Skip to content
ProPublica Donate
ProPublica Donate

Rett Syndrome Association Of Massachusetts Inc

  • Waltham, MA
  • Tax-exempt since March 2003
  • EIN: 04-3583648

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Health — General and Rehabilitative / Health Support Services (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$36.3k (2024)

Expenses
$41.1k (2024)

Total Assets
$147k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2012 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Sept.
2024

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$36,306
Expenses
$41,130
Net Income
-$4,824
Net Assets
$146,501
Notable Sources of Revenue Percent of Total Revenue
Contributions $36,306
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $146,501
Total Liabilities $0
Net Assets $146,501
Compensation
Key Employees and Officers Compensation Other
Maggie Wurm (President) $0 $0
Kathy Schoener (Treasurer) $0 $0
Larry Fallon (Vice President) $0 $0
Irene Gladstone (Clerk) $0 $0
Michelle Boom (Director) $0 $0
Bonnie Budd (Director) $0 $0
Tonya Chever (Director) $0 $0
Shanon Hilario (Director) $0 $0
Bill Johnson (Director) $0 $0
Coriann Stinson (Director) $0 $0
Jill Twigg (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Jan. 23, 2025

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Sept.
2023

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$72,759
Expenses
$49,191
Net Income
$23,568
Net Assets
$151,325
Notable Sources of Revenue Percent of Total Revenue
Contributions $15,659
21.5%
Program Services $0
Investment Income $0
Net Fundraising $57,100
78.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $151,325
Total Liabilities $0
Net Assets $151,325
Compensation
Key Employees and Officers Compensation Other
Larry Fallon (Co President) $0 $0
Irene Gladstone (Clerk) $0 $0
Kathleen Schoener (Treasurer) $0 $0
Maggie Wurm (Co President) $0 $0
Bonnie Budd (Board Member) $0 $0
Michelle Boom (Board Member) $0 $0
Bill Johnson (Board Member) $0 $0
Jill Twigg (Board Member) $0 $0
Tonya Chever (Board Member) $0 $0
Shanon Hilario (Board Member) $0 $0
Coriann Stinson (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 5, 2024

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2022

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$71,985
Expenses
$46,600
Net Income
$25,385
Net Assets
$127,757
Notable Sources of Revenue Percent of Total Revenue
Contributions $78,871
> 100%
Program Services $0
Investment Income $0
Net Fundraising -$6,886
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $127,757
Total Liabilities $0
Net Assets $127,757
Compensation
Key Employees and Officers Compensation Other
Larry Fallon (Co President) $0 $0
Irene Gladstone (Clerk) $0 $0
Kathleen Schoener (Treasurer) $0 $0
Ariane Mc Mahan (Board Member) $0 $0
Maggie Wurm (Co President) $0 $0
Laura Tempesta (Board Member) $0 $0
Bonnie Budd (Board Member) $0 $0
Michelle Boom (Board Member) $0 $0
Bill Johnson (Board Member) $0 $0
Jill Twigg (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 6, 2023

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$50,719
Expenses
$38,747
Net Income
$11,972
Net Assets
$102,372
Notable Sources of Revenue Percent of Total Revenue
Contributions $50,719
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $102,372
Total Liabilities $0
Net Assets $102,372
Compensation
Key Employees and Officers Compensation Other
Larry Fallon (Co President) $0 $0
Irene Gladstone (Clerk) $0 $0
Kathleen Schoener (Treasurer) $0 $0
Ariane Mc Mahan (Board Member) $0 $0
Maggie Wurm (Co President) $0 $0
Laura Tempesta (Board Member) $0 $0
Bonnie Budd (Board Member) $0 $0
Michelle Boom (Board Member) $0 $0
Bill Johnson (Board Member) $0 $0
Jill Twigg (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 8, 2022

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Sept.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$32,848
Expenses
$60,580
Net Income
-$27,732
Net Assets
$90,400
Notable Sources of Revenue Percent of Total Revenue
Contributions $32,848
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $90,400
Total Liabilities $0
Net Assets $90,400
Compensation
Key Employees and Officers Compensation Other
Larry Fallon (President) $0 $0
Irene Gladstone (Clerk) $0 $0
Kathleen Schoener (Treasurer) $0 $0
Tracy Freeman (Board Member) $0 $0
Ariane Mc Mahan (Board Member) $0 $0
Maggie Wurm (Vice President) $0 $0
Laura Tempesta (Board Member) $0 $0
Bonnie Budd (Board Member) $0 $0
Michelle Boom (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 9, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$89,392
Expenses
$82,853
Net Income
$6,539
Net Assets
$118,132
Notable Sources of Revenue Percent of Total Revenue
Contributions $89,392
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $118,132
Total Liabilities $0
Net Assets $118,132
Compensation
Key Employees and Officers Compensation Other
Larry Fallon (President) $0 $0
Irene Gladstone (Clerk) $0 $0
Kathleen Schoener (Treasurer) $0 $0
Joy Iennarella (Board Member) $0 $0
Tracy Freeman (Board Member) $0 $0
Ariane Mc Mahan (Board Member) $0 $0
Maggie Wurm (Vice President) $0 $0
Laura Tempesta (Board Member) $0 $0
Caitlin Wood (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 8, 2020

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$92,193
Expenses
$10,894
Net Income
$81,299
Net Assets
$111,593
Notable Sources of Revenue Percent of Total Revenue
Contributions $92,193
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $111,593
Total Liabilities $0
Net Assets $111,593
Compensation
Key Employees and Officers Compensation Other
Larry Fallon (Board Member) $0 $0
Irene Gladstone (Vice President) $0 $0
Kathleen Schoener (Treasurer) $0 $0
Dan Fabiano (Board Member) $0 $0
Rick Troy (President) $0 $0
Leslie Courtney (Board Member) $0 $0
Geoff Gillard (Board Member) $0 $0
Bill Johnson (Board Member) $0 $0
Joy Andrade (Board Member) $0 $0
Jane Joyce (Board Member) $0 $0
Renee Surprenant (Board Member) $0 $0
Maggie Wurm (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 10, 2019

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$102,854
Expenses
$87,613
Net Income
$15,241
Net Assets
$30,294
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,805
1.8%
Program Services $0
Investment Income $0
Net Fundraising $101,049
98.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $30,294
Total Liabilities $0
Net Assets $30,294
Compensation
Key Employees and Officers Compensation Other
Larry Fallon (Board Member) $0 $0
Irene Gladstone (Vice President) $0 $0
Kathleen Schoener (Treasurer) $0 $0
Dan Fabiano (Board Member) $0 $0
Rick Troy (President) $0 $0
Leslie Courtney (Board Member) $0 $0
Geoff Gillard (Board Member) $0 $0
Bill Johnson (Board Member) $0 $0
Joy Andrade (Board Member) $0 $0
Jane Joyce (Board Member) $0 $0
Renee Surprenant (Board Member) $0 $0
Maggie Wurm (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on April 15, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$90,823
Expenses
$90,400
Net Income
$423
Net Assets
$15,053
Notable Sources of Revenue Percent of Total Revenue
Contributions $90,823
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $15,053
Total Liabilities $0
Net Assets $15,053
Compensation
Key Employees and Officers Compensation Other
Larry Fallon (Board Member) $0 $0
Irene Gladstone (Clerk) $0 $0
Kathleen Schoener (Treasurer) $0 $0
Dan Fabiano (Board Member) $0 $0
Rick Troy (President) $0 $0
Leslie Courtney (Board Member) $0 $0
Geoff Gillard (Board Member) $0 $0
Bill Johnson (Board Member) $0 $0
Ali Rule (Board Member) $0 $0
Jill Twigg (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 14, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$87,373
Expenses
$92,566
Net Income
-$5,193
Net Assets
$14,630
Notable Sources of Revenue Percent of Total Revenue
Contributions $87,373
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $14,630
Total Liabilities $0
Net Assets $14,630
Compensation
Key Employees and Officers Compensation Other
Paula Curley (Board Member) $0 $0
Larry Fallon (Board Member) $0 $0
Irene Gladstone (President) $0 $0
Kathleen Schoener (Treasurer) $0 $0
Dan Fabiano (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 1, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$192,023
Expenses
$203,872
Net Income
-$11,849
Net Assets
$19,823
Notable Sources of Revenue Percent of Total Revenue
Contributions $192,023
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $19,823
Total Liabilities $0
Net Assets $19,823
Compensation
Key Employees and Officers Compensation Other
Paula Curley (Board Member) $0 $0
Larry Fallon (Board Member) $0 $0
Irene Gladstone (President) $0 $0
Kathleen Schoener (Treasurer) $0 $0
Dan Fabiano (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Feb. 1, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$129,543
Expenses
$102,966
Net Income
$26,577
Net Assets
$31,672
Notable Sources of Revenue Percent of Total Revenue
Contributions $129,543
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $31,672
Total Liabilities $0
Net Assets $31,672

Document Links

990-EZ
Filed on June 27, 2014

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$115,526
Expenses
$117,075
Net Income
-$1,549
Net Assets
$5,095
Notable Sources of Revenue Percent of Total Revenue
Contributions $115,526
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $5,095
Total Liabilities $0
Net Assets $5,095

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

Byline

By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated