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The Multiple Myeloma Research Foundation Inc

  • Norwalk, CT
  • Tax-exempt since March 1998
  • EIN: 06-1504413

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Nerve, Muscle and Bone Diseases (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$34M (2023)

Expenses
$41.9M (2023)

Total Assets
$80.2M (2023)

Total Liabilities
$23.9M (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$33,950,590
Expenses
$41,890,829
Net Income
-$7,940,239
Net Assets
$56,285,424
Notable Sources of Revenue Percent of Total Revenue
Contributions $30,976,388
91.2%
Program Services $1,281,492
3.8%
Investment Income $1,696,550
5.0%
Bond Proceeds $0
Royalties $192
0.0%
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$4,032
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $3,680,642
8.8%
Professional Fundraising Fees $0
Other Salaries and Wages $6,405,349
15.3%
Assets/Debt
Total Assets $80,227,632
Total Liabilities $23,942,208
Net Assets $56,285,424
Compensation
Key Employees and Officers Compensation Related Other
Michael Andreini (President & Ceo) $527,575 $0 $24,958
Robert Miani (Treasurer & Cfo) $385,910 $0 $28,032
Anne Quinn Young (Chief Mission Officer) $368,426 $0 $23,135
George Mulligan (Chief Scientific Officer) $358,470 $0 $39,082
Karen Dietz (Secretary, Cao & General Counsel) $280,128 $0 $35,695
Peter Kosa (Mif Managing Dir., Thru May 2023) $247,225 $0 $15,580
Christopher Williams (Vp Of Alliance Management) $237,539 $0 $31,093
Eva M Lepisto (Vp Of Informatics) $225,272 $0 $10,378
Hearn Cho (Chief Medical Officer) $223,354 $0 $8,934
Greg Rubenstein (Vp Of Marketing) $218,085 $0 $32,026
Katie Wozniak (Vp Of Clinical Research) $210,845 $0 $29,597
Charles Volpe (Director, Pr & Comm., Thru Dec. 2023) $204,169 $0 $23,980
Todd Brooks (Sr Principal Gift Officer) $200,866 $0 $9,243
Joanne Puglia (Sr Director Finance, Controller) $195,754 $0 $10,193
Mark Hamilton (Associate Director, Research) $187,297 $0 $12,462
Kathy Giusti (Founder & Director) $183,333 $0 $0
Mindy Flinn (Vp Of Development, Thru Sept. 2023) $166,712 $0 $19,369
Thomas Conheeney (Chairman) $0 $0 $0
Gerald Mcdougall (Vice Chairman) $0 $0 $0
Kenneth Anderson Md (Director) $0 $0 $0
Karen Andrews (Director) $0 $0 $0
Rodney Gilmore (Director) $0 $0 $0
David Lucchino (Director) $0 $0 $0
Lori Tauber Marcus (Director) $0 $0 $0
Hugh Martin (Director) $0 $0 $0
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990
Filed on Sept. 24, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$45,044,474
Expenses
$38,280,730
Net Income
$6,763,744
Net Assets
$63,689,914
Notable Sources of Revenue Percent of Total Revenue
Contributions $42,022,114
93.3%
Program Services $2,152,800
4.8%
Investment Income $679,638
1.5%
Bond Proceeds $0
Royalties $192,561
0.4%
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$8,639
Net Inventory Sales $0
Other Revenue $6,000
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $3,961,065
10.3%
Professional Fundraising Fees $0
Other Salaries and Wages $5,211,096
13.6%
Assets/Debt
Total Assets $89,097,661
Total Liabilities $25,407,747
Net Assets $63,689,914
Compensation
Key Employees and Officers Compensation Related Other
Kathy Giusti (Founder & Director) $736,667 $0 $200
Michael Andreini (President & Ceo) $494,070 $0 $23,408
Peter Kosa (Mif Managing Director) $429,658 $0 $33,597
Robert Miani (Treasurer & Cfo) $359,867 $0 $24,796
Anne Quinn Young (Chief Mission Officer) $341,011 $0 $18,849
Karen Dietz (Secretary Cao & General Counsel) $271,181 $0 $22,980
George Mulligan (Chief Scientific Officer) $233,560 $0 $25,816
Christopher Williams (Vp Of Alliance Management) $229,055 $0 $28,898
Mindy Flinn (Vp Of Development) $227,153 $0 $27,593
Greg Rubenstein (Vp Of Marketing) $212,086 $0 $29,910
Hearn Cho (Chief Medical Officer) $208,833 $0 $8,353
Eva M Lepisto (Vp Of Informatics) $204,912 $0 $10,606
Joanne Puglia (Sr Director Finance, Controller) $185,860 $0 $10,136
Todd Brooks (Sr Director, Development) $179,543 $0 $7,996
Charles Volpe (Director, Pr & Communciations) $173,921 $0 $22,134
Heather Steiger (Director, Digital Marketing) $169,691 $0 $16,330
Thomas Conheeney (Chairman) $0 $0 $0
Gerald Mcdougall (Vice Chairman) $0 $0 $0
Kenneth Anderson Md (Director) $0 $0 $0
Karen Andrews (Director) $0 $0 $0
Rodney Gilmore (Director) $0 $0 $0
David Lucchino (Director) $0 $0 $0
Lori Tauber Marcus (Director) $0 $0 $0
Hugh Martin (Director) $0 $0 $0
Susan Marvin (Director) $0 $0 $0
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990
Filed on Oct. 30, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$42,311,196
Expenses
$37,647,063
Net Income
$4,664,133
Net Assets
$57,234,800
Notable Sources of Revenue Percent of Total Revenue
Contributions $37,089,868
87.7%
Program Services $2,348,850
5.6%
Investment Income $100,955
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $2,771,523
6.6%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $2,640,941
7.0%
Professional Fundraising Fees $0
Other Salaries and Wages $7,064,425
18.8%
Assets/Debt
Total Assets $85,401,847
Total Liabilities $28,167,047
Net Assets $57,234,800
Compensation
Key Employees and Officers Compensation Related Other
Kathy Giusti (Founder & Chief Mission Officer) $612,455 $0 $12,770
Michael Andreini (President & Ceo) $357,361 $0 $19,860
Paul Giusti (Former President & Ceo) $352,894 $0 $76
Peter Kosa (Mif Managing Director) $319,603 $0 $33,117
Robert Miani (Treasurer/Cfo) $269,805 $0 $20,611
Anne Quinn Young (Chief Marketing & Dev. Officer) $265,892 $0 $18,743
Daniel Auclair (Chief Scientific Officer, Thru Dec. 2021) $226,883 $0 $10,551
Karen Dietz (Secretary/In House Counsel) $217,152 $0 $18,778
Chantelle Brinkley (Dir, Office Of The Founder, Thru Dec. 2021) $215,142 $0 $8,356
Steven Labkoff Md (Chief Data Officer, Thru July 2021) $211,331 $0 $26,029
Mindy Flinn (Vp Of Development) $202,654 $0 $17,841
Christopher Williams (Vp Of Business Development) $199,441 $0 $28,082
Greg Rubenstein (Vp Of Marketing) $183,897 $0 $28,791
Catherine Wachira (Clincal Reseach) $179,100 $0 $8,249
Michael Mortimer (Chairman) $0 $0 $0
Lori Tauber Marcus (Vice Chairman) $0 $0 $0
Kenneth Anderson Md (Director) $0 $0 $0
Karen Andrews (Director) $0 $0 $0
Thomas Conheeney (Director) $0 $0 $0
Rodney Gilmore (Director) $0 $0 $0
W Dana Laforge (Director, Thru Dec. 2021) $0 $0 $0
David Lucchino (Director) $0 $0 $0
Hugh Martin (Director) $0 $0 $0
Susan Marvin (Director) $0 $0 $0
Gerald Mcdougall (Director) $0 $0 $0
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990
Filed on Nov. 8, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$26,787,219
Expenses
$28,545,732
Net Income
-$1,758,513
Net Assets
$53,267,230
Notable Sources of Revenue Percent of Total Revenue
Contributions $25,012,712
93.4%
Program Services $2,546,093
9.5%
Investment Income $426,629
1.6%
Bond Proceeds $0
Royalties $758,795
2.8%
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$1,957,010
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $2,922,830
10.2%
Professional Fundraising Fees $0
Other Salaries and Wages $4,858,536
17.0%
Assets/Debt
Total Assets $73,276,923
Total Liabilities $20,009,693
Net Assets $53,267,230
Compensation
Key Employees and Officers Compensation Related Other
Paul Giusti (President & Ceo) $528,455 $0 $12,574
Kathy Giusti (Founder & Chief Mission Officer) $457,376 $0 $12,574
Steven Labkoff Md (Chief Data Officer) $338,493 $0 $36,737
Peter Kosa (Mif Managing Director) $314,205 $0 $34,062
Robert Miani (Treasurer/Cfo) $291,894 $0 $20,616
Michael Adreini (Coo) $278,919 $0 $19,460
Anne Quinn Young (Chief Marketing & Dev. Officer) $246,852 $0 $17,654
Daniel Auclair (Chief Scientific Officer) $235,255 $0 $10,896
Karen Dietz (Secretary/In House Counsel) $206,386 $0 $16,750
Christopher Williams (Vp Of Business Development) $195,565 $0 $31,609
Greg Rubenstein (Vp Of Marketing) $179,174 $0 $28,866
Laura Gilman (Vp Of Events) $162,973 $0 $28,964
Mark Hamilton (Associate Director, Research) $145,172 $0 $10,281
Karen Woolley (Clinical Operations Manager) $143,813 $0 $6,510
Michael Mortimer (Chairman) $0 $0 $0
Lori Tauber Marcus (Vice Chairman) $0 $0 $0
Kenneth Anderson Md (Board Member) $0 $0 $0
Karen Andrews (Board Member) $0 $0 $0
Thomas Conheeney (Board Member) $0 $0 $0
Rodney Gilmore (Board Member) $0 $0 $0
W Dana Laforge (Board Member) $0 $0 $0
David Lucchino (Board Member) $0 $0 $0
Hugh Martin (Board Member) $0 $0 $0
Susan Marvin (Board Member) $0 $0 $0
Gerald Mcdougall (Board Member) $0 $0 $0
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990
Filed on Sept. 16, 2021

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Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$43,968,062
Expenses
$33,588,092
Net Income
$10,379,970
Net Assets
$55,730,374
Notable Sources of Revenue Percent of Total Revenue
Contributions $39,651,088
90.2%
Program Services $2,813,345
6.4%
Investment Income $1,349,522
3.1%
Bond Proceeds $0
Royalties $1,956,025
4.4%
Rental Property Income $0
Net Fundraising -$1,817,838
Sales of Assets $15,920
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $2,841,968
8.5%
Professional Fundraising Fees $0
Other Salaries and Wages $5,008,046
14.9%
Assets/Debt
Total Assets $79,154,355
Total Liabilities $23,423,981
Net Assets $55,730,374
Compensation
Key Employees and Officers Compensation Related Other
Paul Giusti (President & Ceo) $543,455 $0 $13,337
Kathy Giusti (Founder & Chief Mission Officer) $396,980 $0 $1,964
Robert Miani (Treasurer/Cfo) $313,542 $0 $22,001
Steven Labkoff Md (Chief Data Officer) $312,004 $0 $40,126
Michael Adreini (Coo) $260,201 $0 $16,287
Daniel Auclair (Chief Scientific Officer) $243,799 $0 $11,780
Peter Kosa (Mif Managing Director) $243,184 $0 $21,851
Anne Quinn Young (Chief Marketing & Dev. Officer) $234,225 $0 $21,493
Christopher Williams (Vp Of Business Development) $208,150 $0 $34,080
Steven Varley (Vp Of Development) $185,608 $0 $9,206
Karen Dietz (Secretary/In House Counsel) $183,823 $0 $31,228
Laura Gilman (Vp Of Events) $167,295 $0 $28,430
Patrick Simms (Vp Of Research (Thru 12/2019)) $166,610 $0 $28,123
Alicia O'neill (Dir. Of Events Bus. Dev. (Thru 12/2019)) $162,137 $0 $19,888
Michael Mortimer (Chairman) $0 $0 $0
Lori Tauber Marcus (Vice Chairman) $0 $0 $0
Kenneth Anderson Md (Board Member) $0 $0 $0
Karen Andrews (Board Member) $0 $0 $0
Tom Conheeney (Board Member) $0 $0 $0
Rodney Gilmore (Board Member) $0 $0 $0
W Dana Laforge (Board Member) $0 $0 $0
David Lucchino (Board Member) $0 $0 $0
Hugh Martin (Board Member) $0 $0 $0
Susan Marvin (Board Member) $0 $0 $0
Gerald Mcdougall (Board Member) $0 $0 $0
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990
Filed on Sept. 30, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$44,172,260
Expenses
$36,242,359
Net Income
$7,929,901
Net Assets
$47,817,339
Notable Sources of Revenue Percent of Total Revenue
Contributions $41,335,585
93.6%
Program Services $3,610,454
8.2%
Investment Income $1,090,003
2.5%
Bond Proceeds $0
Royalties $277,528
0.6%
Rental Property Income $0
Net Fundraising -$2,176,696
Sales of Assets $35,386
0.1%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $2,062,170
5.7%
Professional Fundraising Fees $0
Other Salaries and Wages $3,444,803
9.5%
Assets/Debt
Total Assets $69,711,900
Total Liabilities $21,894,561
Net Assets $47,817,339
Compensation
Key Employees and Officers Compensation Related Other
Paul Giusti (President & Ceo) $604,080 $0 $13,137
Robert Miani (Treasurer/Cfo) $303,326 $0 $19,984
Kathy Giusti (Founder & Chief Mission Officer) $251,584 $0 $1,820
Daniel Auclair (Chief Scientific Officer) $235,335 $0 $11,382
Anne Quinn Young (Chief Marketing & Dev. Officer) $229,709 $0 $14,785
Christopher Williams (Vp Of Business Development) $195,515 $0 $33,907
Laura Gilman (Vp Of Events) $162,252 $0 $27,728
Margaret Furlong (Assoc. Dir. Of Clinical Ops.) $155,487 $0 $32,284
Alicia O'neill (Dir. Of Events Business Development) $153,050 $0 $17,629
Karen Dietz (Secretary/In House Counsel) $152,727 $0 $34,319
Karen Woolley (Clinical Operations Manager) $142,200 $0 $6,766
Mary Derome (Dir. Of Med. Comms & Educ.) $138,612 $0 $9,154
Michael Mortimer (Chairman) $0 $0 $0
Lori Tauber Marcus (Vice Chairman) $0 $0 $0
Kenneth Anderson Md (Board Member) $0 $0 $0
Karen Andrews (Board Member) $0 $0 $0
Tom Conheeney (Board Member) $0 $0 $0
Rodney Gilmore (Board Member) $0 $0 $0
W Dana Laforge (Board Member) $0 $0 $0
David Lucchino (Board Member) $0 $0 $0
Hugh Martin (Board Member) $0 $0 $0
Susan Marvin (Board Member) $0 $0 $0
Gerald Mcdougall (Board Member) $0 $0 $0
William Mckiernan (Board Member) $0 $0 $0
David Parkinson Md (Board Member) $0 $0 $0
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990
Filed on Oct. 23, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$45,691,025
Expenses
$30,536,598
Net Income
$15,154,427
Net Assets
$40,881,865
Notable Sources of Revenue Percent of Total Revenue
Contributions $44,515,691
97.4%
Program Services $3,005,435
6.6%
Investment Income $373,452
0.8%
Bond Proceeds $0
Royalties $1,997,388
4.4%
Rental Property Income $0
Net Fundraising -$4,273,323
Sales of Assets $72,382
0.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $2,032,134
6.7%
Professional Fundraising Fees $0
Other Salaries and Wages $3,438,330
11.3%
Assets/Debt
Total Assets $56,487,907
Total Liabilities $15,606,042
Net Assets $40,881,865
Compensation
Key Employees and Officers Compensation Related Other
Paul Giusti (President & Ceo) $542,600 $0 $12,835
Kathy Giusti (Founder & Strategic Advisor) $326,032 $0 $1,722
Robert Miani (Treasurer/Cfo) $311,083 $0 $21,509
Anne Quinn Young (Svp Of Marketing) $223,440 $0 $13,178
Daniel Auclair (Svp Of Research) $221,754 $0 $10,368
Laura Gilman (Vp Of Events) $152,016 $0 $30,531
Alicia O'neill (Dir. Of Events Business Development) $148,279 $0 $19,839
Karen Woolley (Clinical Operations Manager) $138,268 $0 $6,519
Mary Derome (Dir. Of Med. Comms & Educ.) $132,500 $0 $8,778
Margaret Furlong (Assoc. Dir. Of Clinical Ops.) $131,258 $0 $34,079
Karen Dietz (Secretary/In House Counsel) $125,911 $0 $39,157
Christopher Williams (Vp Of Business Development) $122,711 $0 $5,797
Michael Mortimer (Chairman) $0 $0 $0
Lori Tauber Marcus (Vice Chairman) $0 $0 $0
Kenneth Anderson Md (Board Member) $0 $0 $0
Karen Andrews (Board Member) $0 $0 $0
Tom Conheeney (Board Member) $0 $0 $0
Rodney Gilmore (Board Member) $0 $0 $0
Eugene Grisanti (Board Member (Thru 03/2017)) $0 $0 $0
W Dana Laforge (Board Member) $0 $0 $0
David Lucchino (Board Member) $0 $0 $0
Joel Marcus (Board Member (Thru 04/2017)) $0 $0 $0
Susan Marvin (Board Member) $0 $0 $0
Gerald Mcdougall (Board Member) $0 $0 $0
William Mckiernan (Board Member) $0 $0 $0
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990
Filed on Nov. 9, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$36,113,277
Expenses
$27,260,474
Net Income
$8,852,803
Net Assets
$25,747,025
Notable Sources of Revenue Percent of Total Revenue
Contributions $37,196,531
> 100%
Program Services $2,337,395
6.5%
Investment Income $216,547
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$3,637,196
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $2,433,693
8.9%
Professional Fundraising Fees $131,600
0.5%
Other Salaries and Wages $3,190,641
11.7%
Assets/Debt
Total Assets $37,562,966
Total Liabilities $11,815,941
Net Assets $25,747,025
Compensation
Key Employees and Officers Compensation Related Other
Walter Capone (President & Ceo (Thru 01/2016)) $466,772 $0 $31,586
Paul Giusti (President & Ceo) $369,231 $0 $2,154
Kathy Giusti (Founder & Strategic Advisor) $265,669 $0 $0
Daniel Auclair (Svp Of Research) $207,766 $0 $8,557
Robert Miani (Treasurer/Cfo) $188,912 $0 $8,185
Joan Levy (Vp Of Research) $188,499 $0 $23,633
Anne Quinn Young (Svp Of Marekting) $173,691 $0 $32,653
Sharon Saias (Vp Of Marketing) $153,769 $0 $22,766
Alicia O'neill (Dir. Of Events Business Development) $144,851 $0 $18,228
Laura Gilman (Vp Of Events) $144,184 $0 $27,653
Karen Woolley (Clinical Operations Manager) $131,975 $0 $5,264
Paul Bassett (Clinical Operations Manager) $117,479 $0 $13,531
James Grazick (Senior Dir. Of Finance Thru 06/2016) $117,044 $0 $19,859
Margaret Furlong (Clinical Operations Manager) $114,551 $0 $29,159
Karen Dietz (Secretary/In House Counsel) $113,532 $0 $39,416
Michael Mortimer (Chairman) $0 $0 $0
Lori Tauber Marcus (Vice Chairman) $0 $0 $0
Charles Ortner (Board Member (Thru 09/2016)) $0 $0 $0
David Lucchino (Board Member) $0 $0 $0
David Parkinson Md (Board Member) $0 $0 $0
Eugene Grisanti (Board Member) $0 $0 $0
Gerald Mcdougall (Board Member) $0 $0 $0
Joel Marcus (Board Member) $0 $0 $0
Karen Andrews (Board Member) $0 $0 $0
Kenneth Anderson Md (Board Member) $0 $0 $0
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990
Filed on Nov. 14, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$28,896,409
Expenses
$29,637,872
Net Income
-$741,463
Net Assets
$16,938,766
Notable Sources of Revenue Percent of Total Revenue
Contributions $29,215,754
> 100%
Program Services $3,055,562
10.6%
Investment Income $145,653
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$3,516,694
Sales of Assets -$10,800
Net Inventory Sales $6,934
0.0%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $2,003,693
6.8%
Professional Fundraising Fees $254,525
0.9%
Other Salaries and Wages $2,751,033
9.3%
Assets/Debt
Total Assets $22,963,398
Total Liabilities $6,024,632
Net Assets $16,938,766
Compensation
Key Employees and Officers Compensation Related Other
Kathy Giusti (Executive Chairman & President) $434,464 $0 $0
Walter Capone (Ceo) $432,633 $0 $25,949
Daniel Auclair (Svp Of Research) $193,360 $0 $0
Joan Levy (Vp Of Research) $178,759 $0 $15,904
Anne Quinn Young (Vp Of Development & Strategic Prtnrships) $165,110 $0 $22,087
Sharon Saias (Director Of Marketing) $160,097 $0 $16,270
Alicia O'neill (Dir. Of Events Business Development) $154,814 $0 $9,809
James Grazick (Treasurer/Director Of Finance) $146,197 $0 $11,331
Laura Gilman (Senior Director Of Events) $133,993 $0 $17,301
Paul Bassett (Clinical Operations Manager) $123,761 $0 $3,228
Michael Hund (Director Of Development) $107,248 $0 $0
Mary Derome (Translational Research Manager) $104,808 $0 $412
Karen Dietz (Secretary/In House Council) $98,057 $0 $19,218
Charles Ortner (Board Member) $0 $0 $0
Chris Mcwilton (Board Member Term Ended Dec. 2015) $0 $0 $0
David Lucchino (Board Member) $0 $0 $0
David Parkinson Md (Board Member) $0 $0 $0
Eugene Grisanti (Board Member) $0 $0 $0
Gerald Mcdougall (Board Member) $0 $0 $0
Joel Marcus (Board Member) $0 $0 $0
Karen Andrews (Board Member) $0 $0 $0
Kenneth Anderson Md (Board Member) $0 $0 $0
Lori Tauber Marcus (Board Member) $0 $0 $0
Marie Pinizzotto Md (Board Member) $0 $0 $0
Meryl Zausner (Board Member) $0 $0 $0
See filing for compensation of 7 other people →
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Document Links

990
Filed on Aug. 11, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$28,639,741
Expenses
$25,926,480
Net Income
$2,713,261
Net Assets
$18,763,718
Notable Sources of Revenue Percent of Total Revenue
Contributions $30,292,535
> 100%
Program Services $878,000
3.1%
Investment Income $139,672
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$2,646,750
Sales of Assets -$23,716
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $1,370,563
5.3%
Professional Fundraising Fees $249,752
1.0%
Other Salaries and Wages $1,911,818
7.4%
Assets/Debt
Total Assets $24,223,758
Total Liabilities $5,460,040
Net Assets $18,763,718
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Kathy Giusti (Executive Chairman & President) $449,464 $0 $38
Walter Capone (Ceo) $399,090 $0 $26,762
Fiona An (Senior Vp Of Clinical Research) $188,356 $0 $4,880
Daniel Auclair (Vp Of Translations Research) $171,449 $0 $38
Anne Quinn Young (Vp Of Development & Strategic Partnerships) $169,204 $0 $7,734
Joan Levy (Director Of Translational Research) $164,959 $0 $8,911
Alicia O'neill (Director Of Events Business Development & Partners) $134,975 $0 $4,735
James Grazick (Treasurer/Director Of Fina) $131,646 $0 $8,911
Karen Dietz (Secretary/In House Council) $112,859 $0 $16,112
Laura Gliman (Senior Director Of Events) $105,147 $0 $20,199
Karen Andrews (Board Member) $0 $0 $0
Kenneth Anderson Md (Board Member) $0 $0 $0
Lori Tauber Marcus (Board Member) $0 $0 $0
Eugene Grisanti (Board Member) $0 $0 $0
Marie Pinizzotto (Board Member) $0 $0 $0
David Lucchino (Board Member) $0 $0 $0
Joel Marcus (Board Member) $0 $0 $0
William Mckiernan (Board Member) $0 $0 $0
W Dana Laforge (Board Member) $0 $0 $0
Charles Ortner (Board Member) $0 $0 $0
Chris Mcwilton (Board Member) $0 $0 $0
Michael Mortimer (Board Member) $0 $0 $0
Meryl Zausner (Board Member) $0 $0 $0
Gerald Mcdougall (Board Member) $0 $0 $0
William Bowes (Board Member) $0 $0 $0
See filing for compensation of 3 other people →
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990
Filed on Aug. 17, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$23,227,427
Expenses
$23,166,776
Net Income
$60,651
Net Assets
$15,867,188
Notable Sources of Revenue Percent of Total Revenue
Contributions $19,085,387
82.2%
Program Services $810,010
3.5%
Investment Income $153,236
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $3,258,203
14.0%
Sales of Assets -$79,409
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $1,446,243
6.2%
Professional Fundraising Fees $265,283
1.1%
Other Salaries and Wages $2,260,444
9.8%
Assets/Debt
Total Assets $22,436,221
Total Liabilities $6,569,033
Net Assets $15,867,188
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Kathy Giusti (Chief Executive Officer) $462,483 $0 $815
Walter Capone (President) $390,999 $0 $23,955
Anne Quinn Young (Vp Of Marketing) $167,654 $0 $521
Christina Walters (Chief Development And Mark) $163,737 $0 $4,660
Joan Levy (Director Of Translational) $158,383 $0 $14,770
Anne Walker (National Events Director) $143,823 $0 $504
Alicia O'neil (Director Of Endurance Events) $134,912 $0 $486
James Grazick (Treasurer/Director Of Fina) $130,236 $0 $8,185
Deb Palonis (Former Regional Development Mgr) $129,521 $0 $489
Daniel Auclair (Director Of Translational Research) $124,163 $0 $515
Carolyn Hoban (Director Of Translational) $110,283 $0 $10,003
Karen Dietz (Secretary/In House Council) $92,040 $0 $11,434
Bill Bowes (Board Member) $0 $0 $0
Charles Ortner (Board Member) $0 $0 $0
Chris Mcwilton (Board Member) $0 $0 $0
Dana Laforge (Board Member) $0 $0 $0
David Lucchino (Board Member) $0 $0 $0
Marie Pinizzotto (Board Member) $0 $0 $0
Joel Marcus (Board Member) $0 $0 $0
Gene Grisanti (Board Member) $0 $0 $0
Gerald Mcdougall (Board Member) $0 $0 $0
Karen Andrews (Board Member) $0 $0 $0
Kenneth Anderson Md (Board Member) $0 $0 $0
Lori Tauber Marcus (Board Member) $0 $0 $0
Meryl Zausner (Board Member) $0 $0 $0
See filing for compensation of 7 other people →
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990
Filed on Aug. 11, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
View Filing (2 of 3) View Filing (3 of 3)

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$29,482,391
Expenses
$28,316,239
Net Income
$1,166,152
Net Assets
$15,814,057
Notable Sources of Revenue Percent of Total Revenue
Contributions $26,496,124
89.9%
Program Services $5,006,208
17.0%
Investment Income $186,625
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$2,237,825
Sales of Assets $31,259
0.1%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $1,047,562
3.7%
Professional Fundraising Fees $135,000
0.5%
Other Salaries and Wages $2,096,730
7.4%
Assets/Debt
Total Assets $24,122,682
Total Liabilities $8,308,625
Net Assets $15,814,057

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$26,395,801
Expenses
$24,972,091
Net Income
$1,423,710
Net Assets
$14,557,166
Notable Sources of Revenue Percent of Total Revenue
Contributions $26,683,517
> 100%
Program Services $1,426,530
5.4%
Investment Income $210,105
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,924,351
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $1,108,105
4.4%
Professional Fundraising Fees $122,340
0.5%
Other Salaries and Wages $1,311,788
5.3%
Assets/Debt
Total Assets $26,736,021
Total Liabilities $12,178,855
Net Assets $14,557,166

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

Byline

By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated