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Tarlov Cyst Disease Foundation

  • Nashville, TN
  • Tax-exempt since June 2007
  • EIN: 20-5724680

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Nerve, Muscle, Bone Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$21.1k (2023)

Expenses
$37.2k (2023)

Total Assets
$140k (2023)

Total Liabilities
$0 (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$21,139
Expenses
$37,221
Net Income
-$16,082
Net Assets
$140,459
Notable Sources of Revenue Percent of Total Revenue
Contributions $21,139
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $140,459
Total Liabilities $0
Net Assets $140,459
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (Executive Dir.) $36,000 $0
Dona Dutcher (Vice President) $0 $0
Tammy Zinser Minocha (Treasurer) $0 $0
Sandy A Roof (Secretary) $0 $0
Joanna Yurjevick (Director) $0 $0
Gerald Dilts (Director) $0 $0
Iris Kachuck (Director) $0 $0
Cathy Gray Carlomagno (Director) $0 $0
Michelle Lear (Director) $0 $0
Gail Nelson (Director) $0 $0
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Document Links

990-EZ
Filed on Nov. 13, 2024

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$23,747
Expenses
$39,760
Net Income
-$16,013
Net Assets
$156,541
Notable Sources of Revenue Percent of Total Revenue
Contributions $23,747
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $156,541
Total Liabilities $0
Net Assets $156,541
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (Executive Dir.) $36,200 $0
Tammy Zinser Minocha (Treasurer) $0 $0
Sandy A Roof (Secretary) $0 $0
Dona Dutcher (Director) $0 $0
Cathy Gray Carlomagno (Director) $0 $0
Gerald Dilts (Director) $0 $0
Gail Nelson (Director) $0 $0
Iris Kachuck (Director) $0 $0
Joanna Yurjevick (Director) $0 $0
Michelle Lear (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 9, 2023

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$20,560
Expenses
$36,540
Net Income
-$15,980
Net Assets
$172,554
Notable Sources of Revenue Percent of Total Revenue
Contributions $20,560
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $172,554
Total Liabilities $0
Net Assets $172,554
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (Executive Dir.) $34,500 $0
Tammy Zinser Minocha (Treasurer) $0 $0
Sandy A Roof (Secretary) $0 $0
Dona Dutcher (Director) $0 $0
Cathy Gray Carlomagno (Director) $0 $0
Gerald Dilts (Director) $0 $0
Gail Nelson (Director) $0 $0
Iris Kachuck (Director) $0 $0
Joanna Yurjevick (Director) $0 $0
Michelle Lear (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 10, 2022

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$36,859
Expenses
$33,888
Net Income
$2,971
Net Assets
$188,534
Notable Sources of Revenue Percent of Total Revenue
Contributions $36,859
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $188,534
Total Liabilities $0
Net Assets $188,534
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (Executive Dir.) $31,500 $0
Tammy Zinser Minocha (Treasurer) $0 $0
Sandy A Roof (Secretary) $0 $0
Dona Dutcher (Director) $0 $0
Cathy Gray Carlomagno (Director) $0 $0
Gerald Dilts (Director) $0 $0
Gail Nelson (Director) $0 $0
Iris Kachuck (Director) $0 $0
Joanna Yurjevick (Director) $0 $0
Michelle Lear (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 12, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$42,534
Expenses
$31,875
Net Income
$10,659
Net Assets
$185,563
Notable Sources of Revenue Percent of Total Revenue
Contributions $42,534
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $185,563
Total Liabilities $0
Net Assets $185,563
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (Pres/Exec. Dir.) $26,750 $0
Dona Dutcher (Vice President) $0 $0
Sandy A Roof (Secretary) $0 $0
Tammy Zinser Minocha (Treasurer) $0 $0
Cathy Gray Carlomagno (Director) $0 $0
Harris A Del Dutcher Jr (Director) $0 $0
Gail Nelson (Director) $0 $0
Iris Kachuck (Director) $0 $0
Joanna Yurjevick (Director) $0 $0
Michelle Lear (Director) $0 $0
Gerald E Dilts (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 13, 2020

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$34,181
Expenses
$28,546
Net Income
$5,635
Net Assets
$174,904
Notable Sources of Revenue Percent of Total Revenue
Contributions $34,181
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $174,904
Total Liabilities $0
Net Assets $174,904
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (Pres/Exec. Dir.) $26,500 $0
Dona Dutcher (Vice President) $0 $0
Sandy A Roof (Secretary) $0 $0
Del Dutcher (Director) $0 $0
Cathy Gray Carlomagno (Director) $0 $0
Tammy Zinser Minocha (Treasurer) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 11, 2019

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$26,455
Expenses
$31,190
Net Income
-$4,735
Net Assets
$169,269
Notable Sources of Revenue Percent of Total Revenue
Contributions $26,455
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $169,269
Total Liabilities $0
Net Assets $169,269
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (President) $24,000 $0
Dona Dutcher (Vice President) $0 $0
Sandy A Roof (Secretary) $0 $0
Del Dutcher (Director) $0 $0
Cathy Gray Carlomagno (Director) $0 $0
Tammy Zinser Minocha (Treasurer) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 1, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$53,898
Expenses
$25,222
Net Income
$28,676
Net Assets
$174,004
Notable Sources of Revenue Percent of Total Revenue
Contributions $53,898
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $174,004
Total Liabilities $0
Net Assets $174,004
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (President) $24,000 $0
Dona Dutcher (Vice President) $0 $0
Sandy A Roof (Secretary) $0 $0
Del Dutcher (Director) $0 $0
Cathy Gray Carlomagno (Director) $0 $0
Tammy Zinser Minocha (Treasurer) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 6, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$41,438
Expenses
$27,892
Net Income
$13,546
Net Assets
$145,328
Notable Sources of Revenue Percent of Total Revenue
Contributions $41,438
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $145,328
Total Liabilities $0
Net Assets $145,328
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (President) $26,000 $0
Donna Dutcher (Vice President) $0 $0
Sandy A Roof (Secretary) $0 $0
Harris Dutcher (Director) $0 $0
Cathy Gray Carlomagno (Director) $0 $0
David M Williams (Treasurer) $0 $0
Tammy Zinser Minocha (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Aug. 11, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
PDF (2 of 2)

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$49,777
Expenses
$21,196
Net Income
$28,581
Net Assets
$131,782
Notable Sources of Revenue Percent of Total Revenue
Contributions $49,777
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $131,782
Total Liabilities $0
Net Assets $131,782
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (President) $19,500 $0
Donna Dutcher (Vice President) $0 $0
Sandy A Roof (Secretary) $0 $0
Del Dutcher (Director) $0 $0
Cathy Gray Carlomagno (Treasurer) $0 $0
David M Williams (Director) $0 $0
Tammy Zinser Minocha (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Aug. 6, 2015

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$46,628
Expenses
$10,678
Net Income
$35,950
Net Assets
$103,201
Notable Sources of Revenue Percent of Total Revenue
Contributions $46,628
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $103,201
Total Liabilities $0
Net Assets $103,201
Compensation
Key Employees and Officers Compensation Other
Reta Honey Hiers Rnc (President) $7,500 $0
Dona Dutcher (Vice President) $0 $0
Sandy A Roof (Secretary) $0 $0
Del Dutcher (Director) $0 $0
Cathy Gray Carlomagno (Treasurer) $0 $0
David M Williams (Director) $0 $0
Tammy Zinser Minocha (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Aug. 11, 2014

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$18,415
Expenses
$937
Net Income
$17,478
Net Assets
$67,251
Notable Sources of Revenue Percent of Total Revenue
Contributions $18,415
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $67,251
Total Liabilities $0
Net Assets $67,251

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$29,236
Expenses
$76,515
Net Income
-$47,279
Net Assets
$49,773
Notable Sources of Revenue Percent of Total Revenue
Contributions $29,236
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $49,773
Total Liabilities $0
Net Assets $49,773

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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Byline

By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated