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Cystic Fibrosis Foundation

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Birth Defects and Genetic Diseases (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$292M (2023)

Expenses
$443M (2023)

Total Assets
$4.89B (2023)

Total Liabilities
$293M (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$292,016,280
Expenses
$443,404,599
Net Income
-$151,388,319
Net Assets
$4,592,956,300
Notable Sources of Revenue Percent of Total Revenue
Contributions $86,607,373
29.7%
Program Services $3,437,695
1.2%
Investment Income $76,349,644
26.1%
Bond Proceeds $0
Royalties $12,545,463
4.3%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $102,799,966
35.2%
Net Inventory Sales $0
Other Revenue $10,265,778
3.5%
Notable Expenses Percent of Total Expenses
Executive Compensation $7,141,874
1.6%
Professional Fundraising Fees $176,400
0.0%
Other Salaries and Wages $90,365,830
20.4%
Assets/Debt
Total Assets $4,885,921,122
Total Liabilities $292,964,822
Net Assets $4,592,956,300
Compensation
Key Employees and Officers Compensation Related Other
John C Mahler Jr (Chief Investment Officer) $2,747,771 $0 $74,825
Michael P Boyle Md (President & Ceo) $1,372,546 $0 $100,236
Andrew Lewis (Managing Director, Investments) $1,268,837 $0 $49,610
Earl A Lee (Managing Director, Investments) $1,114,424 $0 $282,686
Eric Koehrsen (Managing Director, Investments) $949,505 $0 $269,002
Bruce Marshall Md (Evp & Chief Medical Officer) $741,926 $0 $36,032
Irena Barisic (Evp, Chief Oper/Fin Officer) $692,433 $0 $50,204
John P Clancy Md (Svp, Clinical Research) $659,434 $0 $89,921
Gentiana S Arovas (Managing Director, Investments) $541,296 $0 $190,441
Albert Faro (Vp Clinical Affairs) $517,875 $0 $124,895
Michael B Cavadel (Svp, Chief Legal Officer) $494,693 $0 $81,854
William Skach Md (Evp & Chief Scientific Officer) $277,714 $0 $1,590
Preston W Campbell Iii Md (Former Ceo & Strategic Advisor) $241,993 $0 $15,498
Louis A Defalco (Vice Chair) $0 $0 $0
Carole B Griego Md (Trustee) $0 $0 $0
Kate O'donnell (Trustee) $0 $0 $0
Dodzie Sogah Phd (Trustee) $0 $0 $0
David A Mount (Treasurer) $0 $0 $0
Robert H Niehaus (Vice Chair) $0 $0 $0
Eric R Olson Phd (Vice Chair) $0 $0 $0
Dominic J Caruso (Trustee) $0 $0 $0
Paul A Motenko (Trustee) $0 $0 $0
Teresa L Elder (Vice Chair) $0 $0 $0
Eric Schneider Md (Trustee) $0 $0 $0
Steven Shak Md (Trustee) $0 $0 $0

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Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$248,630,352
Expenses
$396,664,114
Net Income
-$148,033,762
Net Assets
$4,443,719,016
Notable Sources of Revenue Percent of Total Revenue
Contributions $97,948,958
39.4%
Program Services $2,555,705
1.0%
Investment Income $63,753,516
25.6%
Bond Proceeds $0
Royalties $14,016,961
5.6%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $64,313,171
25.9%
Net Inventory Sales $0
Other Revenue $6,002,985
2.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $6,916,442
1.7%
Professional Fundraising Fees $176,400
0.0%
Other Salaries and Wages $84,064,519
21.2%
Assets/Debt
Total Assets $4,735,058,992
Total Liabilities $291,339,976
Net Assets $4,443,719,016
Compensation
Key Employees and Officers Compensation Related Other
Jack Mahler Md (Chief Investment Officer) $2,463,847 $0 $230,935
Earl Lee (Managing Director, Investments) $1,023,013 $0 $234,362
Michael P Boyle Md (President & Ceo) $950,256 $0 $399,526
Eric Koehrsen (Managing Director, Investments) $921,034 $0 $248,237
Bruce Marshall Md (Evp & Chief Medical Officer) $692,205 $0 $104,713
Anthony Durmowicz Md (Vp, Clinical Development) $574,023 $0 $64,672
Irena Barisic (Evp, Cfao, Asst. Sec. & Asst. Trsr.) $557,940 $0 $71,381
Marybeth Mcmahon (Chief Of Staff) $552,564 $0 $92,779
John P Clancy Md (Svp, Clinical Research) $551,336 $0 $154,612
Mary Dwight (Chief Policy & Advocacy Officer) $543,012 $0 $129,909
William Skach Md (Evp & Chief Scientific Officer) $455,835 $0 $61,418
Preston Campbell Md (Former Ceo & Strategic Advisor) $393,943 $0 $62,168
Michael B Cavadel (Svp, Chief Legal Officer, & Sec.) $194,080 $0 $28,360
Chris Gegelys (Former Chief Legal Officer) $176,462 $0 $0
Marc S Ginsky (Former Coo) $160,000 $0 $0
Vera H Twigg (Former Evp, Cfo) $103,286 $0 $0
Louis A Defalco (Vice Chair) $0 $0 $0
Carole B Griego Md (Trustee) $0 $0 $0
Catherine C Mcloud (Trustee) $0 $0 $0
Chad T Moore (Trustee) $0 $0 $0
David A Mount (Treasurer) $0 $0 $0
Robert H Niehaus (Vice Chair) $0 $0 $0
Eric R Olson Phd (Vice Chair) $0 $0 $0
Dominic J Caruso (Trustee) $0 $0 $0
Paul A Motenko (Trustee) $0 $0 $0

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Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$417,237,551
Expenses
$375,611,186
Net Income
$41,626,365
Net Assets
$5,416,630,309
Notable Sources of Revenue Percent of Total Revenue
Contributions $86,536,159
20.7%
Program Services $1,263,333
0.3%
Investment Income $62,205,751
14.9%
Bond Proceeds $0
Royalties $12,463,153
3.0%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $243,956,157
58.5%
Net Inventory Sales $0
Other Revenue $10,802,698
2.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $8,407,208
2.2%
Professional Fundraising Fees $176,400
0.0%
Other Salaries and Wages $75,118,912
20.0%
Assets/Debt
Total Assets $5,691,109,976
Total Liabilities $274,479,667
Net Assets $5,416,630,309
Compensation
Key Employees and Officers Compensation Related Other
Jack Mahler Md (Chief Investment Officer) $1,401,121 $0 $657,424
Marc S Ginsky (Coo (Until 8/2021)) $1,245,811 $0 $68,450
Eric Koehrsen (Managing Director, Investments) $796,581 $0 $216,856
Michael P Boyle Md (President & Ceo) $744,103 $0 $447,890
Earl Lee (Managing Director, Investments) $724,883 $0 $190,323
William Skach Md (Evp & Chief Scientific Officer) $653,362 $0 $176,897
Vera H Twigg (Cfo (Until 7/2021)) $616,739 $0 $110,081
Bruce Marshall Md (Evp & Chief Medical Officer) $578,644 $0 $136,453
Anthony Durmowicz Md (Vp, Clinical Development) $485,873 $0 $80,791
Maureen Fraser (Svp, Field Mngmt (Until 5/2021)) $485,415 $0 $75,342
John P Clancy Md (Vp, Clinical Research) $485,245 $0 $122,358
Gentiana Arovas (Investment Operations Director) $467,489 $0 $117,105
Chris Gegelys (Chief Legal Officer & Secretary) $465,159 $0 $120,691
Preston Campbell Md (Former Ceo & Strategic Advisor) $399,495 $0 $201,352
Irena Barisic As Of 62021 (Evp, Cfao & Asst Sec. & Asst Trsr) $346,943 $0 $29,835
Catherine C Mcloud (Chair) $0 $0 $0
John S Weinberg (Executive Vice Chair) $0 $0 $0
Louis A Defalco (Vice Chair) $0 $0 $0
Robert H Niehaus (Vice Chair) $0 $0 $0
Eric R Olson Phd (Vice Chair) $0 $0 $0
Theodore J Torphy Phd (Vice Chair) $0 $0 $0
David A Mount (Treasurer) $0 $0 $0
Richard J Gray Esq (Trustee) $0 $0 $0
Carole B Griego Md (Trustee) $0 $0 $0
Susan L Hook (Trustee (Until 5/2021)) $0 $0 $0

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Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$800,629,953
Expenses
$381,380,991
Net Income
$419,248,962
Net Assets
$5,098,993,014
Notable Sources of Revenue Percent of Total Revenue
Contributions $73,199,355
9.1%
Program Services $1,666,083
0.2%
Investment Income $62,999,569
7.9%
Bond Proceeds $0
Royalties $32,043,319
4.0%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $618,199,538
77.2%
Net Inventory Sales $0
Other Revenue $12,433,089
1.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $6,356,579
1.7%
Professional Fundraising Fees $179,250
0.0%
Other Salaries and Wages $75,005,669
19.7%
Assets/Debt
Total Assets $5,369,999,661
Total Liabilities $271,006,647
Net Assets $5,098,993,014
Compensation
Key Employees and Officers Compensation Related Other
Jack Mahler Md (Chief Investment Officer) $1,261,832 $0 $636,888
Michael P Boyle Md (President & Ceo) $818,792 $0 $135,238
Marc S Ginsky (Executive Vp, Coo & Secret) $743,011 $0 $164,811
Preston Campbell Md (Former Ceo & Strategic Advisor) $728,967 $0 $114,798
Earl Lee (Managing Director, Investm) $725,703 $0 $163,699
William Skach Md (Senior Vp, Research Affair) $669,181 $0 $94,477
Eric Koehrsen (Managing Director, Investm) $627,271 $0 $177,499
Bruce Marshall Md (Senior Vp, Clinical Affair) $600,090 $0 $44,734
Vera H Twigg (Executive Vp & Cfo) $559,940 $0 $88,055
Anthony Durmowicz Md (Vp, Clinical Development) $504,174 $0 $28,007
Chris Gegelys (Senior Vp, Chief Legal Off) $488,813 $0 $79,307
John P Clancy Md (Vp, Clinical Research) $477,651 $0 $61,878
Albert Faro Md (Vp, Clinical Affairs) $418,378 $0 $61,864
Catherine C Mcloud (Chair) $0 $0 $0
John S Weinberg (Executive Vice Chair) $0 $0 $0
David A Mount (Treasurer) $0 $0 $0
Jessica H Boyd Md (Trustee) $0 $0 $0
Kc Bryan White (Trustee) $0 $0 $0
Carole B Griego Md (Trustee) $0 $0 $0
Susan L Hook (Trustee) $0 $0 $0
Chad T Moore (Trustee) $0 $0 $0
Eric R Olson Phd (Trustee) $0 $0 $0
Teresa L Elder (Trustee) $0 $0 $0
Steven Shak Md (Trustee) $0 $0 $0
Paul W Whetsell (Trustee) $0 $0 $0

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Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$605,778,425
Expenses
$348,650,099
Net Income
$257,128,326
Net Assets
$4,236,708,832
Notable Sources of Revenue Percent of Total Revenue
Contributions $108,894,890
18.0%
Program Services $4,147,243
0.7%
Investment Income $73,149,393
12.1%
Bond Proceeds $0
Royalties $44,535,937
7.4%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $368,640,932
60.9%
Net Inventory Sales $0
Other Revenue $6,283,837
1.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $6,729,509
1.9%
Professional Fundraising Fees $323,686
0.1%
Other Salaries and Wages $71,752,291
20.6%
Assets/Debt
Total Assets $4,476,511,082
Total Liabilities $239,802,250
Net Assets $4,236,708,832
Compensation
Key Employees and Officers Compensation Related Other
Preston Campbell Md (President & Ceo) $1,296,038 $0 $160,730
Jack Mahler Md (Chief Investment Officer) $1,129,788 $0 $454,050
Marc S Ginsky (Executive Vp, Coo & Secretary) $798,697 $0 $196,290
Earl Lee (Managing Director, Investments) $795,644 $0 $31,560
Eric Koehrsen (Managing Director, Investments) $724,272 $0 $181,211
Vera H Twigg (Executive Vp & Cfo) $616,492 $0 $116,663
Michael P Boyle Md (Sr.Vp,Therapeutics Development) $572,626 $0 $110,366
Bruce Marshall Md (Senior Vp, Clinical Affairs) $570,534 $0 $44,951
William Skach Md (Senior Vp, Research Affairs) $553,576 $0 $108,709
Drucy S Borowitz Md (Senior Vp, Community Affairs) $542,352 $0 $28,284
Anthony Durmowicz Md (Vp, Clinical Development) $519,124 $0 $45,129
Chris Gegelys (Senior Vp, Chief Legal Officer) $508,694 $0 $76,727
C Richard Mattingly (Former Officer) $101,212 $0 $0
Louis A Defalco (Vice Chair) $0 $0 $0
Richard J Gray Esq (Vice Chair) $0 $0 $0
Carole B Griego Md (Trustee) $0 $0 $0
Susan L Hook (Trustee) $0 $0 $0
Catherine C Mcloud (Chair) $0 $0 $0
Chad T Moore (Trustee) $0 $0 $0
David A Mount (Treasurer) $0 $0 $0
Robert H Niehaus (Vice Chair) $0 $0 $0
Eric R Olson Phd (Trustee) $0 $0 $0
Teresa L Elder (Trustee) $0 $0 $0
Steven Shak Md (Trustee) $0 $0 $0
Theodore J Torphy Ph (Vice Chair) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$275,790,756
Expenses
$337,912,568
Net Income
-$62,121,812
Net Assets
$3,775,363,472
Notable Sources of Revenue Percent of Total Revenue
Contributions $108,058,591
39.2%
Program Services $4,441,092
1.6%
Investment Income $49,930,894
18.1%
Bond Proceeds $0
Royalties $16,750,788
6.1%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $91,213,796
33.1%
Net Inventory Sales $0
Other Revenue $5,306,539
1.9%
Notable Expenses Percent of Total Expenses
Executive Compensation $6,075,419
1.8%
Professional Fundraising Fees $326,000
0.1%
Other Salaries and Wages $65,074,455
19.3%
Assets/Debt
Total Assets $4,013,935,956
Total Liabilities $238,572,484
Net Assets $3,775,363,472
Compensation
Key Employees and Officers Compensation Related Other
Preston Campbell Md (President & Ceo) $1,263,852 $0 $162,414
Jack Mahler Md (Chief Investment Officer) $924,937 $0 $153,170
Marc S Ginsky (Executive Vp, Coo & Secretary) $733,685 $0 $186,426
Vera H Twigg (Executive Vp & Cfo) $696,431 $0 $102,882
Bruce Marshall Md (Senior Vp, Clinical Affairs) $602,074 $0 $32,864
Drucy S Borowitz Md (Senior Vp, Community Affairs) $499,834 $0 $35,464
Michael P Boyle Md (Sr.Vp,Therapeutics Development) $497,768 $0 $113,948
William Skach Md (Senior Vp, Research Affairs) $491,019 $0 $113,951
Matthew Mcbrady (Managing Director, Investments) $470,395 $0 $62,631
Chris Gegelys (Senior Vp, Chief Legal Officer) $378,810 $0 $66,831
Marybeth Mcmahon Phd (Chief Of Staff) $364,566 $0 $53,765
Albert Faro Md (Sr.Director Clinical Affairs) $355,016 $0 $66,941
Robert J Beall Phd (Former Ceo/2018 Consultant) $335,359 $0 $0
C Richard Mattingly (Former Coo) $100,816 $0 $0
Richard L Dandurand (Trustee (Through 5/15/18)) $0 $0 $0
Louis A Defalco (Vice Chair) $0 $0 $0
Richard J Gray Esq (Vice Chair) $0 $0 $0
Carole B Griego Md (Trustee) $0 $0 $0
Susan L Hook (Trustee) $0 $0 $0
Catherine C Mcloud (Chair) $0 $0 $0
Chad T Moore (Trustee) $0 $0 $0
David A Mount (Treasurer) $0 $0 $0
Robert H Niehaus (Vice Chair) $0 $0 $0
Eric R Olson Phd (Trustee) $0 $0 $0
Teresa L Elder (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$275,482,021
Expenses
$292,766,690
Net Income
-$17,284,669
Net Assets
$4,194,186,065
Notable Sources of Revenue Percent of Total Revenue
Contributions $110,650,273
40.2%
Program Services $3,971,424
1.4%
Investment Income $58,068,866
21.1%
Bond Proceeds $0
Royalties $9,617,853
3.5%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $91,452,054
33.2%
Net Inventory Sales $0
Other Revenue $1,647,393
0.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $4,394,102
1.5%
Professional Fundraising Fees $288,543
0.1%
Other Salaries and Wages $50,275,582
17.2%
Assets/Debt
Total Assets $4,401,077,858
Total Liabilities $206,891,793
Net Assets $4,194,186,065
Compensation
Key Employees and Officers Compensation Related Other
Jack Mahler Md (Chief Investment Officer) $1,197,052 $0 $152,338
Preston Campbell Md (President & Ceo) $805,765 $396,810 $207,207
Marc S Ginsky (Executive Vp, Coo & Secretary) $663,211 $0 $226,013
Vera H Twigg (Executive Vp & Cfo) $524,706 $0 $127,750
Drucy S Borowitz Md (Senior Vp, Community Affairs) $470,366 $0 $32,312
Bruce Marshall Md (Senior Vp, Clinical Affairs) $430,358 $101,381 $32,540
Robert J Beall Phd (Former Ceo/Current Consultant) $383,094 $55,949 $0
Glen Goldmark (Senior Vp Of Human Resources) $355,185 $0 $54,938
Timothy A Waire Jr (Chief Information Officer) $341,523 $0 $65,090
Marybeth Mcmahon Phd (Chief Of Staff) $332,209 $0 $52,917
Albert Faro Md (Sr Director, Clinical Affairs) $319,590 $0 $61,736
C Richard Mattingly (Former Coo) $197,010 $0 $0
William Skach Md (Senior Vp, Research Affairs) $74,361 $421,375 $67,421
Richard L Dandurand (Trustee) $0 $0 $0
Louis A Defalco (Vice Chair) $0 $0 $0
Richard J Gray Esq (Vice Chair) $0 $0 $0
Carole B Griego Md (Trustee) $0 $0 $0
Susan L Hook (Trustee) $0 $0 $0
Catherine C Mcloud (Chair) $0 $0 $0
Chad T Moore (Trustee) $0 $0 $0
David A Mount (Treasurer) $0 $0 $0
Robert H Niehaus (Vice Chair) $0 $0 $0
Eric R Olson Phd (Trustee) $0 $0 $0
Teresa L Elder (Trustee (As Of 5/18/2017)) $0 $0 $0
Steven Shak Md (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$192,528,975
Expenses
$299,650,531
Net Income
-$107,121,556
Net Assets
$3,732,155,178
Notable Sources of Revenue Percent of Total Revenue
Contributions $117,148,751
60.8%
Program Services $2,246,282
1.2%
Investment Income $56,600,061
29.4%
Bond Proceeds $0
Royalties $8,038,700
4.2%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $7,955,364
4.1%
Net Inventory Sales $0
Other Revenue $444,386
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $3,248,161
1.1%
Professional Fundraising Fees $133,446
0.0%
Other Salaries and Wages $44,176,990
14.7%
Assets/Debt
Total Assets $3,919,394,927
Total Liabilities $187,239,749
Net Assets $3,732,155,178
Compensation
Key Employees and Officers Compensation Related Other
John Mahler Md (Chief Investment Officer) $830,745 $0 $109,987
Preston Campbell Md (President & Ceo) $616,640 $304,574 $255,951
Robert J Beall Phd (Former Ceo&Current Consultant) $518,038 $126,109 $565
Vera H Twigg (Executive Vp & Cfo) $465,131 $0 $103,024
Bruce Marshall Md (Senior Vp, Clinical Affairs) $386,312 $95,540 $32,117
Drucy S Borowitz Md (Svp, Community Partnerships) $320,867 $0 $7,550
William Blanton (Director Of Investments) $309,472 $0 $28,410
Timothy A Waire Jr (Chief Information Officer) $308,006 $0 $62,471
Leah Bloom Phd (Chief Of Strategy) $305,677 $0 $48,998
Marc S Ginsky (Executive Vp, Coo & Secretary) $305,540 $0 $149,642
Marybeth Mcmahon Phd (Chief Of Staff) $294,073 $0 $51,095
C Richard Mattingly (Former Coo) $135,951 $0 $7,251
William Skach Md (Senior Vp, Research Affairs) $58,192 $329,757 $54,167
Richard L Dandurand (Trustee) $0 $0 $0
Louis Defalco (Vice Chair) $0 $0 $0
Richard J Gray Esq (Vice Chair) $0 $0 $0
Carole B Griego Md (Trustee) $0 $0 $0
Susan L Hook (Trustee) $0 $0 $0
Catherine C Mcloud (Chair) $0 $0 $0
Chad T Moore (Trustee) $0 $0 $0
David A Mount (Treasurer) $0 $0 $0
Robert H Niehaus (Vice Chair) $0 $0 $0
Eric Olson Phd (Trustee) $0 $0 $0
Gary B Sabin (Trustee) $0 $0 $0
Steven Shak Md (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$148,459,096
Expenses
$192,986,761
Net Income
-$44,527,665
Net Assets
$3,679,424,528
Notable Sources of Revenue Percent of Total Revenue
Contributions $95,908,297
64.6%
Program Services $2,216,198
1.5%
Investment Income $67,810,170
45.7%
Bond Proceeds $0
Royalties $7,230,863
4.9%
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$26,504,780
Net Inventory Sales $0
Other Revenue $1,798,348
1.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $6,449,238
3.3%
Professional Fundraising Fees $192,000
0.1%
Other Salaries and Wages $20,235,358
10.5%
Assets/Debt
Total Assets $3,803,485,303
Total Liabilities $124,060,775
Net Assets $3,679,424,528
Compensation
Key Employees and Officers Compensation Related Other
C Richard Mattingly (Exec Vp & Coo) $2,718,373 $0 $68,546
Robert Beall Phd (President & Ceo (Until 9/30)) $1,575,208 $779,230 $108,896
Vera H Twigg (Executive Vp, Cfo & Secretary) $499,672 $0 $107,968
Preston Campbell Md (President & Ceo (As Of 10/1)) $496,970 $245,571 $212,541
Amy Demaria (Sr. Vp Of Communications) $275,520 $0 $40,990
Maureen Fraser (Vp Of Field Management) $275,519 $0 $45,385
Mary Dwight (Svp Policy & Patient Assist.) $265,074 $0 $66,399
David Mcloughlin (Sr. Vp Of Operations) $253,478 $108,101 $60,349
Chris Penland Phd (Vice President Of Research) $139,511 $122,427 $53,304
Bruce Marshall Md (Sr. Vp Of Clinical Affairs) $129,754 $314,135 $32,060
William Skach Md (Sr. Vp Of Research Affairs) $74,887 $233,504 $48,493
Michael L Beatty Esq (Trustee) $0 $0 $0
Richard L Dandurand (Vice Chairman) $0 $0 $0
Louis Defalco (Trustee) $0 $0 $0
Richard J Gray Esq (Vice Chairman) $0 $0 $0
Carole B Griego Md (Trustee) $0 $0 $0
Susan L Hook (Trustee) $0 $0 $0
Catherine C Mcloud (Chair) $0 $0 $0
Chad T Moore (Trustee) $0 $0 $0
David A Mount (Treasurer) $0 $0 $0
Robert H Niehaus (Trustee) $0 $0 $0
Eric Olson Phd (Trustee) $0 $0 $0
Gray B Sabin (Vice Chairman) $0 $0 $0
Steven Shak Md (Trustee) $0 $0 $0
Charles J Thayer (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,349,013,060
Expenses
$80,021,438
Net Income
$3,268,991,622
Net Assets
$3,814,362,946
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,285,132,614
98.1%
Program Services $2,155,742
0.1%
Investment Income $47,793,478
1.4%
Bond Proceeds $0
Royalties $6,366,649
0.2%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $7,223,110
0.2%
Net Inventory Sales $0
Other Revenue $341,467
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $3,025,537
3.8%
Professional Fundraising Fees $192,000
0.2%
Other Salaries and Wages $18,137,443
22.7%
Assets/Debt
Total Assets $3,922,688,693
Total Liabilities $108,325,747
Net Assets $3,814,362,946
Other
Reported a significant diversion of assets
Compensation
Key Employees and Officers Compensation Related Other
Robert J Beall Ph D (President / Ceo) $650,137 $323,554 $224,033
C Richard Mattingly (Exec Vp, Coo & Secretary) $645,755 $0 $189,266
Vera H Twigg (Executive Vp And Cfo) $461,903 $0 $85,449
Preston Campbell Md (Exec Vp Of Medical Affairs) $432,875 $213,925 $174,822
Daniel Klein (Sr Vp, Patient Access Programs) $294,147 $0 $67,981
Glen Goldmark (Vp Of Human Resources) $239,238 $0 $47,024
David Mc Loughlin (Sr. Vp Of Operations) $233,360 $69,839 $57,656
Mary Dwight (Svp Policy & Comm Affairs) $221,875 $0 $60,062
Maureen Fraser (Vp Of Field Management) $219,955 $0 $40,382
Christopher Penland Ph D (Vp Of Research) $199,932 $30,745 $49,478
Michael L Beatty Esq (Trustee) $0 $0 $0
J Taylor Crandall (Trustee) $0 $0 $0
Richard L Dandurand (Vice Chairman) $0 $0 $0
Louis De Falco (Trustee) $0 $0 $0
Richard J Gray Esq (Vice Chairman) $0 $0 $0
Carole B Griego Md (Trustee) $0 $0 $0
Susan L Hook (Leadership Council Chair) $0 $0 $0
Catherine C Mc Loud (Chair) $0 $0 $0
Chad T Moore (Trustee) $0 $0 $0
David A Mount (Trustee) $0 $0 $0
Gray B Sabin (Vice Chairman) $0 $0 $0
Steven Shak Md (Trustee) $0 $0 $0
Charles J Thayer (Treasurer) $0 $0 $0
Amy S Weinberg (Trustee) $0 $0 $0
Paul W Whetsell (Exec Vice Chairman) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$297,690,483
Expenses
$75,047,721
Net Income
$222,642,762
Net Assets
$597,765,846
Notable Sources of Revenue Percent of Total Revenue
Contributions $279,115,653
93.8%
Program Services $2,168,133
0.7%
Investment Income $9,276,579
3.1%
Bond Proceeds $0
Royalties $7,777,853
2.6%
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$1,096,786
Net Inventory Sales $0
Other Revenue $449,051
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $3,669,026
4.9%
Professional Fundraising Fees $0
Other Salaries and Wages $17,429,853
23.2%
Assets/Debt
Total Assets $692,698,706
Total Liabilities $94,932,860
Net Assets $597,765,846
Compensation
Key Employees and Officers Compensation Related Other
Preston W Campbell Md (Exec Vp For Medical Affairs) $796,908 $394,239 $202,914
C Richard Mattingly (Exec Vp, Coo & Secretary) $752,470 $0 $220,754
Robert J Beall Ph D (President & Ceo) $737,313 $364,564 $261,787
Vera H Twigg (Sr. Vp & Cfo) $486,851 $0 $91,349
David Mcloughlin (Sr. Vice President Of Ops) $286,388 $0 $56,418
Daniel Klein (Sr Vp, Patient Access Progs) $243,807 $0 $32,095
Glen Goldmark (Vp Of Human Resources) $230,969 $0 $45,754
Gregory August (Chief Information Officer) $229,682 $0 $51,655
Amy Demaria (Sr Vp Of Communications) $227,400 $0 $35,445
Ann Palmer (Sr. Vice President Of Field Mg) $198,883 $0 $41,477
Michael L Beatty (Trustee) $0 $0 $0
J Taylor Crandall (Trustee) $0 $0 $0
Richard L Dandurand (Vice Chairman) $0 $0 $0
Richard J Gray Esq (Vice Chairman) $0 $0 $0
Barry M Gump (Trustee) $0 $0 $0
Susan L Hook (Trustee) $0 $0 $0
Catherine C Mc Loud (Trustee) $0 $0 $0
Chad T Moore (Trustee) $0 $0 $0
David A Mount (Trustee) $0 $0 $0
Gray B Sabin (Trustee) $0 $0 $0
Christy L Shaffer Ph D (Trustee) $0 $0 $0
Steven Shak Md (Trustee) $0 $0 $0
Charles J Thayer (Trustee) $0 $0 $0
Amy S Weinberg (Trustee) $0 $0 $0
Paul W Whetsell (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$260,818,976
Expenses
$79,288,914
Net Income
$181,530,062
Net Assets
$350,629,883
Notable Sources of Revenue Percent of Total Revenue
Contributions $193,893,253
74.3%
Program Services $30,108,699
11.5%
Investment Income $10,639,322
4.1%
Bond Proceeds $0
Royalties $3,506,450
1.3%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $22,190,620
8.5%
Net Inventory Sales $0
Other Revenue $480,632
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $2,681,208
3.4%
Professional Fundraising Fees $0
Other Salaries and Wages $21,805,285
27.5%
Assets/Debt
Total Assets $435,100,702
Total Liabilities $84,470,819
Net Assets $350,629,883

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$136,580,184
Expenses
$125,721,614
Net Income
$10,858,570
Net Assets
$175,448,915
Notable Sources of Revenue Percent of Total Revenue
Contributions $101,016,403
74.0%
Program Services $26,269,945
19.2%
Investment Income $3,438,058
2.5%
Bond Proceeds $0
Royalties $1,450,872
1.1%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $3,828,641
2.8%
Net Inventory Sales $0
Other Revenue $576,265
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $2,331,798
1.9%
Professional Fundraising Fees $0
Other Salaries and Wages $20,131,956
16.0%
Assets/Debt
Total Assets $216,321,364
Total Liabilities $40,872,449
Net Assets $175,448,915

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
1998

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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