Name of the organization
FOUNDATION FOR PRADER-WILLI
RESEARCH INC
Employer identification number
31-1763110
Part I
General Information on Activities Outside the United States.
Complete if the organization answered "Yes" on Form 990, Part IV, line 14b.
other assistance, the grantees’ eligibility for the grants or assistance, and the selection criteria used
Part II
Grants and Other Assistance to Organizations or Entities Outside the United States.
Complete if the organization answered "Yes" on Form 990, Part IV, line 15, for any recipient who received more than $5,000. Part II can be duplicated if additional space is needed.
1 (a) Name of organization
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(b) IRS code section and EIN (if applicable) |
(c) Region |
(d) Purpose of grant |
(e) Amount of cash grant |
(f) Manner of cash disbursement |
(g) Amount of noncash assistance |
(h) Description of noncash assistance |
(i) Method of valuation (book, FMV, appraisal, other) |
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EUROPE (INCLUDING ICELAND & GREENLAND)
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RESEARCH
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95,598 |
WIRE TRANSFER
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EAST ASIA AND THE PACIFIC
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RESEARCH
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97,200 |
WIRE TRANSFER
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EAST ASIA AND THE PACIFIC
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RESEARCH
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7,920 |
WIRE TRANSFER
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NORTH AMERICA
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RESEARCH
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110,000 |
WIRE TRANSFER
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EAST ASIA AND THE PACIFIC
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RESEARCH
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149,228 |
WIRE TRANSFER
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NORTH AMERICA
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RESEARCH
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108,000 |
WIRE TRANSFER
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EUROPE (INCLUDING ICELAND & GREENLAND)
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RESEARCH
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108,000 |
WIRE TRANSFER
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EUROPE (INCLUDING ICELAND & GREENLAND)
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RESEARCH
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92,077 |
WIRE TRANSFER
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2 |
Enter total number of recipient organizations listed above that are recognized as charities by the foreign country,
recognized as tax-exempt by the IRS, or for which the grantee or counsel has provided a section 501(c)(3) equivalency letter
.......
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8 |
3 |
Enter total number of other organizations or entities
.......................
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0 |
Schedule F (Form 990) 2019
Page 3
Schedule F (Form 990) 2019Page 3
Part III
Grants and Other Assistance to Individuals Outside the United States.
Complete if the organization answered "Yes" on Form 990, Part IV, line 16.Part III can be duplicated if additional space is needed.
(a) Type of grant or assistance |
(b) Region |
(c) Number of recipients |
(d) Amount of cash grant |
(e) Manner of cash disbursement |
(f) Amount of noncash assistance |
(g) Description of noncash assistance |
(h) Method of valuation (book, FMV, appraisal, other) |
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Schedule F (Form 990) 2019
Page 4
Schedule F (Form 990) 2019
Page 4
1 |
Was the organization a U.S. transferor of property to a foreign corporation during the tax year?
If "Yes," the organization may be required to file Form 926, Return by a U.S. Transferor of Property
to a Foreign Corporation (see Instructions for Form 926).
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2 |
Did the organization have an interest in a foreign trust during the tax year?
If "Yes," the organization may be required to separately file Form 3520, Annual Return to
Report Transactions with Foreign Trusts and Receipt of Certain Foreign Gifts, and/or
Form 3520-A, Annual Information Return of Foreign Trust With a U.S. Owner (see
Instructions for Forms 3520 and 3520-A; don't file with Form 990).
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3 |
Did the organization have an ownership interest in a foreign corporation during the tax year? If "Yes," the organization may be
required to file Form 5471, Information Return of U.S. Persons with Respect to Certain Foreign Corporations. (see Instructions
for Form 5471).
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4 |
Was the organization a direct or indirect shareholder of a passive foreign investment company or a
qualified electing fund during the tax year? If “Yes,” the organization may be required to file Form 8621,
Information Return by a Shareholder of a Passive Foreign Investment Company or Qualified Electing
Fund. (see Instructions for Form 8621) .
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5 |
Did the organization have an ownership interest in a foreign partnership during the tax year? If "Yes," the organization
may be required to file Form 8865, Return of U.S. Persons with Respect to Certain Foreign Partnerships (see Instructions for Form 8865).
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6 |
Did the organization have any operations in or related to any boycotting countries during the tax year? If "Yes," the
organization may be required to separately file Form 5713, International Boycott Report (see Instructions for Form 5713; don't file with Form 990)..
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Schedule F (Form 990) 2019
Page 5
Schedule F (Form 990) 2019
Page 5
Part V
Supplemental Information
Provide the information required by Part I, line 2 (monitoring of funds); Part I, line 3, column (f) (accounting method; amounts of investments vs. expenditures per region); Part II, line 1 (accounting method); Part III (accounting method); and Part III, column (c) (estimated number of recipients), as applicable. Also complete this part to provide any additional information. See instructions.
ReturnReference |
Explanation |
PART I, LINE 2: |
THE FOUNDATION FOR PRADER-WILLI RESEARCH ("FPWR") HAS A PROFESSIONALLY MANAGED GRANT PROCESS THAT ELECTS PROJECTS BASED ON THE COLLABORATIVE INPUT OF BOTH SCIENTISTS AND PARENTS. FPWR CHOOSES PROJECTS THAT ARE BOTH SCIENTIFICALLY SOUND AND HIGHLY RELEVANT FOR INDIVIDUALS WITH PRADER-WILLI SYNDROME ("PWS") AND THEIR FAMILIES. FPWR'S GRANT PROCESS IS MANAGED BY A SCIENTIFIC ADVISORY BOARD THAT HAS ESTABLISHED THE FOLLOWING OBJECTIVES. 1. STIMULATE RESEARCH THAT WILL ADDRESS THE CHALLENGES FACED BY THOSE WITH PWS. 2. SUPPORT RESEARCH THAT DIRECTLY DEVELOPS AND EVALUATES NEW THERAPEUTIC APPROACHES TO PWS. 3. SUPPORT INNOVATIVE RESEARCH THAT WILL LEAD TO SIGNIFICANT ADVANCES IN UNDERSTANDING PWS. 4. SUPPORT EARLY STUDIES THAT ALLOW INVESTIGATORS TO OBTAIN THE NECESSARY DATA TO SUPPORT FURTHER INVESTIGATION OF PWS. 5. INVOLVE PARENTS IN THE PROCESS OF IDENTIFYING RELEVANT AREAS OF RESEARCH AND SELECTING THE MOST DESERVING RESEARCH PROPOSALS. TO REACH THESE OBJECTIVES, FPWR TARGET THE FOLLOWING GROUPS FOR ALLOCATION OF RESEARCH GRANTS, ALL WITH THE GOAL OF BROADENING THE BASE OF RESEARCH DONE ON PWS. 1. NEW INVESTIGATORS TO HELP THEM ESTABLISH CAREERS IN PWS RESEARCH. 2. WELL ESTABLISHED NON-PWS INVESTIGATORS TO HELP THEM BRING EXPERTISE IN RELEVANT AREAS OF RESEARCH TO ADDRESS THE PROBLEMS ASSOCIATED WITH PWS. 3. ESTABLISHED PWS INVESTIGATORS TO HELP THEM INITIATE NEW LINES OF PWS RESEARCH. |
PART I, LINE 3: |
THE EXPENSES REPORTED IN PART I, LINE 3 AND PART II ARE ACCOUNTED FOR USING THE ACCRUAL METHOD OF ACCOUNTING. |
PART III ACCOUNTING METHOD: |
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Schedule F (Form 990) 2019
Software ID: |
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Software Version: |
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