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Moebius Syndrome Foundation

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Philanthropy, Voluntarism and Grantmaking Foundations / Public Foundations (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$458k (2023)

Expenses
$599k (2023)

Total Assets
$1.83M (2023)

Total Liabilities
$3.09k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$458,300
Expenses
$599,259
Net Income
-$140,959
Net Assets
$1,830,486
Notable Sources of Revenue Percent of Total Revenue
Contributions $322,045
70.3%
Program Services $66,366
14.5%
Investment Income $68,250
14.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,639
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $91,410
15.3%
Professional Fundraising Fees $0
Other Salaries and Wages $39,775
6.6%
Assets/Debt
Total Assets $1,833,572
Total Liabilities $3,086
Net Assets $1,830,486
Compensation
Key Employees and Officers Compensation Related Other
Jennifer Whitman (Executive Director) $91,410 $0 $0
Jon Fisher (Board Member) $0 $0 $0
Monica Woodall (Board Member) $0 $0 $0
Destiny Bachman (Board Member) $0 $0 $0
Ki Owana Phillips (Board Member) $0 $0 $0
Kathryn Kraus (Board Member) $0 $0 $0
Austin Halls (Board Member) $0 $0 $0
Bryn Webb Md (Board Member) $0 $0 $0
Jacob Licht (President) $0 $0 $0
Vicki Mc Carrell (Treasurer) $0 $0 $0
Rebecca Maher (Secretary) $0 $0 $0
Steven Maldonado (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$358,125
Expenses
$519,527
Net Income
-$161,402
Net Assets
$1,853,173
Notable Sources of Revenue Percent of Total Revenue
Contributions $240,979
67.3%
Program Services $69,422
19.4%
Investment Income $47,724
13.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $83,350
16.0%
Professional Fundraising Fees $0
Other Salaries and Wages $41,874
8.1%
Assets/Debt
Total Assets $1,898,826
Total Liabilities $45,653
Net Assets $1,853,173
Compensation
Key Employees and Officers Compensation Related Other
Jennifer Whitman (Executive Director) $83,350 $0 $0
Jon Fisher (Board Member) $0 $0 $0
Bryn Webb Md (Board Member) $0 $0 $0
Monica Woodall (Board Member) $0 $0 $0
Destiny Bachman (Board Member) $0 $0 $0
Ki Owana Phillips (Board Member) $0 $0 $0
Kathryn Kraus (Board Member) $0 $0 $0
Austin Halls (Board Member) $0 $0 $0
Jacob Licht (President) $0 $0 $0
Vicki Mc Carrell (Treasurer) $0 $0 $0
Rebecca Maher (Secretary) $0 $0 $0
Steven Maldonado (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,037,936
Expenses
$183,742
Net Income
$854,194
Net Assets
$2,322,833
Notable Sources of Revenue Percent of Total Revenue
Contributions $988,888
95.3%
Program Services $0
Investment Income $21,766
2.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $27,282
2.6%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,393,833
Total Liabilities $71,000
Net Assets $2,322,833
Compensation
Key Employees and Officers Compensation Related Other
Vicki Mccarrell (Treasurer) $0 $0 $0
Jacob Licht (President) $0 $0 $0
Rebecca Maher (Secretary) $0 $0 $0
Steven Maldonado (Vice Preside) $0 $0 $0
Jon Fisher (Board Member) $0 $0 $0
Bryn Webb Md (Board Member) $0 $0 $0
Nicole Zeitler (Board Member) $0 $0 $0
Kiowana Phillips (Board Member) $0 $0 $0
Kathyrn Kraus (Board Member) $0 $0 $0
Monica Woodall (Board Member) $0 $0 $0
Destiny Bachman (Board Member) $0 $0 $0
Kelsey Ferrill (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$104,435
Expenses
$600,241
Net Income
-$495,806
Net Assets
$1,415,616
Notable Sources of Revenue Percent of Total Revenue
Contributions $66,325
63.5%
Program Services $0
Investment Income $25,770
24.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $12,340
11.8%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,589,005
Total Liabilities $173,389
Net Assets $1,415,616
Compensation
Key Employees and Officers Compensation Related Other
Kelsey Ferrill (Board Member) $0 $0 $0
Jacob Licht (President) $0 $0 $0
Rebecca Maher (Secretary) $0 $0 $0
Steven Maldonado (Board Member) $0 $0 $0
Vicki Mccarrell (Treasurer) $0 $0 $0
Bryn Webb Md (Board Member) $0 $0 $0
Kevin Smant (Vice Preside) $0 $0 $0
Monica Woodall (Board Member) $0 $0 $0
Nicole Zeitler (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$232,434
Expenses
$321,314
Net Income
-$88,880
Net Assets
$1,823,982
Notable Sources of Revenue Percent of Total Revenue
Contributions $182,833
78.7%
Program Services $4,848
2.1%
Investment Income $35,389
15.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $9,364
4.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,824,347
Total Liabilities $365
Net Assets $1,823,982
Compensation
Key Employees and Officers Compensation Related Other
Kelsey Ferrill (Board Member) $0 $0 $0
Jacob Licht (President) $0 $0 $0
Rebecca Maher (Secretary) $0 $0 $0
Steven Maldonado (Board Member) $0 $0 $0
Vicki Mccarrell (Treasurer) $0 $0 $0
Bryn Webb Md (Board Member) $0 $0 $0
Paula Santana (Board Member) $0 $0 $0
Kevin Smant (Vice Preside) $0 $0 $0
Monica Woodall (Board Member) $0 $0 $0
Nicole Zeitler (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$331,391
Expenses
$414,749
Net Income
-$83,358
Net Assets
$1,774,385
Notable Sources of Revenue Percent of Total Revenue
Contributions $180,300
54.4%
Program Services $107,497
32.4%
Investment Income $43,594
13.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,775,916
Total Liabilities $1,531
Net Assets $1,774,385
Compensation
Key Employees and Officers Compensation Related Other
Vicki Mccarrell (President) $0 $0 $0
Kevin Smant (Vice President) $0 $0 $0
Monica Woodall (Secretary) $0 $0 $0
Jacob Licht (Treasurer) $0 $0 $0
Kelsey Ferrill (Board Member) $0 $0 $0
Rebecca Maher (Board Member) $0 $0 $0
Steven Maldonado (Board Member) $0 $0 $0
Paula Santana (Board Member) $0 $0 $0
Bryn Webb Md (Board Member) $0 $0 $0
Nicole Zeitler (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$275,289
Expenses
$277,772
Net Income
-$2,483
Net Assets
$1,958,564
Notable Sources of Revenue Percent of Total Revenue
Contributions $167,664
60.9%
Program Services $430
0.2%
Investment Income $21,338
7.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $85,857
31.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,958,564
Total Liabilities $0
Net Assets $1,958,564
Compensation
Key Employees and Officers Compensation Related Other
Kimberley Cunningham (Executive Director) $36,000 $0 $0
Vicki Mccarrell (President) $0 $0 $0
Matthew Joffe (Vice President) $0 $0 $0
Marcia Abbott (Secretary) $0 $0 $0
Jacob Licht (Treasurer) $0 $0 $0
Kevin Smant (Board Member) $0 $0 $0
Monica Woodall (Board Member) $0 $0 $0
Roland Bienvenu (Board Member) $0 $0 $0
Kathleen Bogart (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$786,121
Expenses
$479,484
Net Income
$306,637
Net Assets
$1,971,590
Notable Sources of Revenue Percent of Total Revenue
Contributions $667,773
84.9%
Program Services $77,790
9.9%
Investment Income $19,271
2.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $21,287
2.7%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,971,590
Total Liabilities $0
Net Assets $1,971,590
Compensation
Key Employees and Officers Compensation Related Other
Vicki Mccarrell (President) $0 $0 $0
Matthew Joffe (Vice President) $0 $0 $0
Marcia Abbott (Secretary) $0 $0 $0
Jacob Licht (Treasurer) $0 $0 $0
Kevin Smant (Board Member) $0 $0 $0
Monica Woodall (Board Member) $0 $0 $0
Roland Bienvenu (Board Member) $0 $0 $0
Kathleen Bogart (Board Member) $0 $0 $0
Lori Thomas (Board Member) $0 $0 $0
Natalie Abbott (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$652,694
Expenses
$110,936
Net Income
$541,758
Net Assets
$1,642,578
Notable Sources of Revenue Percent of Total Revenue
Contributions $643,479
98.6%
Program Services $0
Investment Income $14,776
2.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$5,986
Net Inventory Sales $425
0.1%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,642,578
Total Liabilities $0
Net Assets $1,642,578
Compensation
Key Employees and Officers Compensation Related Other
Vicki Mccarrell (President) $0 $0 $0
Matthew Joffe (Vice President) $0 $0 $0
Marcia Abbott (Secretary) $0 $0 $0
Jacob Licht (Treasurer) $0 $0 $0
Kevin Smant (Board Member) $0 $0 $0
Monica Woodall (Board Member) $0 $0 $0
Roland Bienvenu (Board Member) $0 $0 $0
Kathleen Bogart (Board Member) $0 $0 $0
Lori Thomas (Board Member) $0 $0 $0
Natalie Abbott (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$746,250
Expenses
$242,617
Net Income
$503,633
Net Assets
$1,122,571
Notable Sources of Revenue Percent of Total Revenue
Contributions $674,820
90.4%
Program Services $68,773
9.2%
Investment Income $1,706
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $951
0.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,122,571
Total Liabilities $0
Net Assets $1,122,571
Compensation
Key Employees and Officers Compensation Related Other
Vicki Mccarrell (President) $0 $0 $0
Matthew Joffe (Vice President) $0 $0 $0
Marcia Abbott (Secretary) $0 $0 $0
Jacob Licht (Treasurer) $0 $0 $0
Kevin Smant (Board Member) $0 $0 $0
Monica Woodall (Board Member) $0 $0 $0
Roland Bienvenu (Board Member) $0 $0 $0
Kathleen Bogart (Board Member) $0 $0 $0
Lori Thomas (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$124,366
Expenses
$45,012
Net Income
$79,354
Net Assets
$618,938
Notable Sources of Revenue Percent of Total Revenue
Contributions $121,875
98.0%
Program Services $0
Investment Income $2,368
1.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $123
0.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $618,938
Total Liabilities $0
Net Assets $618,938
Compensation
Key Employees and Officers Compensation Related Other
Vicki Mccarrell (President) $0 $0 $0
Matthew Joffe (Vice President) $0 $0 $0
Marcia Abbott (Secretary) $0 $0 $0
Jacob Licht (Treasurer) $0 $0 $0
Kevin Smant (Board Member) $0 $0 $0
Monica Woodall (Board Member) $0 $0 $0
Roland Bienvenu (Board Member) $0 $0 $0
Kathleen Bogart (Board Member) $0 $0 $0
Lori Thomas (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$213,907
Expenses
$250,387
Net Income
-$36,480
Net Assets
$539,584
Notable Sources of Revenue Percent of Total Revenue
Contributions $123,262
57.6%
Program Services $87,665
41.0%
Investment Income $2,980
1.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $539,584
Total Liabilities $0
Net Assets $539,584

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$141,757
Expenses
$73,250
Net Income
$68,507
Net Assets
$576,064
Notable Sources of Revenue Percent of Total Revenue
Contributions $134,122
94.6%
Program Services $0
Investment Income $4,368
3.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $3,267
2.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $576,064
Total Liabilities $0
Net Assets $576,064

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
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