Texas system were removed because they did not contain enough information.

ProPublica obtained additional financial disclosures and conflict of interest forms that we have not yet digitized and added to the database. You can download those disclosures in the ProPublica Data Store.

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