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Developmental Fx The Developmental & Fragile X Resource Centre

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Specifically Named Diseases (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$1.99M (2023)

Expenses
$1.28M (2023)

Total Assets
$1.46M (2023)

Total Liabilities
$270k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Sept.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,989,130
Expenses
$1,278,410
Net Income
$710,720
Net Assets
$1,190,182
Notable Sources of Revenue Percent of Total Revenue
Contributions $891,151
44.8%
Program Services $1,075,386
54.1%
Investment Income $551
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $22,042
1.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $97,500
7.6%
Professional Fundraising Fees $0
Other Salaries and Wages $736,226
57.6%
Assets/Debt
Total Assets $1,459,702
Total Liabilities $269,520
Net Assets $1,190,182
Compensation
Key Employees and Officers Compensation Related Other
Tracy Stackhouse (Executive Di) $104,167 $0 $0
Jonathan Marshall (Chair) $0 $0 $0
Karen Onderko (Secretary) $0 $0 $0
Matt Teeters (Treasurer/Fi) $0 $0 $0
Rob Baumgarten (Development) $0 $0 $0
Michael Frank (Governance C) $0 $0 $0
Ricki Brockman (Director) $0 $0 $0
Tracee Eisenberg (Director) $0 $0 $0
Jennifer Gifford (Director) $0 $0 $0
Heather Kuzma (Director) $0 $0 $0
Marjorie Smith (Director) $0 $0 $0
Summer Villalta (Director) $0 $0 $0
Sara Walker (Director) $0 $0 $0
Susan Willson (Director) $0 $0 $0
Bryan Wright (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,207,245
Expenses
$1,202,729
Net Income
$4,516
Net Assets
$479,462
Notable Sources of Revenue Percent of Total Revenue
Contributions $338,668
28.1%
Program Services $868,471
71.9%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $106
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $125,417
10.4%
Professional Fundraising Fees $0
Other Salaries and Wages $684,216
56.9%
Assets/Debt
Total Assets $641,864
Total Liabilities $162,402
Net Assets $479,462
Compensation
Key Employees and Officers Compensation Related Other
Tracy Stackhouse (Executive Di) $121,667 $0 $0
Kathleen Thomas (Chair) $0 $0 $0
Jonathan Marshall (Vice Chair) $0 $0 $0
Heather Kuzma (Secretary) $0 $0 $0
Sebrina Ivy (Treasurer/Fi) $0 $0 $0
Rob Baumgarten (Development) $0 $0 $0
Michael Frank (Governance C) $0 $0 $0
Ricki Brockman (Director) $0 $0 $0
Elizabeth Doris (Director) $0 $0 $0
Don Drews (Director) $0 $0 $0
Jennifer Gifford (Director) $0 $0 $0
Karen Onderko (Director) $0 $0 $0
Matt Teeters (Director) $0 $0 $0
Susan Willson (Director) $0 $0 $0
Summer Villalta (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,184,613
Expenses
$907,734
Net Income
$276,879
Net Assets
$474,946
Notable Sources of Revenue Percent of Total Revenue
Contributions $423,866
35.8%
Program Services $760,683
64.2%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $64
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $120,000
13.2%
Professional Fundraising Fees $0
Other Salaries and Wages $524,873
57.8%
Assets/Debt
Total Assets $492,685
Total Liabilities $17,739
Net Assets $474,946
Compensation
Key Employees and Officers Compensation Related Other
Tracy Stackhouse (Executive Di) $97,274 $0 $0
Kathleen Thomas (President) $0 $0 $0
Jonathan Marshall (Vice Chair) $0 $0 $0
Heather Kuzma (Secretary) $0 $0 $0
Sebrina Ivy (Treasurer/Fi) $0 $0 $0
Rob Baumgarten (Development) $0 $0 $0
Michael Frank (Governance C) $0 $0 $0
Elizabeth Anderman (Director) $0 $0 $0
Ricki Brockman (Director) $0 $0 $0
Elizabeth Doris (Director) $0 $0 $0
Don Drews (Director) $0 $0 $0
Jennifer Gifford (Director) $0 $0 $0
Matt Teeters (Director) $0 $0 $0
Karen Onderko (Director) $0 $0 $0
John B Wasserman (Director) $0 $0 $0
Susan Willson (Director) $0 $0 $0
Summer Villalta (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$695,895
Expenses
$683,314
Net Income
$12,581
Net Assets
$198,067
Notable Sources of Revenue Percent of Total Revenue
Contributions $166,877
24.0%
Program Services $528,616
76.0%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $402
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $89,824
13.1%
Professional Fundraising Fees $0
Other Salaries and Wages $382,562
56.0%
Assets/Debt
Total Assets $315,397
Total Liabilities $117,330
Net Assets $198,067
Compensation
Key Employees and Officers Compensation Related Other
Tracy Stackhouse (Executive Di) $90,200 $0 $0
Elizabeth Doris (President) $0 $0 $0
Jennifer Taylor (Secretary) $0 $0 $0
Sebrina Ivy (Treasurer/Fi) $0 $0 $0
Michael Frank (Governance C) $0 $0 $0
Elizabeth Anderman (Director) $0 $0 $0
Rob Baumgarten (Director) $0 $0 $0
Ricki Brockman (Director) $0 $0 $0
Don Drews (Director) $0 $0 $0
Heather Kuzma (Director) $0 $0 $0
Karen Onderko (Director) $0 $0 $0
David Shore (Director) $0 $0 $0
Kathleen Woodberry (Director) $0 $0 $0
Summer Villalta (Director) $0 $0 $0
John B Wasserman (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$650,792
Expenses
$648,366
Net Income
$2,426
Net Assets
$185,486
Notable Sources of Revenue Percent of Total Revenue
Contributions $54,041
8.3%
Program Services $595,524
91.5%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,227
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $103,116
15.9%
Professional Fundraising Fees $0
Other Salaries and Wages $334,768
51.6%
Assets/Debt
Total Assets $201,623
Total Liabilities $16,137
Net Assets $185,486
Compensation
Key Employees and Officers Compensation Related Other
Tracy Stackhouse (Executive Di) $97,057 $0 $0
Sarah Scharfenaker (Dir Of Opera) $58,108 $0 $0
Elizabeth Doris (Chair) $0 $0 $0
Kathleen Woodberry (Secretary) $0 $0 $0
Sebrina Ivy (Treasurer) $0 $0 $0
John B Wasserman (Director) $0 $0 $0
Elizabeth Anderman (Director) $0 $0 $0
Don Drews (Director) $0 $0 $0
Michael Frank (Director) $0 $0 $0
Summer Villalta (Director) $0 $0 $0
Ricki Brockman (Director) $0 $0 $0
David Shore (Director) $0 $0 $0
Jennifer Taylor (Director) $0 $0 $0
Karen Onderko (Director) $0 $0 $0
Cindi Rogers (Director) $0 $0 $0
Jill De Rito (Director) $0 $0 $0
Mary Kay Hogan (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$674,533
Expenses
$656,643
Net Income
$17,890
Net Assets
$111,493
Notable Sources of Revenue Percent of Total Revenue
Contributions $131,404
19.5%
Program Services $543,129
80.5%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $140,121
21.3%
Professional Fundraising Fees $0
Other Salaries and Wages $252,052
38.4%
Assets/Debt
Total Assets $124,916
Total Liabilities $13,423
Net Assets $111,493
Compensation
Key Employees and Officers Compensation Related Other
Tracy Stackhouse (Executive Dir.) $83,794 $0 $0
Sarah Scharfenaker (Director Of Opn) $56,327 $0 $0
Elizabeth Doris (Secretary) $0 $0 $0
Cindi Rogers (Director) $0 $0 $0
John B Wasserman (Director) $0 $0 $0
Don Drews (Director) $0 $0 $0
Jill De Rito (Director) $0 $0 $0
Kathleen Woodberry (Director) $0 $0 $0
Elizabeth Anderman (Chairman) $0 $0 $0
Michael Frank (Director) $0 $0 $0
Mary Kay Hogan (Director) $0 $0 $0
Sebrina Ivy (Director) $0 $0 $0
Summer Villalta (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$622,591
Expenses
$580,730
Net Income
$41,861
Net Assets
$93,603
Notable Sources of Revenue Percent of Total Revenue
Contributions $43,399
7.0%
Program Services $579,120
93.0%
Investment Income $1
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $71
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $122,915
21.2%
Professional Fundraising Fees $0
Other Salaries and Wages $212,104
36.5%
Assets/Debt
Total Assets $107,116
Total Liabilities $13,513
Net Assets $93,603
Compensation
Key Employees and Officers Compensation Related Other
Tracy M Stackhouse (Executive Dir.) $80,602 $0 $0
Sarah Scharfenaker (Dir Of Oper'ns) $42,313 $0 $0
Elizabeth Doris (Secretary) $0 $0 $0
Cindi Rogers (Director) $0 $0 $0
John B Wasserman (Director) $0 $0 $0
Jil Di Rito (Director) $0 $0 $0
Kathleen Woodberry (Director) $0 $0 $0
Elizabeth Anderman (Chairman) $0 $0 $0
Buffy Naake (Board Member) $0 $0 $0
Michael S B Frank (Board Member) $0 $0 $0
Sebrina Ivey (Board Member) $0 $0 $0
Don Drews (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$486,601
Expenses
$462,111
Net Income
$24,490
Net Assets
$48,332
Notable Sources of Revenue Percent of Total Revenue
Contributions $23,449
4.8%
Program Services $462,863
95.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $289
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $102,317
22.1%
Professional Fundraising Fees $0
Other Salaries and Wages $165,233
35.8%
Assets/Debt
Total Assets $64,945
Total Liabilities $16,613
Net Assets $48,332
Compensation
Key Employees and Officers Compensation Related Other
Elizabeth Doris (Secretary) $0 $0 $0
Cindi Rogers (Director) $0 $0 $0
John B Wasserman (Treasurer) $0 $0 $0
Nancy Saunders (Director) $0 $0 $0
Jill De Rito (Director) $0 $0 $0
Kathleen Woodberry (Director) $0 $0 $0
Elizabeth Anderman (Chairman) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$462,820
Expenses
$470,141
Net Income
-$7,321
Net Assets
$23,842
Notable Sources of Revenue Percent of Total Revenue
Contributions $49,144
10.6%
Program Services $405,056
87.5%
Investment Income $18
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $8,602
1.9%
Notable Expenses Percent of Total Expenses
Executive Compensation $137,227
29.2%
Professional Fundraising Fees $0
Other Salaries and Wages $57,336
12.2%
Assets/Debt
Total Assets $55,179
Total Liabilities $31,337
Net Assets $23,842
Compensation
Key Employees and Officers Compensation Related Other
Tracy M Stackhouse (President/Treas) $86,521 $0 $0
Sarah Scharfenaker (Vice President) $50,706 $0 $0
Sarah Lorang (Director) $0 $0 $0
Nancy Saunders (Director) $0 $0 $0
Cindi Rogers (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$449,110
Expenses
$466,737
Net Income
-$17,627
Net Assets
$31,163
Notable Sources of Revenue Percent of Total Revenue
Contributions $15,337
3.4%
Program Services $433,150
96.4%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $623
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $127,481
27.3%
Professional Fundraising Fees $0
Other Salaries and Wages $27,467
5.9%
Assets/Debt
Total Assets $51,355
Total Liabilities $20,192
Net Assets $31,163
Compensation
Key Employees and Officers Compensation Related Other
Tracy M Stackhouse (President) $83,587 $0 $0
Sarah Scharfenaker (Vice President) $43,893 $0 $0
Sarah Lorang (Director) $0 $0 $0
Nancy Saunders (Director) $0 $0 $0
Judith E Jones Potter (Treasurer) $0 $0 $0
Cindi Rogers (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$417,043
Expenses
$390,389
Net Income
$26,654
Net Assets
$48,790
Notable Sources of Revenue Percent of Total Revenue
Contributions $9,016
2.2%
Program Services $405,541
97.2%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,486
0.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $85,919
22.0%
Professional Fundraising Fees $0
Other Salaries and Wages $49,392
12.7%
Assets/Debt
Total Assets $65,574
Total Liabilities $16,784
Net Assets $48,790

Document Links

Fiscal Year Ending Sept.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$376,172
Expenses
$389,014
Net Income
-$12,842
Net Assets
$22,136
Notable Sources of Revenue Percent of Total Revenue
Contributions $51,947
13.8%
Program Services $323,278
85.9%
Investment Income $2
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $945
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $105,629
27.2%
Professional Fundraising Fees $0
Other Salaries and Wages $27,757
7.1%
Assets/Debt
Total Assets $42,378
Total Liabilities $20,242
Net Assets $22,136

Document Links

Fiscal Year Ending Sept.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$341,777
Expenses
$344,299
Net Income
-$2,522
Net Assets
$34,978
Notable Sources of Revenue Percent of Total Revenue
Contributions $10,350
3.0%
Program Services $314,134
91.9%
Investment Income $3
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $17,290
5.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $97,026
28.2%
Professional Fundraising Fees $0
Other Salaries and Wages $40,369
11.7%
Assets/Debt
Total Assets $40,330
Total Liabilities $5,352
Net Assets $34,978

Document Links

Fiscal Year Ending Sept.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Aug.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Aug.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Aug.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Aug.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
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  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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