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Congenital Hyperinsulinism International

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Fund Raising and/or Fund Distribution (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$1.26M (2022)

Expenses
$834k (2022)

Total Assets
$1.64M (2022)

Total Liabilities
$46.6k (2022)

Source: Form 990 tax filings from 2011 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,262,625
Expenses
$834,055
Net Income
$428,570
Net Assets
$1,597,689
Notable Sources of Revenue Percent of Total Revenue
Contributions $477,854
37.8%
Program Services $812,623
64.4%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$29,854
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,002
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $93,866
11.3%
Professional Fundraising Fees $0
Other Salaries and Wages $264,957
31.8%
Assets/Debt
Total Assets $1,644,315
Total Liabilities $46,626
Net Assets $1,597,689
Compensation
Key Employees and Officers Compensation Related Other
Julie Raskin (Executive Dir.) $93,866 $0 $0
Sheila Bose (President) $0 $0 $0
Turaya Bryant Kamau (Secretary) $0 $0 $0
Erin Greaves (Director) $0 $0 $0
Mason Smith (Treasurer) $0 $0 $0
Pam Williams (Director) $0 $0 $0
Julie Sheldon (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$888,439
Expenses
$541,828
Net Income
$346,611
Net Assets
$1,169,119
Notable Sources of Revenue Percent of Total Revenue
Contributions $528,509
59.5%
Program Services $359,850
40.5%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $80
0.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $94,076
17.4%
Professional Fundraising Fees $0
Other Salaries and Wages $221,606
40.9%
Assets/Debt
Total Assets $1,177,701
Total Liabilities $8,582
Net Assets $1,169,119
Compensation
Key Employees and Officers Compensation Related Other
Julie Raskin (Executive Dir.) $94,076 $0 $0
Sheila Bose (President) $0 $0 $0
Turaya Bryant Kamau (Secretary) $0 $0 $0
Erin Greaves (Director) $0 $0 $0
Davelyn Hood (Director) $0 $0 $0
Dina Tallis (Director) $0 $0 $0
Mason Smith (Treasurer) $0 $0 $0
Pam Williams (Director) $0 $0 $0
Julie Sheldon (Vice President) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$707,807
Expenses
$467,697
Net Income
$240,110
Net Assets
$822,508
Notable Sources of Revenue Percent of Total Revenue
Contributions $475,976
67.2%
Program Services $246,110
34.8%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$14,279
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $83,010
17.7%
Professional Fundraising Fees $0
Other Salaries and Wages $123,951
26.5%
Assets/Debt
Total Assets $1,097,548
Total Liabilities $275,040
Net Assets $822,508
Compensation
Key Employees and Officers Compensation Related Other
Julie Raskin (Executive Dir.) $83,010 $0 $0
Sheila Bose (Vice President) $0 $0 $0
Matthew M Hopkins (Director) $0 $0 $0
Turaya Bryant Kamau (Director) $0 $0 $0
Erin Greaves (Director) $0 $0 $0
Davelyn Hood (President) $0 $0 $0
Dina Tallis (Director) $0 $0 $0
Margaret Maher (Secretary) $0 $0 $0
Mason Smith (Treasurer) $0 $0 $0
Pam Williams (Director) $0 $0 $0
Julie Sheldon (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$466,689
Expenses
$494,501
Net Income
-$27,812
Net Assets
$582,398
Notable Sources of Revenue Percent of Total Revenue
Contributions $270,090
57.9%
Program Services $224,080
48.0%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$27,938
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $457
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $75,000
15.2%
Professional Fundraising Fees $0
Other Salaries and Wages $99,886
20.2%
Assets/Debt
Total Assets $593,116
Total Liabilities $10,718
Net Assets $582,398
Compensation
Key Employees and Officers Compensation Related Other
Julie Raskin (Executive Dir.) $75,000 $0 $0
Sheila Bose (Vice President) $0 $0 $0
Matthew M Hopkins (Director) $0 $0 $0
Jeffrey R Hart (Director) $0 $0 $0
Davelyn Hood (President) $0 $0 $0
Isabel Calderon (Director) $0 $0 $0
Margaret Maher (Secretary) $0 $0 $0
Mason Smith (Treasurer) $0 $0 $0
Pam Williams (Director) $0 $0 $0
Julie Sheldon (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$355,579
Expenses
$382,051
Net Income
-$26,472
Net Assets
$610,210
Notable Sources of Revenue Percent of Total Revenue
Contributions $270,089
76.0%
Program Services $110,485
31.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$26,041
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,046
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $69,600
18.2%
Professional Fundraising Fees $0
Other Salaries and Wages $94,819
24.8%
Assets/Debt
Total Assets $618,444
Total Liabilities $8,234
Net Assets $610,210
Compensation
Key Employees and Officers Compensation Related Other
Julie Raskin (Executive Dir.) $69,600 $0 $0
Sheila Bose (Director) $0 $0 $0
Matthew M Hopkins (Director) $0 $0 $0
Jeffrey R Hart (Director) $0 $0 $0
Randy A Hart (Director) $0 $0 $0
Margaret Maher (Director) $0 $0 $0
Davelyn Hood (President) $0 $0 $0
Isabel Calderon (Vice President) $0 $0 $0
Mason Smith (Treasurer) $0 $0 $0
Pam Williams (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$471,505
Expenses
$280,408
Net Income
$191,097
Net Assets
$636,682
Notable Sources of Revenue Percent of Total Revenue
Contributions $466,999
99.0%
Program Services $37,057
7.9%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$32,551
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $69,600
24.8%
Professional Fundraising Fees $0
Other Salaries and Wages $51,358
18.3%
Assets/Debt
Total Assets $653,182
Total Liabilities $16,500
Net Assets $636,682
Compensation
Key Employees and Officers Compensation Related Other
Julie Raskin (Executive Dir.) $69,600 $0 $0
Sheila Bose (Director) $0 $0 $0
Matthew M Hopkins (Director) $0 $0 $0
Jeffrey R Hart (Director) $0 $0 $0
Randy A Hart (Director) $0 $0 $0
Margaret Maher (Director) $0 $0 $0
Davelyn Hood (President) $0 $0 $0
Isabel Calderon (Vice President) $0 $0 $0
Mason Smith (Treasurer) $0 $0 $0
Pam Williams (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$305,957
Expenses
$204,812
Net Income
$101,145
Net Assets
$445,585
Notable Sources of Revenue Percent of Total Revenue
Contributions $292,520
95.6%
Program Services $38,336
12.5%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$26,176
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,277
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $71,365
34.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $445,585
Total Liabilities $0
Net Assets $445,585
Compensation
Key Employees and Officers Compensation Related Other
Julie Raskin (Executive Dir.) $63,240 $0 $0
Elise Falk (Director) $0 $0 $0
Matthew M Hopkins (Director) $0 $0 $0
Jeffrey R Hart (Director) $0 $0 $0
Randy A Hart (Director) $0 $0 $0
Margaret Maher (Director) $0 $0 $0
Sarah Charlotte Browne (Director) $0 $0 $0
Davelyn Hood (President) $0 $0 $0
Isabel Calderon (Vice President) $0 $0 $0
Mason Smith (Treasurer) $0 $0 $0
Pam Williams (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$219,950
Expenses
$129,775
Net Income
$90,175
Net Assets
$344,440
Notable Sources of Revenue Percent of Total Revenue
Contributions $218,620
99.4%
Program Services $22,275
10.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$20,945
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $48,850
37.6%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $344,440
Total Liabilities $0
Net Assets $344,440
Compensation
Key Employees and Officers Compensation Related Other
Julie Raskin (Executive Dir.) $48,850 $0 $0
Matthew M Hopkins (Trustee) $0 $0 $0
Jeffrey R Hart (Trustee) $0 $0 $0
Randy A Hart (Trustee) $0 $0 $0
Margaret Maher (Trustee) $0 $0 $0
Pam Williams (Secretary) $0 $0 $0
Sarah Charlotte Brown (Trustee) $0 $0 $0
Elise Falk (Trustee) $0 $0 $0
Davelyn Hood (President) $0 $0 $0
Isabel Calderon (Vice President) $0 $0 $0
Mason Smith (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$217,087
Expenses
$92,691
Net Income
$124,396
Net Assets
$254,265
Notable Sources of Revenue Percent of Total Revenue
Contributions $41,537
19.1%
Program Services $36,590
16.9%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $138,960
64.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $27,347
29.5%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $254,302
Total Liabilities $37
Net Assets $254,265
Compensation
Key Employees and Officers Compensation Related Other
Julie Raskin (Executive Dir.) $27,347 $0 $0
Jeffrey R Hart (Director) $0 $0 $0
Randy A Hart (Director) $0 $0 $0
Davelyn Hood (Director) $0 $0 $0
Margaret Maher (Director) $0 $0 $0
Pam Williams (Secretary) $0 $0 $0
Sarah Charlotte Brown (Director) $0 $0 $0
Matthew M Hopkins (President) $0 $0 $0
Patricia Cymerman (Director) $0 $0 $0
Isabel Calderon (Vice President) $0 $0 $0
Mason Smith (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$112,094
Expenses
$77,339
Net Income
$34,755
Net Assets
$129,869
Notable Sources of Revenue Percent of Total Revenue
Contributions $58,387
52.1%
Program Services $43,812
39.1%
Investment Income $0
Net Fundraising $9,895
8.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $129,869
Total Liabilities $0
Net Assets $129,869
Compensation
Key Employees and Officers Compensation Other
Julie Raskin (Executive Dir.) $25,000 $0
Matthew M Hopkins (President) $0 $0
Patricia Cymerman (Secretary) $0 $0
Jeffrey R Hart (Director) $0 $0
Randy A Hart (Director) $0 $0
Davelyn Hood (Director) $0 $0
Isabel Calderon (Vice President) $0 $0
Margaret Maher (Director) $0 $0
Mason Smith (Treasurer) $0 $0
Pam Williams (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$69,508
Expenses
$50,250
Net Income
$19,258
Net Assets
$95,114
Notable Sources of Revenue Percent of Total Revenue
Contributions $53,580
77.1%
Program Services $17,654
25.4%
Investment Income $0
Net Fundraising -$1,756
Sales of Assets $0
Net Inventory Sales $30
0.0%
Other Revenue $0
Assets/Debt
Total Assets $95,114
Total Liabilities $0
Net Assets $95,114

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$43,554
Expenses
$40,415
Net Income
$3,139
Net Assets
$74,353
Notable Sources of Revenue Percent of Total Revenue
Contributions $24,447
56.1%
Program Services $18,836
43.2%
Investment Income $0
Net Fundraising $0
Sales of Assets $271
0.6%
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $74,353
Total Liabilities $0
Net Assets $74,353

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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