Dystrophic Epidermolysis Bullosa Research Assn Of America Inc

D E B R A Of America Inc

Boulder, CO
Tax-exempt since July 1982
EIN: 11-2519726

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Type of Nonprofit

Designated as a 501(c)(3) Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Revenue

$2.6M (2023)

Expenses

$1.57M (2023)

Total Assets

$1.94M (2023)

Total Liabilities

$199k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Revenue

$2,604,819

Expenses

$1,572,705

Net Income

$1,032,114

Net Assets

$1,741,098

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$1,877,454	72.1%
Program Services	$0
Investment Income	$14,772	0.6%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$709,954	27.3%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$2,639	0.1%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$283,417	18.0%
Professional Fundraising Fees	$0
Other Salaries and Wages	$552,799	35.1%

Assets/Debt
Total Assets	$1,940,472
Total Liabilities	$199,374
Net Assets	$1,741,098

Compensation

Key Employees and Officers	Compensation	Related	Other
Brett Kopelan (Executive Director)	$283,417	$0	$0
J Alec Alexander (Treasurer)	$0	$0	$0
Andrew Tavani (Chair)	$0	$0	$0
Richard Gallagher (Chair Emeritus)	$0	$0	$0
Robert Ryan Ph D (Director)	$0	$0	$0
John Lee (Secretary)	$0	$0	$0
William Cornman (Director)	$0	$0	$0
James Wetrich (Director)	$0	$0	$0
Leslie Rader (Director)	$0	$0	$0
Angela Christiano Ph D (Director)	$0	$0	$0
Thomas Trimarchi (Director)	$0	$0	$0
Ryan Fullmer (Director)	$0	$0	$0
Rob Rayl (Director)	$0	$0	$0

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990

Filed on April 8, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

XML

Fiscal Year Ending Dec.
2022

Revenue

$3,356,992

Expenses

$1,969,058

Net Income

$1,387,934

Net Assets

$1,796,384

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$2,399,604	71.5%
Program Services	$0
Investment Income	$722	0.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$945,540	28.2%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$11,126	0.3%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$260,635	13.2%
Professional Fundraising Fees	$0
Other Salaries and Wages	$506,473	25.7%

Assets/Debt
Total Assets	$2,090,353
Total Liabilities	$293,969
Net Assets	$1,796,384

Compensation

Key Employees and Officers	Compensation	Related	Other
Brett Kopelan (Executive Director)	$260,635	$0	$0
J Alec Alexander (Treasurer)	$0	$0	$0
Andrew Tavani (Chair)	$0	$0	$0
Richard Gallagher (Chair Emeritus)	$0	$0	$0
Robert Ryan Ph D (Director)	$0	$0	$0
John Lee (Secretary)	$0	$0	$0
William Cornman (Director)	$0	$0	$0
James Wetrich (Director)	$0	$0	$0
Leslie Rader (Director)	$0	$0	$0
Joui Uitto Md Phd (Director)	$0	$0	$0
Angela Christiano Ph D (Director)	$0	$0	$0
Thomas Trimarchi (Director)	$0	$0	$0

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990

Filed on June 9, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

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Fiscal Year Ending Dec.
2021

Revenue

$1,109,789

Expenses

$1,672,683

Net Income

-$562,894

Net Assets

$1,857,721

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$1,003,636	90.4%
Program Services	$0
Investment Income	$787	0.1%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$99,416	9.0%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$5,950	0.5%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$260,758	15.6%
Professional Fundraising Fees	$0
Other Salaries and Wages	$614,544	36.7%

Assets/Debt
Total Assets	$2,216,777
Total Liabilities	$359,056
Net Assets	$1,857,721

Compensation

Key Employees and Officers	Compensation	Related	Other
Brett Kopelan (Executive Director)	$260,758	$0	$0
J Alec Alexander (Treasurer)	$0	$0	$0
Andrew Tavani (Chair)	$0	$0	$0
Richard Gallagher (Chair Emeritus)	$0	$0	$0
Robert Ryan Ph D (Director)	$0	$0	$0
John Lee (Secretary)	$0	$0	$0
William Cornman (Director)	$0	$0	$0
James Wetrich (Director)	$0	$0	$0
Leslie Rader (Director)	$0	$0	$0
Joui Uitto Md Phd (Director)	$0	$0	$0
Angela Christiano Ph D (Director)	$0	$0	$0
Thomas Trimarchi (Director)	$0	$0	$0

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990

Filed on March 11, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2020

Revenue

$1,875,849

Expenses

$1,367,432

Net Income

$508,417

Net Assets

$2,654,901

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$936,305	49.9%
Program Services	$0
Investment Income	$1,046	0.1%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$932,857	49.7%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$5,641	0.3%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$590,535	43.2%

Assets/Debt
Total Assets	$2,976,485
Total Liabilities	$321,584
Net Assets	$2,654,901

Compensation

Key Employees and Officers	Compensation	Related	Other
Brett Kopelan (Executive Director)	$0	$261,529	$0
J Alec Alexander (Treasurer)	$0	$0	$0
Andrew Tavani (Chair)	$0	$0	$0
Richard Gallagher (Chair Emeritus)	$0	$0	$0
Robert Ryan Ph D (Director)	$0	$0	$0
John Lee (Secretary)	$0	$0	$0
William Cornman (Director)	$0	$0	$0
James Wetrich (Director)	$0	$0	$0
Leslie Rader (Director)	$0	$0	$0
Joui Uitto Md Phd (Director)	$0	$0	$0
Angela Christiano Ph D (Director)	$0	$0	$0
Thomas Trimarchi (Director)	$0	$0	$0

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990

Filed on March 27, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

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Fiscal Year Ending Dec.
2019

Revenue

$1,561,298

Expenses

$1,465,695

Net Income

$95,603

Net Assets

$2,095,398

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$705,872	45.2%
Program Services	$0
Investment Income	$1,696	0.1%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$850,383	54.5%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$3,347	0.2%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$233,349	15.9%
Professional Fundraising Fees	$0
Other Salaries and Wages	$539,430	36.8%

Assets/Debt
Total Assets	$2,407,080
Total Liabilities	$311,682
Net Assets	$2,095,398

Compensation

Key Employees and Officers	Compensation	Related	Other
Brett Kopelan (Executive Director)	$233,349	$0	$0
Faith Daniels (D Irector)	$0	$0	$0
J Al Ec Alexander (Treasurer)	$0	$0	$0
Frank Kacmarsky (Director)	$0	$0	$0
Andrew Tavani (Chair)	$0	$0	$0
Richard Gallagher (Chair Emeritus)	$0	$0	$0
Dr Robert Meirowitz (Director)	$0	$0	$0
William Cornman (Director)	$0	$0	$0
Robert Rayl (Vice Chair)	$0	$0	$0
James Wetrich (Director)	$0	$0	$0
Leslie Rader (Director)	$0	$0	$0
Joui Uitto Md Phd (Director)	$0	$0	$0
Angela Christiano Ph D (Director)	$0	$0	$0
John Lee (Secretary)	$0	$0	$0

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990

Filed on April 16, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2018

Revenue

$1,824,567

Expenses

$2,153,808

Net Income

-$329,241

Net Assets

$2,118,883

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$947,956	52.0%
Program Services	$0
Investment Income	$1,956	0.1%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$868,529	47.6%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$6,126	0.3%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$806,329	37.4%

Assets/Debt
Total Assets	$2,398,499
Total Liabilities	$279,616
Net Assets	$2,118,883

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2017

Revenue

$1,370,052

Expenses

$1,416,573

Net Income

-$46,521

Net Assets

$2,708,985

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$662,523	48.4%
Program Services	$0
Investment Income	$554	0.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$705,275	51.5%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$1,700	0.1%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$763,241	53.9%

Assets/Debt
Total Assets	$2,874,508
Total Liabilities	$165,523
Net Assets	$2,708,985

The IRS has provided extracted financial data for this filing, but has not yet released the source documents.

Fiscal Year Ending Dec.
2016

Revenue

$1,607,929

Expenses

$1,616,327

Net Income

-$8,398

Net Assets

$2,775,860

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$749,944	46.6%
Program Services	$0
Investment Income	$303	0.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$848,770	52.8%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$8,912	0.6%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$743,020	46.0%

Assets/Debt
Total Assets	$2,835,238
Total Liabilities	$59,378
Net Assets	$2,775,860

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2015

Revenue

$1,578,798

Expenses

$1,236,579

Net Income

$342,219

Net Assets

$2,683,268

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$649,364	41.1%
Program Services	$0
Investment Income	$3,168	0.2%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$921,598	58.4%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$4,668	0.3%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$566,321	45.8%

Assets/Debt
Total Assets	$2,721,103
Total Liabilities	$37,835
Net Assets	$2,683,268

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2014

Revenue

$1,553,128

Expenses

$1,308,819

Net Income

$244,309

Net Assets

$1,660,448

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$1,052,447	67.8%
Program Services	$0
Investment Income	$1,081	0.1%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$486,111	31.3%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$13,489	0.9%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$418,012	31.9%

Assets/Debt
Total Assets	$1,722,111
Total Liabilities	$61,663
Net Assets	$1,660,448

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2013

Revenue

$1,395,688

Expenses

$991,800

Net Income

$403,888

Net Assets

$1,419,905

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$757,834	54.3%
Program Services	$0
Investment Income	$3,917	0.3%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$622,050	44.6%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$11,887	0.9%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$375,513	37.9%

Assets/Debt
Total Assets	$1,547,797
Total Liabilities	$127,892
Net Assets	$1,419,905

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2012

Revenue

$1,166,416

Expenses

$1,061,746

Net Income

$104,670

Net Assets

$1,016,017

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$1,043,787	89.5%
Program Services	$0
Investment Income	$2,892	0.2%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$119,737	10.3%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$305,948	28.8%

Assets/Debt
Total Assets	$1,187,157
Total Liabilities	$171,140
Net Assets	$1,016,017

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Revenue

$773,838

Expenses

$696,374

Net Income

$77,464

Net Assets

$911,348

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$706,059	91.2%
Program Services	$0
Investment Income	$788	0.1%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$63,284	8.2%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$3,707	0.5%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$277,714	39.9%

Assets/Debt
Total Assets	$931,446
Total Liabilities	$20,098
Net Assets	$911,348

990

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

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Updated November 21, 2024

Dystrophic Epidermolysis Bullosa Research Assn Of America Inc

Organization summary

Type of Nonprofit

Summary charts: organization finances over time

Revenue $2.6M (2023)

Expenses $1.57M (2023)

Total Assets $1.94M (2023)

Total Liabilities $199k (2023)

Tax Filings by Year

Fiscal Year Ending Dec. 2023

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Dec. 2022

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

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Fiscal Year Ending Dec. 2021

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

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Fiscal Year Ending Dec. 2020

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

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Fiscal Year Ending Dec. 2019

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

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Fiscal Year Ending Dec. 2018

Extracted Financial Data

Extracted Financial Data from Form 990

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Fiscal Year Ending Dec. 2017

Extracted Financial Data

Extracted Financial Data from Form 990

No Document Links

Fiscal Year Ending Dec. 2016

Extracted Financial Data

Extracted Financial Data from Form 990

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Fiscal Year Ending Dec. 2015

Extracted Financial Data

Extracted Financial Data from Form 990

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Fiscal Year Ending Dec. 2014

Extracted Financial Data

Extracted Financial Data from Form 990

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Fiscal Year Ending Dec. 2013

Extracted Financial Data

Extracted Financial Data from Form 990

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Fiscal Year Ending Dec. 2012

Extracted Financial Data

Extracted Financial Data from Form 990

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Fiscal Year Ending Dec. 2011

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Fiscal Year Ending Dec. 2010

No Extracted Financial Data

Revenue

$2.6M (2023)

Expenses

$1.57M (2023)

Total Assets

$1.94M (2023)

Total Liabilities

$199k (2023)

Fiscal Year Ending Dec.
2023

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2022

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2021

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2020

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2019

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2018

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2017

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2016

Fiscal Year Ending Dec.
2015

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2014

Fiscal Year Ending Dec.
2013

Fiscal Year Ending Dec.
2012

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2011

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2010

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2009

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2007

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Fiscal Year Ending Dec.
2001