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The Progeria Research Foundation Inc

Premature Aging In Child Prog Res F

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Fund Raising and/or Fund Distribution (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$1.79M (2022)

Expenses
$3.13M (2022)

Total Assets
$47.6M (2022)

Total Liabilities
$772k (2022)

Source: Form 990 tax filings from 2010 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,793,850
Expenses
$3,126,766
Net Income
-$1,332,916
Net Assets
$46,824,384
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,118,542
> 100%
Program Services $0
Investment Income $1,032,490
57.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $37,410
2.1%
Sales of Assets -$1,394,592
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $215,500
6.9%
Professional Fundraising Fees $0
Other Salaries and Wages $568,761
18.2%
Assets/Debt
Total Assets $47,596,733
Total Liabilities $772,349
Net Assets $46,824,384
Compensation
Key Employees and Officers Compensation Related Other
Audrey Gordon (President) $170,000 $0 $25,500
Scott Berns (Director) $0 $0 $0
Paula Kelly (Treasurer/Director) $0 $0 $0
Karen Ballack (Director) $0 $0 $0
Sandra Bresnick (Director) $0 $0 $0
Kim Paratore (Clerk/Director) $0 $0 $0
John Marozzi (Director) $0 $0 $0
Larry Mills (Director) $0 $0 $0
Liza Morris (Director) $0 $0 $0
Matthew Winters (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$49,219,762
Expenses
$3,160,686
Net Income
$46,059,076
Net Assets
$53,353,760
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,702,374
3.5%
Program Services $0
Investment Income $930,288
1.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $14,123
0.0%
Sales of Assets $79,572
0.2%
Net Inventory Sales $0
Other Revenue $46,493,405
94.5%
Notable Expenses Percent of Total Expenses
Executive Compensation $197,803
6.3%
Professional Fundraising Fees $0
Other Salaries and Wages $433,470
13.7%
Assets/Debt
Total Assets $53,690,802
Total Liabilities $337,042
Net Assets $53,353,760
Compensation
Key Employees and Officers Compensation Related Other
Audrey Gordon (President) $170,096 $0 $27,706
Scott Berns (Director) $0 $0 $0
Paula Kelly (Treasurer/Director) $0 $0 $0
Karen Ballack (Director) $0 $0 $0
Sandra Bresnick (Director) $0 $0 $0
Kim Paratore (Director) $0 $0 $0
John Marozzi (Director) $0 $0 $0
Larry Mills (Director) $0 $0 $0
Liza Morris (Director) $0 $0 $0
Matthew Winters (Director) $0 $0 $0
Barbara Gordon (Clerk) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,209,540
Expenses
$2,619,939
Net Income
-$410,399
Net Assets
$6,532,044
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,070,442
93.7%
Program Services $0
Investment Income $123,025
5.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $16,073
0.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $166,179
6.3%
Professional Fundraising Fees $0
Other Salaries and Wages $476,223
18.2%
Assets/Debt
Total Assets $6,950,071
Total Liabilities $418,027
Net Assets $6,532,044
Compensation
Key Employees and Officers Compensation Related Other
Audrey Gordon (President) $139,808 $0 $26,371
Scott Berns (Director) $0 $0 $0
Paula Kelly (Treasurer/Director) $0 $0 $0
Karen Ballack (Director) $0 $0 $0
Sandra Bresnick (Director) $0 $0 $0
Kim Paratore (Director) $0 $0 $0
John Marozzi (Director) $0 $0 $0
Larry Mills (Director) $0 $0 $0
Liza Morris (Director) $0 $0 $0
Barbara Gordon (Clerk) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,046,788
Expenses
$2,646,484
Net Income
$2,400,304
Net Assets
$6,942,443
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,778,810
94.7%
Program Services $0
Investment Income $102,997
2.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $164,981
3.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $122,669
4.6%
Professional Fundraising Fees $0
Other Salaries and Wages $468,899
17.7%
Assets/Debt
Total Assets $7,451,058
Total Liabilities $508,615
Net Assets $6,942,443
Compensation
Key Employees and Officers Compensation Related Other
Audrey Gordon (President) $122,669 $0 $24,027
Scott Berns (Director) $0 $0 $0
Paula Kelly (Treasurer/Director) $0 $0 $0
Karen Ballack (Director) $0 $0 $0
Sandra Bresnick (Director) $0 $0 $0
Kim Paratore (Director) $0 $0 $0
John Marozzi (Director) $0 $0 $0
Larry Mills (Director) $0 $0 $0
Tom O'brien (Director) $0 $0 $0
Liza Morris (Director) $0 $0 $0
Barbara Gordon (Clerk) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,884,717
Expenses
$2,521,519
Net Income
$363,198
Net Assets
$4,542,139
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,842,968
98.6%
Program Services $0
Investment Income $47,164
1.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$5,415
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $103,923
4.1%
Professional Fundraising Fees $0
Other Salaries and Wages $433,858
17.2%
Assets/Debt
Total Assets $5,025,342
Total Liabilities $483,203
Net Assets $4,542,139
Compensation
Key Employees and Officers Compensation Related Other
Meryl Fink (President & Executive Dire) $92,847 $0 $10,544
Scott Berns (Director) $0 $0 $0
Paula Kelly (Treasurer/Director) $0 $0 $0
Karen Ballack (Director) $0 $0 $0
Sandra Bresnick (Director) $0 $0 $0
Kim Paratore (Director) $0 $0 $0
John Marozzi (Director) $0 $0 $0
Larry Mills (Director) $0 $0 $0
Tom O'brien (Director) $0 $0 $0
Liza Morris (Director) $0 $0 $0
Barbara Gordon (Clerk) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,147,287
Expenses
$2,362,863
Net Income
-$215,576
Net Assets
$4,178,941
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,600,530
74.5%
Program Services $0
Investment Income $47,077
2.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $499,680
23.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $196,500
8.3%
Professional Fundraising Fees $0
Other Salaries and Wages $260,264
11.0%
Assets/Debt
Total Assets $4,511,886
Total Liabilities $332,945
Net Assets $4,178,941
Compensation
Key Employees and Officers Compensation Related Other
Meryl Fink (President & Executive Director) $103,000 $0 $9,388
Scott Berns (Director) $0 $0 $0
Paula Kelly (Treasurer/Director) $0 $0 $0
Karen Ballack (Director) $0 $0 $0
Sandra Bresnick (Director) $0 $0 $0
Kim Paratore (Director) $0 $0 $0
John Marozzi (Director) $0 $0 $0
Larry Mills (Director) $0 $0 $0
Tom O'brien (Director) $0 $0 $0
Liza Morris (Director) $0 $0 $0
Barbara Gordon (Clerk) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,172,499
Expenses
$2,652,194
Net Income
$520,305
Net Assets
$4,394,517
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,456,581
77.4%
Program Services $0
Investment Income $50,942
1.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $664,976
21.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $203,230
7.7%
Professional Fundraising Fees $0
Other Salaries and Wages $344,174
13.0%
Assets/Debt
Total Assets $4,779,872
Total Liabilities $385,355
Net Assets $4,394,517
Compensation
Key Employees and Officers Compensation Related Other
Audrey Gordon (Dir. Of Development/Former President) $113,192 $0 $12,871
Meryl Fink (President) $90,038 $0 $6,641
Scott Berns (Director) $0 $0 $0
Carl Aviti (Treasurer/Director) $0 $0 $0
Karen Ballack (Director) $0 $0 $0
Sandra Bresnick (Director) $0 $0 $0
Kim Paratore (Director) $0 $0 $0
John Marozzi (Director) $0 $0 $0
Larry Mills (Director) $0 $0 $0
Tom O'brien (Director) $0 $0 $0
Liza Morris (Director) $0 $0 $0
Barbara Gordon (Clerk) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,015,719
Expenses
$2,823,533
Net Income
-$807,814
Net Assets
$3,874,212
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,592,888
79.0%
Program Services $0
Investment Income $57,796
2.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $30
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $102,364
3.6%
Professional Fundraising Fees $0
Other Salaries and Wages $348,430
12.3%
Assets/Debt
Total Assets $4,308,161
Total Liabilities $433,949
Net Assets $3,874,212

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,741,632
Expenses
$2,579,078
Net Income
$162,554
Net Assets
$4,648,035
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,988,356
72.5%
Program Services $0
Investment Income $69,683
2.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $683,593
24.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $112,000
4.3%
Professional Fundraising Fees $0
Other Salaries and Wages $252,510
9.8%
Assets/Debt
Total Assets $5,081,358
Total Liabilities $433,323
Net Assets $4,648,035

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,718,395
Expenses
$2,371,949
Net Income
$346,446
Net Assets
$4,032,010
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,438,100
89.7%
Program Services $0
Investment Income $42,697
1.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $237,598
8.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $103,654
4.4%
Professional Fundraising Fees $0
Other Salaries and Wages $241,701
10.2%
Assets/Debt
Total Assets $4,234,880
Total Liabilities $202,870
Net Assets $4,032,010

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,806,700
Expenses
$1,575,558
Net Income
$231,142
Net Assets
$3,685,564
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,525,217
84.4%
Program Services $40,678
2.3%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $240,805
13.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $81,280
5.2%
Professional Fundraising Fees $0
Other Salaries and Wages $116,631
7.4%
Assets/Debt
Total Assets $3,735,811
Total Liabilities $50,247
Net Assets $3,685,564

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,028,547
Expenses
$1,368,471
Net Income
$660,076
Net Assets
$3,454,422
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,558,900
76.8%
Program Services $0
Investment Income $24,329
1.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $445,318
22.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $75,000
5.5%
Professional Fundraising Fees $0
Other Salaries and Wages $172,533
12.6%
Assets/Debt
Total Assets $3,562,853
Total Liabilities $108,431
Net Assets $3,454,422

Document Links

Fiscal Year Ending Dec.
2010

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,703,301
Expenses
$1,241,034
Net Income
$462,267
Net Assets
$2,794,346
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,470,717
86.3%
Program Services $0
Investment Income $22,046
1.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $210,538
12.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $65,500
5.3%
Professional Fundraising Fees $0
Other Salaries and Wages $114,960
9.3%
Assets/Debt
Total Assets $2,820,342
Total Liabilities $25,996
Net Assets $2,794,346

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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