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National Leiomyosarcoma Foundation

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Fund Raising and/or Fund Distribution (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$181k (2024)

Expenses
$192k (2024)

Total Assets
$453k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$181,152
Expenses
$192,162
Net Income
-$11,010
Net Assets
$452,766
Notable Sources of Revenue Percent of Total Revenue
Contributions $180,769
99.8%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $383
0.2%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $452,766
Total Liabilities $0
Net Assets $452,766
Compensation
Key Employees and Officers Compensation Related Other
Annie Achee (President) $0 $0 $0
Lynn Forges (Treasurer) $0 $0 $0
Mitchell Achee Md (Assistant Treasurer) $0 $0 $0
Jim Matthews (Community Awareness) $0 $0 $0
Chris Hancock (Web It Support) $0 $0 $0
Jacqueline Sebany (Marketing) $0 $0 $0
Alex Aguilera (Board Member) $0 $0 $0
Gregg Lee (Community Outreach) $0 $0 $0
David Bolles (Board Member) $0 $0 $0
Marlana Stoddard Hayes (Community Outreach) $0 $0 $0
Chandalyn Williams (Community Outreach) $0 $0 $0
Dale Ayscue (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$257,583
Expenses
$259,406
Net Income
-$1,823
Net Assets
$463,463
Notable Sources of Revenue Percent of Total Revenue
Contributions $257,583
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $463,463
Total Liabilities $0
Net Assets $463,463
Compensation
Key Employees and Officers Compensation Related Other
Annie Achee (President) $0 $0 $0
Lynne Forges (Treasurer) $0 $0 $0
Mitchell Achee Md (Assistant Treasuer) $0 $0 $0
Jim Matthews (Community Awareness) $0 $0 $0
Chris Hancock (Web It Support) $0 $0 $0
Jacqueline Sebany (Marketing) $0 $0 $0
Bruce Kobritz (Community Outreach) $0 $0 $0
Greg Lee (Community Outreach) $0 $0 $0
Denny Hoh (Community Outreach) $0 $0 $0
Mariana Stoddard (Community Outreach) $0 $0 $0
Chandalyn Williams (Community Outreach) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$264,822
Expenses
$134,575
Net Income
$130,247
Net Assets
$465,287
Notable Sources of Revenue Percent of Total Revenue
Contributions $264,770
100.0%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $52
0.0%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $465,287
Total Liabilities $0
Net Assets $465,287
Compensation
Key Employees and Officers Compensation Related Other
Annie Achee (President) $0 $0 $0
Lynne Forges (Treasurer) $0 $0 $0
Mitchell Achee Md (Assistant Treasurer) $0 $0 $0
Jim Matthews (Community Awareness Coordinator) $0 $0 $0
Christopher Hancock (Web It Support) $0 $0 $0
Jacqueline Sebany (Marketing) $0 $0 $0
Cynthia Hayes (Member At Large) $0 $0 $0
Bruce Kobritz (Community Outreach) $0 $0 $0
Greg Lee (Community Outreach) $0 $0 $0
Denny Noh (Community Outreach) $0 $0 $0
Marlana Stoddard (Community Outreach) $0 $0 $0
Ed Vigden (Community Outreach) $0 $0 $0
Bobby Whitfield (Community Outreach) $0 $0 $0
Chanadalyn Williams (Community Outreach) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$180,436
Expenses
$90,478
Net Income
$89,958
Net Assets
$335,041
Notable Sources of Revenue Percent of Total Revenue
Contributions $180,524
> 100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales -$88
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $335,041
Total Liabilities $0
Net Assets $335,041
Compensation
Key Employees and Officers Compensation Related Other
Annie Achee (President) $0 $0 $0
Lynne Forgess (Treasurer) $0 $0 $0
Jim Mathews (Board Member) $0 $0 $0
Madeline Wood (Board Member) $0 $0 $0
Mitch Achee Md (Medical Advisory, International Lms Research Roung Table) $0 $0 $0
Christopher Hancock (Board Member) $0 $0 $0
Jacqueline Sebany (Board Member) $0 $0 $0
Chandalyn Williams (Board Member) $0 $0 $0
Marlana Stoddard (Board Member) $0 $0 $0
Pamela Randall (Board Member) $0 $0 $0
Denny Noh (Board Member) $0 $0 $0
Joyce Quitman (Board Member) $0 $0 $0
Greg Lee (Board Member) $0 $0 $0
Ed Vigden (Board Member) $0 $0 $0
Michele Rothe (Board Member) $0 $0 $0
Cynthia Hayes (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$129,087
Expenses
$122,051
Net Income
$7,036
Net Assets
$245,143
Notable Sources of Revenue Percent of Total Revenue
Contributions $128,873
99.8%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $214
0.2%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $245,143
Total Liabilities $0
Net Assets $245,143
Compensation
Key Employees and Officers Compensation Related Other
Annie Achee (President) $0 $0 $0
Lynne Forgess (Treasurer) $0 $0 $0
Jim Mathews (Board Member) $0 $0 $0
Madeline Wood (Board Member) $0 $0 $0
Dr Mitch Achee (Board Member/Medical Advisory Chair) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$126,852
Expenses
$105,568
Net Income
$21,284
Net Assets
$238,088
Notable Sources of Revenue Percent of Total Revenue
Contributions $126,388
99.6%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $464
0.4%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $238,088
Total Liabilities $0
Net Assets $238,088
Compensation
Key Employees and Officers Compensation Related Other
Annie Achee (President) $0 $0 $0
Dr Mitch Achee (Interim Treasurer) $0 $0 $0
Jim Mathews (Board Member) $0 $0 $0
Madeline Wood (Board Member) $0 $0 $0
Dr Mitch Achee (Board Member/Medical Advisory Chair) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$157,886
Expenses
$97,773
Net Income
$60,113
Net Assets
$215,707
Notable Sources of Revenue Percent of Total Revenue
Contributions $157,327
99.6%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $559
0.4%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $215,707
Total Liabilities $0
Net Assets $215,707
Compensation
Key Employees and Officers Compensation Related Other
Annie Achee (President) $0 $0 $0
Mike Tokarski (Treasurer) $0 $0 $0
Jim Mathews (Board Member) $0 $0 $0
Madeline Wood (Board Member) $0 $0 $0
Dr Mitch Achee (Board Member/Medical Advisory Chair) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$98,340
Expenses
$97,253
Net Income
$1,087
Net Assets
$110,593
Notable Sources of Revenue Percent of Total Revenue
Contributions $97,957
99.6%
Program Services $0
Investment Income $5
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $378
0.4%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $110,593
Total Liabilities $0
Net Assets $110,593
Compensation
Key Employees and Officers Compensation Related Other
Annie Achee (President) $0 $0 $0
Mike Tokarski (Treasurer) $0 $0 $0
Jim Mathews (Board Member) $0 $0 $0
Madeline Wood (Secretary) $0 $0 $0
John Woods (Vice President) $0 $0 $0
Cat Voors (Outgoing Treasurer) $0 $0 $0
Dr Mitch Achee (Medical Advisory Chair) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$88,310
Expenses
$163,907
Net Income
-$75,597
Net Assets
$113,529
Notable Sources of Revenue Percent of Total Revenue
Contributions $88,033
99.7%
Program Services $0
Investment Income $32
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $245
0.3%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $113,529
Total Liabilities $0
Net Assets $113,529
Compensation
Key Employees and Officers Compensation Related Other
Annie Achee (President) $0 $0 $0
Cat Voors (Treasurer) $0 $0 $0
Karen Galler (Secretary) $0 $0 $0
Madge Wood (Board Member) $0 $0 $0
John Wood (Vice President) $0 $0 $0
Mitch Achee (Chair, Medical Advisory Committee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$34,853
Expenses
$46,878
Net Income
-$12,025
Net Assets
$189,126
Notable Sources of Revenue Percent of Total Revenue
Contributions $33,917
97.3%
Program Services $0
Investment Income $42
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $894
2.6%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $189,126
Total Liabilities $0
Net Assets $189,126
Compensation
Key Employees and Officers Compensation Related Other
Annie Achee (President) $0 $0 $0
John Wood (Vice President) $0 $0 $0
Cat Voors (Treasurer) $0 $0 $0
Karen Galler (Secretary) $0 $0 $0
Brita Jasinski (Board Member) $0 $0 $0
John Tough (Board Member) $0 $0 $0
Gail Gore (Board Member) $0 $0 $0
Madge Wood (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$65,605
Expenses
$32,844
Net Income
$32,761
Net Assets
$201,151
Notable Sources of Revenue Percent of Total Revenue
Contributions $67,449
> 100%
Program Services $0
Investment Income $43
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,887
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $201,151
Total Liabilities $0
Net Assets $201,151
Compensation
Key Employees and Officers Compensation Related Other
Lori Penton Shields (President) $0 $0 $0
John Wood (Vice President) $0 $0 $0
Jeff Joyce (Treasurer) $0 $0 $0
Annie Achee (Secretary) $0 $0 $0
Dr Lucy Rorke Adams (Board Member) $0 $0 $0
Madeline Wood (Board Member) $0 $0 $0
Dr Mitch Achee (Board Member) $0 $0 $0
Gail Gore (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$55,720
Expenses
$108,322
Net Income
-$52,602
Net Assets
$168,390
Notable Sources of Revenue Percent of Total Revenue
Contributions $63,212
> 100%
Program Services $0
Investment Income $87
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$7,601
Sales of Assets $0
Net Inventory Sales $22
0.0%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $168,390
Total Liabilities $0
Net Assets $168,390
Compensation
Key Employees and Officers Compensation Related Other
Lori Penton Shields (President) $0 $0 $0
John Wood (Vice President) $0 $0 $0
Jeff Joyce (Treasurer) $0 $0 $0
Annie Achee (Secretary) $0 $0 $0
Dr Lucy Rorke Adams (Board Member) $0 $0 $0
Madeline Wood (Board Member) $0 $0 $0
Dr Mitch Achee (Board Member) $0 $0 $0
Gail Gore (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$142,654
Expenses
$68,661
Net Income
$73,993
Net Assets
$220,991
Notable Sources of Revenue Percent of Total Revenue
Contributions $127,459
89.3%
Program Services $0
Investment Income $172
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $15,023
10.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $220,991
Total Liabilities $0
Net Assets $220,991

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$67,282
Expenses
$124,505
Net Income
-$57,223
Net Assets
$162,022
Notable Sources of Revenue Percent of Total Revenue
Contributions $67,045
99.6%
Program Services $0
Investment Income $237
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $162,022
Total Liabilities $0
Net Assets $162,022

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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