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Neurofibromatosis Incorporated Northeast

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$617k (2022)

Expenses
$652k (2022)

Total Assets
$843k (2022)

Total Liabilities
$19.8k (2022)

Source: Form 990 tax filings from 2011 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$616,977
Expenses
$651,825
Net Income
-$34,848
Net Assets
$822,927
Notable Sources of Revenue Percent of Total Revenue
Contributions $360,789
58.5%
Program Services $0
Investment Income $13,556
2.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $215,076
34.9%
Sales of Assets $27,556
4.5%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $229,389
35.2%
Assets/Debt
Total Assets $842,757
Total Liabilities $19,830
Net Assets $822,927
Compensation
Key Employees and Officers Compensation Related Other
Sharon Klein (Executive Di) $127,385 $0 $1,946
Frank Buono (Director) $0 $0 $0
Ben Buttrick (Director) $0 $0 $0
Patrick Callahan (Director) $0 $0 $0
Alexandra Powers Cellucci (Director) $0 $0 $0
Tamara Indianer (Director) $0 $0 $0
Justin Jordan (Director) $0 $0 $0
Andres Lessing (Director) $0 $0 $0
Melissa Shea Malerba (Director/ Se) $0 $0 $0
John Manth (Chairperson) $0 $0 $0
Nicole Ullrich Md Phd (Director) $0 $0 $0
Lori Ryan (Director) $0 $0 $0
Robert Ryan (Director/Tre) $0 $0 $0
Marybeth Shaw (Director) $0 $0 $0
John Shea (Director) $0 $0 $0
John Thomson (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$737,666
Expenses
$451,337
Net Income
$286,329
Net Assets
$954,714
Notable Sources of Revenue Percent of Total Revenue
Contributions $574,054
77.8%
Program Services $0
Investment Income $5,655
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $133,680
18.1%
Sales of Assets $24,277
3.3%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $143,044
31.7%
Assets/Debt
Total Assets $973,512
Total Liabilities $18,798
Net Assets $954,714
Compensation
Key Employees and Officers Compensation Related Other
Sharon Klein (Executive Di) $60,099 $0 $0
Frank Buono (Director) $0 $0 $0
Patrick Callahan (Director) $0 $0 $0
Alexandra Powers Cellucci (Director) $0 $0 $0
Tamara Indianer (Director) $0 $0 $0
Justin Jordan (Director) $0 $0 $0
Andres Lessing (Director) $0 $0 $0
Melissa Shea Malerba (Director/ Se) $0 $0 $0
Nicole Ullrich Md Phd (Director) $0 $0 $0
Lori Ryan (Chairperson) $0 $0 $0
Robert Ryan (Director/Tre) $0 $0 $0
John Shea (Director) $0 $0 $0
John Thomson (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$439,880
Expenses
$484,116
Net Income
-$44,236
Net Assets
$658,760
Notable Sources of Revenue Percent of Total Revenue
Contributions $439,585
99.9%
Program Services $0
Investment Income $5,247
1.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$4,952
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $89,311
18.4%
Professional Fundraising Fees $0
Other Salaries and Wages $113,012
23.3%
Assets/Debt
Total Assets $701,178
Total Liabilities $42,418
Net Assets $658,760
Compensation
Key Employees and Officers Compensation Related Other
Karen Peluso (Executive Director) $86,710 $0 $2,600
Lori Ryan (Chairperson) $0 $0 $0
Patrick Callahan (Director) $0 $0 $0
Nicole Ullrich Md Phd (Director) $0 $0 $0
Robert Klouda (Director) $0 $0 $0
Robert Ryan (Director/Treasurer) $0 $0 $0
Justin Jordan (Director) $0 $0 $0
John Manth (Director) $0 $0 $0
Melissa Shea Malerba (Director/Secretary) $0 $0 $0
John Shea (Director) $0 $0 $0
John Thomson (Director) $0 $0 $0
Alexandra Powers Cellucci (Director) $0 $0 $0
Andres Lessing (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$687,701
Expenses
$676,597
Net Income
$11,104
Net Assets
$662,979
Notable Sources of Revenue Percent of Total Revenue
Contributions $649,603
94.5%
Program Services $0
Investment Income $6,274
0.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $25,230
3.7%
Sales of Assets $6,594
1.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $123,469
18.2%
Professional Fundraising Fees $0
Other Salaries and Wages $199,559
29.5%
Assets/Debt
Total Assets $708,938
Total Liabilities $45,959
Net Assets $662,979
Compensation
Key Employees and Officers Compensation Related Other
Karen Peluso (Executive Director) $119,823 $0 $3,646
Lori Ryan (Chairperson) $0 $0 $0
Patrick Callahan (Director) $0 $0 $0
Nicole Ullrich Md Phd (Director) $0 $0 $0
Robert Klouda (Director) $0 $0 $0
Robert Ryan (Director/Treasurer) $0 $0 $0
Justin Jordan (Director) $0 $0 $0
John Manth (Director) $0 $0 $0
Melissa Shea Malerba (Director/Secretary) $0 $0 $0
John Shea (Director) $0 $0 $0
John Thomson (Director) $0 $0 $0
Alexandra Powers Cellucci (Director) $0 $0 $0
Andres Lessing (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$679,566
Expenses
$688,256
Net Income
-$8,690
Net Assets
$606,755
Notable Sources of Revenue Percent of Total Revenue
Contributions $653,286
96.1%
Program Services $0
Investment Income $7,135
1.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $21,742
3.2%
Sales of Assets -$2,597
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $120,963
17.6%
Professional Fundraising Fees $0
Other Salaries and Wages $207,623
30.2%
Assets/Debt
Total Assets $671,681
Total Liabilities $64,926
Net Assets $606,755
Compensation
Key Employees and Officers Compensation Related Other
Karen Peluso (Executive Director) $117,422 $0 $3,540
Lori Ryan (Chairperson) $0 $0 $0
John Driscoll (Director) $0 $0 $0
Nicole Ullrich Md Phd (Director) $0 $0 $0
Henry Kay (Director) $0 $0 $0
Robert Ryan (Director/Treasurer) $0 $0 $0
Jessica Wolfe Phd (Director) $0 $0 $0
John Manth (Director) $0 $0 $0
Melissa Shea Malerba (Director/Secretary) $0 $0 $0
Cynthia Robinson Markey (Director) $0 $0 $0
John Shea (Director) $0 $0 $0
John Thomson (Director) $0 $0 $0
Alexandra Powers Cellucci (Director) $0 $0 $0
Andres Lessing (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$780,879
Expenses
$734,348
Net Income
$46,531
Net Assets
$642,263
Notable Sources of Revenue Percent of Total Revenue
Contributions $747,407
95.7%
Program Services $0
Investment Income $2,129
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $31,343
4.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $115,000
15.7%
Professional Fundraising Fees $0
Other Salaries and Wages $180,556
24.6%
Assets/Debt
Total Assets $755,528
Total Liabilities $113,265
Net Assets $642,263
Compensation
Key Employees and Officers Compensation Related Other
Karen Peluso (Executive Director) $115,000 $0 $0
Lori Ryan (Chairperson) $0 $0 $0
Dr Paul Epstein (Director) $0 $0 $0
John Driscoll (Director) $0 $0 $0
Nicole Ullrich Md Phd (Director) $0 $0 $0
Henry Kay (Director) $0 $0 $0
David Rokoff (Director) $0 $0 $0
Robert Ryan (Director/Treasurer) $0 $0 $0
Jessica Wolfe Phd (Director) $0 $0 $0
John Manth (Director/Secretary) $0 $0 $0
Melissa Shea Malerba (Director) $0 $0 $0
Cynthia Robinson Markey (Director) $0 $0 $0
John Shea (Director) $0 $0 $0
John Thomson (Director) $0 $0 $0
Alexandra Powers Cellucci (Director) $0 $0 $0
Andres Lessing (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$789,902
Expenses
$691,395
Net Income
$98,507
Net Assets
$583,631
Notable Sources of Revenue Percent of Total Revenue
Contributions $769,105
97.4%
Program Services $0
Investment Income $2,697
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $18,100
2.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $99,840
14.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $658,223
Total Liabilities $74,592
Net Assets $583,631
Compensation
Key Employees and Officers Compensation Related Other
Karen Peluso (Executive Director) $99,840 $0 $0
Lori Ryan (Chairperson) $0 $0 $0
Dr Paul Epstein (Director) $0 $0 $0
John Driscoll (Director) $0 $0 $0
Nicole Ullrich Md Ph D (Director) $0 $0 $0
Henry Kay (Director) $0 $0 $0
David Rokoff (Director) $0 $0 $0
Robert Ryan (Director/Treasurer) $0 $0 $0
Jessica Wolfe Ph D (Director) $0 $0 $0
John Manth (Director/Secretary) $0 $0 $0
Melissa Shea Malerba (Director) $0 $0 $0
Cynthia Robinson Markey (Director) $0 $0 $0
John Shea (Director) $0 $0 $0
John Thomson (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$743,683
Expenses
$719,406
Net Income
$24,277
Net Assets
$485,811
Notable Sources of Revenue Percent of Total Revenue
Contributions $731,252
98.3%
Program Services $0
Investment Income $1,260
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $11,171
1.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $100,445
14.0%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $556,488
Total Liabilities $70,677
Net Assets $485,811
Compensation
Key Employees and Officers Compensation Related Other
Karen Peluso (Executive Director) $100,445 $0 $0
Dr Paul Epstein (President) $0 $0 $0
Lori Ryan (Director/Chairperson) $0 $0 $0
John Driscoll (Director) $0 $0 $0
David Eisenstadt (Director) $0 $0 $0
Henry Kay (Director) $0 $0 $0
David Rokoff (Director) $0 $0 $0
Robert Ryan (Director/Treasurer) $0 $0 $0
Jessica Wolfe Phd (Director) $0 $0 $0
John Manth (Director/Secretary) $0 $0 $0
Melissa Shea Malerba (Director) $0 $0 $0
Cynthia Robinson Markey (Director) $0 $0 $0
John Shea (Director) $0 $0 $0
John Thomson (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$780,259
Expenses
$696,031
Net Income
$84,228
Net Assets
$466,497
Notable Sources of Revenue Percent of Total Revenue
Contributions $752,716
96.5%
Program Services $0
Investment Income $3,066
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $24,477
3.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $103,872
14.9%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $533,747
Total Liabilities $67,250
Net Assets $466,497
Compensation
Key Employees and Officers Compensation Related Other
Karen Peluso (Executive Director) $103,872 $0 $0
Dr Paul Epstein (President) $0 $0 $0
Lori Ryan (Secretary) $0 $0 $0
John Driscoll (Director) $0 $0 $0
David Eisenstadt (Director) $0 $0 $0
Henry Kay (Director) $0 $0 $0
David Rokoff (Director) $0 $0 $0
Robert Ryan (Treasurer) $0 $0 $0
Jessica Wolfe Phd (Director) $0 $0 $0
John Manth (Director) $0 $0 $0
Melissa Shea Malerba (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$541,707
Expenses
$604,509
Net Income
-$62,802
Net Assets
$383,364
Notable Sources of Revenue Percent of Total Revenue
Contributions $551,151
> 100%
Program Services $0
Investment Income $1,441
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$10,414
Sales of Assets -$471
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $100,381
16.6%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $444,904
Total Liabilities $61,540
Net Assets $383,364
Compensation
Key Employees and Officers Compensation Related Other
Karen Peluso (Executive Director) $100,381 $0 $0
Dr Paul Epstein (President) $0 $0 $0
Lori Ryan (Secretary) $0 $0 $0
John Driscoll (Director) $0 $0 $0
David Eisenstadt (Director) $0 $0 $0
Henry Kay (Director) $0 $0 $0
David Rokoff (Director) $0 $0 $0
Robert Ryan (Treasurer) $0 $0 $0
Jessica Wolfe Phd (Director) $0 $0 $0
John Manth (Director) $0 $0 $0
Melissa Shea Malerba (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$559,896
Expenses
$580,437
Net Income
-$20,541
Net Assets
$441,202
Notable Sources of Revenue Percent of Total Revenue
Contributions $542,866
97.0%
Program Services $0
Investment Income $41
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $16,989
3.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $100,561
17.3%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $507,821
Total Liabilities $66,619
Net Assets $441,202

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$544,587
Expenses
$550,008
Net Income
-$5,421
Net Assets
$461,743
Notable Sources of Revenue Percent of Total Revenue
Contributions $520,381
95.6%
Program Services $0
Investment Income $86
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $24,120
4.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $100,434
18.3%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $532,212
Total Liabilities $70,469
Net Assets $461,743

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

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