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Cholangiocarcinoma Foundation

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research N.E.C. (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$5.08M (2023)

Expenses
$5.27M (2023)

Total Assets
$4.62M (2023)

Total Liabilities
$993k (2023)

Years with missing data
Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending June
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,082,650
Expenses
$5,266,027
Net Income
-$183,377
Net Assets
$3,630,751
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,884,253
96.1%
Program Services $58,825
1.2%
Investment Income $86,464
1.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $1,763
0.0%
Net Inventory Sales $51,345
1.0%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $340,331
6.5%
Professional Fundraising Fees $0
Other Salaries and Wages $1,487,019
28.2%
Assets/Debt
Total Assets $4,624,165
Total Liabilities $993,414
Net Assets $3,630,751
Compensation
Key Employees and Officers Compensation Related Other
Alli Ward (Coo) $148,814 $0 $2,188
Stacie Lindsey (Ceo/Founder) $135,414 $0 $2,871
Teresa Delcorso Ellmann (Chair) $0 $0 $0
Dean Meyer (Vice Chair) $0 $0 $0
Robert Russell (Secretary) $0 $0 $0
Daniel Blum (Treasurer) $0 $0 $0
Ross Green (Board Member) $0 $0 $0
Patricia Maxin (Board Member) $0 $0 $0
Jason Scott (Board Member) $0 $0 $0
Jack Callaway (Board Member) $0 $0 $0
Liz Warner (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending June
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,935,665
Expenses
$3,620,452
Net Income
$1,315,213
Net Assets
$3,752,778
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,777,761
96.8%
Program Services $143,048
2.9%
Investment Income $1,439
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $3,076
0.1%
Net Inventory Sales $10,341
0.2%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $273,066
7.5%
Professional Fundraising Fees $0
Other Salaries and Wages $1,139,296
31.5%
Assets/Debt
Total Assets $4,018,118
Total Liabilities $265,340
Net Assets $3,752,778
Compensation
Key Employees and Officers Compensation Related Other
Alli Ward (Coo) $133,770 $0 $1,266
Stacie Lindsey (Ceo/Founder) $128,914 $0 $1,189
Teresa Delcorso Ellmann (Chair) $0 $0 $0
Bruce Coppock (Vice Chair) $0 $0 $0
Robert Russell (Secretary) $0 $0 $0
Daniel Blum (Treasurer) $0 $0 $0
Ross Green (Board Member) $0 $0 $0
Patricia Maxin (Board Member) $0 $0 $0
Jason Scott (Board Member) $0 $0 $0
Dean Meyer (Board Member) $0 $0 $0
Jack Callaway (Board Member) $0 $0 $0
Liz Warner (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending June
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,901,961
Expenses
$2,279,422
Net Income
$1,622,539
Net Assets
$2,437,565
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,828,258
98.1%
Program Services $39,659
1.0%
Investment Income $1,648
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $26,858
0.7%
Net Inventory Sales $5,538
0.1%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $245,080
10.8%
Professional Fundraising Fees $35,925
1.6%
Other Salaries and Wages $857,951
37.6%
Assets/Debt
Total Assets $2,743,945
Total Liabilities $306,380
Net Assets $2,437,565
Compensation
Key Employees and Officers Compensation Related Other
Stacie Lindsey (Ceo/Founder) $138,896 $0 $422
Alli Ward (Coo) $135,563 $0 $479
Daniel Blum (Treasurer) $0 $0 $0
Bruce Coppock (Vice Preside) $0 $0 $0
Teresa Delcorso Ellmann (Board Member) $0 $0 $0
Barbara Dupont (Secretary) $0 $0 $0
Ross Green (Board Member) $0 $0 $0
Patricia Maxin (Board Member) $0 $0 $0
Dean Meyer (Board Member) $0 $0 $0
Robert Russell (Board Member) $0 $0 $0
Jason Scott (Chair) $0 $0 $0

Document Links

Fiscal Year Ending June
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,887,741
Expenses
$1,782,307
Net Income
$105,434
Net Assets
$815,026
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,884,975
99.9%
Program Services $0
Investment Income $3,411
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$504
Net Inventory Sales -$141
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $260,927
14.6%
Professional Fundraising Fees $0
Other Salaries and Wages $666,294
37.4%
Assets/Debt
Total Assets $1,219,709
Total Liabilities $404,683
Net Assets $815,026
Compensation
Key Employees and Officers Compensation Related Other
Donna Mayer (Executive Di) $111,000 $0 $0
Stacie Lindsey (Ceo) $108,000 $0 $0
Daniel Blum (Treasurer) $0 $0 $0
Bruce Coppock (Vice Chair) $0 $0 $0
Barbara Dupont (Secretary) $0 $0 $0
Ross Green (Board Member) $0 $0 $0
Sara Hinkley (Board Member) $0 $0 $0
Patricia Maxin (Board Member) $0 $0 $0
Jason Scott (Chair) $0 $0 $0
Alli Ward (Coo) $0 $0 $0

Document Links

Fiscal Year Ending June
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,209,603
Expenses
$1,933,077
Net Income
$276,526
Net Assets
$709,698
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,210,880
> 100%
Program Services $0
Investment Income $816
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales -$2,093
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $212,533
11.0%
Professional Fundraising Fees $0
Other Salaries and Wages $364,539
18.9%
Assets/Debt
Total Assets $815,602
Total Liabilities $105,904
Net Assets $709,698
Compensation
Key Employees and Officers Compensation Related Other
Donna Mayer (Executive Di) $98,544 $0 $0
Stacie Lindsey (President) $81,000 $0 $0
Jason Scott (Chair) $0 $0 $0
Bruce Coppock (Vice Preside) $0 $0 $0
Barbara Dupont (Secretary) $0 $0 $0
Daniel Blum (Treasurer) $0 $0 $0
Ross Green (Board Member) $0 $0 $0
Sara Hinkley (Board Member) $0 $0 $0
Patricia Maxin (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending June
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,527,321
Expenses
$1,289,062
Net Income
$238,259
Net Assets
$432,251
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,526,930
100.0%
Program Services $0
Investment Income $599
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$888
Net Inventory Sales $680
0.0%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $134,863
10.5%
Professional Fundraising Fees $0
Other Salaries and Wages $199,587
15.5%
Assets/Debt
Total Assets $699,116
Total Liabilities $266,865
Net Assets $432,251
Compensation
Key Employees and Officers Compensation Related Other
Donna Mayer (Executive Di) $88,659 $0 $0
Stacie Lindsey (President) $46,638 $0 $0
Bruce Coppock (Vice Preside) $0 $0 $0
Barbara Dupont (Secretary) $0 $0 $0
Lawrence A Goodfield Jr (Treasurer) $0 $0 $0
Ross Green (Board Member) $0 $0 $0
Patricia Maxin (Board Member) $0 $0 $0
Jason Scott (Chair) $0 $0 $0
Sean Turbeville (Board Member) $0 $0 $0
Daniel Blum (Treasurer) $0 $0 $0
Sara Hinkley (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$904,493
Expenses
$923,885
Net Income
-$19,392
Net Assets
$328,006
Notable Sources of Revenue Percent of Total Revenue
Contributions $839,403
92.8%
Program Services $64,300
7.1%
Investment Income $117
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$692
Net Inventory Sales $1,365
0.2%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $107,525
11.6%
Professional Fundraising Fees $0
Other Salaries and Wages $142,750
15.5%
Assets/Debt
Total Assets $394,042
Total Liabilities $66,036
Net Assets $328,006
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Donna Mayer (Executive Director) $78,125 $0 $0
Stacie Lindsey (President) $29,400 $0 $0
Dawn Lyon (Vice President) $0 $0 $0
Lawrence Goodfield (Treasurer) $0 $0 $0
Sean Turbeville (Board Member) $0 $0 $0
Bruce Coppock (Board Member) $0 $0 $0
Jason Scott (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$841,454
Expenses
$777,980
Net Income
$63,474
Net Assets
$343,988
Notable Sources of Revenue Percent of Total Revenue
Contributions $834,567
99.2%
Program Services $1,436
0.2%
Investment Income $127
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $4,803
0.6%
Sales of Assets -$2,048
Net Inventory Sales $2,569
0.3%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $33,474
4.3%
Professional Fundraising Fees $0
Other Salaries and Wages $124,185
16.0%
Assets/Debt
Total Assets $423,222
Total Liabilities $79,234
Net Assets $343,988
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Donna Mayer (Executive Director) $71,567 $0 $0
Stacie Lindsey (President) $31,024 $0 $0
Marion Schwartz (Advocacy Director) $24,000 $0 $0
Dawn Lyon (Vice President) $0 $0 $0
Lawrence Goodfield (Treasurer) $0 $0 $0
Sean Turbeville (Board Member) $0 $0 $0
Lillie Chen (Board Member) $0 $0 $0
Jason Scott (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$561,375
Expenses
$528,685
Net Income
$32,690
Net Assets
$280,871
Notable Sources of Revenue Percent of Total Revenue
Contributions $555,393
98.9%
Program Services $0
Investment Income $88
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $5,894
1.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $15,000
2.8%
Professional Fundraising Fees $0
Other Salaries and Wages $24,922
4.7%
Assets/Debt
Total Assets $309,603
Total Liabilities $28,732
Net Assets $280,871
Compensation
Key Employees and Officers Compensation Related Other
Marion Schwartz (Advocacy Director) $16,500 $0 $0
Stacie Lindsey (President) $15,000 $0 $0
Sean Turbeville (Board Member) $0 $0 $0
Lillie Chen (Board Member) $0 $0 $0
Jason Scott (Board Member) $0 $0 $0
Dawn Lyon (Vice President) $0 $0 $0
Lawrence Goodfield (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$326,189
Expenses
$244,542
Net Income
$81,647
Net Assets
$248,181
Notable Sources of Revenue Percent of Total Revenue
Contributions $315,190
96.6%
Program Services $0
Investment Income $88
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $10,911
3.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $12,500
5.1%
Professional Fundraising Fees $0
Other Salaries and Wages $53,524
21.9%
Assets/Debt
Total Assets $254,097
Total Liabilities $5,916
Net Assets $248,181
Compensation
Key Employees and Officers Compensation Related Other
Marion Schwartz (Advocacy Director) $12,500 $0 $0
Stacie Lindsey (President) $0 $0 $0
Dawn Lyon (Secretary Director Of Communi) $0 $0 $0
Lawrence Goodfield (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$249,844
Expenses
$268,767
Net Income
-$18,923
Net Assets
$166,534
Notable Sources of Revenue Percent of Total Revenue
Contributions $236,029
94.5%
Program Services $0
Investment Income $128
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $13,687
5.5%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $166,908
Total Liabilities $374
Net Assets $166,534

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$166,317
Expenses
$130,337
Net Income
$35,980
Net Assets
$185,456
Notable Sources of Revenue Percent of Total Revenue
Contributions $156,293
94.0%
Program Services $0
Investment Income $145
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $9,879
5.9%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $185,664
Total Liabilities $208
Net Assets $185,456

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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