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National Organization For Rare Disorders Inc

  • Danbury, CT
  • Tax-exempt since May 1989
  • EIN: 13-3223946

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$66.4M (2023)

Expenses
$52.8M (2023)

Total Assets
$65.2M (2023)

Total Liabilities
$4.53M (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings and Audits by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Audits are required to be submitted by nonprofit organizations that spend $750,000 or more in federal grant money in a fiscal year. "Single audits" look at the entire organization's finances and compliance, while other audits are program specific. Nonprofit Explorer has PDFs of audits for some nonprofits for fiscal year 2015 and later. Audit data is from the Federal Audit Clearinghouse.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$66,397,453
Expenses
$52,832,739
Net Income
$13,564,714
Net Assets
$60,621,443
Notable Sources of Revenue Percent of Total Revenue
Contributions $55,591,572
83.7%
Program Services $8,312,225
12.5%
Investment Income $1,751,860
2.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $741,796
1.1%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $1,161,618
2.2%
Professional Fundraising Fees $0
Other Salaries and Wages $8,256,602
15.6%
Assets/Debt
Total Assets $65,154,464
Total Liabilities $4,533,021
Net Assets $60,621,443
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $496,804 $0 $26,404
Pamela Gavin (Executive Vice President) $390,823 $0 $31,910
Prashant Goel (Vp Information Technology) $282,667 $0 $14,531
Edward Neilan (Chief Medical & Scientific Officer) $270,662 $0 $58,975
Alexa Moore (Vp Of Development) $235,028 $0 $11,747
Jill Pollander (Vp Patient Services) $179,475 $0 $23,972
Neeta Kotecha (Vp Finance) $177,102 $0 $38,575
Lisa Sarfaty (Vp Community Engagement) $173,427 $0 $54,480
Kathleen Holcombe (Chair) $0 $0 $0
Dennis Jackman (Vice Chair) $0 $0 $0
Leon Eidelman (Treasurer) $0 $0 $0
Jim Palma (Secretary) $0 $0 $0
Mark Skinner (Director) $0 $0 $0
Susan Berry Md (Director) $0 $0 $0
Shafali Jeste Md (Director) $0 $0 $0
Phillip Pearl Md (Director) $0 $0 $0
Mike Porath (Director) $0 $0 $0
Tom Kelly (Director (As Of 5/4/23)) $0 $0 $0
Sheldon Schuster Phd (Director (As Of 5/4/23)) $0 $0 $0
Lorna Weir (Director (As Of 5/4/23)) $0 $0 $0
Steven Grossman (Director (Until 1/31/23)) $0 $0 $0
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Document Links

990
Filed on May 31, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML
Audits

Audit for a nonprofit that spends $750,000+ in federal grant money in a fiscal year

PDF

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$59,872,383
Expenses
$48,420,739
Net Income
$11,451,644
Net Assets
$46,304,541
Notable Sources of Revenue Percent of Total Revenue
Contributions $51,401,122
85.9%
Program Services $8,070,658
13.5%
Investment Income $415,150
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$14,547
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $1,160,969
2.4%
Professional Fundraising Fees $0
Other Salaries and Wages $7,336,154
15.2%
Assets/Debt
Total Assets $49,542,120
Total Liabilities $3,237,579
Net Assets $46,304,541
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $493,155 $0 $25,867
Pamela Gavin (Executive Vice President) $380,500 $0 $28,250
Edward Neilan (Chief Medical & Scientific Officer) $298,446 $0 $53,587
Prashant Goel (Vp Information Technology) $271,096 $0 $14,853
Alexa Moore (Vp Of Development) $228,768 $0 $12,338
Jill Pollander (Vp Patient Services) $175,521 $0 $21,897
Heidi Ross (Vp Policy & Regulatory Affairs) $174,039 $0 $10,008
Vincent J Murphy Jr (Vp Finance (Until 10/7/2022)) $154,323 $0 $38,465
Neeta Kotecha (Vp Finance) $34,985 $0 $5,424
Kathleen Holcombe (Chair) $0 $0 $0
Mark Skinner (Vice Chair) $0 $0 $0
Leon Eidelman (Treasurer) $0 $0 $0
Steven Grossman (Secretary) $0 $0 $0
Susan Hedstrom (Director) $0 $0 $0
Jim Palma (Director) $0 $0 $0
Susan Berry Md (Director) $0 $0 $0
Shafali Jeste Md (Director) $0 $0 $0
Phillip Pearl Md (Director) $0 $0 $0
Mike Porath (Director) $0 $0 $0
Dennis Jackman (Director) $0 $0 $0
Frederick Barr Md (Director (Until 9/14/2022)) $0 $0 $0
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Document Links

990
Filed on May 11, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
Audits

Audit for a nonprofit that spends $750,000+ in federal grant money in a fiscal year

PDF

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$43,188,172
Expenses
$57,720,517
Net Income
-$14,532,345
Net Assets
$34,941,697
Notable Sources of Revenue Percent of Total Revenue
Contributions $36,679,921
84.9%
Program Services $6,266,078
14.5%
Investment Income $223,148
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $19,025
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $1,025,976
1.8%
Professional Fundraising Fees $0
Other Salaries and Wages $7,234,869
12.5%
Assets/Debt
Total Assets $37,875,246
Total Liabilities $2,933,549
Net Assets $34,941,697
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $452,672 $0 $36,275
Pamela Gavin (Chief Operating Officer) $345,320 $0 $20,504
Prashant Goel (Vp Information Technology) $258,821 $0 $14,808
Rachel Sher (Vp Policy & Regulatory Affairs) $225,960 $0 $20,612
Alexa Moore (Vp Of Development) $218,063 $0 $45,061
Edward Neilan (Chief Medical & Scientific Officer) $180,810 $0 $29,583
Jill Pollander (Vp Patient Services) $139,242 $0 $29,723
Vincent J Murphy Jr (Vp Finance) $129,355 $0 $41,850
Kathleen Holcombe (Chair) $0 $0 $0
Steven Grossman (Secretary) $0 $0 $0
Frederick Barr Md (Director) $0 $0 $0
Ronald J Bartek (Director) $0 $0 $0
Susan Hedstrom (Director) $0 $0 $0
Jim Palma (Director) $0 $0 $0
Susan Berry Md (Director) $0 $0 $0
Shafali Jeste Md (Director) $0 $0 $0
Phillip Pearl Md (Director) $0 $0 $0
Mike Porath (Director) $0 $0 $0
Dennis Jackman (Director) $0 $0 $0
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Document Links

990
Filed on Sept. 28, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML
Audits

Audit for a nonprofit that spends $750,000+ in federal grant money in a fiscal year

PDF

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$42,843,360
Expenses
$52,712,119
Net Income
-$9,868,759
Net Assets
$49,567,652
Notable Sources of Revenue Percent of Total Revenue
Contributions $36,711,628
85.7%
Program Services $5,782,111
13.5%
Investment Income $517,289
1.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$167,668
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $1,047,383
2.0%
Professional Fundraising Fees $0
Other Salaries and Wages $5,880,738
11.2%
Assets/Debt
Total Assets $52,774,540
Total Liabilities $3,206,888
Net Assets $49,567,652
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $505,828 $0 $22,886
Pamela Gavin (Chief Operating Officer) $329,943 $0 $24,121
Rachel Sher (Vp Policy & Regulatory Affairs) $225,539 $0 $12,544
Prashant Goel (Vp Information Technology) $225,269 $0 $10,777
Alexa Moore (Vp Of Development) $215,094 $0 $39,428
Tim Ehrhard (Director Of It) $161,533 $0 $36,752
Jill Pollander (Director Of Patient Services) $132,058 $0 $25,890
Vincent J Murphy Jr (Vp Finance) $129,386 $0 $35,219
Marshall L Summar Md (Chair (Until 12/9/2020)) $0 $0 $0
Kathleen Holcombe (Director/Chair (As Of 12/9/2020)) $0 $0 $0
Steven Grossman (Secretary) $0 $0 $0
Frederick Barr Md (Director) $0 $0 $0
Ronald J Bartek (Director) $0 $0 $0
Susan Hedstrom (Director) $0 $0 $0
Jim Palma (Director) $0 $0 $0
Susan Berry (Director) $0 $0 $0
Neil Horikoshi (Director (Until 12/9/20)) $0 $0 $0
Shafali Jeste (Director) $0 $0 $0
Philip Pearl (Director) $0 $0 $0
Mike Porath (Director) $0 $0 $0
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990
Filed on July 16, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML
Audits

Audit for a nonprofit that spends $750,000+ in federal grant money in a fiscal year

PDF

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$52,413,377
Expenses
$41,789,694
Net Income
$10,623,683
Net Assets
$59,419,323
Notable Sources of Revenue Percent of Total Revenue
Contributions $43,644,020
83.3%
Program Services $8,392,510
16.0%
Investment Income $595,629
1.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$218,782
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $947,732
2.3%
Professional Fundraising Fees $0
Other Salaries and Wages $4,621,791
11.1%
Assets/Debt
Total Assets $61,751,096
Total Liabilities $2,331,773
Net Assets $59,419,323
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $399,286 $0 $24,836
Pamela Gavin (Chief Operating Officer) $314,643 $0 $22,121
Alexa Moore (Vp Of Development) $204,227 $0 $32,940
Rachel Sher (Vp Policy & Regulatory Affairs) $193,229 $0 $8,982
Tim Ehrhard (Director Of It) $157,641 $0 $31,257
Jill Pollander (Director Of Patient Services) $123,058 $0 $21,704
Vincent J Murphy Jr (Vp Finance) $122,652 $0 $29,570
James Berg (Principal Software Architect) $121,494 $0 $37,063
Sheldon M Schuster Phd (Vice Chairman) $0 $0 $0
Steven Grossman (Secretary) $0 $0 $0
Marshall L Summar Md (Chairman) $0 $0 $0
Frederick Barr Md (Director) $0 $0 $0
Ronald J Bartek (Director) $0 $0 $0
Susan Hedstrom (Director) $0 $0 $0
Vicki Mccarrell (Director) $0 $0 $0
Jim Palma (Director) $0 $0 $0
Susan Berry (Director) $0 $0 $0
Kay Holcombe (Director) $0 $0 $0
Neil Horikoshi (Director) $0 $0 $0
Shafali Jeste (Director) $0 $0 $0
Philip Pearl (Director) $0 $0 $0
Mike Porath (Director) $0 $0 $0
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990
Filed on Aug. 4, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$47,123,099
Expenses
$34,074,818
Net Income
$13,048,281
Net Assets
$48,710,640
Notable Sources of Revenue Percent of Total Revenue
Contributions $42,070,943
89.3%
Program Services $5,024,265
10.7%
Investment Income $145,033
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$117,142
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $904,669
2.7%
Professional Fundraising Fees $0
Other Salaries and Wages $3,730,578
10.9%
Assets/Debt
Total Assets $50,838,028
Total Liabilities $2,127,388
Net Assets $48,710,640
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $385,121 $0 $40,931
Pamela Gavin (Chief Operating Officer) $296,720 $0 $22,361
Alexa Moore (Vp Of Development) $205,192 $0 $34,209
Tim Ehrhard (Director Of It) $164,800 $0 $32,815
Vincent J Murphy Jr (Vp Finance) $128,606 $0 $30,930
James Berg (Principal Software Architect) $124,057 $0 $31,125
Mary Dunkle (Vp Of Educational Initiati) $121,014 $0 $7,010
Mark Lloyd (Senior Software Architect) $117,734 $0 $27,302
Sheldon M Schuster Phd (Vice Chairman) $0 $0 $0
Steven Grossman (Secretary) $0 $0 $0
Marshall L Summar Md (Chairman) $0 $0 $0
Roger Ziegler (Treasurer) $0 $0 $0
Jonathan Haines Phd (Director) $0 $0 $0
Frederick Barr Md (Director) $0 $0 $0
Charles A Mohan Jr (Director) $0 $0 $0
Ronald J Bartek (Director) $0 $0 $0
Sarah Krug (Director) $0 $0 $0
Preston White Campbell Iii Md (Director) $0 $0 $0
Susan Hedstrom (Director) $0 $0 $0
Vicki Mccarrell (Director) $0 $0 $0
Jim Palma (Director) $0 $0 $0
Kathleen Weis (Director) $0 $0 $0
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990
Filed on Nov. 12, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
990-T

For unrelated business income from activities not substantially related to the organization's tax-exempt purpose

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$48,131,131
Expenses
$32,990,742
Net Income
$15,140,389
Net Assets
$35,662,359
Notable Sources of Revenue Percent of Total Revenue
Contributions $43,026,731
89.4%
Program Services $5,254,373
10.9%
Investment Income $21,741
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$171,714
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $886,497
2.7%
Professional Fundraising Fees $0
Other Salaries and Wages $3,407,784
10.3%
Assets/Debt
Total Assets $38,279,763
Total Liabilities $2,617,404
Net Assets $35,662,359
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $370,073 $0 $107,971
Pamela Gavin (Chief Operating Officer) $286,045 $0 $20,983
Martha L Rinker (Vp Of Public Policy) $172,490 $0 $16,165
Tim Ehrhard (Director Of It) $158,017 $0 $27,163
Catherine G Blansfield (Vp Of Patient Services) $119,554 $0 $17,893
Mary Dunkle (Vp Of Educational Initiatives) $115,465 $0 $8,771
Mark Lloyd (Senior Software Architect) $111,997 $0 $24,550
Sheldon M Schuster Phd (Vice Chairman) $0 $0 $0
Stephen Grossman (Secretary) $0 $0 $0
Marshall L Summar Md (Chairman) $0 $0 $0
Roger Ziegler (Treasurer) $0 $0 $0
Jonathan Haines Phd (Director) $0 $0 $0
Frederick Barr Md (Director) $0 $0 $0
Charles A Mohan Jr (Director) $0 $0 $0
Ronald J Bartek (Director) $0 $0 $0
Sarah Krug (Director) $0 $0 $0
Preston White Campbell Iii Md (Director) $0 $0 $0
Anthony Castaldo (Director) $0 $0 $0
Susan Hedstrom (Director) $0 $0 $0
Vicki Mccarrell (Director) $0 $0 $0
Jim Palma (Director) $0 $0 $0
Kathleen Weis (Director) $0 $0 $0
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990
Filed on May 14, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$38,228,332
Expenses
$28,741,148
Net Income
$9,487,184
Net Assets
$20,476,522
Notable Sources of Revenue Percent of Total Revenue
Contributions $34,659,778
90.7%
Program Services $3,136,228
8.2%
Investment Income $12,987
0.0%
Bond Proceeds $0
Royalties $405,505
1.1%
Rental Property Income $0
Net Fundraising -$125,804
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $139,638
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $587,309
2.0%
Professional Fundraising Fees $0
Other Salaries and Wages $3,548,133
12.3%
Assets/Debt
Total Assets $23,366,973
Total Liabilities $2,890,451
Net Assets $20,476,522
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $275,761 $0 $29,382
Pamela Gavin (Chief Operating Officer) $274,554 $0 $23,267
Martha L Rinker (Vp Of Public Policy) $163,271 $0 $20,916
Lisa Terrizzi (General Counsel) $138,589 $0 $6,923
James A Charnley (Vp Of Finance) $134,485 $0 $19,905
Catherine G Blansfield (Vp Of Patient Services) $115,206 $0 $19,076
Mark Lloyd (Senior Software Architect) $108,310 $0 $19,150
Sheldon M Schuster Phd (Acting Chairman) $0 $0 $0
Stephen Grossman (Director) $0 $0 $0
Jonathan Haines Phd (Director) $0 $0 $0
Frederick Barr Md (Director) $0 $0 $0
Kevin Mcnaught Phd (Director) $0 $0 $0
Charles A Mohan Jr (Director) $0 $0 $0
Kim Hollander (Director) $0 $0 $0
Pat Furlong (Director) $0 $0 $0
Sarah Krug (Director) $0 $0 $0
Marybeth Krummenacker (Director) $0 $0 $0
E Michael Scott (Director) $0 $0 $0
Frank J Sasinowski (Director) $0 $0 $0
Preston White Campbell Iii Md (Director) $0 $0 $0
Anthony Castaldo (Director) $0 $0 $0
Josephine Grima Phd (Secretary) $0 $0 $0
Marshall L Summar Md (Treasurer) $0 $0 $0
Ronald J Bartek (Director) $0 $0 $0
Vicki Mccarrell (Director) $0 $0 $0
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990
Filed on Feb. 14, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
View Filing (2 of 2) PDF (2 of 3) PDF (3 of 3)

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$20,448,445
Expenses
$19,549,729
Net Income
$898,716
Net Assets
$10,984,239
Notable Sources of Revenue Percent of Total Revenue
Contributions $18,746,207
91.7%
Program Services $1,576,789
7.7%
Investment Income $23,000
0.1%
Bond Proceeds $0
Royalties $134,483
0.7%
Rental Property Income $0
Net Fundraising -$200,323
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $168,289
0.8%
Notable Expenses Percent of Total Expenses
Executive Compensation $508,496
2.6%
Professional Fundraising Fees $0
Other Salaries and Wages $2,705,718
13.8%
Assets/Debt
Total Assets $13,751,505
Total Liabilities $2,767,266
Net Assets $10,984,239
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $257,692 $0 $14,281
Pamela Gavin (Coo) $216,064 $0 $20,459
Vincent Tsugranes (Dir. Of Information Tech.) $154,362 $0 $20,950
Mark Lloyd (Systems) $114,997 $0 $10,227
Mary Dunkle (Vp Of Education) $110,770 $0 $34,390
Sheldon M Schuster Phd (Chair) $0 $0 $0
Stephen Grossman (Director) $0 $0 $0
Jonathan Haines Phd (Director) $0 $0 $0
Frederick Barr Md (Director) $0 $0 $0
Kevin Mcnaught Phd (Director) $0 $0 $0
Charles A Mohan Jr (Director) $0 $0 $0
Kim Hollander (Director Resigned October 2015) $0 $0 $0
Pat Furlong (Director) $0 $0 $0
Sarah Krug (Director) $0 $0 $0
Marybeth Krummenacker (Director) $0 $0 $0
E Michael Scott (Director) $0 $0 $0
Frank J Sasinowski (Director Resigned October 2015) $0 $0 $0
Preston White Campbell Iii Md (Director) $0 $0 $0
Anthony Castaldo (Director) $0 $0 $0
Josephine Grima Phd (Secretary) $0 $0 $0
Marshall L Summar Md (Treasurer) $0 $0 $0
Ronald J Bartek (Director) $0 $0 $0
Stephen Bajardi (Director Resigned October 2015) $0 $0 $0
Nancy Harris (Director Resigned October 2015) $0 $0 $0
Brett Kopelan (Director Resigned October 2015) $0 $0 $0
See filing for compensation of 2 other people →
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990
Filed on Oct. 12, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
PDF (2 of 2)

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$27,567,898
Expenses
$23,227,752
Net Income
$4,340,146
Net Assets
$10,100,343
Notable Sources of Revenue Percent of Total Revenue
Contributions $25,087,368
91.0%
Program Services $2,243,559
8.1%
Investment Income $20,445
0.1%
Bond Proceeds $0
Royalties $100,000
0.4%
Rental Property Income $0
Net Fundraising $24,778
0.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $91,748
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $489,434
2.1%
Professional Fundraising Fees $0
Other Salaries and Wages $2,359,059
10.2%
Assets/Debt
Total Assets $15,275,953
Total Liabilities $5,175,610
Net Assets $10,100,343
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $249,940 $0 $14,307
Pamela Gavin (Coo) $204,606 $0 $20,581
Russell Teagarden (Svp Medical & Scientific A) $146,758 $0 $8,454
Katie Walsh (Vice President, Finance) $126,550 $0 $15,868
Vincent Tsugranes (Director Of Information Technology) $104,611 $0 $9,193
Stephen Bajardi (Director) $0 $0 $0
Josephine Grima Phd (Secretary) $0 $0 $0
Ronald J Bartek Resigned Oct 2014 (Chair) $0 $0 $0
Nancy Harris (Director) $0 $0 $0
Kim Hollander (Director) $0 $0 $0
Pat Furlong (Director) $0 $0 $0
Brett Kopelan Started Nov 2014 (Chair) $0 $0 $0
Sarah Krug (Director) $0 $0 $0
Sheldon M Schuster (Vice Chair) $0 $0 $0
Marybeth Krummenacker (Director) $0 $0 $0
E Michael D Scott (Director) $0 $0 $0
Vicki Mccarrell (Director) $0 $0 $0
Marshall L Summar Md (Treasurer) $0 $0 $0
Kari Luther Rosbeck (Director) $0 $0 $0
Frank J Sasinowski (Director) $0 $0 $0
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990
Filed on Nov. 13, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$16,524,222
Expenses
$17,285,806
Net Income
-$761,584
Net Assets
$6,332,653
Notable Sources of Revenue Percent of Total Revenue
Contributions $15,160,145
91.7%
Program Services $1,418,853
8.6%
Investment Income $18,998
0.1%
Bond Proceeds $0
Royalties $96,673
0.6%
Rental Property Income $0
Net Fundraising -$237,291
Sales of Assets $17,363
0.1%
Net Inventory Sales $0
Other Revenue $49,481
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $684,739
4.0%
Professional Fundraising Fees $0
Other Salaries and Wages $2,029,406
11.7%
Assets/Debt
Total Assets $11,755,018
Total Liabilities $5,422,365
Net Assets $6,332,653
Compensation
Key Employees and Officers Compensation Related Other
Peter Saltonstall (President/Ceo) $264,154 $0 $19,720
Pamela Gavin (Coo) $196,618 $0 $19,832
Mark Lloyd (Chief Information Technology Officer) $165,037 $0 $19,378
Russell Teagarden (Svp Medical & Scientific Affairs) $118,269 $0 $5,406
Mary Cobb (Vp Membership/Strategy) $101,081 $0 $18,292
Carolyn Asbury Phd Resigned Dec2013 (Vice Chair) $0 $0 $0
Mira Geffner Resigned Dec2013 (Director) $0 $0 $0
Stephen Bajardi (Director) $0 $0 $0
Josephine Grima Phd (Secretary) $0 $0 $0
Ronald J Bartek (Chair) $0 $0 $0
Nancy Harris (Director) $0 $0 $0
Brenda Duffy Resigned Dec 2013 (Director) $0 $0 $0
Kim Hollander (Director) $0 $0 $0
Pat Furlong (Director) $0 $0 $0
Brett Kopelan (Treasurer) $0 $0 $0
Sarah Krug (Director) $0 $0 $0
Sheldon M Schuster (Vice Chair) $0 $0 $0
Marybeth Krummenacker (Director) $0 $0 $0
E Michael D Scott Resigned Dec2013 (Chair) $0 $0 $0
Vicki Mccarrell (Director) $0 $0 $0
Marshall L Summar Md (Director) $0 $0 $0
Kari Luther Rosbeck (Director) $0 $0 $0
Judit Ungar Resigned Dec 2013 (Director) $0 $0 $0
Frank J Sasinowski (Director) $0 $0 $0
Wendy White Resigned Dec 2013 (Director) $0 $0 $0
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990
Filed on Nov. 17, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$10,568,516
Expenses
$15,621,934
Net Income
-$5,053,418
Net Assets
$7,099,122
Notable Sources of Revenue Percent of Total Revenue
Contributions $8,324,575
78.8%
Program Services $2,124,595
20.1%
Investment Income $47,322
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $72,024
0.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $357,706
2.3%
Professional Fundraising Fees $0
Other Salaries and Wages $2,008,482
12.9%
Assets/Debt
Total Assets $10,314,640
Total Liabilities $3,215,518
Net Assets $7,099,122

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$11,025,713
Expenses
$13,006,380
Net Income
-$1,980,667
Net Assets
$12,140,619
Notable Sources of Revenue Percent of Total Revenue
Contributions $9,634,015
87.4%
Program Services $1,296,642
11.8%
Investment Income $85,651
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $9,405
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $273,515
2.1%
Professional Fundraising Fees $0
Other Salaries and Wages $1,868,878
14.4%
Assets/Debt
Total Assets $14,450,108
Total Liabilities $2,309,489
Net Assets $12,140,619

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

Byline

By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated