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Fibromuscular Dysplasia Society Of America Inc

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Medical Specialty Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$159k (2023)

Expenses
$187k (2023)

Total Assets
$145k (2023)

Total Liabilities
$548 (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$159,378
Expenses
$187,385
Net Income
-$28,007
Net Assets
$144,484
Notable Sources of Revenue Percent of Total Revenue
Contributions $147,939
92.8%
Program Services $11,428
7.2%
Investment Income $11
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $145,032
Total Liabilities $548
Net Assets $144,484
Compensation
Key Employees and Officers Compensation Other
Allison Gaines (Director At Lar) $0 $0
Cathlin Jamison (Director At Lar) $0 $0
Jazette Vicedor (Director At Lar) $0 $0
Christi Eberhardt (Director At Lar) $0 $0
Rochelle Desrochers (Director At Lar) $0 $0
Bradley Daar (President) $0 $0
Rosie Miklavcic (Treasurer) $0 $0
Pam Mace (Executive Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$142,247
Expenses
$162,689
Net Income
-$20,442
Net Assets
$172,491
Notable Sources of Revenue Percent of Total Revenue
Contributions $142,236
100.0%
Program Services $0
Investment Income $11
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $2,375
1.5%
Other Salaries and Wages $71,008
43.6%
Assets/Debt
Total Assets $175,125
Total Liabilities $2,634
Net Assets $172,491
Compensation
Key Employees and Officers Compensation Related Other
Allison Gaines (Director At Large) $0 $0 $0
Cathlin Jamison (Director At Large) $0 $0 $0
Jazette Vicedor (Director At Large) $0 $0 $0
Christi Eberhardt (Director At Large) $0 $0 $0
Rochelle Des Rochers (Director At Large) $0 $0 $0
Bradley Daar (President) $0 $0 $0
Rosie Miklavcic (Treasurer) $0 $0 $0
Pamela Mace (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$202,620
Expenses
$157,746
Net Income
$44,874
Net Assets
$192,933
Notable Sources of Revenue Percent of Total Revenue
Contributions $202,598
100.0%
Program Services $0
Investment Income $22
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $64,807
41.1%
Assets/Debt
Total Assets $199,366
Total Liabilities $6,433
Net Assets $192,933
Compensation
Key Employees and Officers Compensation Related Other
Christi Eberhardt (Director At Large) $0 $0 $0
Allison Gaines (Director At Large) $0 $0 $0
Cathlin Jamison (Director At Large) $0 $0 $0
Rochelle Des Rochers (Director At Large) $0 $0 $0
Lisa Foster (Director At Large) $0 $0 $0
Bradley Daar (President) $0 $0 $0
Rosie Miklavcic (Treasurer) $0 $0 $0
Pamela Mace (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$150,966
Expenses
$154,404
Net Income
-$3,438
Net Assets
$148,059
Notable Sources of Revenue Percent of Total Revenue
Contributions $147,225
97.5%
Program Services $3,702
2.5%
Investment Income $39
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $67,695
43.8%
Assets/Debt
Total Assets $161,979
Total Liabilities $13,920
Net Assets $148,059
Compensation
Key Employees and Officers Compensation Related Other
Christi Eberhardt (Director At Large) $0 $0 $0
Molly Clark (Director At Large) $0 $0 $0
Rochelle Des Rochers (Director At Large) $0 $0 $0
Sally Albrigo (Director At Large) $0 $0 $0
Rosie Miklavcic (Director At Large) $0 $0 $0
Claudia Kime (Director At Large) $0 $0 $0
Lisa Foster (Director At Large) $0 $0 $0
Dawn Marisch (Director At Large) $0 $0 $0
Bradley Daar (President) $0 $0 $0
Carol Rogers (Vice President) $0 $0 $0
Virginia Edleman (Secretary) $0 $0 $0
Pamela Mace (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$224,913
Expenses
$173,027
Net Income
$51,886
Net Assets
$151,497
Notable Sources of Revenue Percent of Total Revenue
Contributions $210,821
93.7%
Program Services $13,921
6.2%
Investment Income $171
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $67,059
38.8%
Assets/Debt
Total Assets $154,206
Total Liabilities $2,709
Net Assets $151,497
Compensation
Key Employees and Officers Compensation Related Other
Bradley Daar (President) $0 $0 $0
Carol Rogers (Director At Large) $0 $0 $0
Maureen Womack (Secretary) $0 $0 $0
Lisa Foster (Director At Large) $0 $0 $0
Cindy Basque (Treasurer) $0 $0 $0
Christi Nelson (Director At Large) $0 $0 $0
Molly Clark (Director At Large) $0 $0 $0
Pamela Mace (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$184,053
Expenses
$163,382
Net Income
$20,671
Net Assets
$99,611
Notable Sources of Revenue Percent of Total Revenue
Contributions $175,608
95.4%
Program Services $8,430
4.6%
Investment Income $15
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $64,813
39.7%
Assets/Debt
Total Assets $104,964
Total Liabilities $5,353
Net Assets $99,611
Compensation
Key Employees and Officers Compensation Related Other
Bradley Daar (President) $0 $0 $0
Carol Rogers (Director At Large) $0 $0 $0
Maureen Womack (Secretary) $0 $0 $0
Mimi Petersen (Director At Large) $0 $0 $0
Cindy Basque (Treasurer) $0 $0 $0
Pamela Mace (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$141,479
Expenses
$159,392
Net Income
-$17,913
Net Assets
$78,940
Notable Sources of Revenue Percent of Total Revenue
Contributions $126,926
89.7%
Program Services $11,520
8.1%
Investment Income $21
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $3,012
2.1%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $562
0.4%
Other Salaries and Wages $71,216
44.7%
Assets/Debt
Total Assets $78,940
Total Liabilities $0
Net Assets $78,940
Compensation
Key Employees and Officers Compensation Related Other
Bradley Daar (President) $0 $0 $0
Carol Rogers (Director At Large) $0 $0 $0
Maureen Womack (Secretary) $0 $0 $0
Mimi Petersen (Director At Large) $0 $0 $0
Sara Bailey (Director At Large) $0 $0 $0
Jodi Roth (Director At Large) $0 $0 $0
Pamela Mace (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$169,636
Expenses
$161,252
Net Income
$8,384
Net Assets
$96,853
Notable Sources of Revenue Percent of Total Revenue
Contributions $161,377
95.1%
Program Services $8,207
4.8%
Investment Income $52
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $73,736
45.7%
Assets/Debt
Total Assets $103,031
Total Liabilities $6,178
Net Assets $96,853
Compensation
Key Employees and Officers Compensation Related Other
Pamela Mace (Executive Director) $62,400 $0 $0
Bradley Daar (President) $0 $0 $0
Sara Bailey (Director At Large) $0 $0 $0
Carol Rogers (Director At Large) $0 $0 $0
Jodi Roth (Director At Large) $0 $0 $0
Maureen Womack (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$169,743
Expenses
$133,320
Net Income
$36,423
Net Assets
$88,469
Notable Sources of Revenue Percent of Total Revenue
Contributions $150,718
88.8%
Program Services $18,972
11.2%
Investment Income $53
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $50,180
37.6%
Assets/Debt
Total Assets $88,469
Total Liabilities $0
Net Assets $88,469
Compensation
Key Employees and Officers Compensation Related Other
Pamela Mace (Executive Director) $49,200 $0 $0
Bradley Daar (President) $0 $0 $0
Sara Bailey (Director At Large) $0 $0 $0
Carol Rogers (Director At Large) $0 $0 $0
Jodi Roth (Director At Large) $0 $0 $0
Maureen Womack (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$122,702
Expenses
$116,873
Net Income
$5,829
Net Assets
$52,046
Notable Sources of Revenue Percent of Total Revenue
Contributions $116,345
94.8%
Program Services $6,308
5.1%
Investment Income $49
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $31,441
26.9%
Assets/Debt
Total Assets $52,149
Total Liabilities $103
Net Assets $52,046
Compensation
Key Employees and Officers Compensation Related Other
Dr Glen Graham (Director At Large) $0 $0 $0
Bradley Daar (President) $0 $0 $0
Sara Bailey (Director At Large) $0 $0 $0
Carol Rogers (Director At Large) $0 $0 $0
Jodi Roth (Director At Large) $0 $0 $0
Maureen Womack (Secretary) $0 $0 $0
Pamela Mace (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$115,824
Expenses
$103,306
Net Income
$12,518
Net Assets
$57,104
Notable Sources of Revenue Percent of Total Revenue
Contributions $115,794
100.0%
Program Services $0
Investment Income $30
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $35,350
34.2%
Assets/Debt
Total Assets $57,104
Total Liabilities $0
Net Assets $57,104
Compensation
Key Employees and Officers Compensation Related Other
Cheryl Bailey (Vice President) $0 $0 $0
Cheryl Golden (Treasurer) $0 $0 $0
Dr Douglas Webster (Director At Large) $0 $0 $0
Dr Glen Graham (Director At Large) $0 $0 $0
Kellie Smiddie (Director At Large) $0 $0 $0
Mimi Petersen (Director At Large) $0 $0 $0
Bradley Daar (President) $0 $0 $0
Sara Bailey (Director At Large) $0 $0 $0
Carol Rogers (Director At Large) $0 $0 $0
Pamela Mace (Executive Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$126,664
Expenses
$162,474
Net Income
-$35,810
Net Assets
$44,586
Notable Sources of Revenue Percent of Total Revenue
Contributions $106,541
84.1%
Program Services $20,033
15.8%
Investment Income $90
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $44,168
27.2%
Assets/Debt
Total Assets $44,586
Total Liabilities $0
Net Assets $44,586

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$146,166
Expenses
$151,815
Net Income
-$5,649
Net Assets
$80,396
Notable Sources of Revenue Percent of Total Revenue
Contributions $123,766
84.7%
Program Services $22,199
15.2%
Investment Income $201
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $50,664
33.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $80,396
Total Liabilities $0
Net Assets $80,396

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
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  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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