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Institute For Neurodegenerative Disorders Inc

  • New Haven, CT
  • Tax-exempt since March 2001
  • EIN: 06-1582206

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Neurology, Neuroscience Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$12.1M (2022)

Expenses
$11.2M (2022)

Total Assets
$6.39M (2022)

Total Liabilities
$2.7M (2022)

Source: Form 990 tax filings from 2011 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$12,127,200
Expenses
$11,240,095
Net Income
$887,105
Net Assets
$3,692,240
Notable Sources of Revenue Percent of Total Revenue
Contributions $57,939
0.5%
Program Services $12,064,508
99.5%
Investment Income $4,753
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $1,893,616
16.8%
Professional Fundraising Fees $0
Other Salaries and Wages $1,625,241
14.5%
Assets/Debt
Total Assets $6,387,631
Total Liabilities $2,695,391
Net Assets $3,692,240
Compensation
Key Employees and Officers Compensation Related Other
Kimberly Fabrizio (Employee) $289,075 $0 $100,827
Ken Marek (Distinguishe) $283,250 $0 $100,947
David Lunt (Chief Fin. O) $247,519 $0 $92,968
Craig E Stanley (Employee) $207,707 $0 $26,300
Bridget Mcmahon (Employee) $206,971 $0 $65,740
Emily Flagg (Employee) $193,238 $0 $39,955
Cecilia F Reyes (Employee) $139,657 $0 $36,669
Anna Lorenzo (Employee) $135,624 $0 $18,461
Zeina Singh (Employee) $132,613 $0 $34,110
Lynne Stickle (Employee) $112,424 $0 $56,740
Jack Mariotti (Board Member) $95,523 $0 $21,047
Harvey Dann (Board Member) $0 $0 $0
Rebecca Evans (Board Member) $0 $0 $0
Michael Forte (Board Member) $0 $0 $0
Danna Jennings (Board Member) $0 $0 $0
David Russell (Board Member) $0 $0 $0
John Seibyl (Chairman) $0 $0 $0
Cheryl Yanosy (Board Member) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 7, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$8,708,583
Expenses
$8,118,394
Net Income
$590,189
Net Assets
$2,805,135
Notable Sources of Revenue Percent of Total Revenue
Contributions $66,104
0.8%
Program Services $8,642,255
99.2%
Investment Income $224
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $686,933
8.5%
Professional Fundraising Fees $0
Other Salaries and Wages $1,423,099
17.5%
Assets/Debt
Total Assets $7,010,755
Total Liabilities $4,205,620
Net Assets $2,805,135
Compensation
Key Employees and Officers Compensation Related Other
Jack Mariotti (Executive Di) $270,353 $0 $123,029
Ken Marek (Distinguiste) $270,353 $0 $110,834
Kimberly Fabrizio (Employee) $220,660 $0 $85,088
Emily Flagg (Employee) $185,172 $0 $53,746
Bridget Mcmahon (Employee) $144,031 $0 $58,593
Sara Defendorf (Employee) $130,420 $0 $27,314
Harvey Dann (Board Member) $0 $0 $0
Rebecca Evans (Board Member) $0 $0 $0
Michael Forte (Officer) $0 $0 $0
Danna Jennings (Board Member) $0 $0 $0
David Russell (Board Member) $0 $0 $0
John Seibyl (Chairman) $0 $0 $0
Cheryl Yanosy (Board Member) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 9, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,678,379
Expenses
$5,752,166
Net Income
-$73,787
Net Assets
$2,214,946
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,122,200
37.4%
Program Services $3,370,912
59.4%
Investment Income $185,267
3.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $434,234
7.5%
Professional Fundraising Fees $0
Other Salaries and Wages $1,221,295
21.2%
Assets/Debt
Total Assets $4,224,515
Total Liabilities $2,009,569
Net Assets $2,214,946
Compensation
Key Employees and Officers Compensation Related Other
Jack Mariotti (Executive Di) $217,116 $0 $88,758
Ken Marek (Distinguiste) $217,116 $0 $70,748
Emily Flagg (Employee) $176,468 $0 $51,852
Elisabeth Deblieck (Employee) $141,975 $0 $66,644
Shirley Lasch (Employee) $126,157 $0 $30,449
Harvey Dann (Board Member) $0 $0 $0
Rebecca Evans (Board Member) $0 $0 $0
Michael Forte (Officer) $0 $0 $0
Danna Jennings (Board Member) $0 $0 $0
John Seibyl (Chariman) $0 $0 $0
Cheryl Yanosy (Board Member) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 11, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$6,274,529
Expenses
$6,005,297
Net Income
$269,232
Net Assets
$2,288,733
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,479,469
39.5%
Program Services $3,771,856
60.1%
Investment Income $23,204
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $524,644
8.7%
Professional Fundraising Fees $0
Other Salaries and Wages $465,873
7.8%
Assets/Debt
Total Assets $5,169,355
Total Liabilities $2,880,622
Net Assets $2,288,733
Compensation
Key Employees and Officers Compensation Related Other
Jack Mariotti (Executive Di) $211,530 $0 $58,437
Ken Marek (Distinguiste) $211,530 $0 $43,147
Alexandra Gouasmat (Employee) $128,506 $0 $7,744
Emily Flagg (Employee) $122,775 $0 $18,808
Harvey Dann (Board Member) $0 $0 $0
Rebecca Evans (Board Member) $0 $0 $0
Michael Forte (Officer) $0 $0 $0
Danna Jennings (Board Member) $0 $0 $0
John Seibyl (Chariman) $0 $0 $0
Cheryl Yanosy (Board Member) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 15, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,370,037
Expenses
$4,084,992
Net Income
$1,285,045
Net Assets
$2,019,501
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,570,706
66.5%
Program Services $1,798,703
33.5%
Investment Income $628
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $24,000
0.6%
Professional Fundraising Fees $0
Other Salaries and Wages $1,809,517
44.3%
Assets/Debt
Total Assets $2,199,960
Total Liabilities $180,459
Net Assets $2,019,501
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Alexandra Gouasmat (Employee) $121,085 $0 $14,787
Jack Mariotti (Executive Di) $24,000 $0 $924
Michael Forte (Chairman) $0 $0 $0
Jackie Dorwin (Board Member) $0 $0 $0
Harvey Dann (Board Member) $0 $0 $0
Ken Marek (Vp Treasurer) $0 $0 $0
John Seibyl (Board Member) $0 $0 $0
Cheryl Yanosy (Board Member) $0 $0 $0
Danna Jennings (Board Member) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 29, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,504,708
Expenses
$3,957,152
Net Income
-$452,444
Net Assets
$734,456
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,777,961
50.7%
Program Services $1,726,660
49.3%
Investment Income $87
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $2,276,746
57.5%
Assets/Debt
Total Assets $807,160
Total Liabilities $72,704
Net Assets $734,456
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Michael Forte (Chairman) $0 $0 $0
Jackie Dorwin (Board Member) $0 $0 $0
Harvey Dann (Board Member) $0 $0 $0
Ken Marek (Board Member) $0 $0 $0
John Seibyl (Board Member) $0 $0 $0
Cheryl Yanosy (Board Member) $0 $0 $0
Janna Murgia (Board Member) $0 $0 $0
Jack Mariotti (Executive Di) $0 $0 $0
Reed Malleck (Fin Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 6, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,050,250
Expenses
$4,465,472
Net Income
-$415,222
Net Assets
$699,692
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,871,393
70.9%
Program Services $1,178,761
29.1%
Investment Income $96
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $2,252,871
50.5%
Assets/Debt
Total Assets $1,185,484
Total Liabilities $485,792
Net Assets $699,692
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Ken Marek (Board Member) $7,526 $0 $0
John Seibyl (Exec Dir & B) $4,032 $0 $0
Michael Forte (Chairman) $0 $0 $0
Jackie Dorwin (Board Member) $0 $0 $0
Harvey Dann (Board Member) $0 $0 $0
Cheryl Yanosy (Board Member) $0 $0 $0
Janna Murgia (Board Member) $0 $0 $0
Jack Mariotti (Secretary) $0 $0 $0
Reed Malleck (Fin Director) $0 $0 $0
+ View more people

Document Links

990
Filed on March 13, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
View Filing (2 of 2)

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,940,242
Expenses
$4,083,735
Net Income
-$143,493
Net Assets
$1,114,914
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,214,235
81.6%
Program Services $725,889
18.4%
Investment Income $118
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $123,083
3.0%
Professional Fundraising Fees $0
Other Salaries and Wages $1,783,156
43.7%
Assets/Debt
Total Assets $1,500,196
Total Liabilities $385,282
Net Assets $1,114,914
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Ken Marek (Board Member) $77,613 $0 $0
John Seibyl (Exec Dir & B) $45,470 $0 $0
Michael Forte (Chairman) $0 $0 $0
Jackie Dorwin (Board Member) $0 $0 $0
Harvey Dann (Board Member) $0 $0 $0
Cheryl Yanosy (Board Member) $0 $0 $0
Jack Mariotti (Secretary/Fi) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 12, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
PDF (2 of 2)

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,256,555
Expenses
$4,293,976
Net Income
-$37,421
Net Assets
$1,258,407
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,730,608
87.6%
Program Services $525,822
12.4%
Investment Income $125
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $117,376
2.7%
Professional Fundraising Fees $0
Other Salaries and Wages $1,744,842
40.6%
Assets/Debt
Total Assets $3,382,880
Total Liabilities $2,124,473
Net Assets $1,258,407
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Michael Forte (Chairman) $0 $0 $0
Jackie Dorwin (Board Member) $0 $0 $0
Harvey Dann (Board Member) $0 $0 $0
Ken Marek (Board Member) $0 $0 $0
John Seibyl (Exec Dir & B) $0 $0 $0
Cheryl Yanosy (Board Member) $0 $0 $0
Jack Mariotti (Secretary/Fi) $0 $0 $0
+ View more people

Document Links

990
Filed on July 17, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,672,764
Expenses
$3,733,414
Net Income
$939,350
Net Assets
$1,295,828
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,207,801
90.0%
Program Services $464,716
9.9%
Investment Income $247
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $126,582
3.4%
Professional Fundraising Fees $0
Other Salaries and Wages $1,246,959
33.4%
Assets/Debt
Total Assets $2,782,303
Total Liabilities $1,486,475
Net Assets $1,295,828
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Ken Marek (Board Member) $74,794 $0 $11,500
John Seibyl (Exec Dir & B) $28,786 $0 $11,500
Michael Forte (Chairman) $0 $0 $0
Jackie Dorwin (Board Member) $0 $0 $0
Harvey Dann (Board Member) $0 $0 $0
Cheryl Yanosy (Board Member) $0 $0 $0
Jack Mariotti (Secretary/Fi) $0 $0 $0
+ View more people

Document Links

990
Filed on July 25, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,462,029
Expenses
$3,426,752
Net Income
$35,277
Net Assets
$356,478
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,968,334
85.7%
Program Services $493,202
14.2%
Investment Income $493
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $137,819
4.0%
Professional Fundraising Fees $0
Other Salaries and Wages $1,235,097
36.0%
Assets/Debt
Total Assets $1,545,637
Total Liabilities $1,189,159
Net Assets $356,478

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,905,738
Expenses
$5,180,386
Net Income
-$274,648
Net Assets
$321,201
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,745,911
56.0%
Program Services $2,159,156
44.0%
Investment Income $671
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $314,387
6.1%
Professional Fundraising Fees $0
Other Salaries and Wages $287,723
5.6%
Assets/Debt
Total Assets $993,971
Total Liabilities $672,770
Net Assets $321,201

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

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Byline

By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated