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Pediatric Epilepsy Research Foundation

  • Dallas, TX
  • Tax-exempt since May 2006
  • EIN: 20-1779737

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Epilepsy Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$2.72M (2024)

Expenses
$1.37M (2024)

Total Assets
$35.2M (2024)

Total Liabilities
$2.21M (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$2,721,526
Expenses
$1,374,345
Net Income
$1,347,181
Net Assets
$32,936,596
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $2,466
0.1%
Interest Revenue $87,297
3.2%
Dividends $857,952
31.5%
Sales of Assets $746,685
27.4%
Other Income $1,027,126
37.7%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $929,487
67.6%
Compensation of Officers* $86,500
6.3%
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $35,151,181
Total Liabilities $2,214,585
Net Assets $32,936,596
Compensation
Key Employees and Officers Compensation Other
Karen Mcewen (Administrato) $91,109 $0
Joanne Nakagawa (Grants Liais) $91,109 $0
Renee Shellhaas (President) $86,500 $0
Roy D Elterman Md (Treasurer) $0 $0
W Donald Shields Md (Vice Preside) $0 $0
Stephen Ashwal Md (Director) $0 $0
E Martina Bebin Md (Director) $0 $0
Herbert Winokur (Emeritus) $0 $0
Peter Camfield Md (Director) $0 $0
Deborah Hirtz Md (Director) $0 $0
Sookyong Koh Md (Director) $0 $0
John Murray (Emeritus) $0 $0
Niko Kaciroti (Director) $0 $0
Lori Jordan (Director) $0 $0
Teri Behnke (Director) $0 $0
Dennis Dlugos (Director) $0 $0
+ View more people

Document Links

990-PF
Filed on Nov. 19, 2025

Primary tax return for a private foundation's activities, finances, and governance

View Filing
XML
View Filing (2 of 2)

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$3,086,671
Expenses
$1,217,622
Net Income
$1,869,049
Net Assets
$32,173,583
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $44
0.0%
Interest Revenue $160,068
5.2%
Dividends $530,039
17.2%
Sales of Assets $504,727
16.4%
Other Income $1,891,793
61.3%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $760,693
62.5%
Compensation of Officers* $62,500
5.1%
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $32,948,389
Total Liabilities $774,806
Net Assets $32,173,583
Compensation
Key Employees and Officers Compensation Other
Karen Mcewen (Administrato) $86,865 $0
Joanne Nakagawa (Grants Liais) $86,865 $0
Renee Shellhaas (President El) $62,500 $0
Roy D Elterman Md (President) $0 $0
W Donald Shields Md (Vice Preside) $0 $0
Stephen Ashwal Md (Director) $0 $0
E Martina Bebin Md (Director) $0 $0
Herbert Winokur (Emeritus) $0 $0
Peter Camfield Md (Director) $0 $0
Deborah Hirtz Md (Director) $0 $0
Sookyong Koh Md (Director) $0 $0
John Murray (Emeritus) $0 $0
Niko Kaciroti (Director) $0 $0
Lori Jordan (Director) $0 $0
Teri Behnke (Director) $0 $0
Dennis Dlugos (Director) $0 $0
+ View more people

Document Links

990-PF
Filed on Nov. 11, 2024

Primary tax return for a private foundation's activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$4,718,750
Expenses
$2,376,817
Net Income
$2,341,933
Net Assets
$27,026,028
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $6,152
0.1%
Interest Revenue $39,847
0.8%
Dividends $245,005
5.2%
Sales of Assets $1,351,559
28.6%
Other Income $3,076,187
65.2%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $2,046,969
86.1%
Compensation of Officers* $25,000
1.1%
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $28,110,168
Total Liabilities $1,084,140
Net Assets $27,026,028
Compensation
Key Employees and Officers Compensation Other
Karen Mcewen (Administrato) $80,225 $0
Renee Shellhaas (President El) $25,000 $0
Roy D Elterman Md (President) $0 $0
W Donald Shields Md (Vice Preside) $0 $0
Stephen Ashwal Md (Director) $0 $0
E Martina Bebin Md (Director) $0 $0
Herbert Winokur (Emeritus) $0 $0
Peter Camfield Md (Director) $0 $0
Deborah Hirtz Md (Director) $0 $0
Sookyong Koh Md (Director) $0 $0
John Murray (Emeritus) $0 $0
Niko Kaciroti (Director) $0 $0
Lori Jordan (Director) $0 $0
Teri Behnke (Director) $0 $0
Dennis Dlugos (Director) $0 $0
+ View more people

Document Links

990-PF
Filed on Nov. 14, 2023

Primary tax return for a private foundation's activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$5,406,021
Expenses
$1,321,183
Net Income
$4,084,838
Net Assets
$29,647,631
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $1,938
0.0%
Interest Revenue $1,307
0.0%
Dividends $857,667
15.9%
Sales of Assets $1,481,287
27.4%
Other Income $3,063,822
56.7%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $1,111,057
84.1%
Compensation of Officers* $0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $30,762,097
Total Liabilities $1,114,466
Net Assets $29,647,631
Compensation
Key Employees and Officers Compensation Other
Karen Mcewen (Administrato) $76,509 $0
Roy D Elterman Md (President) $0 $0
W Donald Shields Md (Vice Preside) $0 $0
Stephen Ashwal Md (Director) $0 $0
E Martina Bebin Md (Director) $0 $0
Herbert Winokur (Emeritus) $0 $0
Peter Camfield Md (Director) $0 $0
Deborah Hirtz Md (Director) $0 $0
Sookyong Koh Md (Director) $0 $0
Eric Weatherford (Director) $0 $0
John Murray (Director) $0 $0
Michael V Johnston Md (Director) $0 $0
Renee Shellhaas (Director) $0 $0
+ View more people

Document Links

990-PF
Filed on Nov. 16, 2022

Primary tax return for a private foundation's activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$4,122,387
Expenses
$844,487
Net Income
$3,277,900
Net Assets
$27,137,746
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $692
0.0%
Interest Revenue $3,321
0.1%
Dividends $180,541
4.4%
Sales of Assets $599,960
14.6%
Other Income $3,337,873
81.0%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $629,793
74.6%
Compensation of Officers* $0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $28,081,124
Total Liabilities $943,378
Net Assets $27,137,746
Compensation
Key Employees and Officers Compensation Other
Karen Mcewen (Administrato) $74,844 $0
Roy D Elterman Md (President) $0 $1,696
W Donald Shields Md (Vice Preside) $0 $0
Stephen Ashwal Md (Director) $0 $0
E Martina Bebin Md (Director) $0 $0
Herbert Winokur (Emeritus) $0 $0
Peter Camfield Md (Director) $0 $0
Deborah Hirtz Md (Director) $0 $0
Sookyong Koh Md (Director) $0 $0
Eric Weatherford (Director) $0 $0
John Murray (Director) $0 $0
Michael V Johnston Md (Director) $0 $0
+ View more people

Document Links

990-PF
Filed on Nov. 12, 2021

Primary tax return for a private foundation's activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$4,747,062
Expenses
$2,858,839
Net Income
$1,888,223
Net Assets
$18,902,406
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $3,469
0.1%
Interest Revenue $38,415
0.8%
Dividends $146,015
3.1%
Sales of Assets $244,249
5.1%
Other Income $4,314,914
90.9%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $2,686,371
94.0%
Compensation of Officers* $0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $22,368,502
Total Liabilities $3,466,096
Net Assets $18,902,406
Compensation
Key Employees and Officers Compensation Other
Karen Mcewen (Administrato) $72,837 $0
Roy D Elterman Md (President) $0 $10,600
W Donald Shields Md (Vice Preside) $0 $0
Stephen Ashwal Md (Director) $0 $596
Michael V Johnston Md (Director) $0 $1,147
E Martina Bebin Md (Director) $0 $829
Herbert Winokur (Director) $0 $0
Peter Camfield Md (Director) $0 $1,531
Deborah Hirtz Md (Director) $0 $1,465
Sookyong Koh Md (Director) $0 $626
Eric Weatherford (Director) $0 $1,498
John Murray (Director) $0 $0
+ View more people

Document Links

990-PF
Filed on Nov. 12, 2020

Primary tax return for a private foundation's activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$6,900,509
Expenses
$2,846,837
Net Income
$4,053,672
Net Assets
$15,253,412
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $5,260
0.1%
Interest Revenue $28,795
0.4%
Dividends $422,851
6.1%
Sales of Assets $285,208
4.1%
Other Income $6,158,395
89.2%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $2,653,564
93.2%
Compensation of Officers* $0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $18,564,817
Total Liabilities $3,311,405
Net Assets $15,253,412
Compensation
Key Employees and Officers Compensation Other
Karen Mcewen (Administrato) $70,860 $0
Roy D Elterman Md (President) $0 $4,568
W Donald Shields Md (Vice Preside) $0 $0
Stephen Ashwal Md (Director) $0 $806
Michael V Johnston Md (Director) $0 $944
E Martina Bebin Md (Director) $0 $948
Herbert Winokur (Director) $0 $0
Peter Camfield Md (Director) $0 $1,566
Deborah Hirtz Md (Director) $0 $4,696
Sookyong Koh Md (Director) $0 $577
Eric Weatherford (Director) $0 $0
John Murray (Director) $0 $0
+ View more people

Document Links

990-PF
Filed on Sept. 26, 2019

Primary tax return for a private foundation's activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$7,509,038
Expenses
$3,156,081
Net Income
$4,352,957
Net Assets
$13,357,827
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $2,404
0.0%
Interest Revenue $6,544
0.1%
Dividends $778,919
10.4%
Sales of Assets $221,621
3.0%
Other Income $6,499,550
86.6%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $2,944,953
93.3%
Compensation of Officers* $17,452
0.6%
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $16,127,299
Total Liabilities $2,769,472
Net Assets $13,357,827
Compensation
Key Employees and Officers Compensation Other
Karen Mc Ewen (Administration) $64,260 $0
Roy D Elterman Md (President) $0 $11,347
W Donald Shields Md (Vice President) $0 $0
Stephen Ashwal Md (Director) $0 $971
Michael V Johnston Md (Director) $0 $416
E Martina Bebin Md (Director) $0 $644
Herbert Winokur (Director) $0 $0
Peter Camfield Md (Director) $0 $1,873
Deborah Hirtz Md (Director) $0 $1,692
Sookyong Koh Md (Director) $0 $509
Eric Weatherford (Director) $0 $0
+ View more people

Document Links

990-PF
Filed on May 15, 2018

Primary tax return for a private foundation's activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$5,390,026
Expenses
$2,322,501
Net Income
$3,067,525
Net Assets
$9,887,799
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $1,200
0.0%
Interest Revenue $4,206
0.1%
Dividends $66,079
1.2%
Sales of Assets $274,258
5.1%
Other Income $5,044,283
93.6%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $2,129,999
91.7%
Compensation of Officers* $11,610
0.5%
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $11,448,133
Total Liabilities $1,560,334
Net Assets $9,887,799
Compensation
Key Employees and Officers Compensation Other
Karen Mc Ewen (Administration) $64,260 $12,853
Roy D Elterman Md (President) $0 $6,771
W Donald Shields Md (Vice President) $0 $0
Stephen Ashwal Md (Director) $0 $601
David Mc Laughlin (Director) $0 $0
Michael V Johnston Md (Director) $0 $0
E Martina Bebin Md (Director) $0 $799
Herbert Winokur (Director) $0 $0
Peter Camfield Md (Director) $0 $1,204
Deborah Hirtz Md (Director) $0 $2,235
Sookyong Koh Md (Director) $0 $0
Eric Weatherford (Director) $0 $0
+ View more people

Document Links

990-PF
Filed on April 10, 2017

Primary tax return for a private foundation's activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$4,301,026
Expenses
$1,772,568
Net Income
$2,528,458
Net Assets
$6,129,787
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $88,315
2.1%
Interest Revenue $6,854
0.2%
Dividends $50,799
1.2%
Sales of Assets $190,689
4.4%
Other Income $3,964,369
92.2%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $1,598,776
90.2%
Compensation of Officers* $5,631
0.3%
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $8,484,263
Total Liabilities $2,354,476
Net Assets $6,129,787
Compensation
Key Employees and Officers Compensation Other
Karen Mc Ewen (Administration) $63,945 $0
Roy D Elterman Md (President) $0 $3,579
W Donald Shields Md (Vice President) $0 $0
Stephen Ashwal Md (Director) $0 $375
Alicia Freysinger (Director) $0 $0
David Mc Laughlin (Director) $0 $0
Michael V Johnston (Director) $0 $455
E Martina Bebin (Director) $0 $0
Herbert Winokur (Director) $0 $0
Peter Camfield (Director) $0 $1,222
+ View more people

Document Links

990-PF
Filed on April 1, 2016

Primary tax return for a private foundation's activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$3,510,609
Expenses
$1,536,196
Net Income
$1,974,413
Net Assets
$3,151,535
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $434
0.0%
Interest Revenue $0
Dividends $7,842
0.2%
Sales of Assets $120,551
3.4%
Other Income $3,381,782
96.3%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $1,358,790
88.5%
Compensation of Officers* $2,523
0.2%
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $6,320,018
Total Liabilities $3,168,483
Net Assets $3,151,535
Compensation
Key Employees and Officers Compensation Other
Roy D Elterman Md (President) $0 $1,276
W Donald Shields Md (Vice President) $0 $499
Stephen Ashwal Md (Director) $0 $507
Alicia Freysinger (Director) $0 $0
David Mc Laughlin (Director) $0 $0
Lawrence Madigan (Director) $0 $0
Cynthia Morriss (Director) $0 $241
Herbert Winokur (Director) $0 $0
Peter Camfield (Director) $0 $0
+ View more people

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990-PF
Filed on March 13, 2015

Primary tax return for a private foundation's activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$2,387,623
Expenses
$731,646
Net Income
$1,655,977
Net Assets
$3,311,991
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $0
Interest Revenue $0
Dividends $3,444
0.1%
Sales of Assets $0
Other Income $2,384,179
99.9%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $580,965
79.4%
Compensation of Officers* $0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $4,483,732
Total Liabilities $1,171,741
Net Assets $3,311,991
Compensation
Key Employees and Officers Compensation Other
Roy D Elterman Md (President) $0 $0
W Donald Shields Md (Director) $0 $0
Stephen Ashwal Md (Director) $0 $0
Alicia Freysinger (Director) $0 $0
David Mc Laughlin (Director) $0 $0
Lawrence Madigan (Director) $0 $0
Cynthia Morriss (Director) $0 $0
Herbert Winokur (Director) $0 $0
+ View more people

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990-PF
Filed on March 22, 2014

Primary tax return for a private foundation's activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$1,866,275
Expenses
$580,656
Net Income
$1,285,619
Net Assets
$2,574,350
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $0
Interest Revenue $1,696
0.1%
Dividends $0
Sales of Assets $0
Other Income $1,864,579
99.9%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $455,682
78.5%
Compensation of Officers* $0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $2,826,457
Total Liabilities $252,107
Net Assets $2,574,350

Document Links

990-PF

Primary tax return for a private foundation's activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$1,490,988
Expenses
$540,416
Net Income
$950,572
Net Assets
$1,541,293
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $0
Interest Revenue $1,494
0.1%
Dividends $0
Sales of Assets $0
Other Income $1,489,494
99.9%
Notable Expenses Percent of Total Expenses
Charitable Disbursements $431,474
79.8%
Compensation of Officers* $0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $1,541,294
Total Liabilities $1
Net Assets $1,541,293

Document Links

990-PF

Primary tax return for a private foundation's activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-PF

Primary tax return for a private foundation's activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
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  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

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