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Share And Care Cockayne Syndrome Network Inc

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Birth Defects and Genetic Diseases (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$17.5k (2020)

Expenses
$5.66k (2020)

Total Assets
$35.5k (2020)

Total Liabilities
$0 (2020)

Years with missing data
Source: Form 990 tax filings from 2010 to 2020

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$17,512
Expenses
$5,663
Net Income
$11,849
Net Assets
$35,462
Notable Sources of Revenue Percent of Total Revenue
Contributions $17,512
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $35,462
Total Liabilities $0
Net Assets $35,462
Compensation
Key Employees and Officers Compensation Other
Jacqueline Arias Clark (President/Ceo) $0 $0
Haylee Carroll (Vice President) $0 $0
Veronica Cuevas (Secretary) $0 $0
Seth Zimmerman (Board Member) $0 $0
Brent Smith (Board Member) $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$88,939
Expenses
$108,833
Net Income
-$19,894
Net Assets
$23,613
Notable Sources of Revenue Percent of Total Revenue
Contributions $83,325
93.7%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $5,614
6.3%
Assets/Debt
Total Assets $23,613
Total Liabilities $0
Net Assets $23,613
Compensation
Key Employees and Officers Compensation Other
Jacqueline Arias Clark (Executive Director/Preside) $0 $0
Haylee Carroll (Vice President) $0 $0
Seth Zimmerman (Director) $0 $0
Brent Smith (Director) $0 $0
Nikki Eberstein (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$106,403
Expenses
$158,095
Net Income
-$51,692
Net Assets
$43,507
Notable Sources of Revenue Percent of Total Revenue
Contributions $106,096
99.7%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $307
0.3%
Assets/Debt
Total Assets $43,507
Total Liabilities $0
Net Assets $43,507
Compensation
Key Employees and Officers Compensation Other
Jacqueline Arias Clark (Executive Director/President) $0 $0
Haylee Carroll (Vice President) $0 $0
Seth Zimmerman (Director) $0 $0
Brent Smith (Director) $0 $0
Nikki Eberstein (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$230,766
Expenses
$193,312
Net Income
$37,454
Net Assets
$95,818
Notable Sources of Revenue Percent of Total Revenue
Contributions $248,561
> 100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$17,961
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $166
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $95,818
Total Liabilities $0
Net Assets $95,818
Compensation
Key Employees and Officers Compensation Related Other
Seth Zimmerman (Director) $0 $0 $0
Brent Smith (Director) $0 $0 $0
Nikki Eberstein (Director) $0 $0 $0
Jacqueline Arias Clark (Executive Director/President) $0 $0 $0
Haylee Carroll (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$161,040
Expenses
$106,245
Net Income
$54,795
Net Assets
$72,012
Notable Sources of Revenue Percent of Total Revenue
Contributions $199,854
> 100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$45,627
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $6,813
4.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $72,012
Total Liabilities $0
Net Assets $72,012
Compensation
Key Employees and Officers Compensation Related Other
Andrea Penney (Director) $0 $0 $0
Seth Zimmerman (Director) $0 $0 $0
Brent Smith (Director) $0 $0 $0
Nikki Eberstein (Director) $0 $0 $0
Alejandra Mckinney (Director) $0 $0 $0
Jacqueline Arias Clark (Executive Director) $0 $0 $0
Haylee Carroll (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$77,124
Expenses
$99,444
Net Income
-$22,320
Net Assets
$17,748
Notable Sources of Revenue Percent of Total Revenue
Contributions $74,849
97.1%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,275
2.9%
Assets/Debt
Total Assets $17,748
Total Liabilities $0
Net Assets $17,748

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$78,290
Expenses
$90,310
Net Income
-$12,020
Net Assets
$40,068
Notable Sources of Revenue Percent of Total Revenue
Contributions $73,889
94.4%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $4,401
5.6%
Assets/Debt
Total Assets $40,068
Total Liabilities $0
Net Assets $40,068
Compensation
Key Employees and Officers Compensation Other
Mark Pelson (Director) $0 $0
Jacqueline Arias Clark (Executive Director) $0 $0
Tim Carroll (Director) $0 $0
Andrea Penney (Director) $0 $0
Haylee Carroll (Vice President) $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$51,265
Expenses
$93,388
Net Income
-$42,123
Net Assets
$52,088
Notable Sources of Revenue Percent of Total Revenue
Contributions $48,728
95.1%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,537
4.9%
Assets/Debt
Total Assets $52,088
Total Liabilities $0
Net Assets $52,088

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$111,595
Expenses
$110,047
Net Income
$1,548
Net Assets
$102,958
Notable Sources of Revenue Percent of Total Revenue
Contributions $105,765
94.8%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $5,830
5.2%
Assets/Debt
Total Assets $102,958
Total Liabilities $0
Net Assets $102,958

Document Links

Fiscal Year Ending Dec.
2010

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$139,660
Expenses
$95,871
Net Income
$43,789
Net Assets
$101,410
Notable Sources of Revenue Percent of Total Revenue
Contributions $129,288
92.6%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $10,372
7.4%
Assets/Debt
Total Assets $101,410
Total Liabilities $0
Net Assets $101,410

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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