Skip to content
ProPublica Donate
ProPublica Donate

Families And Friends Supporting Cystic Fibrosis Care

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Specifically Named Diseases (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$498k (2024)

Expenses
$355k (2024)

Total Assets
$2.06M (2024)

Total Liabilities
$0 (2024)

Years with missing data
Source: Form 990 tax filings from 2012 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending March
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$497,707
Expenses
$354,917
Net Income
$142,790
Net Assets
$2,062,361
Notable Sources of Revenue Percent of Total Revenue
Contributions $481,008
96.6%
Program Services $0
Investment Income $57,243
11.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$41,923
Net Inventory Sales $0
Other Revenue $1,379
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,062,361
Total Liabilities $0
Net Assets $2,062,361
Compensation
Key Employees and Officers Compensation Related Other
Gwen M Engelhard Dds (President) $0 $0 $0
Jill Dalton (Chief Financial Officer) $0 $0 $0
John Z Jacoby (President Emeritus/Secreta) $0 $0 $0
Marnee Mccarthy (Assistant Secretary) $0 $0 $0
Kaitlyn Cheney (Director) $0 $0 $0
Robert M Hutchinson (Director) $0 $0 $0
Sean Mccooe (Director) $0 $0 $0
Judy Nance (Director) $0 $0 $0
Lumi Castlen (Director) $0 $0 $0
Melissa Argenio (Director) $0 $0 $0
David Shepherd (Director) $0 $0 $0
Thomas G Leahy (Vice President) $0 $0 $0
Rose Marie Manger (Director) $0 $0 $0
Melissa Smith (Director) $0 $0 $0
Lisa Troyano Ascolese (Director) $0 $0 $0

Document Links

Fiscal Year Ending March
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$817,705
Expenses
$755,393
Net Income
$62,312
Net Assets
$1,901,654
Notable Sources of Revenue Percent of Total Revenue
Contributions $779,251
95.3%
Program Services $0
Investment Income $37,017
4.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $212
0.0%
Net Inventory Sales $0
Other Revenue $1,225
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,901,654
Total Liabilities $0
Net Assets $1,901,654
Compensation
Key Employees and Officers Compensation Related Other
Gwen M Engelhard Dds (President) $0 $0 $0
Jill Dalton (Chief Financial Officer) $0 $0 $0
John Z Jacoby (President Emeritus/Secreta) $0 $0 $0
Marnee Mccarthy (Assistant Secretary) $0 $0 $0
Kaitlyn Cheney (Director) $0 $0 $0
Robert M Hutchinson (Director) $0 $0 $0
Mary Jean Jacoby (Director) $0 $0 $0
Sean Mccooe (Director) $0 $0 $0
Judy Nance (Director) $0 $0 $0
Lumi Castlen (Director) $0 $0 $0
Melissa Argenio (Director) $0 $0 $0
David Shepherd (Director) $0 $0 $0
Thomas G Leahy (Vice President) $0 $0 $0
Rose Marie Manger (Director) $0 $0 $0
Melissa Smith (Director) $0 $0 $0
Lisa Troyano Ascolese (Director) $0 $0 $0

Document Links

Fiscal Year Ending March
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$487,864
Expenses
$76,785
Net Income
$411,079
Net Assets
$1,978,406
Notable Sources of Revenue Percent of Total Revenue
Contributions $468,266
96.0%
Program Services $0
Investment Income $16,646
3.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$1,019
Net Inventory Sales $0
Other Revenue $3,971
0.8%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,005,924
Total Liabilities $27,518
Net Assets $1,978,406
Compensation
Key Employees and Officers Compensation Related Other
Gwen M Engelhard Dds (President) $0 $0 $0
Jill Dalton (Chief Financial Officer) $0 $0 $0
John Z Jacoby (President Emeritus/Secreta) $0 $0 $0
Marnee Mccarthy (Assistant Secretary) $0 $0 $0
Kaitlyn Cheney (Director) $0 $0 $0
Robert M Hutchinson (Director) $0 $0 $0
Mary Jean Jacoby (Director) $0 $0 $0
Sean Mccooe (Director) $0 $0 $0
Judy Nance (Director) $0 $0 $0
Lumi Castlen (Director) $0 $0 $0
Melissa Argenio (Director) $0 $0 $0
David Shepherd (Director) $0 $0 $0
Thomas G Leahy (Vice President) $0 $0 $0
Rose Marie Manger (Director) $0 $0 $0
Melissa Smith (Director) $0 $0 $0
Lisa Troyano Ascolese (Director) $0 $0 $0

Document Links

Fiscal Year Ending March
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$396,226
Expenses
$257,294
Net Income
$138,932
Net Assets
$1,556,427
Notable Sources of Revenue Percent of Total Revenue
Contributions $352,397
88.9%
Program Services $0
Investment Income $41,266
10.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,563
0.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,556,427
Total Liabilities $0
Net Assets $1,556,427
Compensation
Key Employees and Officers Compensation Related Other
Gwen M Engelhard Dds (President) $0 $0 $0
Jill Dalton (Chief Financial Officer) $0 $0 $0
John Z Jacoby (President Emeritus/Secreta) $0 $0 $0
Marnee Mccarthy (Assistant Secretary) $0 $0 $0
Hugh Brennan (Director) $0 $0 $0
Kaitlyn Cheney (Director) $0 $0 $0
Robert M Hutchinson (Director) $0 $0 $0
Mary Jean Jacoby (Director) $0 $0 $0
Sean Mccooe (Director) $0 $0 $0
Judy Nance (Director) $0 $0 $0
Lumi Castlen (Director) $0 $0 $0
Melissa Argenio (Director) $0 $0 $0
David Shepherd (Director) $0 $0 $0
Thomas G Leahy (Vice President) $0 $0 $0
Jo Ann Costantino (Director) $0 $0 $0
Rose Marie Manger (Director) $0 $0 $0
Melissa Smith (Director) $0 $0 $0
Lisa Troyano Ascolese (Director) $0 $0 $0

Document Links

Fiscal Year Ending March
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$470,524
Expenses
$391,721
Net Income
$78,803
Net Assets
$1,329,478
Notable Sources of Revenue Percent of Total Revenue
Contributions $429,377
91.3%
Program Services $0
Investment Income $39,701
8.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,446
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,329,478
Total Liabilities $0
Net Assets $1,329,478
Compensation
Key Employees and Officers Compensation Related Other
Gwen M Engelhard Dds (President) $0 $0 $0
Jill Dalton (Chief Financial Officer) $0 $0 $0
John Z Jacoby (President Emeritus/Secretary) $0 $0 $0
Marnee Mccarthy (Assistant Secretary) $0 $0 $0
Hugh Brennan (Director) $0 $0 $0
Kaitlyn Cheney (Director) $0 $0 $0
Robert M Hutchinson (Director) $0 $0 $0
Mary Jean Jacoby (Director) $0 $0 $0
Sean Mccooe (Director) $0 $0 $0
Judy Nance (Director) $0 $0 $0
Lumi Castlen (Director) $0 $0 $0
Melissa Argenio (Director) $0 $0 $0
David Shepherd (Director) $0 $0 $0
Thomas G Leahy (Vice President) $0 $0 $0
Jo Ann Costantino (Director) $0 $0 $0
Rose Marie Manger (Director) $0 $0 $0
Melissa Smith (Director) $0 $0 $0
Lisa Troyano Ascolese (Director) $0 $0 $0

Document Links

Fiscal Year Ending March
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$254,816
Expenses
$219,385
Net Income
$35,431
Net Assets
$1,211,982
Notable Sources of Revenue Percent of Total Revenue
Contributions $215,521
84.6%
Program Services $0
Investment Income $39,760
15.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$465
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,211,982
Total Liabilities $0
Net Assets $1,211,982
Compensation
Key Employees and Officers Compensation Related Other
Gwen M Engelhard Dds (President) $0 $0 $0
Jill Dalton (Chief Financial Officer) $0 $0 $0
John Z Jacoby (President Emeritus/Secreta) $0 $0 $0
Marnee Mccarthy (Assistant Secretary) $0 $0 $0
Hugh Brennan (Director) $0 $0 $0
Terrence E Bradley (Director) $0 $0 $0
Robert M Hutchinson (Director) $0 $0 $0
Mary Jean Jacoby (Director) $0 $0 $0
Sean Mccooe (Director) $0 $0 $0
Judy Nance (Director) $0 $0 $0
Lumi Castlen (Director) $0 $0 $0
Melissa Argenio (Director) $0 $0 $0
David Shepherd (Director) $0 $0 $0
Thomas G Leahy (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending March
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$283,752
Expenses
$330,971
Net Income
-$47,219
Net Assets
$1,181,506
Notable Sources of Revenue Percent of Total Revenue
Contributions $244,753
86.3%
Program Services $0
Investment Income $37,871
13.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $1,128
0.4%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,181,506
Total Liabilities $0
Net Assets $1,181,506
Compensation
Key Employees and Officers Compensation Related Other
Gwen M Engelhard Dds (President) $0 $0 $0
Jill Dalton (Chief Financial Officer) $0 $0 $0
John Z Jacoby (President Emeritus/Secreta) $0 $0 $0
Marnee Mccarthy (Assistant Secretary) $0 $0 $0
Hugh Brennan (Director) $0 $0 $0
Terrence E Bradley (Director) $0 $0 $0
Robert M Hutchinson (Director) $0 $0 $0
Mary Jean Jacoby (Director) $0 $0 $0
Sean Mccooe (Director) $0 $0 $0
Judy Nance (Director) $0 $0 $0
Lumi Castlen (Director) $0 $0 $0
Melissa Argenio (Director) $0 $0 $0
David Shepherd (Director) $0 $0 $0
Thomas G Leahy (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending March
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$476,783
Expenses
$371,809
Net Income
$104,974
Net Assets
$1,282,672
Notable Sources of Revenue Percent of Total Revenue
Contributions $444,097
93.1%
Program Services $0
Investment Income $32,733
6.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$47
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,282,672
Total Liabilities $0
Net Assets $1,282,672
Compensation
Key Employees and Officers Compensation Related Other
Gwen M Engelhard Dds (President) $0 $0 $0
Jill Dalton (Chief Financial Officer) $0 $0 $0
John Z Jacoby (President Emeritus/Secreta) $0 $0 $0
Marnee Mccarthy (Assistant Secretary) $0 $0 $0
Hugh Brennan (Director) $0 $0 $0
Terrence E Bradley (Director) $0 $0 $0
Robert M Hutchinson (Director) $0 $0 $0
Mary Jean Jacoby (Director) $0 $0 $0
Sean Mccooe (Director) $0 $0 $0
Judy Nance (Director) $0 $0 $0
Lumi Castlen (Director) $0 $0 $0
Melissa Argenio (Director) $0 $0 $0
David Shepherd (Director) $0 $0 $0
Thomas G Leahy (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending March
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$316,603
Expenses
$257,237
Net Income
$59,366
Net Assets
$1,143,935
Notable Sources of Revenue Percent of Total Revenue
Contributions $298,224
94.2%
Program Services $0
Investment Income $18,379
5.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,143,935
Total Liabilities $0
Net Assets $1,143,935
Compensation
Key Employees and Officers Compensation Related Other
Gwen M Engelhard Dds (President) $0 $0 $0
Ellen Starr (Vice President) $0 $0 $0
Thomas G Leahy (Vice President) $0 $0 $0
Jill Dalton (Chief Financial Officer) $0 $0 $0
Hugh Brennan (Director) $0 $0 $0
John Z Jacoby (President Emeritus/Secretary) $0 $0 $0
Terrence E Bradley (Director) $0 $0 $0
Robert M Hutchinson (Director) $0 $0 $0
Mary Jean Jacoby (Director) $0 $0 $0
Sean Mccooe (Director) $0 $0 $0
Judy Nance (Director) $0 $0 $0
Matthew Mccooe (Director) $0 $0 $0
Marnee Mccarthy (Assistant Secretary) $0 $0 $0
David Shepherd (Director) $0 $0 $0
Melissa Smith (Director) $0 $0 $0

Document Links

Fiscal Year Ending March
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$695,840
Expenses
$253,867
Net Income
$441,973
Net Assets
$1,048,482
Notable Sources of Revenue Percent of Total Revenue
Contributions $691,510
99.4%
Program Services $0
Investment Income $4,330
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,048,482
Total Liabilities $0
Net Assets $1,048,482
Compensation
Key Employees and Officers Compensation Related Other
Ann Wilson (President) $0 $0 $0
Gwen M Engelhard Dds (Chief Financial Officer) $0 $0 $0
Ellen Starr (Vice President) $0 $0 $0
Thomas G Leahy (Vice President) $0 $0 $0
Jill Dalton (Treasurer) $0 $0 $0
Hugh Brennan (Secretary) $0 $0 $0
John Z Jacoby (President Emeritus) $0 $0 $0
Terrence E Bradley (Director) $0 $0 $0
Robert M Hutchinson (Director) $0 $0 $0
Mary Jean Jacoby (Director) $0 $0 $0
Sean Mccooe (Director) $0 $0 $0
Judy Nance (Director) $0 $0 $0
Aldo Parcesepe (Director) $0 $0 $0
Helene Parcesepe (Director) $0 $0 $0
Marnee Mccarthy (Director) $0 $0 $0
David Shepherd (Director) $0 $0 $0
Melissa Smith (Director) $0 $0 $0

Document Links

Fiscal Year Ending March
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$332,100
Expenses
$341,816
Net Income
-$9,716
Net Assets
$606,509
Notable Sources of Revenue Percent of Total Revenue
Contributions $329,922
99.3%
Program Services $0
Investment Income $2,178
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $606,884
Total Liabilities $375
Net Assets $606,509

Document Links

Fiscal Year Ending March
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$229,464
Expenses
$217,980
Net Income
$11,484
Net Assets
$616,225
Notable Sources of Revenue Percent of Total Revenue
Contributions $227,146
99.0%
Program Services $0
Investment Income $2,318
1.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $621,885
Total Liabilities $5,660
Net Assets $616,225

Document Links

Fiscal Year Ending March
2011

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending March
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending March
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending March
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending March
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending March
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending March
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending March
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »