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Amyotrophic Lateral Sclerosis Association

Greater New York Chapter

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$4.84M (2023)

Expenses
$5.19M (2023)

Total Assets
$7.51M (2023)

Total Liabilities
$1.57M (2023)

Years with missing data
Source: Form 990 tax filings from 2012 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Jan.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,837,719
Expenses
$5,193,328
Net Income
-$355,609
Net Assets
$5,935,605
Notable Sources of Revenue Percent of Total Revenue
Contributions $5,560,313
> 100%
Program Services $0
Investment Income $98,916
2.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,079,132
Sales of Assets $14,587
0.3%
Net Inventory Sales $0
Other Revenue $243,035
5.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $419,859
8.1%
Professional Fundraising Fees $0
Other Salaries and Wages $1,453,924
28.0%
Assets/Debt
Total Assets $7,505,334
Total Liabilities $1,569,729
Net Assets $5,935,605
Compensation
Key Employees and Officers Compensation Related Other
Kristen Cocoman (President & Ceo) $221,672 $0 $7,099
Regina Ackley (Vice President & Coo) $187,225 $0 $16,043
Vivian Banks (Director Of Individual And) $109,675 $0 $13,716
Jordana Newler (Director, Fundraising & Events) $109,592 $0 $13,714
Debbie Schlossberg (Chief Care Services Officer) $105,431 $0 $3,460
Ben Lieman (Assistive Technology Specialist) $104,322 $0 $3,578
Allen J Popowitz Esq (Chairman) $0 $0 $0
Lennard Katz (Vice Chairman) $0 $0 $0
W Marc Lane (Treasurer) $0 $0 $0
Nancy Miringoff (Secretary) $0 $0 $0
Alice Claar (Director) $0 $0 $0
Ken Dashow (Director) $0 $0 $0
David Lubars (Director) $0 $0 $0
Matthew Perline (Director) $0 $0 $0
Peter Rosenberger (Director) $0 $0 $0
Dorine Gordon (Director) $0 $0 $0
Robert Tuchman (Director) $0 $0 $0
Lee Brodsky (Director) $0 $0 $0
Kevin M Glassman Md (Director) $0 $0 $0
Alan Levine (Director) $0 $0 $0
Joshua D Rand (Director) $0 $0 $0
Nirali Shah Esq (Director) $0 $0 $0
Eric Berniker (Director) $0 $0 $0

Document Links

Fiscal Year Ending Jan.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,803,291
Expenses
$4,768,654
Net Income
$1,034,637
Net Assets
$6,728,170
Notable Sources of Revenue Percent of Total Revenue
Contributions $6,018,465
> 100%
Program Services $0
Investment Income $171,121
2.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$740,356
Sales of Assets $15,586
0.3%
Net Inventory Sales $0
Other Revenue $338,475
5.8%
Notable Expenses Percent of Total Expenses
Executive Compensation $412,105
8.6%
Professional Fundraising Fees $0
Other Salaries and Wages $1,341,567
28.1%
Assets/Debt
Total Assets $7,108,895
Total Liabilities $380,725
Net Assets $6,728,170
Compensation
Key Employees and Officers Compensation Related Other
Kristen Cocoman (President & Ceo) $222,291 $0 $7,118
Regina Ackley (Vice Pres & Chief Operating Officer) $179,656 $0 $15,098
Vivian Banks (Director Of Individual And Institutional Giving) $100,846 $0 $12,733
Allen J Popowitz Esq (Chairman) $0 $0 $0
Lennard Katz (Vice Chairman) $0 $0 $0
W Marc Lane (Treasurer) $0 $0 $0
Nancy Miringoff (Secretary) $0 $0 $0
Alice Claar (Director) $0 $0 $0
Ken Dashow (Director) $0 $0 $0
David Lubars (Director) $0 $0 $0
Matthew Perline (Director) $0 $0 $0
Peter Rosenberger (Director) $0 $0 $0
Dorine Gordon (Director) $0 $0 $0
Robert Tuchman (Director) $0 $0 $0
Lee Brodsky (Director) $0 $0 $0
Kevin M Glassman Md (Director) $0 $0 $0
Alan Levine (Director) $0 $0 $0
Joshua D Rand (Director) $0 $0 $0
Nirali Shah Esq (Director) $0 $0 $0
Eric Berniker (Director) $0 $0 $0

Document Links

Fiscal Year Ending Jan.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,502,489
Expenses
$3,961,735
Net Income
-$459,246
Net Assets
$5,807,404
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,001,185
> 100%
Program Services $0
Investment Income $120,076
3.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$692,985
Sales of Assets $74,213
2.1%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $159,737
4.0%
Professional Fundraising Fees $7,000
0.2%
Other Salaries and Wages $1,503,228
37.9%
Assets/Debt
Total Assets $6,074,348
Total Liabilities $266,944
Net Assets $5,807,404
Compensation
Key Employees and Officers Compensation Related Other
Kristen Cocoman (President & Ceo) $159,288 $0 $5,228
Regina Ackley (Chief Operating Officer) $122,410 $0 $14,220
Tracy Ali (Chief Care Services Office) $102,093 $0 $10,884
Allen J Popowitz Esq (Chairman) $0 $0 $0
Wendy J Schriber Esq (Governance Advisor) $0 $0 $0
W Marc Lane (Treasurer) $0 $0 $0
Lennard Katz (Vice Chairman) $0 $0 $0
Nancy Miringoff (Secretary) $0 $0 $0
Alice Claar (Director) $0 $0 $0
Ken Dashow (Director) $0 $0 $0
David Lubars (Director) $0 $0 $0
Matthew Perline (Director) $0 $0 $0
Peter Rosenberger (Director) $0 $0 $0
Dorine Gordon (Director) $0 $0 $0
Robert Tuchman (Director) $0 $0 $0
Lee Brodsky (Director) $0 $0 $0
Kevin M Glassman Md (Director) $0 $0 $0
Tom Carroll (Director) $0 $0 $0
Alan Levine (Director) $0 $0 $0
Joshua D Rand (Director) $0 $0 $0
Nirali Shah (Director) $0 $0 $0
Eric Berniker (Director) $0 $0 $0

Document Links

Fiscal Year Ending Jan.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,364,755
Expenses
$5,202,080
Net Income
-$837,325
Net Assets
$6,104,034
Notable Sources of Revenue Percent of Total Revenue
Contributions $5,498,195
> 100%
Program Services $0
Investment Income $126,506
2.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,336,470
Sales of Assets $76,524
1.8%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $177,520
3.4%
Professional Fundraising Fees $70,220
1.3%
Other Salaries and Wages $1,534,577
29.5%
Assets/Debt
Total Assets $6,275,284
Total Liabilities $171,250
Net Assets $6,104,034
Compensation
Key Employees and Officers Compensation Related Other
Kristen Cocoman (President & Ceo) $177,070 $0 $5,762
Regina Ackley (Chief Operating Officer) $135,951 $0 $16,626
Tracy Ali (Chief Care Services Officer) $108,263 $0 $12,332
Vivian Banks (Director Of Individual & Institutional Living) $103,824 $0 $13,981
Allen J Popowitz Esq (Chairman) $0 $0 $0
Wendy J Schriber Esq (Vice Chairman) $0 $0 $0
W Marc Lane (Treasurer) $0 $0 $0
Lennard Katz (Secretary) $0 $0 $0
Alice Claar (Director) $0 $0 $0
Ken Dashow (Director) $0 $0 $0
David Lubars (Director) $0 $0 $0
Matthew Perline (Director) $0 $0 $0
Nancy Miringoff (Director) $0 $0 $0
Peter Rosenberger (Director) $0 $0 $0
Dorine Gordon (Director) $0 $0 $0
Robert Tuchman (Director) $0 $0 $0
Lee Brodsky (Director) $0 $0 $0
Kevin M Glassman Md (Director) $0 $0 $0
Tom Carroll (Director) $0 $0 $0
Alan Levine (Director) $0 $0 $0
Joshua D Rand (Director) $0 $0 $0
Adam Blinderman (Director) $0 $0 $0
Eric Berniker (Director) $0 $0 $0

Document Links

Fiscal Year Ending Jan.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,226,325
Expenses
$5,330,995
Net Income
-$1,104,670
Net Assets
$6,644,332
Notable Sources of Revenue Percent of Total Revenue
Contributions $5,181,719
> 100%
Program Services $0
Investment Income $181,555
4.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,140,277
Sales of Assets $3,328
0.1%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $176,973
3.3%
Professional Fundraising Fees $70,875
1.3%
Other Salaries and Wages $1,546,981
29.0%
Assets/Debt
Total Assets $7,150,253
Total Liabilities $505,921
Net Assets $6,644,332
Compensation
Key Employees and Officers Compensation Related Other
Kristen Cocoman (President & Ceo) $176,524 $0 $5,746
Regina Ackley (Chief Operating Officer) $135,665 $0 $15,998
Adele Marano (Chief Patient Serv. Officer) $126,971 $0 $15,692
Allen J Popowitz Esq (Chairman) $0 $0 $0
Wendy J Schriber Esq (Vice Chairman) $0 $0 $0
W Marc Lane (Treasurer) $0 $0 $0
Lennard Katz (Secretary) $0 $0 $0
Alice Claar (Director) $0 $0 $0
Ken Dashow (Director) $0 $0 $0
David Lubars (Director) $0 $0 $0
Matthew Perline (Director) $0 $0 $0
Nancy Miringoff (Director) $0 $0 $0
Peter Rosenberger (Director) $0 $0 $0
Richard Rose (Director) $0 $0 $0
Robert Tuchman (Director) $0 $0 $0
Lee Brodsky (Director) $0 $0 $0
Kevin M Glassman Md (Director) $0 $0 $0
Tom Carroll (Director) $0 $0 $0
Alan Levine (Director) $0 $0 $0
Joshua D Rand (Director) $0 $0 $0
Adam Blinderman (Director) $0 $0 $0
Eric Berniker (Director) $0 $0 $0

Document Links

Fiscal Year Ending Jan.
2018

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Jan.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,145,580
Expenses
$5,132,118
Net Income
$13,462
Net Assets
$8,456,303
Notable Sources of Revenue Percent of Total Revenue
Contributions $6,198,942
> 100%
Program Services $0
Investment Income $115,415
2.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,189,697
Sales of Assets -$5,778
Net Inventory Sales $0
Other Revenue $26,698
0.5%
Notable Expenses Percent of Total Expenses
Executive Compensation $358,914
7.0%
Professional Fundraising Fees $70,000
1.4%
Other Salaries and Wages $1,374,273
26.8%
Assets/Debt
Total Assets $8,553,147
Total Liabilities $96,844
Net Assets $8,456,303

Document Links

Fiscal Year Ending Jan.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,684,667
Expenses
$4,690,124
Net Income
$994,543
Net Assets
$8,276,532
Notable Sources of Revenue Percent of Total Revenue
Contributions $6,793,895
> 100%
Program Services $0
Investment Income $99,180
1.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,179,462
Sales of Assets -$28,946
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $202,292
4.3%
Professional Fundraising Fees $65,000
1.4%
Other Salaries and Wages $1,337,079
28.5%
Assets/Debt
Total Assets $8,298,971
Total Liabilities $22,439
Net Assets $8,276,532

Document Links

Fiscal Year Ending Jan.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$10,229,054
Expenses
$5,016,579
Net Income
$5,212,475
Net Assets
$7,449,209
Notable Sources of Revenue Percent of Total Revenue
Contributions $11,551,474
> 100%
Program Services $0
Investment Income $6,026
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,328,446
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $198,059
3.9%
Professional Fundraising Fees $65,000
1.3%
Other Salaries and Wages $1,013,570
20.2%
Assets/Debt
Total Assets $7,457,306
Total Liabilities $8,097
Net Assets $7,449,209

Document Links

Fiscal Year Ending Jan.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,347,403
Expenses
$3,300,413
Net Income
$46,990
Net Assets
$2,236,734
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,225,271
> 100%
Program Services $0
Investment Income $2,154
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$880,022
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $185,149
5.6%
Professional Fundraising Fees $60,000
1.8%
Other Salaries and Wages $899,843
27.3%
Assets/Debt
Total Assets $2,520,264
Total Liabilities $283,530
Net Assets $2,236,734

Document Links

Fiscal Year Ending Jan.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,141,543
Expenses
$2,880,276
Net Income
$261,267
Net Assets
$2,189,744
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,911,949
> 100%
Program Services $0
Investment Income $1,453
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$771,859
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $180,352
6.3%
Professional Fundraising Fees $0
Other Salaries and Wages $754,837
26.2%
Assets/Debt
Total Assets $2,257,691
Total Liabilities $67,947
Net Assets $2,189,744

Document Links

Fiscal Year Ending Jan.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,427,415
Expenses
$2,607,931
Net Income
-$180,516
Net Assets
$1,928,477
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,162,631
> 100%
Program Services $0
Investment Income $1,535
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$736,751
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $178,666
6.9%
Professional Fundraising Fees $0
Other Salaries and Wages $697,549
26.7%
Assets/Debt
Total Assets $2,003,851
Total Liabilities $75,374
Net Assets $1,928,477

Document Links

Fiscal Year Ending Jan.
2011

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Jan.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Jan.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Jan.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Jan.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Jan.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Jan.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Jan.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Jan.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Jan.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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