Spina Bifida Association Of New York State

Scotia, NY
Tax-exempt since May 1993
EIN: 14-1755885

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Type of Nonprofit

Designated as a 501(c)(3) Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Revenue

$357k (2024)

Expenses

$261k (2024)

Total Assets

$363k (2024)

Total Liabilities

$4.17k (2024)

Years with missing data

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Revenue

$356,932

Expenses

$261,355

Net Income

$95,577

Net Assets

$358,476

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$190,354	53.3%
Program Services	$0
Investment Income	$17,144	4.8%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$130,375	36.5%
Sales of Assets	$62	0.0%
Net Inventory Sales	$0
Other Revenue	$18,997	5.3%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$141,158	54.0%

Assets/Debt
Total Assets	$362,648
Total Liabilities	$4,172
Net Assets	$358,476

Compensation

Key Employees and Officers	Compensation	Related	Other
Chris Darby King (Director)	$0	$0	$0
Diane Skibinski (Secretary)	$0	$0	$0
Abby Mundell (Chair Elect)	$0	$0	$0
Kevin Chamberlain (Director)	$0	$0	$0
James Dunham (Imm. Past Chair)	$0	$0	$0
Kirstyn Cerone (Secretary)	$0	$0	$0
Paul Lukasiewicz Iii (Director)	$0	$0	$0
Michelle Miller (Chair Elect)	$0	$0	$0
Andrew White (Director)	$0	$0	$0
Joe Slaninka (Chair)	$0	$0	$0
Dave Wentworth (Director)	$0	$0	$0
Jessica Hipp (Treasurer)	$0	$0	$0

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990

Filed on Nov. 12, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

XML

Fiscal Year Ending Dec.
2022

Revenue

$207,426

Expenses

$148,048

Net Income

$59,378

Net Assets

$232,063

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$114,069	55.0%
Program Services	$0
Investment Income	$5,204	2.5%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$89,627	43.2%
Sales of Assets	-$2,707
Net Inventory Sales	$0
Other Revenue	$1,233	0.6%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$86,873	58.7%

Assets/Debt
Total Assets	$233,722
Total Liabilities	$1,659
Net Assets	$232,063

Compensation

Key Employees and Officers	Compensation	Related	Other
Chris Darby King (Director)	$0	$0	$0
Diane Skibinski (Director)	$0	$0	$0
Robert Derrick (Director)	$0	$0	$0
Kevin Chamberlain (Director)	$0	$0	$0
James Dunham (Chair)	$0	$0	$0
Margaret Smith (Imm Past Chair)	$0	$0	$0
Paul Lukasiewicz Iii (Director)	$0	$0	$0
Michelle Miller (Chair Elect)	$0	$0	$0
Jessica Ryder (Secretary)	$0	$0	$0
Andrew White (Director)	$0	$0	$0
Joe Slaninka (Director)	$0	$0	$0
Crystal Hoey (Director)	$0	$0	$0
Dave Wentworth (Treasurer)	$0	$0	$0

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990

Filed on Nov. 8, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

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Fiscal Year Ending Dec.
2021

Revenue

$138,263

Expenses

$117,831

Net Income

$20,432

Net Assets

$198,784

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$57,433	41.5%
Program Services	$0
Investment Income	$9,916	7.2%
Net Fundraising	$64,455	46.6%
Sales of Assets	$1,475	1.1%
Net Inventory Sales	$0
Other Revenue	$4,984	3.6%

Assets/Debt
Total Assets	$202,085
Total Liabilities	$3,301
Net Assets	$198,784

Compensation

Key Employees and Officers	Compensation	Other
Chris Darby King (Director)	$0	$0
Valerie Joseph (Director)	$0	$0
Robert Derrick (Director)	$0	$0
James Alescio (Director)	$0	$0
James Dunham (Chair)	$0	$0
Paul Lukasiewicz (Director)	$0	$0
Michelle Miller (Chair Elect)	$0	$0
Margaret Smith (Imm Past Chair)	$0	$0
Andrew White (Director)	$0	$0
Joe Slaninka (Director)	$0	$0
Jessica Ryder (Secretary)	$0	$0
Dave Wentworth (Treasurer)	$0	$0

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990-EZ

Filed on May 31, 2022

Short form tax return for a nonprofit’s activities, finances, and governance

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XML

Fiscal Year Ending Dec.
2020

Revenue

$117,637

Expenses

$73,117

Net Income

$44,520

Net Assets

$167,562

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$22,487	19.1%
Program Services	$0
Investment Income	$4,591	3.9%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$62,711	53.3%
Sales of Assets	$27,523	23.4%
Net Inventory Sales	$0
Other Revenue	$325	0.3%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$47,614	65.1%

Assets/Debt
Total Assets	$181,933
Total Liabilities	$14,371
Net Assets	$167,562

Compensation

Key Employees and Officers	Compensation	Related	Other
Chris Darby King (Director)	$0	$0	$0
Helen Eggenberger (Director)	$0	$0	$0
Robert Derrick (Director)	$0	$0	$0
James Alescio (Director)	$0	$0	$0
James Dunham (Director)	$0	$0	$0
Paul Lukasiewicz (Director)	$0	$0	$0
Margaret Felt (Director)	$0	$0	$0
Margaret Smith (Imm Past Chair)	$0	$0	$0
Tracy Paige (Chair)	$0	$0	$0
Joe Slaninka (Director)	$0	$0	$0
Jessica Ryder (Secretary)	$0	$0	$0
Dave Wentworth (Treasurer)	$0	$0	$0

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990

Filed on July 27, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

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XML

Fiscal Year Ending Dec.
2019

Revenue

$78,730

Expenses

$85,217

Net Income

-$6,487

Net Assets

$136,211

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$16,147	20.5%
Program Services	$0
Investment Income	$7,611	9.7%
Net Fundraising	$53,691	68.2%
Sales of Assets	$252	0.3%
Net Inventory Sales	$0
Other Revenue	$1,029	1.3%

Assets/Debt
Total Assets	$144,669
Total Liabilities	$8,458
Net Assets	$136,211

Compensation

Key Employees and Officers	Compensation	Other
Chris Darby King (Director)	$0	$0
Helen Eggenberger (Director)	$0	$0
Robert Derrick (Director)	$0	$0
James Alescio (Treasurer)	$0	$0
Lyndsi Holmes Wickert (Chair)	$0	$0
Julia Duff (Executive Dir.)	$0	$0
Kevin Chamberlain (Director)	$0	$0
Margaret Felt (Director)	$0	$0
Margaret Smith (Imm Past Chair)	$0	$0
Tracy Paige (Vice Chair)	$0	$0
Gloria Zampini (Director)	$0	$0
Michelle Miller (Secretary)	$0	$0

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990-EZ

Filed on April 29, 2020

Short form tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2018

Revenue

$100,088

Expenses

$89,277

Net Income

$10,811

Net Assets

$123,573

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$24,213	24.2%
Program Services	$0
Investment Income	$10,081	10.1%
Net Fundraising	$53,726	53.7%
Sales of Assets	$5,918	5.9%
Net Inventory Sales	$0
Other Revenue	$6,150	6.1%

Assets/Debt
Total Assets	$125,878
Total Liabilities	$2,305
Net Assets	$123,573

Compensation

Key Employees and Officers	Compensation	Other
Annmarie Fennicks (Director)	$0	$0
James Dunham (Director)	$0	$0
Robert Derrick (Director)	$0	$0
James Alescio (Treasurer)	$0	$0
Lyndsi Holmes Wickert (Director)	$0	$0
Julia Duff (Executive Dir.)	$0	$0
Kevin Chamberlain (Director)	$0	$0
Peggy Felt (Secretary)	$0	$0
Margaret Smith (Chair)	$0	$0
Tracey Paige (Imm. Past Chair)	$0	$0
Gloria Zampini (Director)	$0	$0
Michelle Miller (Director)	$0	$0

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990-EZ

Filed on April 1, 2019

Short form tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2017

Revenue

$93,963

Expenses

$119,245

Net Income

-$25,282

Net Assets

$131,966

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$20,069	21.4%
Program Services	$0
Investment Income	$9,985	10.6%
Net Fundraising	$53,073	56.5%
Sales of Assets	$8,350	8.9%
Net Inventory Sales	$0
Other Revenue	$2,486	2.6%

Assets/Debt
Total Assets	$134,674
Total Liabilities	$2,708
Net Assets	$131,966

Compensation

Key Employees and Officers	Compensation	Other
Annmarie Fennicks (Director)	$0	$0
James Dunham (Director)	$0	$0
Heather Green Kirk (Director)	$0	$0
James Alescio (Treasurer)	$0	$0
Lyndsi Holmes Wickert (Imm. Past Chair)	$0	$0
Shelley Miller (Chair)	$0	$0
Kevin Chamberlain (Director)	$0	$0
Peggy Felt (Secretary)	$0	$0
Margaret Smith (Vice Chair)	$0	$0
Peg Huff (Director)	$0	$0
Gloria Zampini (Director)	$0	$0
Karen Wentworth (Former Exec Dir)	$0	$0
Barbara Diesem Zimmons (Exce Dir)	$0	$0

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990-EZ

Filed on July 17, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

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Fiscal Year Ending Dec.
2016

Revenue

$97,077

Expenses

$107,401

Net Income

-$10,324

Net Assets

$152,633

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$17,569	18.1%
Program Services	$0
Investment Income	$11,212	11.5%
Net Fundraising	$57,191	58.9%
Sales of Assets	$6,546	6.7%
Net Inventory Sales	$0
Other Revenue	$4,559	4.7%

Assets/Debt
Total Assets	$161,137
Total Liabilities	$8,504
Net Assets	$152,633

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2015

Revenue

$83,084

Expenses

$83,119

Net Income

-$35

Net Assets

$172,747

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$20,399	24.6%
Program Services	$0
Investment Income	$15,416	18.6%
Net Fundraising	$45,678	55.0%
Sales of Assets	$1,591	1.9%
Net Inventory Sales	$0
Other Revenue	$0

Assets/Debt
Total Assets	$179,297
Total Liabilities	$6,550
Net Assets	$172,747

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2014

Revenue

$90,349

Expenses

$86,103

Net Income

$4,246

Net Assets

$188,100

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$16,964	18.8%
Program Services	$0
Investment Income	$12,600	13.9%
Net Fundraising	$50,344	55.7%
Sales of Assets	$6,699	7.4%
Net Inventory Sales	$0
Other Revenue	$3,742	4.1%

Assets/Debt
Total Assets	$195,812
Total Liabilities	$7,712
Net Assets	$188,100

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2013

Revenue

$75,836

Expenses

$75,509

Net Income

$327

Net Assets

$187,520

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$17,415	23.0%
Program Services	$0
Investment Income	$8,020	10.6%
Net Fundraising	$48,311	63.7%
Sales of Assets	$2,090	2.8%
Net Inventory Sales	$0
Other Revenue	$0

Assets/Debt
Total Assets	$194,011
Total Liabilities	$6,491
Net Assets	$187,520

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2012

Revenue

$66,515

Expenses

$68,785

Net Income

-$2,270

Net Assets

$166,023

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$22,550	33.9%
Program Services	$0
Investment Income	$3,011	4.5%
Net Fundraising	$32,691	49.1%
Sales of Assets	$1,893	2.8%
Net Inventory Sales	$0
Other Revenue	$6,370	9.6%

Assets/Debt
Total Assets	$168,154
Total Liabilities	$2,131
Net Assets	$166,023

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Revenue

$43,406

Expenses

$58,231

Net Income

-$14,825

Net Assets

$157,707

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$16,047	37.0%
Program Services	$0
Investment Income	$3,368	7.8%
Net Fundraising	$23,189	53.4%
Sales of Assets	$802	1.8%
Net Inventory Sales	$0
Other Revenue	$0

Assets/Debt
Total Assets	$162,947
Total Liabilities	$5,240
Net Assets	$157,707

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

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Types of Nonprofits

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Updated December 22, 2025

Spina Bifida Association Of New York State

Organization summary

Type of Nonprofit

Summary charts: organization finances over time

Revenue $357k (2024)

Expenses $261k (2024)

Total Assets $363k (2024)

Total Liabilities $4.17k (2024)

Tax Filings by Year

Fiscal Year Ending Dec. 2024

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Dec. 2022

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Dec. 2021

Extracted Financial Data

Extracted Financial Data from 990-EZ

Compensation

Document Links

990-EZ

Fiscal Year Ending Dec. 2020

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Dec. 2019

Extracted Financial Data

Extracted Financial Data from 990-EZ

Compensation

Document Links

990-EZ

Fiscal Year Ending Dec. 2018

Extracted Financial Data

Extracted Financial Data from 990-EZ

Compensation

Document Links

990-EZ

Fiscal Year Ending Dec. 2017

Extracted Financial Data

Extracted Financial Data from 990-EZ

Compensation

Document Links

990-EZ

Fiscal Year Ending Dec. 2016

Extracted Financial Data

Extracted Financial Data from 990-EZ

Document Links

990-EZ

Fiscal Year Ending Dec. 2015

Extracted Financial Data

Extracted Financial Data from 990-EZ

Document Links

990-EZ

Fiscal Year Ending Dec. 2014

Extracted Financial Data

Extracted Financial Data from 990-EZ

Document Links

990-EZ

Fiscal Year Ending Dec. 2013

Extracted Financial Data

Extracted Financial Data from 990-EZ

Document Links

990-EZ

Fiscal Year Ending Dec. 2012

Extracted Financial Data

Extracted Financial Data from 990-EZ

Document Links

990-EZ

Fiscal Year Ending Dec. 2011

Extracted Financial Data

Extracted Financial Data from 990-EZ

Document Links

Revenue

$357k (2024)

Expenses

$261k (2024)

Total Assets

$363k (2024)

Total Liabilities

$4.17k (2024)

Fiscal Year Ending Dec.
2024

Fiscal Year Ending Dec.
2022

Fiscal Year Ending Dec.
2021

Fiscal Year Ending Dec.
2020

Fiscal Year Ending Dec.
2019

Fiscal Year Ending Dec.
2018

Fiscal Year Ending Dec.
2017

Fiscal Year Ending Dec.
2016

Fiscal Year Ending Dec.
2015

Fiscal Year Ending Dec.
2014

Fiscal Year Ending Dec.
2013

Fiscal Year Ending Dec.
2012

Fiscal Year Ending Dec.
2011

Fiscal Year Ending Dec.
2010

Fiscal Year Ending Dec.
2009

Fiscal Year Ending Dec.
2008

Fiscal Year Ending Dec.
2007

Fiscal Year Ending June
2007

Fiscal Year Ending June
2006

Fiscal Year Ending June
2005

Fiscal Year Ending June
2004

Fiscal Year Ending June
2003

Fiscal Year Ending June
2002