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Childrens Fund For Glycogen Storage Disease Research

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Philanthropy, Voluntarism and Grantmaking Foundations / Private Independent Foundations (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$293k (2023)

Expenses
$84.7k (2023)

Total Assets
$1.35M (2023)

Total Liabilities
$0 (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$292,913
Expenses
$84,668
Net Income
$208,245
Net Assets
$1,354,107
Notable Sources of Revenue Percent of Total Revenue
Contributions $234,383
80.0%
Program Services $0
Investment Income $174
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $58,356
19.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,354,107
Total Liabilities $0
Net Assets $1,354,107
Compensation
Key Employees and Officers Compensation Related Other
Wendy Becker Feldman (President) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Harriet Bonelli (Director) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$552,956
Expenses
$214,144
Net Income
$338,812
Net Assets
$1,102,245
Notable Sources of Revenue Percent of Total Revenue
Contributions $534,521
96.7%
Program Services $0
Investment Income $106
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $18,329
3.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,108,745
Total Liabilities $6,500
Net Assets $1,102,245
Compensation
Key Employees and Officers Compensation Related Other
Wendy Becker Feldman (President) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Harriet Bonelli (Director) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$610,420
Expenses
$291,418
Net Income
$319,002
Net Assets
$828,140
Notable Sources of Revenue Percent of Total Revenue
Contributions $457,366
74.9%
Program Services $0
Investment Income $207
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $62,119
10.2%
Sales of Assets $32,291
5.3%
Net Inventory Sales $0
Other Revenue $58,437
9.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $833,459
Total Liabilities $5,319
Net Assets $828,140
Compensation
Key Employees and Officers Compensation Related Other
Wendy Becker Feldman (President) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Harriet Bonelli (Director) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$235,881
Expenses
$58,818
Net Income
$177,063
Net Assets
$522,385
Notable Sources of Revenue Percent of Total Revenue
Contributions $234,232
99.3%
Program Services $0
Investment Income $870
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $779
0.3%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $522,385
Total Liabilities $0
Net Assets $522,385
Compensation
Key Employees and Officers Compensation Related Other
Wendy Becker Feldman (President) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Harriet Bonelli (Director) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$412,759
Expenses
$839,875
Net Income
-$427,116
Net Assets
$312,562
Notable Sources of Revenue Percent of Total Revenue
Contributions $367,022
88.9%
Program Services $0
Investment Income $1,006
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $43,875
10.6%
Sales of Assets $856
0.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $312,562
Total Liabilities $0
Net Assets $312,562
Compensation
Key Employees and Officers Compensation Related Other
Harriet Bonelli (Director) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Wendy Becker Feldman (President) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$387,103
Expenses
$853,767
Net Income
-$466,664
Net Assets
$725,720
Notable Sources of Revenue Percent of Total Revenue
Contributions $336,595
87.0%
Program Services $0
Investment Income $815
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $47,560
12.3%
Sales of Assets $2,133
0.6%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $725,720
Total Liabilities $0
Net Assets $725,720
Compensation
Key Employees and Officers Compensation Related Other
Wendy Becker Feldman (President) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Harriet Bonelli (Director) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$234,982
Expenses
$446,570
Net Income
-$211,588
Net Assets
$1,193,759
Notable Sources of Revenue Percent of Total Revenue
Contributions $189,171
80.5%
Program Services $0
Investment Income $596
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $45,215
19.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,193,759
Total Liabilities $0
Net Assets $1,193,759
Compensation
Key Employees and Officers Compensation Related Other
Wendy Becker Feldman (President) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Harriet Bonelli (Director) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$370,150
Expenses
$165,086
Net Income
$205,064
Net Assets
$1,391,114
Notable Sources of Revenue Percent of Total Revenue
Contributions $163,620
44.2%
Program Services $0
Investment Income $430
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $206,100
55.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,391,114
Total Liabilities $0
Net Assets $1,391,114
Compensation
Key Employees and Officers Compensation Related Other
Wendy Becker Feldman (President) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Harriet Bonelli (Director) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$513,576
Expenses
$116,584
Net Income
$396,992
Net Assets
$1,182,180
Notable Sources of Revenue Percent of Total Revenue
Contributions $119,060
23.2%
Program Services $0
Investment Income $420
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $394,096
76.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,182,180
Total Liabilities $0
Net Assets $1,182,180
Compensation
Key Employees and Officers Compensation Related Other
Wendy Becker Feldman (President) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Harriet Bonelli (Director) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$594,540
Expenses
$274,718
Net Income
$319,822
Net Assets
$780,664
Notable Sources of Revenue Percent of Total Revenue
Contributions $287,320
48.3%
Program Services $0
Investment Income $399
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $306,821
51.6%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $800,664
Total Liabilities $20,000
Net Assets $780,664
Compensation
Key Employees and Officers Compensation Related Other
Wendy Becker Feldman (President) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Harriet Bonelli (Director) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$500,805
Expenses
$192,439
Net Income
$308,366
Net Assets
$460,103
Notable Sources of Revenue Percent of Total Revenue
Contributions $228,887
45.7%
Program Services $0
Investment Income $275
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $271,643
54.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $460,103
Total Liabilities $0
Net Assets $460,103
Compensation
Key Employees and Officers Compensation Related Other
Wendy Becker Feldman (President) $0 $0 $0
David Feldman (Sectry/Treas) $0 $0 $0
Valarie Rosen (Director) $0 $0 $0
Teri Reed (Director) $0 $0 $0
Fran Reed (Director) $0 $0 $0
Michael Julius (Director) $0 $0 $0
Harriet Bonelli (Director) $0 $0 $0
Lisa Hodes (Vice Preside) $0 $0 $0
Meri Gussin (Director) $0 $0 $0
Sanford Hodes (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$406,346
Expenses
$319,048
Net Income
$87,298
Net Assets
$146,436
Notable Sources of Revenue Percent of Total Revenue
Contributions $318,681
78.4%
Program Services $0
Investment Income $191
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $87,474
21.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $245,432
Total Liabilities $98,996
Net Assets $146,436

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$338,977
Expenses
$545,864
Net Income
-$206,887
Net Assets
$56,998
Notable Sources of Revenue Percent of Total Revenue
Contributions $181,936
53.7%
Program Services $0
Investment Income $864
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $157,812
46.6%
Sales of Assets -$1,635
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $174,506
Total Liabilities $117,508
Net Assets $56,998

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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