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Down Syndrome Association For Families

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Down Syndrome (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$83.9k (2023)

Expenses
$83.4k (2023)

Total Assets
$186k (2023)

Total Liabilities
$1.32k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$83,937
Expenses
$83,362
Net Income
$575
Net Assets
$184,619
Notable Sources of Revenue Percent of Total Revenue
Contributions $45,403
54.1%
Program Services $0
Investment Income $5,739
6.8%
Net Fundraising $30,803
36.7%
Sales of Assets $1,902
2.3%
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $185,936
Total Liabilities $1,317
Net Assets $184,619
Compensation
Key Employees and Officers Compensation Other
Jamie Barrier (Executive Di) $39,600 $0
Brandi Benson (Director) $0 $0
Rick Bohaty (Director) $0 $0
Dexter Drbal (Director) $0 $0
Liz Echternkamp (Vice Preside) $0 $0
Dean Fuelberth (President) $0 $0
Rick Meyer (Director) $0 $0
Tami Urwin (Treasurer) $0 $0
Lyndsie Koon (Director) $0 $0
Susan Loveall (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$110,397
Expenses
$107,862
Net Income
$2,535
Net Assets
$184,044
Notable Sources of Revenue Percent of Total Revenue
Contributions $84,367
76.4%
Program Services $0
Investment Income $1,793
1.6%
Net Fundraising $23,095
20.9%
Sales of Assets $726
0.7%
Net Inventory Sales $0
Other Revenue $31
0.0%
Assets/Debt
Total Assets $185,384
Total Liabilities $1,340
Net Assets $184,044
Compensation
Key Employees and Officers Compensation Other
Jamie Bertucci (Executive Di) $39,600 $0
Brandi Benson (Director) $0 $0
Rick Bohaty (Director) $0 $0
Dexter Drbal (Director) $0 $0
Liz Echternkamp (Past Preside) $0 $0
Dean Fuelberth (President) $0 $0
Rick Meyer (Director) $0 $0
Tami Urwin (Treasurer) $0 $0
Lyndsie Koon (Director) $0 $0
Susan Loveall (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$84,696
Expenses
$86,305
Net Income
-$1,609
Net Assets
$181,509
Notable Sources of Revenue Percent of Total Revenue
Contributions $27,348
32.3%
Program Services $0
Investment Income $960
1.1%
Net Fundraising $56,220
66.4%
Sales of Assets $53
0.1%
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $193,566
Total Liabilities $12,057
Net Assets $181,509
Compensation
Key Employees and Officers Compensation Other
Jamie Bertucci (Executive Di) $38,839 $0
Brandi Benson (Director) $0 $0
Rick Bohaty (Director) $0 $0
Beth Dinneen (President) $0 $0
Dexter Drbal (Director) $0 $0
Liz Echternkamp (Past Preside) $0 $0
Dean Fuelberth (Director) $0 $0
Nicole Hobelman (President) $0 $0
Kelsie Kreps (Director) $0 $0
Rick Meyer (Director) $0 $0
Tami Urwin (Treasurer) $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$130,720
Expenses
$108,842
Net Income
$21,878
Net Assets
$183,118
Notable Sources of Revenue Percent of Total Revenue
Contributions $60,497
46.3%
Program Services $0
Investment Income $577
0.4%
Net Fundraising $72,539
55.5%
Sales of Assets -$3,036
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $195,139
Total Liabilities $12,021
Net Assets $183,118
Compensation
Key Employees and Officers Compensation Other
Mary Sweeney (Program Dire) $38,363 $0
Dawna Daily (Program Dire) $15,511 $0
Brandi Benson (Director) $0 $0
Rick Bohaty (Director) $0 $0
Beth Dinneen (President) $0 $0
Dexter Drbal (Director) $0 $0
Liz Echternkamp (President) $0 $0
Dean Fuelberth (Past Preside) $0 $0
Nikki Hobelman (Director) $0 $0
Kelsie Kreps (Director) $0 $0
Rick Meyer (Director) $0 $0
Tami Urwin (Treasurer) $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$91,578
Expenses
$103,178
Net Income
-$11,600
Net Assets
$161,240
Notable Sources of Revenue Percent of Total Revenue
Contributions $18,295
20.0%
Program Services $0
Investment Income $89
0.1%
Net Fundraising $72,167
78.8%
Sales of Assets $492
0.5%
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $162,279
Total Liabilities $1,039
Net Assets $161,240
Compensation
Key Employees and Officers Compensation Other
Tami Urwin (Treasurer) $0 $0
Rick Meyer (Director) $0 $0
Liz Echternkamp (President) $0 $0
Rick Bohaty (Director) $0 $0
Beth Dinneen (Secretary) $0 $0
Dean Fuelberth (Vice Preside) $0 $0
Brandi Benson (Director) $0 $0
Alisha Bollinger (Director) $0 $0
Scott Neal (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$74,976
Expenses
$90,748
Net Income
-$15,772
Net Assets
$172,840
Notable Sources of Revenue Percent of Total Revenue
Contributions $14,602
19.5%
Program Services $0
Investment Income $88
0.1%
Net Fundraising $59,825
79.8%
Sales of Assets $411
0.5%
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $175,428
Total Liabilities $2,588
Net Assets $172,840
Compensation
Key Employees and Officers Compensation Other
Jodi Brodersen White (Program Dire) $43,500 $0
Dean Fuelberth (President) $0 $0
Christine Marvin (Vice Pres/Se) $0 $0
Stephanie Longwell (Treasurer) $0 $0
Brandi Benson (Director) $0 $0
Rick Bohaty (Director) $0 $0
Jennifer Brill (Director) $0 $0
Julie Huls (Director) $0 $0
Mary Sweeney (Director) $0 $0
Beth Dinneen (Director) $0 $0
Liz Echternkamp (Director) $0 $0
Rick Meyer (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$73,656
Expenses
$96,607
Net Income
-$22,951
Net Assets
$188,612
Notable Sources of Revenue Percent of Total Revenue
Contributions $6,068
8.2%
Program Services $0
Investment Income $100
0.1%
Net Fundraising $66,337
90.1%
Sales of Assets $601
0.8%
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $191,356
Total Liabilities $2,744
Net Assets $188,612
Compensation
Key Employees and Officers Compensation Other
Jodi Brodersen White (Program Dire) $43,250 $0
Dean Fuelberth (President) $0 $0
Rachel Smith (Vice Pres/Se) $0 $0
Christine Marvin (Vice Pres/Se) $0 $0
Jennifer Lohmeier (Treasurer) $0 $0
Brandi Benson (Director) $0 $0
Rick Bohaty (Director) $0 $0
Jennifer Brill (Director) $0 $0
Julie Huls (Director) $0 $0
Mary Sweeney (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$82,324
Expenses
$95,552
Net Income
-$13,228
Net Assets
$211,563
Notable Sources of Revenue Percent of Total Revenue
Contributions $14,697
17.9%
Program Services $0
Investment Income $109
0.1%
Net Fundraising $66,614
80.9%
Sales of Assets $61
0.1%
Net Inventory Sales $0
Other Revenue $5
0.0%
Assets/Debt
Total Assets $215,213
Total Liabilities $3,650
Net Assets $211,563
Compensation
Key Employees and Officers Compensation Other
Jodi Brodersen White (Program Dire) $42,771 $0
Dean Fuelberth (President) $0 $0
Rachel Smith (Vice Preside) $0 $0
Jennifer Lohmeier (Treasurer) $0 $0
Lori Prange (Secretary) $0 $0
Kelly Ekeler (Director) $0 $0
Alicia Bruning (Director) $0 $0
Sonya Reynolds Md (Director) $0 $0
Christine Marvin Phd (Director) $0 $0
Rick Bohaty (Director) $0 $0
Jen Brill (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$75,927
Expenses
$85,618
Net Income
-$9,691
Net Assets
$224,791
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,838
5.1%
Program Services $190
0.3%
Investment Income $130
0.2%
Net Fundraising $70,396
92.7%
Sales of Assets $593
0.8%
Net Inventory Sales $0
Other Revenue $190
0.3%
Assets/Debt
Total Assets $227,952
Total Liabilities $3,161
Net Assets $224,791
Compensation
Key Employees and Officers Compensation Other
Jodi Brodersen White (Program Dire) $31,717 $0
Dean Fuelberth (President) $0 $0
Rachel Smith (Vice Preside) $0 $0
Jennifer Lohmeier (Treasurer) $0 $0
Lori Prange (Secretary) $0 $0
Kelly Ekeler (Director) $0 $0
Alicia Bruning (Director) $0 $0
Sonya Reynolds Md (Director) $0 $0
Christine Marvin Phd (Director) $0 $0
Rick Bohaty (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$94,231
Expenses
$55,441
Net Income
$38,790
Net Assets
$234,482
Notable Sources of Revenue Percent of Total Revenue
Contributions $17,264
18.3%
Program Services $2,960
3.1%
Investment Income $141
0.1%
Net Fundraising $72,802
77.3%
Sales of Assets $446
0.5%
Net Inventory Sales $0
Other Revenue $98
0.1%
Assets/Debt
Total Assets $234,487
Total Liabilities $5
Net Assets $234,482

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$84,859
Expenses
$69,693
Net Income
$15,166
Net Assets
$195,692
Notable Sources of Revenue Percent of Total Revenue
Contributions $11,217
13.2%
Program Services $1,913
2.3%
Investment Income $80
0.1%
Net Fundraising $68,206
80.4%
Sales of Assets $2,853
3.4%
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $196,131
Total Liabilities $439
Net Assets $195,692

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$97,142
Expenses
$43,722
Net Income
$53,420
Net Assets
$180,526
Notable Sources of Revenue Percent of Total Revenue
Contributions $17,062
17.6%
Program Services $130
0.1%
Investment Income $9
0.0%
Net Fundraising $79,256
81.6%
Sales of Assets $336
0.3%
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $181,346
Total Liabilities $820
Net Assets $180,526

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$91,328
Expenses
$68,281
Net Income
$23,047
Net Assets
$127,106
Notable Sources of Revenue Percent of Total Revenue
Contributions $10,419
11.4%
Program Services $17,030
18.6%
Investment Income $57
0.1%
Net Fundraising $61,107
66.9%
Sales of Assets $2,580
2.8%
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $127,402
Total Liabilities $296
Net Assets $127,106

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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