efile Public Visual Render
ObjectId: 201823199349308052 - Submission: 2018-11-15
TIN: 52-1986675
Form
990
Department of the Treasury
Internal Revenue Service
Return of Organization Exempt From Income Tax
Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private
foundations)
Do not enter social security numbers on this form as it may be made public.
Information about Form 990 and its instructions is at
www.IRS.gov/form990
.
OMB No. 1545-0047
20
17
Open to Public Inspection
A
For the 2017 calendar year, or tax year beginning
01-01-2017
, and ending
12-31-2017
B
Check if applicable:
Address change
Name change
Initial return
Final return/terminated
Amended return
Application pending
C
Name of organization
FOUNDATION FOR THE NATIONAL INSTITUTES
OF HEALTH INC
Doing business as
Number and street (or P.O. box if mail is not delivered to street address)
11400 ROCKVILLE PIKE NO 600
Room/suite
City or town, state or province, country, and ZIP or foreign postal code
NORTH BETHESDA
,
MD
20852
D Employer identification number
52-1986675
E Telephone number
(301) 402-5311
G
Gross receipts $
252,508,965
F
Name and address of principal officer:
MARIA C FREIRE PHD
11400 ROCKVILLE PIKE NO 600
NORTH BETHESDA
,
MD
20852
I
Tax-exempt status:
501(c)(3)
501(c)
(
)
(insert no.)
4947(a)(1)
or
527
J
Website:
HTTP://WWW.FNIH.ORG
H(a)
Is this a group return for
subordinates?
Yes
No
H(b)
Are all subordinates
included?
Yes
No
If "No," attach a list. (see instructions)
H(c)
Group exemption number
K
Form of organization:
Corporation
Trust
Association
Other
L
Year of formation:
1996
M
State of legal domicile:
MD
Part I
Summary
1
Briefly describe the organization’s mission or most significant activities:
THE FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH (FNIH) CREATES AND LEADS ALLIANCES AND PUBLIC-PRIVATE PARTNERSHIPS THAT ADVANCE BREAKTHROUGH BIOMEDICAL DISCOVERIES AND IMPROVE THE QUALITY OF PEOPLE'S LIVES.
2
Check this box
3
Number of voting members of the governing body (Part VI, line 1a)
........
3
26
4
Number of independent voting members of the governing body (Part VI, line 1b)
.....
4
25
5
Total number of individuals employed in calendar year 2017 (Part V, line 2a)
......
5
56
6
Total number of volunteers (estimate if necessary)
.............
6
0
7a
Total unrelated business revenue from Part VIII, column (C), line 12
........
7a
0
b
Net unrelated business taxable income from Form 990-T, line 34
.........
7b
0
Prior Year
Current Year
8
Contributions and grants (Part VIII, line 1h)
.........
82,860,385
61,322,159
9
Program service revenue (Part VIII, line 2g)
.........
122,392
111,660
10
Investment income (Part VIII, column (A), lines 3, 4, and 7d )
....
479,385
1,398,198
11
Other revenue (Part VIII, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e)
64,980
46,023
12
Total revenue—add lines 8 through 11 (must equal Part VIII, column (A), line 12)
83,527,142
62,878,040
13
Grants and similar amounts paid (Part IX, column (A), lines 1–3 )
...
23,228,128
34,963,149
14
Benefits paid to or for members (Part IX, column (A), line 4)
.....
0
0
15
Salaries, other compensation, employee benefits (Part IX, column (A), lines 5–10)
6,221,610
7,128,157
16a
Professional fundraising fees (Part IX, column (A), line 11e)
.....
0
0
b
Total fundraising expenses (Part IX, column (D), line 25)
208,003
17
Other expenses (Part IX, column (A), lines 11a–11d, 11f–24e)
....
17,947,728
14,572,507
18
Total expenses. Add lines 13–17 (must equal Part IX, column (A), line 25)
47,397,466
56,663,813
19
Revenue less expenses. Subtract line 18 from line 12
.......
36,129,676
6,214,227
Beginning of Current Year
End of Year
20
Total assets (Part X, line 16)
.............
116,383,923
120,432,415
21
Total liabilities (Part X, line 26)
.............
13,155,593
9,944,796
22
Net assets or fund balances. Subtract line 21 from line 20
.....
103,228,330
110,487,619
Part II
Signature Block
Sign Here
Under penalties of perjury, I declare that I have examined this return, including accompanying schedules and statements, and to the best of my knowledge and belief, it is true, correct, and complete. Declaration of preparer (other than officer) is based on all information of which preparer has any knowledge.
2018-11-14
Signature of officer
Date
MARIA C FREIRE PHD
PRESIDENT
Type or print name and title
Paid Preparer Use Only
Print/Type preparer's name
LORI K COCHRAN
Preparer's signature
LORI K COCHRAN
Date
2018-11-14
Check
if
self-employed
PTIN
P00853221
Firm's name
DIXON HUGHES GOODMAN LLP
Firm's EIN
56-0747981
Firm's address
901 EAST CARY STREET SUITE 1000
RICHMOND
,
VA
23219
Phone no.
(804) 282-7636
May the IRS discuss this return with the preparer shown above? (see instructions)
..........
Yes
No
For Paperwork Reduction Act Notice, see the separate instructions.
Cat. No. 11282Y
Form
990
(2017)
Page 2
Form 990 (2017)
Page
2
Part III
Statement of Program Service Accomplishments
Check if Schedule O contains a response or note to any line in this Part III
..............
1
Briefly describe the organization’s mission:
SEE SCHEDULE O, STATEMENT OF ORGANIZATION'S PRIMARY EXEMPT PURPOSE STATEMENTTHE FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH WAS ESTABLISHED BY THE UNITED STATES CONGRESS TO SUPPORT THE NIH IN ITS MISSION TO IMPROVE HEALTH, BY FORMING AND FACILITATING PUBLIC-PRIVATE PARTNERSHIPS FOR BIOMEDICAL RESEARCH AND TRAINING. THE FOUNDATION BUILDS PARTNERSHIP FOR DISCOVERY AND INNOVATION TO IMPROVE HEALTH. THE BOARD HAS AN EXECUTIVE COMMITTEE WHICH CAN MAKE DECISIONS ON BEHALF OF THE BOARD (WITH SOME EXCEPTIONS) IN BETWEEN BOARD MEETINGS.
2
Did the organization undertake any significant program services during the year which were not listed on
the prior Form 990 or 990-EZ?
.....................
Yes
No
If "Yes," describe these new services on Schedule O.
3
Did the organization cease conducting, or make significant changes in how it conducts, any program
services?
...........................
Yes
No
If "Yes," describe these changes on Schedule O.
4
Describe the organization’s program service accomplishments for each of its three largest program services, as measured by expenses. Section 501(c)(3) and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported.
4a
(Code:
) (Expenses $
49,803,065
including grants of $
34,087,568
) (Revenue $
111,660
)
SEE SCHEDULE O, PROGRAM ONE, RESEARCH PARTNERSHIPSPROGRAM ONE - RESEARCH PARTNERSHIPS -ANDREW LEE AT AGE 22, ANDREW LEE IS DRIVEN. FOLLOWING HIS HLRCC DIAGNOSIS, ANDREW ESTABLISHED THE NOT-FOR-PROFIT DRIVEN TO CURE, INC. HE NOW TRAVELS THE COUNTRY ATTENDING CAR EVENTS TO RAISE VISIBILITY AND FUNDING FOR RARE KIDNEY CANCERS. IN DECEMBER 2017, ANDREW PRESENTED A $100,000 CHECK TO MARIA C. FREIRE, PH.D., FNIH PRESIDENT AND EXECUTIVE DIRECTOR. THIS DONATION, IN ADDITION TO A $200,000 GIFT MADE IN 2016, WILL FURTHER CUTTING-EDGE RESEARCH ON RARE KIDNEY CANCER CONDUCTED BY THE NATIONAL CANCER INSTITUTE (NCI) AT THE NIH CLINICAL CENTER. "THANKS TO FNIH'S MISSION, THE NEEDED FUNDING CAN BE TARGETED TO THE RESEARCH OF RARE CANCERS LIKE HLRCC. WE LOOK FORWARD TO WORKING WITH THE FNIH IN THE YEARS AHEAD TO HELP FUND OTHER RARE CANCERS AND DISEASES IN ORDER TO HELP MORE PATIENTS," SAID ANDREW. LEARN MORE AT FNIH.ORG/DRIVENTOCURE.MS. CAROL-ANN HARRISMS. CAROL-ANN HARRIS OF FORT LEE, NJ, ADVANCES MUSCULAR DYSTROPHY RESEARCH THROUGH THE CARMOLLNAT ENDOWMENT AT THE FNIH. MS. CAROL-ANN HARRIS SAID, "MUSCULAR DYSTROPHY HAS AFFECTED MY FAMILY FOR AT LEAST SEVEN GENERATIONS. I FELT IT WAS MY CALLING TO HONOR MY LOVED ONES BY INVESTING IN THE FNIH SO THAT IMPORTANT RESEARCH CAN PROPEL THIS FIELD FORWARD AND HELP FUTURE PATIENTS AND THEIR FAMILIES IN THE YEARS TO COME."BARBARA LAZIO, M.D., AND MR. MATTHEW SCHER BARBARA LAZIO, M.D., AND MR. MATTHEW SCHER OF OLYMPIA, WA FURTHER CANCER RESEARCH BY DONATING ANNUALLY TO THE FNIH IN HONOR OF THEIR MOTHERS, WHO PASSED AWAY FROM THE DISEASE. DR. LAZIO SAID, "AFTER LOSING SOME OF OUR CLOSEST FAMILY MEMBERS AND FRIENDS TO CANCER, WE FELT WE NEEDED TO SUPPORT ONGOING RESEARCH TO BENEFIT FUTURE CANCER PATIENTS. THERE ARE MANY CHARITIES SOLICITING FUNDS FOR CANCER RESEARCH, BUT WE FELT BY INVESTING IN THE FNIH, OUR MONEY WOULD BE APPLIED TO THE MOST HIGHLY VETTED AND INNOVATIVE RESEARCH. WE REALLY JUST WANT TO KEEP THE FIRE BURNING, SUPPORT THE INNOVATORS, SEE THESE BABY STEPS DEVELOP INTO SOMETHING THAT CAN EVENTUALLY IMPACT A PERSON'S LIFE."NATIONAL INSTITUTES OF HEALTH (NIH) CONGRESS CHARTERED THE FNIH TO RAISE PRIVATE FUNDS TO SUPPORT THE WORLD'S LARGEST BIOMEDICAL RESEARCH AGENCY, THE NIH. THE FNIH LEVERAGES THE KNOWHOW AND RESOURCES OF THE PRIVATE SECTOR TO WORK WITH THE NIH TO TACKLE COMPLEX BIOMEDICAL CHALLENGES. IN 2017, THE FNIH, NIH, U.S. FOOD AND DRUG ADMINISTRATION (FDA) AND 12 BIOPHARMACEUTICAL COMPANIES LAUNCHED THE HISTORIC $220 MILLION PARTNERSHIP FOR ACCELERATING CANCER THERAPIES (PACT) TO BETTER UNDERSTAND HOW TO HARNESS THE IMMUNE SYSTEM TO ATTACK CANCER. LEARN MORE AT FNIH.ORG/PACT. "THE FNIH MAKES IT POSSIBLE FOR THE NIH, AS A GOVERNMENT FACILITY, TO WORK WITH THE PRIVATE SECTOR TO ANSWER SOME OF THE WORLD'S MOST PRESSING HEALTH QUESTIONS. THROUGH INNOVATIVE RESEARCH PARTNERSHIPS, THE NIH AND FNIH ARE ABLE TO FUEL THE BIOMEDICAL DISCOVERIES NEEDED FOR BETTER DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF DISEASE. WORKING WITH THE FNIH IS VITAL TO THE RESEARCH ENTERPRISE," SAID FRANCIS COLLINS, M.D., PH.D., NIH DIRECTOR. NATIONAL INSTITUTE ON AGING (NIA) THE NIA, UNDER THE INSPIRED LEADERSHIP OF DIRECTOR RICHARD HODES, M.D., HAS BEEN ONE OF THE FNIH'S MOST SIGNIFICANT AND LONGSTANDING PARTNERS. OVER THE PAST DECADE, THE NIA AND THE FNIH HAVE DEVELOPED NEW COLLABORATION MODELS, GOVERNANCE STRUCTURES AND DATA-SHARING POLICIES FOR SUCH GROUNDBREAKING PROGRAMS AS THE ALZHEIMER'S DISEASE NEUROIMAGING INITIATIVE (ADNI) AND THE ACCELERATING MEDICINES PARTNERSHIP (AMP). DR. HODES REFLECTED ON THIS PARTNERSHIP WITH THE FNIH: "THE BENEFIT OF COLLABORATIONS, SCIENTIFIC MEETINGS AND OTHER SUPPORT PROVIDED TO NIH THROUGH THE FOUNDATION IS NOT LIMITED TO THE INSTITUTE OR INSTITUTES WHOSE WORK IS BEING FACILITATED. THESE EFFORTS GALVANIZE ALL PARTNERS IN MOVING TOWARD SHARED GOALS. WE HAVE SEEN THIS IN SEVERAL AREAS, MOST RECENTLY IN THE EMERGENCE OF THE NEW DISCIPLINE OF GEROSCIENCE, WHERE FOUNDATION EFFORTS HAVE FACILITATED CONFERENCES THAT HAVE HELPED DEVELOP NEW SYNERGY BETWEEN RESEARCHERS IN THE BASIC BIOLOGY OF AGING AND SCIENTISTS FOCUSED ON SPECIFIC DISEASES ASSOCIATED WITH ADVANCED AGE, SUCH AS CANCER AND HEART DISEASE. THIS NEW APPROACH HAS ENHANCED THE RECOGNITION OF AGING AS THE CRITICAL RISK FACTOR UNDERLYING DISEASE DEVELOPMENT IN MANY CASES AND HAS FOSTERED NEW CONNECTIONS AMONG PUBLIC AND PRIVATE SECTOR SCIENTISTS SEEKING TO REDUCE DISEASE RISK AND IMPROVE HEALTH FOR OLDER PEOPLE."U.S. FOOD AND DRUG ADMINISTRATION (FDA)THE FDA, THE U.S. REGULATORY AGENCY FOR BIOMEDICAL TECHNOLOGIES, IS A PRIMARY PARTNER ACTIVELY ENGAGED IN FNIH PUBLIC-PRIVATE CONSORTIA THAT FORMULATE AND LEAD CUTTING-EDGE RESEARCH PROGRAMS. THE FNIH BIOMARKERS CONSORTIUM MANAGES MANY OF THESE PROGRAMS, WHICH OFTEN HAVE REGULATORY IMPLICATIONS. THE MISSION OF THE BIOMARKERS CONSORTIUM IS TO DISCOVER, DEVELOP AND SEEK REGULATORY APPROVAL OF BIOLOGICAL MARKERS (BIOMARKERS) TO SUPPORT DEVELOPMENT OF NEW DIAGNOSTIC TOOLS AND DRUGS WITHIN FOUR KEY AREAS: CANCER, INFLAMMATION AND IMMUNITY, METABOLIC DISORDERS AND NEUROSCIENCE. IN 2017, THE BIOMARKERS CONSORTIUM REACHED SEVERAL MILESTONES, INCLUDING THE PUBLICATION OF A FRAMEWORK TO GUIDE BIOMARKER QUALIFICATION IN SCIENCE TRANSLATIONAL MEDICINE, AS WELL AS SUBMITTING RECOMMENDATIONS TO THE FDA TO GUIDE DRUG DEVELOPMENT FOR SERIOUS HOSPITAL ACQUIRED BACTERIAL INFECTIONS. LEARN MORE ABOUT BIOMARKERS CONSORTIUM PROJECTS AT FNIH.ORG/BIOMARKERSCONSORTIUM.BILL & MELINDA GATES FOUNDATIONADDRESSING SOME OF THE WORLD'S MOST PRESSING HEALTH CHALLENGES, INCLUDING TUBERCULOSIS AND MALARIA, REQUIRES THE PROFICIENCY OF INDOMITABLE SCIENTISTS BACKED BY EXCELLENT PROJECT MANAGEMENT AND STABLE FINANCIAL SUPPORT. FOR MORE THAN A DECADE, THE BILL & MELINDA GATES FOUNDATION (GATES FOUNDATION) HAS WORKED WITH THE FNIH TO DEVELOP STRONG ECOSYSTEMS THAT UNDERPIN SCIENTIFIC DISCOVERY AND FOSTER CREATION OF EMERGING TECHNOLOGIES TO PROVIDE NOVEL SOLUTIONS TO FIGHT DISEASE.IN 2017, AMONG OTHER KEY ACCOMPLISHMENTS, THIS WORK RESULTED IN THE PUBLICATION OF THE GUIDING PRINCIPLES FOR SPONSORS AND SUPPORTERS OF GENE DRIVE RESEARCH IN SCIENCE. CONSIDERED AN EMERGING TECHNOLOGY, GENE DRIVE CAN BE USED TO PROMOTE THE PREFERENTIAL INHERITANCE OF A BENEFICIAL TRAIT, THEREBY INCREASING ITS PREVALENCE IN A POPULATION. THE DEVELOPERS AND SIGNATORIES OF THESE GUIDING PRINCIPLES ARE COMMITTING TO SUPPORT RESEARCH OF THE HIGHEST SCIENTIFIC AND ETHICAL QUALITY, INSPIRE A TRANSPARENT APPROACH AND BACK RELEVANT BIOSAFETY MEASURES AND BEST PRACTICES. LEARN MORE ABOUT THIS WORK AT FNIH.ORG/GENEDRIVEPRINCIPLES.THE GATES FOUNDATION'S STEVEN BUCHSBAUM, PH.D., REFLECTED ON THE FOUNDATION'S LONGSTANDING PARTNERSHIP WITH THE FNIH: "THE FNIH WAS, IN THE VERY EARLY DAYS OF THE GATES FOUNDATION, A KEY PARTNER THAT WE CHOSE TO FIRST BEGIN INVESTING IN BASIC SCIENCE FOR GLOBAL HEALTH. THAT STARTED WITH THE ORIGINAL GRAND CHALLENGES IN GLOBAL HEALTH, WHICH THE FNIH WAS OUR KEY PARTNER IN FORMULATING AND EXECUTING. HAVING HAD THE OPPORTUNITY TO SEE PROJECTS EVOLVE AND MATURE OVER MORE THAN A DECADE, THERE ARE A NUMBER OF THEM THAT WERE CALLED FOR, SELECTED, INVESTED AND NURTURED EITHER BY THE FNIH THEMSELVES OR JOINTLY WITH US THAT ARE INCREDIBLY PROMISING IN THE SENSE THAT THEY ARE TRANSFORMATIONAL NEW TOOLS FOR GLOBAL HEALTH. ONE EXAMPLE IS THE ELIMINATE DENGUE PROJECT (NOW CALLED THE WORLD MOSQUITO PROGRAM) AND ANOTHER IS THE TARGET MALARIA INITIATIVE. BUT PERHAPS MORE THAN THAT, AND HARDER TO MEASURE AND DIRECTLY ATTRIBUTE, IS REALLY JUST THE CHANGE IN THE SCIENTIFIC COMMUNITY IN THE SENSE OF THE EXCITEMENT, ATTENTION PAID AND AMOUNT OF RESEARCH THAT IS DONE ON HEALTH CONDITIONS THAT AFFECT THE MAJORITY OF THE POPULATION IN THE WORLD, BUT PARTICULARLY THOSE THAT ARE POOR AND UNDERSERVED."
4b
(Code:
) (Expenses $
958,145
including grants of $
678,997
) (Revenue $
)
SEE SCHEDULE O, PROGRAM TWO, EDUCATION, TRAINING AND PATIENT SUPPORT PROGRAMSPROGRAM TWO - EDUCATION, TRAINING AND PATIENT SUPPORT PROGRAMS - BUFFY CAFRITZTHE CULTURAL AND PHILANTHROPIC CONTRIBUTIONS OF BUFFY CAFRITZ ARE EVER PRESENT AROUND THE COUNTRY, ESPECIALLY JUST 10 MILES NORTH OF WASHINGTON, D.C. ON THE NIH CAMPUS IN BETHESDA, MD. MRS. CAFRITZ'S UNWAVERING COMMITMENT TO THE FNIH HAS SUPPORTED STUDENTS, PATIENTS AND RESEARCHERS AT THE NIH FOR NEARLY TWO DECADES. SHE AND HER HUSBAND HAVE HELPED STUDENTS INTERESTED IN PARKINSON'S DISEASE TRAIN WITH RENOWNED SCIENTISTS BY FUNDING THE NIH MEDICAL RESEARCH SCHOLARS PROGRAM, THUS SUPPORTING A NEW GENERATION OF CLINICIAN-SCIENTISTS. MRS. CAFRITZ ALSO SPONSORS A ROOM AT THE EDMOND J. SAFRA FAMILY LODGE JUST FOOTSTEPS AWAY FROM THE NIH CLINICAL CENTER, SO THAT PATIENTS AND THEIR FAMILIES CAN STAY TOGETHER DURING TREATMENT. MRS. CAFRITZ AND THE BUFFY AND WILLIAM CAFRITZ FAMILY FOUNDATION'S COMMITMENT TO BIOMEDICINE EXTENDS TO RESEARCH IN THE LABORATORY. IN 2017, THEIR SUPPORT CREATED A FIVE-YEAR COMPETITIVE GRANT PROGRAM AT THE NCI TO DEVELOP HIGHLY INNOVATIVE APPROACHES AND TECHNOLOGIES FOR KIDNEY CANCER. THROUGH HER DEDICATION TO THIS SIGNIFICANT WORK, MRS. CAFRITZ'S PRESENCE IN BIOMEDICAL RESEARCH WILL BE FELT FOR GENERATIONS TO COME.AMGEN FOUNDATION AND DORIS DUKE CHARITABLE FOUNDATIONTHE FNIH SUPPORTS TRAINING PROGRAMS AT THE NIH THAT ENABLE STUDENTS INTERESTED IN BIOMEDICINE TO WORK CLOSELY WITH SOME OF THE WORLD'S LEADING RESEARCHERS. THESE PROGRAMS ARE MADE POSSIBLE WITH PARTNERS INCLUDING THE AMGEN FOUNDATION AND THE DORIS DUKE CHARITABLE FOUNDATION."BY PARTNERING WITH THE FNIH IN ADDITION TO INSTITUTIONS SUCH AS HARVARD, MIT AND CAMBRIDGE WE ARE OPENING THE DOOR TO GROUND-BREAKING RESEARCH OPPORTUNITIES IN BIOMEDICAL RESEARCH THAT CONTINUE TO ADVANCE HUMAN HEALTH IN UNTOLD WAYS. IF YOUR MISSION IS TO INSPIRE AND TRAIN THE NEXT GENERATION IN BIOMEDICAL RESEARCH OR TO ADVANCE SCIENTIFIC BREAKTHROUGHS INTO HUMAN HEALTH THE FNIH NEEDS TO BE ON YOUR SHORT LIST AS AN ORGANIZATION WORTH PARTNERING WITH," SAID SCOTT HEIMLICH, ED.D. VICE PRESIDENT, AMGEN FOUNDATION. "OUR PARTNERSHIP WITH THE FNIH SUPPORTS THE MEDICAL RESEARCH SCHOLARS PROGRAM, WHICH GIVES MEDICAL STUDENTS A HANDS-ON CLINICAL RESEARCH EXPERIENCE UNDER THE GUIDANCE OF SUCCESSFUL SCIENTISTS. WE ARE PROUD TO SUPPORT THIS PROGRAM AS AN AVENUE FOR IGNITING IN STUDENTS A PASSION FOR RESEARCH THAT CAN TRANSLATE INTO A PRODUCTIVE, LIFELONG CAREER AS A PHYSICIAN SCIENTIST," SAID BETSY MYERS, PH.D., PROGRAM DIRECTOR FOR MEDICAL RESEARCH, DORIS DUKE CHARITABLE FOUNDATION.
4c
(Code:
) (Expenses $
813,509
including grants of $
196,584
) (Revenue $
)
SEE SCHEDULE O, PROGRAM THREE, MEMORIALS, AWARDS AND EVENTSPROGRAM THREE - MEMORIALS, AWARDS AND EVENTS -THE FNIH MANAGES AND ORGANIZES SCIENTIFIC MEETINGS, AWARDS AND EVENTS THROUGHOUT THE YEAR. FROM LECTURES AND WORKSHOPS TO COLLABORATIVE SUMMITS, THE FNIH FACILITATED MORE THAN 60 EVENTS IN 2017 THAT SPANNED DOZENS OF FIELDS OF RESEARCH. THIS INCLUDED THE 5TH ANNUAL PRESENTATION OF THE LURIE PRIZE IN BIOMEDICAL SCIENCES, A $100,000 AWARD RECOGNIZING OUTSTANDING ACHIEVEMENT BY A PROMISING YOUNG SCIENTIST IN BIOMEDICAL RESEARCH. IN MAY 2017 THOUGHT LEADERS FROM THE NIH, PIONEERS IN BIOMEDICAL SCIENCE, THE BIOTECH AND PHARMACEUTICAL INDUSTRIES, PHILANTHROPISTS AND BUSINESS EXECUTIVES CONVENED AT THE ORGANIZATION OF AMERICAN STATES IN WASHINGTON, D.C. FOR THE PRESENTATION OF THE LURIE PRIZE AT THE FNIH AWARD CEREMONY. WOLF BLITZER, AWARD-WINNING JOURNALIST AND TELEVISION NEWS ANCHOR, WAS THE EVENING'S MASTER OF CEREMONIES. THE 2017 LURIE PRIZE WAS AWARDED TO DAVID M. SABATINI, M.D., PH.D., MEMBER OF THE WHITEHEAD INSTITUTE FOR BIOMEDICAL RESEARCH AND PROFESSOR OF BIOLOGY, MASSACHUSETTS INSTITUTE OF TECHNOLOGY. DR. SABATINI DISCOVERED THE MTOR (MECHANISTIC TARGET OF RAPAMYCIN) CELLULAR PATHWAY AS A KEY REGULATOR OF GROWTH AND METABOLISM IN RESPONSE TO NUTRIENTS. AT THE FNIH FALL BOARD DINNER IN OCTOBER 2017, THE FNIH PRESENTED THE 2ND CHARLES A. SANDERS, M.D., PARTNERSHIP AWARD TO RICHARD J. HODES, M.D., DIRECTOR OF THE NIA AND ELI LILLY AND COMPANY (LILLY). THE AWARD RECOGNIZES PERSONS AND/OR ORGANIZATIONS THAT HAVE MADE SIGNIFICANT CONTRIBUTIONS TO THE FNIH'S WORK TO BUILD, IMPLEMENT AND NURTURE PRIVATE-PUBLIC PARTNERSHIPS IN SUPPORT OF THE MISSION OF THE NIH. THROUGH THEIR LONGSTANDING WORK WITH THE FNIH OVER MORE THAN A DECADE, DR. HODES AND LILLY HAVE ADVANCED TRAILBLAZING BIOMEDICAL RESEARCH IN CRITICAL DISEASE AREAS, INCLUDING AGE-RELATED DISORDERS SUCH AS ALZHEIMER'S DISEASE, AND HELPED STRUCTURE INNOVATIVE PUBLIC-PRIVATE PARTNERSHIPS. THE MCKNIGHT BRAIN RESEARCH FOUNDATION (MBRF)'S DECADE-LONG PARTNERSHIP WITH THE FNIH HAS EXPANDED UNDERSTANDING OF HOW PEOPLE THINK AS THEY AGE, THROUGH CO-SPONSORSHIP OF THE RESEARCH PARTNERSHIP IN COGNITIVE AGING AND THREE COGNITIVE AGING SUMMITS WITH THE NIA. THE THIRD SUMMIT WAS HELD IN APRIL 2017. "THIS PARTNERSHIP HAS FACILITATED EXPLORATION OF NEW AVENUES OF POTENTIAL RESEARCH WITHIN THE SCIENTIFIC COMMUNITY, WHICH COULD LEAD TO THE DEVELOPMENT OF PHARMACOLOGICAL AND BEHAVIORAL INTERVENTIONS, AND ULTIMATELY IMPROVED OUTCOMES IN COGNITIVE HEALTH. A VERY IMPORTANT OUTCOME HAS ALSO BEEN RAISING THE LEVEL OF AWARENESS WITHIN THE SCIENTIFIC COMMUNITY AND AMONG THE PUBLIC ABOUT THE IMPORTANCE OF THIS RESEARCH AND ITS TREMENDOUS VALUE TO SOCIETY IN PRESERVING AND MAINTAINING COGNITIVE HEALTH."J. LEE DOCKERY, M.D., CHAIR, BOARD OF TRUSTEES, MBRF.
(Code:
) (Expenses $
66,782
including grants of $
) (Revenue $
)
PROGRAM FOUR - CAPITAL PROJECTS - MRS. LILY SAFRA AS LEAD BENEFACTOR OF THE EDMOND J. SAFRA FAMILY LODGE (FAMILY LODGE), MRS. LILY SAFRA HAS MADE HOUSING AVAILABLE FOR ABOUT 130,000 ADULT PATIENTS OF THE NIH CLINICAL CENTER AND THEIR LOVED ONES SINCE 2005. THESE BRAVE PATIENTS TRAVEL WITH THEIR FAMILIES FROM AROUND THE WORLD TO PARTICIPATE IN VITAL RESEARCH AT THE NIH CLINICAL CENTER, WHICH IS KNOWN FOR ITS HISTORY OF MEDICAL BREAKTHROUGHS, INCLUDING THE DEVELOPMENT OF CHEMOTHERAPY FOR CANCER AND THE FIRST AIDS TREATMENT. LOCATED WITHIN WALKING DISTANCE OF THE NIH CLINICAL CENTER, THIS ENGLISH MANOR STYLE RESIDENCE FEATURES 34 SPACIOUS GUEST ROOMS. ITS ELEGANT KITCHEN, LIBRARY, FITNESS AND BUSINESS CENTERS, AND GARDENS, ALONGSIDE ITS DEDICATED ONSITE TEAM, OFFER FAMILIES A HOME-LIKE PLACE OF RESPITE DURING THEIR TIME OF NEED. BY CARING FOR THESE COURAGEOUS FAMILIES, MRS. SAFRA IS ENSURING CRUCIAL BIOMEDICAL RESEARCH RAPIDLY PROGRESSES TO IMPROVE THE HEALTH OF CURRENT PATIENTS AND THOSE IN THE YEARS AHEAD. LEARN MORE ABOUT THE FAMILY LODGE AT FNIH.ORG/FAMILYLODGE.
4d
Other program services (Describe in Schedule O.)
(Expenses $
66,782
including grants of $
) (Revenue $
)
4e
Total program service expenses
51,641,501
Form
990
(2017)
Page 3
Form 990 (2017)
Page
3
Part IV
Checklist of Required Schedules
Yes
No
1
Is the organization described in section 501(c)(3) or 4947(a)(1) (other than a private foundation)?
If "Yes," complete Schedule A
.....................
1
Yes
2
Is the organization required to complete
Schedule B, Schedule of Contributors
(see instructions)?
...
2
Yes
3
Did the organization engage in direct or indirect political campaign activities on behalf of or in opposition to candidates for public office?
If "Yes," complete Schedule C, Part I
.............
3
No
4
Section 501(c)(3) organizations.
Did the organization engage in lobbying activities, or have a section 501(h) election in effect during the tax year?
If "Yes," complete Schedule C, Part II
..............
4
Yes
5
Is the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives membership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19?
If "Yes," complete Schedule C, Part III
.................
5
No
6
Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distribution or investment of amounts in such funds or accounts?
If "Yes," complete Schedule D, Part I
..................
6
Yes
7
Did the organization receive or hold a conservation easement, including easements to preserve open space,
the environment, historic land areas, or historic structures?
If "Yes," complete Schedule D, Part II
...
7
No
8
Did the organization maintain collections of works of art, historical treasures, or other similar assets?
If "Yes," complete Schedule D, Part III
.............
8
No
9
Did the organization report an amount in Part X, line 21 for escrow or custodial account liability; serve as a custodian for amounts not listed in Part X; or provide credit counseling, debt management, credit repair, or debt negotiation services?
If "Yes," complete Schedule D, Part IV
..............
9
Yes
10
Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi-endowments?
If "Yes," complete Schedule D, Part V
......
10
Yes
11
If the organization’s answer to any of the following questions is "Yes," then complete Schedule D, Parts VI, VII, VIII, IX, or X as applicable.
a
Did the organization report an amount for land, buildings, and equipment in Part X, line 10?
If "Yes," complete Schedule D, Part VI.
...................
11a
Yes
b
Did the organization report an amount for investments—other securities in Part X, line 12 that is 5% or more of its total assets reported in Part X, line 16?
If "Yes," complete Schedule D, Part VII
.......
11b
No
c
Did the organization report an amount for investments—program related in Part X, line 13 that is 5% or more of its total assets reported in Part X, line 16?
If "Yes," complete Schedule D, Part VIII
.......
11c
No
d
Did the organization report an amount for other assets in Part X, line 15 that is 5% or more of its total assets reported in Part X, line 16?
If "Yes," complete Schedule D, Part IX
............
11d
No
e
Did the organization report an amount for other liabilities in Part X, line 25?
If "Yes," complete Schedule D, Part X
11e
Yes
f
Did the organization’s separate or consolidated financial statements for the tax year include a footnote that addresses the organization’s liability for uncertain tax positions under FIN 48 (ASC 740)?
If "Yes," complete Schedule D, Part X
11f
Yes
12a
Did the organization obtain separate, independent audited financial statements for the tax year?
If "Yes," complete Schedule D, Parts XI and XII
.................
12a
Yes
b
Was the organization included in consolidated, independent audited financial statements for the tax year?
If "Yes," and if the organization answered "No" to line 12a, then completing Schedule D, Parts XI and XII is optional
12b
No
13
Is the organization a school described in section 170(b)(1)(A)(ii)?
If "Yes," complete Schedule E
13
No
14a
Did the organization maintain an office, employees, or agents outside of the United States?
.....
14a
No
b
Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, business, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more?
If "Yes," complete Schedule F, Parts I and IV
.........
14b
Yes
15
Did the organization report on Part IX, column (A), line 3, more than $5,000 of grants or other assistance to or for any foreign organization?
If “Yes,” complete Schedule F, Parts II and IV
.....
15
Yes
16
Did the organization report on Part IX, column (A), line 3, more than $5,000 of aggregate grants or other assistance to or for foreign individuals?
If “Yes,” complete Schedule F, Parts III and IV
...
16
No
17
Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part IX, column (A), lines 6 and 11e?
If "Yes," complete Schedule G, Part I
(see instructions)
....
17
No
18
Did the organization report more than $15,000 total of fundraising event gross income and contributions on Part VIII, lines 1c and 8a?
If "Yes," complete Schedule G, Part II
............
18
Yes
19
Did the organization report more than $15,000 of gross income from gaming activities on Part VIII, line 9a?
If "Yes," complete Schedule G, Part III
...................
19
No
Form
990
(2017)
Page 4
Form 990 (2017)
Page
4
Part IV
Checklist of Required Schedules
(continued)
Yes
No
20a
Did the organization operate one or more hospital facilities?
If "Yes," complete Schedule H
....
20a
No
b
If "Yes" to line 20a, did the organization attach a copy of its audited financial statements to this return?
20b
21
Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government on Part IX, column (A), line 1?
If “Yes,” complete Schedule I, Parts I and II
.....
21
Yes
22
Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on Part IX, column (A), line 2?
If “Yes,” complete Schedule I, Parts I and III
........
22
Yes
23
Did the organization answer "Yes" to Part VII, Section A, line 3, 4, or 5 about compensation of the organization’s current and former officers, directors, trustees, key employees, and highest compensated employees?
If "Yes," complete Schedule J
.......................
23
Yes
24a
Did the organization have a tax-exempt bond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after December 31, 2002?
If “Yes,” answer lines 24b through 24d and complete Schedule K. If “No,” go to line 25a
...............
24a
No
b
Did the organization invest any proceeds of tax-exempt bonds beyond a temporary period exception?
...
24b
c
Did the organization maintain an escrow account other than a refunding escrow at any time during the year
to defease any tax-exempt bonds?
...............
24c
d
Did the organization act as an "on behalf of" issuer for bonds outstanding at any time during the year?
...
24d
25a
Section 501(c)(3), 501(c)(4), and 501(c)(29) organizations.
Did the organization engage in an excess benefit transaction with a disqualified person during the year?
If "Yes," complete Schedule L, Part I
............
25a
No
b
Is the organization aware that it engaged in an excess benefit transaction with a disqualified person in a prior year, and that the transaction has not been reported on any of the organization’s prior Forms 990 or 990-EZ?
If "Yes," complete Schedule L, Part I
...................
25b
No
26
Did the organization report any amount on Part X, line 5, 6, or 22 for receivables from or payables to any current or former officers, directors, trustees, key employees, highest compensated employees, or disqualified persons?
If "Yes," complete Schedule L, Part II
................
26
No
27
Did the organization provide a grant or other assistance to an officer, director, trustee, key employee, substantial contributor or employee thereof, a grant selection committee member, or to a 35% controlled entity or family member of any of these persons?
If "Yes," complete Schedule L, Part III
.........
27
No
28
Was the organization a party to a business transaction with one of the following parties (see Schedule L, Part IV instructions for applicable filing thresholds, conditions, and exceptions):
a
A current or former officer, director, trustee, or key employee?
If "Yes," complete Schedule L,
Part IV
........................
28a
No
b
A family member of a current or former officer, director, trustee, or key employee?
If "Yes," complete Schedule L, Part IV
.....................
28b
No
c
An entity of which a current or former officer, director, trustee, or key employee (or a family member thereof) was an officer, director, trustee, or direct or indirect owner?
If "Yes," complete Schedule L, Part IV
...
28c
No
29
Did the organization receive more than $25,000 in non-cash contributions?
If "Yes," complete Schedule M
..
29
Yes
30
Did the organization receive contributions of art, historical treasures, or other similar assets, or qualified conservation contributions?
If "Yes," complete Schedule M
.............
30
No
31
Did the organization liquidate, terminate, or dissolve and cease operations?
If "Yes," complete Schedule N, Part I
.
31
No
32
Did the organization sell, exchange, dispose of, or transfer more than 25% of its net assets?
If "Yes," complete Schedule N, Part II
...........
32
No
33
Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections 301.7701-2 and 301.7701-3?
If "Yes," complete Schedule R, Part I
........
33
No
34
Was the organization related to any tax-exempt or taxable entity?
If "Yes," complete Schedule R, Part II, III, or IV, and Part V, line 1
.........................
34
No
35a
Did the organization have a controlled entity within the meaning of section 512(b)(13)?
35a
No
b
If ‘Yes’ to line 35a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 512(b)(13)?
If "Yes," complete Schedule R, Part V, line 2
...
35b
36
Section 501(c)(3) organizations.
Did the organization make any transfers to an exempt non-charitable related organization?
If "Yes," complete Schedule R, Part V, line 2
.............
36
No
37
Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes?
If "Yes," complete Schedule R, Part VI
37
No
38
Did the organization complete Schedule O and provide explanations in Schedule O for Part VI, lines 11b and 19?
Note.
All Form 990 filers are required to complete Schedule O.
............
38
Yes
Form
990
(2017)
Page 5
Form 990 (2017)
Page
5
Part V
Statements Regarding Other IRS Filings and Tax Compliance
Check if Schedule O contains a response or note to any line in this Part V
...........
Yes
No
1a
Enter the number reported in Box 3 of Form 1096 Enter -0- if not applicable
..
1a
32
b
Enter the number of Forms W-2G included in line 1a.
Enter -0-
if not applicable
.
1b
0
c
Did the organization comply with backup withholding rules for reportable payments to vendors and reportable gaming (gambling) winnings to prize winners?
..................
1c
Yes
2a
Enter the number of employees reported on Form W-3, Transmittal of Wage and
Tax Statements, filed for the calendar year ending with or within the year covered by this return
..................
2a
56
b
If at least one is reported on line 2a, did the organization file all required federal employment tax returns?
Note.
If the sum of lines 1a and 2a is greater than 250, you may be required to e-file (see instructions)
2b
Yes
3a
Did the organization have unrelated business gross income of $1,000 or more during the year?
...
3a
No
b
If “Yes,” has it filed a Form 990-T for this year?
If “No” to line 3b, provide an explanation in Schedule O
...
3b
4a
At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a bank account, securities account, or other financial account)?
..
4a
No
b
If "Yes," enter the name of the foreign country:
See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR).
5a
Was the organization a party to a prohibited tax shelter transaction at any time during the tax year?
..
5a
No
b
Did any taxable party notify the organization that it was or is a party to a prohibited tax shelter transaction?
5b
No
c
If "Yes," to line 5a or 5b, did the organization file Form 8886-T?
............
5c
6a
Does the organization have annual gross receipts that are normally greater than $100,000, and did the organization solicit any contributions that were not tax deductible as charitable contributions?
...
6a
No
b
If "Yes," did the organization include with every solicitation an express statement that such contributions or gifts were not tax deductible?
......................
6b
7
Organizations that may receive deductible contributions under section 170(c).
a
Did the organization receive a payment in excess of $75 made partly as a contribution and partly for goods and services provided to the payor?
....................
7a
No
b
If "Yes," did the organization notify the donor of the value of the goods or services provided?
.....
7b
c
Did the organization sell, exchange, or otherwise dispose of tangible personal property for which it was required to file Form 8282?
.........................
7c
No
d
If "Yes," indicate the number of Forms 8282 filed during the year
....
7d
e
Did the organization receive any funds, directly or indirectly, to pay premiums on a personal benefit contract?
7e
No
f
Did the organization, during the year, pay premiums, directly or indirectly, on a personal benefit contract?
..
7f
No
g
If the organization received a contribution of qualified intellectual property, did the organization file Form 8899 as required?
......................
7g
h
If the organization received a contribution of cars, boats, airplanes, or other vehicles, did the organization file a Form 1098-C?
..........................
7h
8
Sponsoring organizations maintaining donor advised funds.
Did a donor advised fund maintained by the sponsoring organization have excess business holdings at any time during the year?
.........................
8
9a
Did the sponsoring organization make any taxable distributions under section 4966?
...
9a
b
Did the sponsoring organization make a distribution to a donor, donor advisor, or related person?
...
9b
10
Section 501(c)(7) organizations.
Enter:
a
Initiation fees and capital contributions included on Part VIII, line 12
...
10a
b
Gross receipts, included on Form 990, Part VIII, line 12, for public use of club facilities
10b
11
Section 501(c)(12) organizations.
Enter:
a
Gross income from members or shareholders
.........
11a
b
Gross income from other sources (Do not net amounts due or paid to other sources against amounts due or received from them.)
..........
11b
12a
Section 4947(a)(1) non-exempt charitable trusts.
Is the organization filing Form 990 in lieu of Form 1041?
12a
b
If "Yes," enter the amount of tax-exempt interest received or accrued during the year.
12b
13
Section 501(c)(29) qualified nonprofit health insurance issuers.
a
Is the organization licensed to issue qualified health plans in more than one state?
Note.
See the instructions for additional information the organization must report on Schedule O.
13a
b
Enter the amount of reserves the organization is required to maintain by the states in which the organization is licensed to issue qualified health plans
....
13b
c
Enter the amount of reserves on hand
............
13c
14a
Did the organization receive any payments for indoor tanning services during the tax year?
.....
14a
No
b
If "Yes," has it filed a Form 720 to report these payments?
If "No," provide an explanation in Schedule O
..
14b
Form
990
(2017)
Page 6
Form 990 (2017)
Page
6
Part VI
Governance, Management, and Disclosure
For each "Yes" response to lines 2 through 7b below, and for a "No" response to lines
8a, 8b, or 10b below, describe the circumstances, processes, or changes in Schedule O. See instructions.
Check if Schedule O contains a response or note to any line in this Part VI
..............
Section A. Governing Body and Management
Yes
No
1a
Enter the number of voting members of the governing body at the end of the tax year
1a
26
If there are material differences in voting rights among members of the governing body, or if the governing body delegated broad authority to an executive committee or similar committee, explain in Schedule O.
b
Enter the number of voting members included in line 1a, above, who are independent
1b
25
2
Did any officer, director, trustee, or key employee have a family relationship or a business relationship with any other officer, director, trustee, or key employee?
.................
2
Yes
3
Did the organization delegate control over management duties customarily performed by or under the direct supervision of officers, directors or trustees, or key employees to a management company or other person?
.
3
No
4
Did the organization make any significant changes to its governing documents since the prior Form 990 was filed?
...........................
4
No
5
Did the organization become aware during the year of a significant diversion of the organization’s assets?
.
5
No
6
Did the organization have members or stockholders?
................
6
No
7a
Did the organization have members, stockholders, or other persons who had the power to elect or appoint one or more members of the governing body?
....................
7a
No
b
Are any governance decisions of the organization reserved to (or subject to approval by) members, stockholders, or persons other than the governing body?
...................
7b
No
8
Did the organization contemporaneously document the meetings held or written actions undertaken during the year by the following:
a
The governing body?
.......................
8a
Yes
b
Each committee with authority to act on behalf of the governing body?
............
8b
Yes
9
Is there any officer, director, trustee, or key employee listed in Part VII, Section A, who cannot be reached at the organization’s mailing address?
If "Yes," provide the names and addresses in Schedule O
.......
9
No
Section B. Policies
(
This Section B requests information about policies not required by the Internal Revenue Code.
)
Yes
No
10a
Did the organization have local chapters, branches, or affiliates?
............
10a
No
b
If "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates, and branches to ensure their operations are consistent with the organization's exempt purposes?
10b
11a
Has the organization provided a complete copy of this Form 990 to all members of its governing body before filing the form?
............................
11a
Yes
b
Describe in Schedule O the process, if any, used by the organization to review this Form 990.
.....
12a
Did the organization have a written conflict of interest policy?
If "No," go to line 13
.......
12a
Yes
b
Were officers, directors, or trustees, and key employees required to disclose annually interests that could give rise to conflicts?
..........................
12b
Yes
c
Did the organization regularly and consistently monitor and enforce compliance with the policy?
If "Yes," describe in Schedule O how this was done
...................
12c
Yes
13
Did the organization have a written whistleblower policy?
...............
13
Yes
14
Did the organization have a written document retention and destruction policy?
.........
14
Yes
15
Did the process for determining compensation of the following persons include a review and approval by independent persons, comparability data, and contemporaneous substantiation of the deliberation and decision?
a
The organization’s CEO, Executive Director, or top management official
...........
15a
Yes
b
Other officers or key employees of the organization
................
15b
Yes
If "Yes" to line 15a or 15b, describe the process in Schedule O (see instructions).
16a
Did the organization invest in, contribute assets to, or participate in a joint venture or similar arrangement with a taxable entity during the year?
......................
16a
No
b
If "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicable federal tax law, and take steps to safeguard the organization’s exempt status with respect to such arrangements?
............
16b
Section C. Disclosure
17
List the States with which a copy of this Form 990 is required to be filed
MD
,
VA
,
NY
,
AL
,
AK
,
AR
,
CA
,
CO
,
CT
,
FL
,
GA
,
HI
,
IL
,
KS
,
KY
,
ME
,
MA
,
MI
,
MS
,
MN
,
NH
,
NJ
,
NM
,
NC
,
ND
,
OH
,
OK
,
OR
,
PA
,
RI
,
SC
,
TN
,
UT
,
WA
,
WV
,
WI
18
Section 6104 requires an organization to make its Form 1023 (or 1024 if applicable), 990, and 990-T (501(c)(3)s only) available for public inspection. Indicate how you made these available. Check all that apply.
Own website
Another's website
Upon request
Other (explain in Schedule O)
19
Describe in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial statements available to the public during the tax year.
20
State the name, address, and telephone number of the person who possesses the organization's books and records:
DONALD M HILL
11400 ROCKVILLE PIKE
NORTH BETHESDA
,
MD
20852
(301) 402-5311
Form
990
(2017)
Page 7
Form 990 (2017)
Page
7
Part VII
Compensation of Officers, Directors,Trustees, Key Employees, Highest Compensated Employees, and Independent Contractors
Check if Schedule O contains a response or note to any line in this Part VII
..............
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
1a
Complete this table for all persons required to be listed. Report compensation for the calendar year ending with or within the organization’s tax year.
List all of the organization’s
current
officers, directors, trustees (whether individuals or organizations), regardless of amount
of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid.
List all of the organization’s
current
key employees, if any. See instructions for definition of "key employee."
List the organization’s five
current
highest compensated employees (other than an officer, director, trustee or key employee)
who received reportable compensation (Box 5 of Form W-2 and/or Box 7 of Form 1099-MISC) of more than $100,000 from the
organization and any related organizations.
List all of the organization’s
former
officers, key employees, or highest compensated employees who received more than $100,000
of reportable compensation from the organization and any related organizations.
List all of the organization’s
former directors or trustees
that received, in the capacity as a former director or trustee of the
organization, more than $10,000 of reportable compensation from the organization and any related organizations.
List persons in the following order: individual trustees or directors; institutional trustees; officers; key employees; highest
compensated employees; and former such persons.
Check this box if neither the organization nor any related organization compensated any current officer, director, or trustee.
(A)
Name and Title
(B)
Average hours per week (list any hours for related organizations below dotted line)
(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee)
(D)
Reportable compensation from the organization (W- 2/1099-MISC)
(E)
Reportable compensation from related organizations (W- 2/1099-MISC)
(F)
Estimated amount of other compensation from the organization and related organizations
(1)
DR STEVEN M PAUL
......................................................................
CHAIRMAN
1.50
.................
X
X
0
0
0
(2)
MR STEVEN C MAYER
......................................................................
TREASURER
2.00
.................
X
X
0
0
0
(3)
DR SOLOMON H SNYDER
......................................................................
VICE-CHAIRMAN
0.50
.................
X
X
0
0
0
(4)
MRS WILLIAM MCCORMICK BLAIR JR
......................................................................
SECRETARY
1.00
.................
X
X
0
0
0
(5)
DR MARIA C FREIRE
......................................................................
PRESIDENT AND EXECUTIVE DIRECTOR
40.00
.................
X
X
430,206
0
27,000
(6)
DR KATHY BLOOMGARDEN
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
(7)
MRS WILLIAM N CAFRITZ
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
(8)
MR JAMES H DONOVAN
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
(9)
DR PAUL L HERRLING
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
(10)
DR THOMAS R INSEL
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
(11)
DR JUDY LANSING KOVLER
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
(12)
DR RONALD L KRALL
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
(13)
DR FREDA C LEWIS-HALL
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
(14)
DR EDISON T LIU
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
(15)
MR JOEL S MARCUS
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
(16)
DR PAUL M MONTRONE
......................................................................
BOARD OF DIRECTORS MEMBER
1.00
.................
X
0
0
0
(17)
DR MARTIN J MURPHY JR
......................................................................
BOARD OF DIRECTORS MEMBER
0.50
.................
X
0
0
0
Form
990
(2017)
Page 8
Form 990 (2017)
Page
8
Part VII
Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees
(continued)
(A)
Name and Title
(B)
Average hours per week (list any hours for related organizations below dotted line)
(C)
Position (do not check more than one box, unless person is both an officer and a director/trustee)
(D)
Reportable compensation from the organization (W- 2/1099-MISC)
(E)
Reportable compensation from related organizations (W- 2/1099-MISC)
(F)
Estimated amount of other compensation from the organization and related organizations
(18)
DAME JILLIAN SACKLER
........................................................................
BOARD OF DIRECTORS MEMBER
0.50
.......................
X
0
0
0
(19)
DR CHARLES A SANDERS
........................................................................
BOARD OF DIRECTORS MEMBER
0.50
.......................
X
0
0
0
(20)
MRS LILY SAFRA
........................................................................
BOARD OF DIRECTORS MEMBER
0.50
.......................
X
0
0
0
(21)
DR ELLEN V SIGAL
........................................................................
BOARD OF DIRECTORS MEMBER
0.50
.......................
X
0
0
0
(22)
MS NINA SOLARZ
........................................................................
BOARD OF DIRECTORS MEMBER
0.50
.......................
X
0
0
0
(23)
MR RUSSELL W STEENBERG
........................................................................
BOARD OF DIRECTORS MEMBER
0.50
.......................
X
0
0
0
(24)
DR PAUL STOFFELS
........................................................................
BOARD OF DIRECTORS MEMBER
0.50
.......................
X
0
0
0
(25)
DR SAMUEL O THIER
........................................................................
BOARD OF DIRECTORS MEMBER
0.50
.......................
X
0
0
0
(26)
MR FRED SEIGEL
........................................................................
BOARD OF DIRECTORS MEMBER
0.50
.......................
X
0
0
0
(27)
DR STEPHANIE JAMES
........................................................................
SENIOR VP OF SCIENCE
40.00
.......................
X
314,688
0
27,000
(28)
MR DAVID WHOLLEY
........................................................................
SENIOR VP OF RESEARCH PARTNERSHIPS
40.00
.......................
X
310,988
0
38,744
(29)
MS JULIE TUNE
........................................................................
CFO THROUGH APRIL 2017
40.00
.......................
X
184,774
0
22,430
(30)
MS JULIA WOLF-RODDA
........................................................................
SENIOR VP OF DEVELOPMENT
40.00
.......................
X
211,285
0
32,672
(31)
MR KEVIN A KLOCK
........................................................................
VP OF OPERATIONS & GENERAL COUNSEL
40.00
.......................
X
210,285
0
32,502
(32)
MR ROBERT BALTHASER
........................................................................
VICE PRESIDENT OF ADVANCEMENT
40.00
.......................
X
152,986
0
20,672
(33)
DR JOSEPH MENETSKI
........................................................................
ASSOCIATE VP OF RESEARCH PARTNERSHIPS
40.00
.......................
X
208,288
0
32,573
(34)
DR KAREN TOUNTAS
........................................................................
SCIENTIFIC PROGRAM MANAGER
40.00
.......................
X
172,975
0
29,041
(35)
DR MICHAEL GOTTLIEB
........................................................................
ASSOCIATE DIRECTOR OF SCIENCE
40.00
.......................
X
171,195
0
17,120
(36)
DR ROSA CANET AVILES
........................................................................
SCIENTIFIC PROGRAM MANAGER, NEUROSCIENCE
40.00
.......................
X
161,141
0
27,608
(37)
DR STACEY ADAM
........................................................................
DIRECTOR OF CANCER
40.00
.......................
X
156,878
0
21,105
1b
Sub-Total
................
c
Total from continuation sheets to Part VII, Section A
....
d
Total (add lines 1b and 1c)
...........
2,685,689
0
328,467
2
Total number of individuals (including but not limited to those listed above) who received more than $100,000 of reportable compensation from the organization
21
Yes
No
3
Did the organization list any
former
officer, director or trustee, key employee, or highest compensated employee on line 1a?
If "Yes," complete Schedule J for such individual
..............
3
No
4
For any individual listed on line 1a, is the sum of reportable compensation and other compensation from the organization and related organizations greater than $150,000?
If "Yes," complete Schedule J for such
individual
...........................
4
Yes
5
Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization?
If "Yes," complete Schedule J for such person
........
5
No
Section B. Independent Contractors
1
Complete this table for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization’s tax year.
(A)
Name and business address
(B)
Description of services
(C)
Compensation
SWOG CTI
24 FRANK LLOYD WRIGHT DRIVE PO BOX
ANN ARBOR
,
MI
48105
CONDUCTS CLINICAL TRIAL FOR LUNGMAP
10,985,114
AVID RADIOPHARMACEUTICALS INC
3711 MARKET STREET 7TH FLOOR
PHILADELPHIA
,
PA
19104
CONDUCTS CLINICAL TRIAL FOR AMP AD
574,750
MARRIOTT BUSINESS SERVICES
PO BOX 402642
ATLANTA
,
GA
30384
MEETING SERVICES FOR VARIOUS PROJECTS
562,290
CCS ASSOCIATES INC
PO BOX 9125
MCLEAN
,
VA
22102
PROFESSIONAL SERVICE FOR VARIOUS RESEARC
237,709
OFFICE IMAGES INC
7650 STANDISH PLACE 109
ROCKVILLE
,
MD
20855
PROFESSIONAL SERVICE FOR NEW OFFICE MOVE
226,736
2
Total number of independent contractors (including but not limited to those listed above) who received more than $100,000 of compensation from the organization
16
Form
990
(2017)
Page 9
Form 990 (2017)
Page
9
Part VIII
Statement of Revenue
Check if Schedule O contains a response or note to any line in this Part VIII
.............
(A)
Total revenue
(B)
Related or
exempt
function
revenue
(C)
Unrelated
business
revenue
(D)
Revenue
excluded from
tax under sections
512-514
1a
Federated campaigns
..
1a
b
Membership dues
..
1b
c
Fundraising events
..
1c
55,500
d
Related organizations
1d
e
Government grants (contributions)
1e
1,110,000
f
All other contributions, gifts, grants, and similar amounts not included above
1f
60,156,659
g
Noncash contributions included
in lines 1a-1f:$
1,284,335
h Total.
Add lines 1a-1f
.......
61,322,159
Business Code
2a
ADMINISTRATIVE FEES
561000
111,660
111,660
b
c
d
e
f
All other program service revenue .
g
Total.
Add lines 2a–2f
....
111,660
3
Investment income (including dividends, interest, and other
similar amounts)
......
1,066,052
1,066,052
4
Income from investment of tax-exempt bond proceeds
5
Royalties
...........
(ii) Personal
(i) Real
6a
Gross rents
b
Less: rental expenses
c
Rental income or (loss)
d
Net rental income or (loss)
......
(ii) Other
(i) Securities
7a
Gross amount from sales of assets other than inventory
189,739,894
b
Less: cost or other basis and sales expenses
189,407,748
c
Gain or (loss)
332,146
d
Net gain or (loss)
.....
332,146
332,146
8a
Gross income from fundraising events (not including $
55,500
of contributions reported on line 1c).
See Part IV, line 18
....
a
269,200
b
Less: direct expenses
...
b
223,177
c
Net income or (loss) from fundraising events
..
46,023
46,023
9a
Gross income from gaming activities.
See Part IV, line 19
...
a
b
Less: direct expenses
...
b
c
Net income or (loss) from gaming activities
..
10a
Gross sales of inventory, less
returns and allowances
..
a
b
Less: cost of goods sold
..
b
c
Net income or (loss) from sales of inventory
..
Business Code
Miscellaneous Revenue
11a
b
c
d
All other revenue
....
e
Total.
Add lines 11a–11d
......
12
Total revenue.
See Instructions.
.....
62,878,040
111,660
0
1,444,221
Form
990
(2017)
Page 10
Form 990 (2017)
Page
10
Part IX
Statement of Functional Expenses
Section 501(c)(3) and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A).
Check if Schedule O contains a response or note to any line in this Part IX
..............
Do not include amounts reported on lines 6b,
7b, 8b, 9b, and 10b of Part VIII.
(A)
Total expenses
(B)
Program service
expenses
(C)
Management and
general expenses
(D)
Fundraising
expenses
1
Grants and other assistance to domestic organizations and domestic governments. See Part IV, line 21
27,501,129
27,501,129
2
Grants and other assistance to domestic individuals. See Part IV, line 22
21,522
21,522
3
Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part IV, line 15 and 16.
7,440,498
7,440,498
4
Benefits paid to or for members
5
Compensation of current officers, directors, trustees, and key employees
....
2,113,219
1,018,284
1,084,065
10,870
6
Compensation not included above, to disqualified persons (as defined under section 4958(f)(1)) and persons described in section 4958(c)(3)(B)
....
7
Other salaries and wages
3,568,530
1,980,845
1,504,919
82,766
8
Pension plan accruals and contributions (include section 401(k) and 403(b) employer contributions)
....
361,295
185,356
163,051
12,888
9
Other employee benefits
.......
704,237
372,854
321,804
9,579
10
Payroll taxes
...........
380,876
170,614
210,262
11
Fees for services (non-employees):
a
Management
......
b
Legal
.........
75,937
62,140
13,797
c
Accounting
...........
54,370
54,370
d
Lobbying
...........
e
Professional fundraising services.
See Part IV, line 17
f
Investment management fees
......
121,417
34,246
87,171
g
Other (If line 11g amount exceeds 10% of line 25, column (A) amount, list line 11g expenses on Schedule O)
12
Advertising and promotion
....
13,279
2,355
10,924
13
Office expenses
.......
22,141
8,300
13,758
83
14
Information technology
......
97,154
50,680
32,702
13,772
15
Royalties
..
16
Occupancy
...........
491,771
179,199
312,572
17
Travel
............
1,969,765
1,856,702
110,580
2,483
18
Payments of travel or entertainment expenses for any federal, state, or local public officials
.
19
Conferences, conventions, and meetings
....
20
Interest
...........
21
Payments to affiliates
.......
22
Depreciation, depletion, and amortization
..
51,250
51,250
23
Insurance
...
198,275
147,202
51,073
24
Other expenses. Itemize expenses not covered above (List miscellaneous expenses in line 24e. If line 24e amount exceeds 10% of line 25, column (A) amount, list line 24e expenses on Schedule O.)
a
PROGRAM CONTRACTS
10,344,497
10,344,497
b
CONSULTANTS
1,249,273
1,002,100
181,173
66,000
c
RELOCATION
352,047
5,000
347,047
d
TEMPORARY SERVICES
183,653
159,278
24,375
e
All other expenses
-652,322
-901,300
239,416
9,562
25
Total functional expenses.
Add lines 1 through 24e
56,663,813
51,641,501
4,814,309
208,003
26
Joint costs.
Complete this line only if the organization reported in column (B) joint costs from a combined educational campaign and fundraising solicitation.
Check here
if following SOP 98-2 (ASC 958-720).
Form
990
(2017)
Page 11
Form 990 (2017)
Page
11
Part X
Balance Sheet
Check if Schedule O contains a response or note to any line in this Part IX
..............
(A)
Beginning of year
(B)
End of year
1
Cash–non-interest-bearing
........
1
2
Savings and temporary cash investments
.........
46,693,317
2
25,197,544
3
Pledges and grants receivable, net
......
26,338,796
3
23,480,012
4
Accounts receivable, net
.............
4
5
Loans and other receivables from current and former officers, directors, trustees, key employees, and highest compensated employees. Complete Part II of Schedule L
.............
5
6
Loans and other receivables from other disqualified persons (as defined under section 4958(f)(1)), persons described in section 4958(c)(3)(B), and contributing employers and sponsoring organizations of section 501(c)(9) voluntary employees' beneficiary organizations (see instructions) Complete Part II of Schedule L
..............
6
7
Notes and loans receivable, net
....
7
8
Inventories for sale or use
........
8
9
Prepaid expenses and deferred charges
......
90,770
9
154,153
10a
Land, buildings, and equipment: cost or other basis. Complete Part VI of Schedule D
10a
2,354,766
b
Less: accumulated depreciation
10b
701,489
42,605
10c
1,653,277
11
Investments—publicly traded securities
.
43,080,177
11
69,726,056
12
Investments—other securities. See Part IV, line 11
.....
12
13
Investments—program-related. See Part IV, line 11
..
13
14
Intangible assets
...............
14
15
Other assets. See Part IV, line 11
...........
138,258
15
221,373
16
Total assets.
Add lines 1 through 15 (must equal line 34)
...
116,383,923
16
120,432,415
17
Accounts payable and accrued expenses
.....
8,076,645
17
3,704,459
18
Grants payable
...
18
19
Deferred revenue
.........
4,474,530
19
3,382,073
20
Tax-exempt bond liabilities
.........
20
21
Escrow or custodial account liability.
Complete Part IV of Schedule D
453,876
21
1,240,626
22
Loans and other payables to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified
persons.
Complete Part II of Schedule L
..
22
23
Secured mortgages and notes payable to unrelated third parties
..
23
24
Unsecured notes and loans payable to unrelated third parties
..
24
25
Other liabilities (including federal income tax, payables to related third parties, and other liabilities not included on lines 17-24).
Complete Part X of Schedule D
150,542
25
1,617,638
26
Total liabilities.
Add lines 17 through 25
..
13,155,593
26
9,944,796
Organizations that follow SFAS 117 (ASC 958),
check here
and complete lines 27 through 29, and lines 33 and 34.
27
Unrestricted net assets
13,322,940
27
15,970,742
28
Temporarily restricted net assets
...........
86,811,639
28
91,433,211
29
Permanently restricted net assets
3,093,751
29
3,083,666
Organizations that do not follow SFAS 117 (ASC 958),
check here
and complete lines 30 through 34.
30
Capital stock or trust principal, or current funds
.....
30
31
Paid-in or capital surplus, or land, building or equipment fund
...
31
32
Retained earnings, endowment, accumulated income, or other funds
32
33
Total net assets or fund balances
...........
103,228,330
33
110,487,619
34
Total liabilities and net assets/fund balances
........
116,383,923
34
120,432,415
Form
990
(2017)
Page 12
Form 990 (2017)
Page
12
Part XI
Reconcilliation of Net Assets
Check if Schedule O contains a response or note to any line in this Part XI
..............
1
Total revenue (must equal Part VIII, column (A), line 12)
............
1
62,878,040
2
Total expenses (must equal Part IX, column (A), line 25)
............
2
56,663,813
3
Revenue less expenses. Subtract line 2 from line 1
..............
3
6,214,227
4
Net assets or fund balances at beginning of year (must equal Part X, line 33, column (A))
..
4
103,228,330
5
Net unrealized gains (losses) on investments
...............
5
1,045,062
6
Donated services and use of facilities
.................
6
7
Investment expenses
.....................
7
8
Prior period adjustments
.....................
8
9
Other changes in net assets or fund balances (explain in Schedule O)
........
9
0
10
Net assets or fund balances at end of year. Combine lines 3 through 9 (must equal Part X, line 33, column (B))
10
110,487,619
Part XII
Financial Statements and Reporting
Check if Schedule O contains a response or note to any line in this Part XII
.............
Yes
No
1
Accounting method used to prepare the Form 990:
Cash
Accrual
Other
If the organization changed its method of accounting from a prior year or checked "Other," explain in
Schedule O.
2a
Were the organization’s financial statements compiled or reviewed by an independent accountant?
2a
No
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were compiled or reviewed on a separate basis, consolidated basis, or both:
Separate basis
Consolidated basis
Both consolidated and separate basis
b
Were the organization’s financial statements audited by an independent accountant?
2b
Yes
If ‘Yes,’ check a box below to indicate whether the financial statements for the year were audited on a separate basis, consolidated basis, or both:
Separate basis
Consolidated basis
Both consolidated and separate basis
c
If "Yes," to line 2a or 2b, does the organization have a committee that assumes responsibility for oversight
of the audit, review, or compilation of its financial statements and selection of an independent accountant?
2c
Yes
If the organization changed either its oversight process or selection process during the tax year, explain in Schedule O.
3a
As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit Act and OMB Circular A-133?
3a
No
b
If "Yes," did the organization undergo the required audit or audits?
If the organization did not undergo the required audit or audits, explain why in Schedule O and describe any steps taken to undergo such audits.
3b
Form
990
(2017)
Form 990 (2017)
Additional Data
Software ID:
Software Version:
Form 990, Special Condition Description:
Special Condition Description