Muscular Dystrophy Association

Chicago, IL
Tax-exempt since July 1952
EIN: 13-1665552

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Type of Nonprofit

Designated as a 501(c)(3) Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Nerve, Muscle and Bone Diseases (NTEE)

Donations to this organization are tax deductible.

Revenue

$59.4M (2023)

Expenses

$62.1M (2023)

Total Assets

$66.6M (2023)

Total Liabilities

$58.2M (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Revenue

$59,437,892

Expenses

$62,127,770

Net Income

-$2,689,878

Net Assets

$8,393,836

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$56,761,618	95.5%
Program Services	$0
Investment Income	$1,443,870	2.4%
Bond Proceeds	$0
Royalties	$1,141,007	1.9%
Rental Property Income	$45,000	0.1%
Net Fundraising	-$1,718,775
Sales of Assets	$792,506	1.3%
Net Inventory Sales	$0
Other Revenue	$972,666	1.6%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$1,271,104	2.0%
Professional Fundraising Fees	$0
Other Salaries and Wages	$18,726,172	30.1%

Assets/Debt
Total Assets	$66,561,388
Total Liabilities	$58,167,552
Net Assets	$8,393,836

Compensation

Key Employees and Officers	Compensation	Related	Other
Donald Wood (President & Ceo)	$490,624	$0	$33,322
Henry Lanman (Sec. & Chief Legal Officer)	$357,404	$0	$10,494
Michael Kennedy (Treasurer & Cfo)	$334,979	$0	$44,280
Sharon Hesterlee (Chief Research Officer)	$237,040	$0	$40,391
Peripedes Gondim (Vp, Human Resources & Volunteers)	$223,723	$0	$7,136
Nora Capocci (Vp, Healthcare Services)	$198,041	$0	$6,577
Monica Pappas (Vp, Technology)	$195,958	$0	$5,091
Angela Lek (Vp, Research)	$194,037	$0	$6,392
Anjan Aralihalli (Director)	$0	$0	$0
Ankur Ghia (Outgoing Director)	$0	$0	$0
Benjamin Cumbo Iii (Director)	$0	$0	$0
Charles D Schoor Esq (Director)	$0	$0	$0
Chris Rosa (Vice Chairman)	$0	$0	$0
Dan Fries (Director)	$0	$0	$0
Elizabeth Mcnally Md Phd (Director)	$0	$0	$0
Eugene Williams (Outgoing Director)	$0	$0	$0
Governor Brad Henry (Chairman)	$0	$0	$0
Hon Robert E Pipia (Director)	$0	$0	$0
Jennifer Gottlieb (Director)	$0	$0	$0
John Costantino (Director)	$0	$0	$0
John E Howell (Director)	$0	$0	$0
Lilian Wu Phd (Director)	$0	$0	$0
Louis Kunkel Phd (Director)	$0	$0	$0
Mark Smith (Director)	$0	$0	$0
Matt Plummer (Director)	$0	$0	$0
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990

Filed on May 1, 2024

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Fiscal Year Ending Dec.
2022

Revenue

$63,227,837

Expenses

$58,970,307

Net Income

$4,257,530

Net Assets

$6,808,664

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$59,144,929	93.5%
Program Services	$0
Investment Income	$1,103,942	1.7%
Bond Proceeds	$0
Royalties	$541,532	0.9%
Rental Property Income	$39,000	0.1%
Net Fundraising	-$642,517
Sales of Assets	$2,141,050	3.4%
Net Inventory Sales	$0
Other Revenue	$899,901	1.4%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$1,168,200	2.0%
Professional Fundraising Fees	$0
Other Salaries and Wages	$17,112,416	29.0%

Assets/Debt
Total Assets	$64,403,820
Total Liabilities	$57,595,156
Net Assets	$6,808,664

Compensation

Key Employees and Officers	Compensation	Related	Other
Donald Wood (President & Ceo)	$522,923	$0	$26,637
Michael Kennedy (Treasurer & Cfo)	$331,534	$0	$61,822
Kristine Welker (Chief Of Staff)	$304,472	$0	$71,294
Sharon Hesterlee (Chief Research Officer)	$229,015	$0	$60,219
Brian Beirne (Vp Of Multi Channel Market)	$214,346	$0	$6,820
Henry Lanman (Sec. & Chief Legal Officer)	$188,632	$0	$36,652
Monica Pappas (Vp, Technology)	$188,558	$0	$27,594
Angela Lek (Vp, Research)	$186,779	$0	$10,511
Anjan Aralihalli (Director)	$0	$0	$0
Ankur Ghia (Director)	$0	$0	$0
Benjamin Cumbo Iii (Director)	$0	$0	$0
Charles D Schoor Esq (Director)	$0	$0	$0
Chris Rosa (Vice Chair)	$0	$0	$0
Dan Fries (Director)	$0	$0	$0
Elizabeth Mcnally Md Phd (Director)	$0	$0	$0
Eugene Williams (Director)	$0	$0	$0
Governor Brad Henry (Chairman)	$0	$0	$0
Hon Robert E Pipia (Director)	$0	$0	$0
Jennifer Gottlieb (Director)	$0	$0	$0
John Costantino (Director)	$0	$0	$0
John E Howell (Director)	$0	$0	$0
Lilian Wu Phd (Director)	$0	$0	$0
Louis Kunkel Phd (Director)	$0	$0	$0
Mark Smith (Director)	$0	$0	$0
Matt Plummer (Director)	$0	$0	$0
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990

Filed on May 25, 2023

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Fiscal Year Ending Dec.
2021

Revenue

$63,393,990

Expenses

$53,419,636

Net Income

$9,974,354

Net Assets

$4,721,750

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$60,181,680	94.9%
Program Services	$0
Investment Income	$864,066	1.4%
Bond Proceeds	$0
Royalties	$104,363	0.2%
Rental Property Income	$0
Net Fundraising	-$832,551
Sales of Assets	$2,287,338	3.6%
Net Inventory Sales	$0
Other Revenue	$789,094	1.2%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$958,540	1.8%
Professional Fundraising Fees	$0
Other Salaries and Wages	$14,433,024	27.0%

Assets/Debt
Total Assets	$75,564,994
Total Liabilities	$70,843,244
Net Assets	$4,721,750

Compensation

Key Employees and Officers	Compensation	Related	Other
Donald Wood (President & Ceo)	$434,363	$0	$23,165
Michael Kennedy (Treasurer & Cfo)	$290,169	$0	$30,739
Kristine Welker (Chief Of Staff)	$263,684	$0	$4,873
Joshua Ackley (Vp Of Pr & Communications)	$219,790	$0	$4,064
Kathy Kauffmann Jan Aug (Chief Strategy Development)	$216,777	$0	$24,038
Sharon Hesterlee (Chief Research Officer)	$216,489	$0	$25,465
Brian Beirne (Vp Of Multi Channel Marketing)	$187,737	$0	$37,966
Lindsay Kassof (Sec. & Assoc Legal Counsel)	$175,868	$0	$15,775
Anjan Aralihalli (Director)	$0	$0	$0
Ankur Ghia (Director)	$0	$0	$0
Benjamin Cumbo Iii (Director)	$0	$0	$0
Charles D Schoor Esq (Director)	$0	$0	$0
Chris Rosa (Director)	$0	$0	$0
Dan Fries (Director)	$0	$0	$0
Elizabeth Mcnally Md Phd (Director)	$0	$0	$0
Eugene Williams (Director)	$0	$0	$0
Governor Brad Henry (Vice Chair)	$0	$0	$0
Hon Robert E Pipia (Director)	$0	$0	$0
Jennifer Gottlieb (Director)	$0	$0	$0
John Costantino (Director)	$0	$0	$0
John E Howell (Director)	$0	$0	$0
John Tognino (Director (Decd Nov. 2021))	$0	$0	$0
Lilian Wu Phd (Director)	$0	$0	$0
Louis Kunkel Phd (Director)	$0	$0	$0
Mark Smith (Director)	$0	$0	$0
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990

Filed on Aug. 2, 2022

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Fiscal Year Ending Dec.
2020

Revenue

$63,707,273

Expenses

$68,372,442

Net Income

-$4,665,169

Net Assets

-$23,709,661

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$51,830,703	81.4%
Program Services	$0
Investment Income	$965,018	1.5%
Bond Proceeds	$0
Royalties	$77,828	0.1%
Rental Property Income	$0
Net Fundraising	-$2,861,797
Sales of Assets	$13,282,066	20.8%
Net Inventory Sales	$0
Other Revenue	$410,505	0.6%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$2,552,774	3.7%
Professional Fundraising Fees	$0
Other Salaries and Wages	$20,861,812	30.5%

Assets/Debt
Total Assets	$71,915,435
Total Liabilities	$95,625,096
Net Assets	-$23,709,661

Reported conflict of interest transactions

Compensation

Key Employees and Officers	Compensation	Related	Other
Ellen Vos (President & Ceo (Jan Oct))	$823,260	$0	$29,947
Karen Andrews (Sec. & Chief Legal Officer (Jan Oct))	$382,063	$0	$0
Kathy Kauffmann (Chief Strategy Development Officer)	$325,534	$0	$38,048
Michael Kennedy (Treasurer & Cfo)	$280,612	$0	$30,270
Deborah Barge (Svp, Chief Field Officer)	$234,488	$0	$1,118
Jeanne Zucker (Svp Healthcare Partnerships)	$230,581	$0	$12,760
Kristin Stephenson (Chief Advocacy & Care Services Officer)	$228,161	$0	$31,349
Jonathon Nagle (Chief Technology Officer)	$221,784	$0	$22,931
Joshua Ackley (Vp Of Pr & Communications)	$219,512	$0	$9,711
Sharon Hesterlee (Chief Research Officer)	$215,353	$0	$24,043
Jennifer Allebach (Svp Of Camp Programs (Jan Nov))	$200,697	$0	$2,691
Lindsay Kassof (Sec. & Assoc Legal Coun (Nov Dec))	$169,755	$0	$15,838
Donald Wood (President & Ceo (Nov Dec))	$14,663	$0	$0
Anjan Aralihalli (Director)	$0	$0	$0
Ankur Ghia (Director)	$0	$0	$0
Benjamin Cumbo Iii (Director)	$0	$0	$0
Charles D Schoor Esq (Director)	$0	$0	$0
Elizabeth Mcnally Md Phd (Director)	$0	$0	$0
Eugene Williams (Director)	$0	$0	$0
Governor Brad Henry (Vice Chair)	$0	$0	$0
Hon Robert E Pipia (Director)	$0	$0	$0
Jennifer Gottlieb (Director)	$0	$0	$0
John Costantino (Director)	$0	$0	$0
John E Howell (Director)	$0	$0	$0
John Tognino (Director)	$0	$0	$0
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990

Filed on Oct. 25, 2021

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Fiscal Year Ending Dec.
2019

Revenue

$100,972,775

Expenses

$112,749,799

Net Income

-$11,777,024

Net Assets

-$713,651

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$99,904,218	98.9%
Program Services	$0
Investment Income	$1,545,505	1.5%
Bond Proceeds	$0
Royalties	$6,780	0.0%
Rental Property Income	$0
Net Fundraising	-$1,758,006
Sales of Assets	$980,634	1.0%
Net Inventory Sales	$0
Other Revenue	$286,145	0.3%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$1,183,626	1.0%
Professional Fundraising Fees	$0
Other Salaries and Wages	$36,058,934	32.0%

Assets/Debt
Total Assets	$81,509,086
Total Liabilities	$82,222,737
Net Assets	-$713,651

Reported conflict of interest transactions

Compensation

Key Employees and Officers	Compensation	Related	Other
Ellen Vos (President & Ceo)	$508,029	$0	$28,218
Karen Andrews (Secretary & Chief Legal Officer)	$413,969	$0	$0
Michael Kennedy (Treasurer & Cfo)	$287,333	$0	$35,711
Adam Cotumaccio (Chief Impact & Philanthropy Officer)	$284,234	$0	$46,389
Jeanne Zucker (Senior Vp, Healthcare Part)	$260,422	$0	$11,000
Michael Bruno (Chief People And Administrative Officer)	$214,376	$0	$13,292
Kristin Stephenson (Svp, Chief Policy & Comm E)	$203,107	$0	$40,598
Meredith Wilson (Vp, Healthcare Communications & Education)	$179,647	$0	$8,187
Kathy Kauffmann (Chief Strategy Development Officer)	$152,342	$0	$17,976
Jennifer Allebach (Svp Of Recreation And Camp Programs)	$150,209	$0	$3,008
Anjan Aralihalli (Director)	$0	$0	$0
Ankur Ghia (Director)	$0	$0	$0
Benjamin Cumbo Iii (Director)	$0	$0	$0
Charles D Schoor Esq (Director)	$0	$0	$0
Christopher J Rosa Phd (Vice Chair)	$0	$0	$0
Daniel G Fries (Director)	$0	$0	$0
Dave Hutton (Director)	$0	$0	$0
Don Wood (Director)	$0	$0	$0
Elizabeth Mcnally Md Phd (Director)	$0	$0	$0
Eugene Williams (Director)	$0	$0	$0
Governor Brad Henry (Director)	$0	$0	$0
John Costantino (Director)	$0	$0	$0
John Tognino (Director)	$0	$0	$0
Kristine Welker (Director)	$0	$0	$0
Lilian Wu Phd (Director)	$0	$0	$0
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990

Filed on Sept. 21, 2020

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990-T

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Fiscal Year Ending Dec.
2018

Revenue

$110,657,553

Expenses

$107,797,032

Net Income

$2,860,521

Net Assets

$9,946,503

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$103,881,886	93.9%
Program Services	$0
Investment Income	$1,533,253	1.4%
Bond Proceeds	$0
Royalties	$15,424	0.0%
Rental Property Income	$0
Net Fundraising	$0
Sales of Assets	$4,699,519	4.2%
Net Inventory Sales	$0
Other Revenue	$373,297	0.3%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$1,262,752	1.2%
Professional Fundraising Fees	$0
Other Salaries and Wages	$37,664,807	34.9%

Assets/Debt
Total Assets	$83,664,541
Total Liabilities	$73,718,038
Net Assets	$9,946,503

Reported conflict of interest transactions

Compensation

Key Employees and Officers	Compensation	Related	Other
Ellen Vos (President & Ceo)	$530,244	$0	$12,037
Karen Alexander (Evp, Chief Impact & Philanthropy Officer)	$277,790	$0	$12,548
Michael Kennedy Mar Dec (Asst. Treasurer, Asst. Sec. & Cfo)	$215,934	$0	$14,175
Kristin Stephenson (Svp, Chief Policy & Comm Engagement Officer)	$210,997	$0	$30,500
Grace Pavlath (Sr Vp Scientific Program Director)	$207,898	$0	$19,660
Anothony Englert (Vp, Fundraising Operations)	$204,054	$0	$20,373
Jeanne Zucker (Senior Vp, Healthcare Partnerships)	$199,605	$0	$0
Gail Kerner (Sr Vp & General Counsel)	$183,164	$0	$12,699
Eileen Timmins Phd Jan Sept (Asst. Sec. Evp Chief People Officer)	$162,599	$0	$16,975
Julie Faber Cpa (Asst. Treasurer & Cfo (Jan))	$19,696	$0	$756
Benjamin Cumbo Iii (Director)	$0	$0	$0
Charles D Schoor Esq (Secretary)	$0	$0	$0
Christopher J Rosa Phd (Vice Chair)	$0	$0	$0
Daniel G Fries (Director)	$0	$0	$0
Dave Hutton (Director)	$0	$0	$0
Don Wood (Director)	$0	$0	$0
Eugene Williams (Director)	$0	$0	$0
Governor Brad Henry (Director)	$0	$0	$0
John Costantino (Director)	$0	$0	$0
John Tognino (Director)	$0	$0	$0
Kristine Welker (Director)	$0	$0	$0
Lilian Wu Phd (Director)	$0	$0	$0
Louis Kunkel Phd (Director)	$0	$0	$0
Marshall D Smith (Director)	$0	$0	$0
Mike Rowlett (Director)	$0	$0	$0
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990

Filed on Aug. 30, 2019

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Fiscal Year Ending Dec.
2017

Revenue

$117,485,260

Expenses

$112,083,570

Net Income

$5,401,690

Net Assets

$16,168,868

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$113,962,253	97.0%
Program Services	$0
Investment Income	$1,918,927	1.6%
Bond Proceeds	$0
Royalties	$1,550	0.0%
Rental Property Income	$0
Net Fundraising	$0
Sales of Assets	$612,076	0.5%
Net Inventory Sales	$0
Other Revenue	$646,695	0.6%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$2,543,740	2.3%
Professional Fundraising Fees	$0
Other Salaries and Wages	$41,632,172	37.1%

Assets/Debt
Total Assets	$94,239,232
Total Liabilities	$78,070,364
Net Assets	$16,168,868

Reported conflict of interest transactions

Compensation

Key Employees and Officers	Compensation	Related	Other
Steven M Derks (President & Ceo)	$1,088,326	$0	$3,504
Karen Alexander (Evp,Chief Impact/Philan.Office)	$357,243	$0	$11,213
Julie Faber Cpa (Asst. Treasurer & Cfo)	$240,628	$0	$7,361
Kristine Welker (Interim Pres. & Ceo (Feb Sept))	$211,207	$0	$0
Grace K Pavlath Phd (Sr Vp Scientific Program Dir.)	$197,227	$0	$12,233
Eileen Timmins Phd (Asst.Sec.Evp Chief Ppl Officer)	$194,724	$0	$14,341
Gail Schmertz Kerner Esq (Sr. Vp & General Counsel)	$189,068	$0	$18,503
Nancy Stinson Harris (Nvp Of Corp Partnerships)	$188,168	$0	$7,906
John Walsh (Division Chief Executive)	$167,054	$0	$18,503
Kristin Stephenson (Svp,Chief Pol&Comm Eng Officer)	$156,384	$0	$18,503
Natalie Stamer (Vp Of Digital & Content Market)	$144,803	$0	$21,023
Valerie A Cwik Md (Asst. Sec. Chief Med Scientifi)	$74,157	$0	$0
Stanley Appel Md (Director)	$0	$0	$0
Benjamin Cumbo Iii (Director)	$0	$0	$0
Steve Farella (Director)	$0	$0	$0
Daniel G Fries (Director)	$0	$0	$0
Governor Brad Henry (Director)	$0	$0	$0
R Rodney Howell Md (Chairman)	$0	$0	$0
Dave Hutton (Director)	$0	$0	$0
Louis Kunkel Phd (Director)	$0	$0	$0
Patricia Nazemetz (Director)	$0	$0	$0
Christopher J Rosa Phd (Vice Chair)	$0	$0	$0
Mike Rowlett (Director)	$0	$0	$0
Charles D Schoor Esq (Secretary)	$0	$0	$0
Mark Smith (Director)	$0	$0	$0
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990

Filed on Nov. 15, 2018

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990-T

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Fiscal Year Ending Dec.
2016

Revenue

$120,660,402

Expenses

$118,081,305

Net Income

$2,579,097

Net Assets

$7,929,591

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$117,071,918	97.0%
Program Services	$0
Investment Income	$1,673,834	1.4%
Bond Proceeds	$0
Royalties	$62,932	0.1%
Rental Property Income	$0
Net Fundraising	$0
Sales of Assets	$651,227	0.5%
Net Inventory Sales	$0
Other Revenue	$682,335	0.6%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$1,995,028	1.7%
Professional Fundraising Fees	$1,302,349	1.1%
Other Salaries and Wages	$42,020,566	35.6%

Assets/Debt
Total Assets	$91,932,738
Total Liabilities	$84,003,147
Net Assets	$7,929,591

Reported conflict of interest transactions

Compensation

Key Employees and Officers	Compensation	Related	Other
Steven M Derks (President & Ceo)	$475,679	$0	$87,394
Valerie A Cwik Md (Asst. Sec.Chief Med Scientific)	$240,003	$0	$6,461
Julie Faber Cpa (Asst. Treasurer & Cfo)	$239,264	$0	$6,461
Robert M Grinsfelder (Evp Chief Fields Ops Officer)	$212,691	$0	$10,066
Steven G Ford (Evp Chief Comm/Mrkt Officer)	$209,009	$0	$16,009
Jeannine M Houlihan (Chief Information Officer)	$203,651	$0	$2,372
Grace K Pavlath Phd (Sr. Vp. Scientific Prog Dir)	$189,935	$0	$10,066
Gail Schmertz Kerner Esq (Chief Legal Officer)	$188,785	$0	$16,078
Nancy Stinson Harris (Nvp Of Corp Partnership)	$187,637	$0	$7,495
Eileen M Timmins Phd (Evp Chief People Officer)	$186,859	$0	$9,668
Ann Mcnamara (Evp Chief Dev. Officer)	$173,286	$0	$620
John Walsh (Division Chief Executive)	$172,298	$0	$16,009
Margaret Hodges (Division Chief Executive)	$144,248	$0	$16,009
Stanley H Appel Md (Director)	$0	$0	$0
C Thomas Caskey Md (Director)	$0	$0	$0
Harold C Crump (Director)	$0	$0	$0
Benjamin F Cumbo Iii (Director)	$0	$0	$0
Steve Farella (Director)	$0	$0	$0
Daniel G Fries (Director)	$0	$0	$0
Governor Brad Henry (Director)	$0	$0	$0
R Rodney Howell Md (Chairman)	$0	$0	$0
Dave Hutton (Director)	$0	$0	$0
Louis M Kunkel Phd (Director)	$0	$0	$0
Olin F Morris (Director)	$0	$0	$0
Patricia Nazemetz (Director)	$0	$0	$0
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990

Filed on Nov. 10, 2017

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990-T

For unrelated business income from activities not substantially related to the organization's tax-exempt purpose

PDF

Fiscal Year Ending Dec.
2015

Revenue

$126,037,816

Expenses

$120,811,066

Net Income

$5,226,750

Net Assets

$8,419,763

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$121,934,463	96.7%
Program Services	$0
Investment Income	$1,598,113	1.3%
Bond Proceeds	$0
Royalties	$102,448	0.1%
Rental Property Income	$0
Net Fundraising	$0
Sales of Assets	$1,138,917	0.9%
Net Inventory Sales	$0
Other Revenue	$690,465	0.5%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$2,034,388	1.7%
Professional Fundraising Fees	$1,438,181	1.2%
Other Salaries and Wages	$41,756,386	34.6%

Assets/Debt
Total Assets	$94,245,972
Total Liabilities	$85,826,209
Net Assets	$8,419,763

Reported conflict of interest transactions

Compensation

Key Employees and Officers	Compensation	Related	Other
Steven M Derks (President & Ceo)	$508,871	$0	$84,824
Julie Faber Cpa (Asst. Treasurer & Cfo)	$243,128	$0	$6,807
Valerie A Cwik Md (Asst. Sec/Chief Med Scientific)	$237,933	$0	$6,807
Ann Mcnamara (Evp Chief Dev. Officer)	$223,425	$0	$620
Steven Ford (Evp Chief Comm/Mrkt Officer)	$217,286	$0	$18,074
Grace K Pavlath Phd (Sr. Vp Scientific Prog Dir)	$197,601	$0	$12,908
Gail Schmertz Kerner Esq (Chief Legal Officer)	$196,731	$0	$18,074
Eileen Timmins Phd (Vp & Chief Hr Officer)	$194,250	$0	$12,498
Robert Grinsfelder (Evp Chief Field Ops Officer)	$192,274	$0	$12,908
Jeannine M Houlihan (Chief Information Officer)	$184,945	$0	$6,807
John Walsh (Division Chief Executive)	$160,587	$0	$18,074
Bradley Barghols (Division Chief Executive)	$151,446	$0	$18,074
Margaret Hodges (Division Chief Executive)	$145,472	$0	$18,074
Stanley H Appel Md (Director)	$0	$0	$0
C Thomas Caskey Md (Director)	$0	$0	$0
Harold C Crump (Director)	$0	$0	$0
Benjamin F Cumbo Iii (Director)	$0	$0	$0
Steve Farella (Director)	$0	$0	$0
Daniel G Fries (Director)	$0	$0	$0
Honorable Brad Henry (Director)	$0	$0	$0
R Rodney Howell Md (Chairman)	$0	$0	$0
Dave Hutton (Director)	$0	$0	$0
Louis M Kunkel Phd (Director)	$0	$0	$0
Olin F Morris (Director)	$0	$0	$0
Patricia Nazemetz (Director)	$0	$0	$0
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990

Filed on Aug. 12, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

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PDF (2 of 2)

990-T

For unrelated business income from activities not substantially related to the organization's tax-exempt purpose

PDF

Fiscal Year Ending Dec.
2014

Revenue

$140,371,235

Expenses

$131,515,722

Net Income

$8,855,513

Net Assets

$6,161,280

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$135,174,690	96.3%
Program Services	$0
Investment Income	$1,714,249	1.2%
Bond Proceeds	$0
Royalties	$840,881	0.6%
Rental Property Income	$0
Net Fundraising	$0
Sales of Assets	$1,880,127	1.3%
Net Inventory Sales	$0
Other Revenue	$543,148	0.4%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$2,315,569	1.8%
Professional Fundraising Fees	$540,001	0.4%
Other Salaries and Wages	$43,006,166	32.7%

Assets/Debt
Total Assets	$97,787,518
Total Liabilities	$91,626,238
Net Assets	$6,161,280

Reported conflict of interest transactions

Compensation

Key Employees and Officers	Compensation	Related	Other
Steven Derks (President & Ceo)	$471,134	$0	$86,049
Julie Faber Cpa (Cfo & Asst Treasurer)	$233,810	$0	$6,860
Ann Mc Namara (Evp Chief Development Office R)	$215,180	$0	$19,299
Steven Ford (Evp Chief Communications & Mkt)	$203,643	$0	$19,299
Valerie A Cwik Md (Asst. Sec/Chief Med Scientific)	$200,863	$0	$6,881
Gail Schmertz Kerner Esq (Asst. Sec Chief Legal Office R)	$191,725	$0	$19,272
Kevin W Moran (Vp Program Development)	$156,291	$0	$19,321
Robert M Grinsfelder (Evp & Chief Field Op Officer)	$150,981	$0	$12,762
John Walsh (Div Chief Executive)	$150,784	$0	$19,321
Todd Hermon (Nvp Retail Partnerships)	$147,514	$0	$12,762
Peter Morgan (Evp & Coo)	$146,589	$0	$19,321
Kimberly Bruna (Nvp & Community Engagement)	$146,265	$0	$6,881
Bradley Barghols (Div Chief Executive)	$141,175	$0	$19,321
Margaret Hodges (Div Chief Executive)	$131,463	$0	$19,321
Stephen P Evans Cpa (Asst. Treas & Vp Finance)	$115,680	$0	$19,321
Jodi Walters (Asst. Treas & Asst. Vp Finance)	$66,689	$0	$6,856
Stanley H Appel Md (Director)	$0	$0	$0
Robert M Bennett (Director Emeritus)	$0	$0	$0
Bart Conner (Director)	$0	$0	$0
Harold C Crump (Director)	$0	$0	$0
Benjamin F Cumbo Iii (Director)	$0	$0	$0
Joseph S Di Martino (Director Emeritus)	$0	$0	$0
Steve Farella (Director)	$0	$0	$0
Daniel G Fries (Director)	$0	$0	$0
Honorable Brad Henry (Director)	$0	$0	$0
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990

Filed on Aug. 14, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

PDF XML

990-T

For unrelated business income from activities not substantially related to the organization's tax-exempt purpose

PDF

Fiscal Year Ending Dec.
2013

Revenue

$150,325,720

Expenses

$148,005,192

Net Income

$2,320,528

Net Assets

$21,131,197

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$144,990,094	96.5%
Program Services	$0
Investment Income	$1,429,780	1.0%
Bond Proceeds	$0
Royalties	$35,384	0.0%
Rental Property Income	$0
Net Fundraising	$0
Sales of Assets	$2,734,736	1.8%
Net Inventory Sales	$0
Other Revenue	$731,400	0.5%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$1,678,194	1.1%
Professional Fundraising Fees	$534,111	0.4%
Other Salaries and Wages	$45,464,020	30.7%

Assets/Debt
Total Assets	$102,852,460
Total Liabilities	$81,721,263
Net Assets	$21,131,197

Reported conflict of interest transactions

Compensation

Key Employees and Officers	Compensation	Related	Other
Steven Derks (President & Ceo)	$460,538	$0	$62,129
Valerie A Cwik Md (Asst. Sec & Chief Med & Res)	$201,114	$0	$7,041
Gail Schmertz Kerner Esq (Asst Sec & Chief Legal Officer)	$193,559	$0	$13,592
Peter Morgan (Asst Treas & Evp & Chief Op)	$168,799	$0	$13,592
John Walsh (Div Chief Executive)	$150,791	$0	$13,592
Kevin W Moran (Vp Program Development)	$149,509	$0	$13,592
Bradley J Barghols (Div Chief Executive)	$140,003	$0	$7,506
Robert M Grinsfelder (Div Chief Executive)	$133,800	$0	$13,078
Steven Ford (Evp Chief Communications)	$133,373	$0	$9,047
Todd Hermon (Nvp Retail Parternships)	$126,975	$0	$13,099
Stephen P Evans Cpa (Asst Treas & Vp Finance)	$117,465	$0	$13,592
Jodi Walters (Asst Treas & Asst Vp Finance)	$70,017	$0	$7,037
Julie Faber (Cfo)	$21,653	$0	$587
Stanley H Appel Md (Director)	$0	$0	$0
Robert M Bennett (Director Emeritus)	$0	$0	$0
Bart Conner (Director)	$0	$0	$0
Harold C Crump (Director)	$0	$0	$0
Benjamin F Cumbo Iii (Director)	$0	$0	$0
Joseph S Di Martino (Director Emeritus)	$0	$0	$0
Steve Farella (Director)	$0	$0	$0
Daniel G Fries (Director)	$0	$0	$0
Honorable Brad Henry (Director)	$0	$0	$0
R Rodney Howell Md (Chairman)	$0	$0	$0
Dave Hutton (Director)	$0	$0	$0
Louis M Kunkel Ph D (Director)	$0	$0	$0
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990

Filed on Aug. 15, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

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990-T

For unrelated business income from activities not substantially related to the organization's tax-exempt purpose

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Fiscal Year Ending Dec.
2012

Revenue

$152,115,051

Expenses

$166,824,047

Net Income

-$14,708,996

Net Assets

$1,464,528

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$149,557,236	98.3%
Program Services	$0
Investment Income	$1,260,472	0.8%
Bond Proceeds	$0
Royalties	$80,720	0.1%
Rental Property Income	$0
Net Fundraising	$0
Sales of Assets	$88,122	0.1%
Net Inventory Sales	$0
Other Revenue	$521,387	0.3%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$1,342,866	0.8%
Professional Fundraising Fees	$497,284	0.3%
Other Salaries and Wages	$50,098,327	30.0%

Assets/Debt
Total Assets	$100,099,622
Total Liabilities	$98,635,094
Net Assets	$1,464,528

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

990-T

For unrelated business income from activities not substantially related to the organization's tax-exempt purpose

PDF

PDF (2 of 2)

Fiscal Year Ending Dec.
2011

Revenue

$156,588,617

Expenses

$175,594,205

Net Income

-$19,005,588

Net Assets

$13,357,196

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$157,086,290	> 100%
Program Services	$0
Investment Income	$1,887,619	1.2%
Bond Proceeds	$0
Royalties	$161,652	0.1%
Rental Property Income	$0
Net Fundraising	$0
Sales of Assets	-$3,659,823
Net Inventory Sales	$0
Other Revenue	$539,362	0.3%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$1,261,506	0.7%
Professional Fundraising Fees	$86,908	0.0%
Other Salaries and Wages	$54,339,568	30.9%

Assets/Debt
Total Assets	$98,307,873
Total Liabilities	$84,950,677
Net Assets	$13,357,196

Primary tax return for a nonprofit’s activities, finances, and governance

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About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

Raw filing data. Includes EINs and summary financials as structured data.
Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

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Updated September 25, 2025

Muscular Dystrophy Association

Organization summary

Type of Nonprofit

Summary charts: organization finances over time

Revenue $59.4M (2023)

Expenses $62.1M (2023)

Total Assets $66.6M (2023)

Total Liabilities $58.2M (2023)

Tax Filings by Year

Fiscal Year Ending Dec. 2023

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

990-T

Fiscal Year Ending Dec. 2022

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

990-T

Fiscal Year Ending Dec. 2021

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

990-T

Fiscal Year Ending Dec. 2020

Extracted Financial Data

Extracted Financial Data from Form 990

Other

Compensation

Document Links

990

990-T

Fiscal Year Ending Dec. 2019

Extracted Financial Data

Extracted Financial Data from Form 990

Other

Compensation

Document Links

990

990-T

Fiscal Year Ending Dec. 2018

Extracted Financial Data

Extracted Financial Data from Form 990

Other

Compensation

Document Links

990

990-T

Fiscal Year Ending Dec. 2017

Extracted Financial Data

Extracted Financial Data from Form 990

Other

Compensation

Document Links

990

990-T

Fiscal Year Ending Dec. 2016

Extracted Financial Data

Extracted Financial Data from Form 990

Other

Compensation

Document Links

990

990-T

Fiscal Year Ending Dec. 2015

Extracted Financial Data

Extracted Financial Data from Form 990

Other

Compensation

Document Links

990

990-T

Fiscal Year Ending Dec. 2014

Extracted Financial Data

Revenue

$59.4M (2023)

Expenses

$62.1M (2023)

Total Assets

$66.6M (2023)

Total Liabilities

$58.2M (2023)

Fiscal Year Ending Dec.
2023

Fiscal Year Ending Dec.
2022

Fiscal Year Ending Dec.
2021

Fiscal Year Ending Dec.
2020

Fiscal Year Ending Dec.
2019

Fiscal Year Ending Dec.
2018

Fiscal Year Ending Dec.
2017

Fiscal Year Ending Dec.
2016

Fiscal Year Ending Dec.
2015

Fiscal Year Ending Dec.
2014

Fiscal Year Ending Dec.
2013

Fiscal Year Ending Dec.
2012

Fiscal Year Ending Dec.
2011

Fiscal Year Ending Dec.
2010

Fiscal Year Ending Dec.
2009

Fiscal Year Ending Dec.
2008

Fiscal Year Ending Dec.
2007

Fiscal Year Ending March
2007

Fiscal Year Ending March
2006

Fiscal Year Ending March
2005

Fiscal Year Ending March
2004

Fiscal Year Ending March
2003

Fiscal Year Ending March
2002