Spina Bifida Resource Network

Flemington, NJ
Tax-exempt since March 1987
EIN: 22-2562457

Receive an email when new data is available for this organization.

Type of Nonprofit

Designated as a 501(c)(3) Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Birth Defects and Genetic Diseases (G2XZ) (NTEE)

Donations to this organization are tax deductible.

Revenue

$97k (2023)

Expenses

$117k (2023)

Total Assets

$117k (2023)

Total Liabilities

$247 (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Revenue

$96,997

Expenses

$117,409

Net Income

-$20,412

Net Assets

$116,490

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$94,942	97.9%
Program Services	$2,055	2.1%
Investment Income	$0
Net Fundraising	$0
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Assets/Debt
Total Assets	$116,737
Total Liabilities	$247
Net Assets	$116,490

Compensation

Key Employees and Officers	Compensation	Other
Roberta Kestenbaum (Executive Director)	$37,752	$0
Millie Gonzalez (Chair)	$0	$0
John Keith (Treasurer)	$0	$0
Eileen Creenan (Secretary)	$0	$0
Gregory Morganoff (Director)	$0	$0
Joanna Dzielska (Director)	$0	$0

+ View more people

990-EZ

Filed on May 14, 2024

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2022

Revenue

$60,944

Expenses

$116,505

Net Income

-$55,561

Net Assets

$136,902

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$59,859	98.2%
Program Services	$1,085	1.8%
Investment Income	$0
Net Fundraising	$0
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Assets/Debt
Total Assets	$137,110
Total Liabilities	$208
Net Assets	$136,902

Compensation

Key Employees and Officers	Compensation	Other
Roberta Kestenbaum (Executive Director)	$37,752	$0
Millie Gonzalez (Chair)	$0	$0
Armand Cucciniello (Vice Chair)	$0	$0
John Keith (Treasurer)	$0	$0
Eileen Creenan (Secretary)	$0	$0
Gregory Morganoff (Director)	$0	$0
Joanna Dzielska (Director)	$0	$0

+ View more people

990-EZ

Filed on June 21, 2023

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2021

Revenue

$30,883

Expenses

$148,161

Net Income

-$117,278

Net Assets

$192,431

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$30,168	97.7%
Program Services	$715	2.3%
Investment Income	$0
Net Fundraising	$0
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Assets/Debt
Total Assets	$192,581
Total Liabilities	$150
Net Assets	$192,431

Compensation

Key Employees and Officers	Compensation	Other
Roberta Kestenbaum (Executive Director)	$48,158	$0
Millie Gonzalez (Chair)	$0	$0
John Keith (Treasurer)	$0	$0
Eileen Creenan (Secretary)	$0	$0
Armand Cucciniello (Director)	$0	$0
Gregory Morganoff (Director)	$0	$0
Angela Caristo (Director)	$0	$0
Marisa Douglas (Director)	$0	$0

+ View more people

990-EZ

Filed on June 8, 2022

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

XML

Fiscal Year Ending Dec.
2020

Revenue

$34,956

Expenses

$217,384

Net Income

-$182,428

Net Assets

$308,056

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$34,956	100%
Program Services	$0
Investment Income	$0
Net Fundraising	$0
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Assets/Debt
Total Assets	$308,364
Total Liabilities	$308
Net Assets	$308,056

Compensation

Key Employees and Officers	Compensation	Other
Roberta Kestenbaum (Executive Director)	$57,200	$0
Millie Gonzalez (Chair)	$0	$0
John Keith (Treasurer)	$0	$0
Eileen Creenan (Secretary)	$0	$0
Armand Cucciniello (Director)	$0	$0
Angela Caristo (Director)	$0	$0
Marisa Douglas (Director)	$0	$0
Gregory Morganoff (Director)	$0	$0

+ View more people

990-EZ

Filed on April 13, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

XML

Fiscal Year Ending Dec.
2019

Revenue

$66,002

Expenses

$233,985

Net Income

-$167,983

Net Assets

$471,528

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$46,337	70.2%
Program Services	$0
Investment Income	$14,779	22.4%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$4,886	7.4%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$57,200	24.4%
Professional Fundraising Fees	$0
Other Salaries and Wages	$55,247	23.6%

Assets/Debt
Total Assets	$476,748
Total Liabilities	$5,220
Net Assets	$471,528

Compensation

Key Employees and Officers	Compensation	Related	Other
Roberta Kestenbaum (Executive Director)	$57,200	$0	$0
Millie Gonzalez (Chairman)	$0	$0	$0
Armand Cucciniello (Vice Chair)	$0	$0	$0
Eileen M Creenan (Secretary)	$0	$0	$0
John Keith (Treasurer)	$0	$0	$0

+ View more people

990

Filed on July 9, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2018

Revenue

$302,673

Expenses

$309,967

Net Income

-$7,294

Net Assets

$597,193

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$297,713	98.4%
Program Services	$0
Investment Income	$0
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$4,960	1.6%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$60,840	19.6%
Professional Fundraising Fees	$0
Other Salaries and Wages	$94,010	30.3%

Assets/Debt
Total Assets	$607,216
Total Liabilities	$10,023
Net Assets	$597,193

Compensation

Key Employees and Officers	Compensation	Related	Other
Roberta Kestenbaum (Executive Director)	$60,840	$0	$0
Millie Gonzalez (Chairman)	$0	$0	$0
Roy Peterson (Member)	$0	$0	$0
Armand Cucciniello (Vice Chair)	$0	$0	$0
John Keith (Treasurer)	$0	$0	$0
Eileen Creenan (Secretary)	$0	$0	$0

+ View more people

990

Filed on Sept. 17, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2017

Revenue

$351,359

Expenses

$323,829

Net Income

$27,530

Net Assets

$623,665

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$347,398	98.9%
Program Services	$0
Investment Income	$0
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$3,961	1.1%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$59,800	18.5%
Professional Fundraising Fees	$0
Other Salaries and Wages	$107,734	33.3%

Assets/Debt
Total Assets	$624,072
Total Liabilities	$407
Net Assets	$623,665

Compensation

Key Employees and Officers	Compensation	Related	Other
Roberta Kestenbaum (Executive Director)	$59,800	$0	$0
David Giannett (Director)	$0	$0	$0
Millie Gonzalez (Chairman)	$0	$0	$0
Roy Peterson (Vice Chairman)	$0	$0	$0
Armand Cucciniello (Director)	$0	$0	$0
John Keith (Treasurer)	$0	$0	$0
Eileen Creenan (Secretary)	$0	$0	$0

+ View more people

990

Filed on Aug. 17, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2016

Revenue

$334,175

Expenses

$363,700

Net Income

-$29,525

Net Assets

$533,012

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$329,238	98.5%
Program Services	$0
Investment Income	$0
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$4,937	1.5%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$59,800	16.4%
Professional Fundraising Fees	$0
Other Salaries and Wages	$135,117	37.2%

Assets/Debt
Total Assets	$533,380
Total Liabilities	$368
Net Assets	$533,012

Compensation

Key Employees and Officers	Compensation	Related	Other
Roberta Kestenbaum (Executive Director)	$59,800	$0	$0
David Giannett (Director)	$0	$0	$0
Millie Gonzalez (Chairman)	$0	$0	$0
Roy Peterson (Vice Chairman)	$0	$0	$0
Armand Cucciniello (Director)	$0	$0	$0
John Keith (Treasurer)	$0	$0	$0
Eileen Creenan (Secretary)	$0	$0	$0

+ View more people

990

Filed on June 17, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2015

Revenue

$341,105

Expenses

$354,704

Net Income

-$13,599

Net Assets

$550,796

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$330,775	97.0%
Program Services	$0
Investment Income	$23	0.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$10,307	3.0%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$59,800	16.9%
Professional Fundraising Fees	$0
Other Salaries and Wages	$0

Assets/Debt
Total Assets	$551,462
Total Liabilities	$666
Net Assets	$550,796

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2014

Revenue

$419,475

Expenses

$415,414

Net Income

$4,061

Net Assets

$576,113

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$386,569	92.2%
Program Services	$0
Investment Income	$23	0.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$32,883	7.8%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$60,402	14.5%
Professional Fundraising Fees	$0
Other Salaries and Wages	$0

Assets/Debt
Total Assets	$576,845
Total Liabilities	$732
Net Assets	$576,113

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2013

Revenue

$405,122

Expenses

$431,335

Net Income

-$26,213

Net Assets

$559,484

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$338,413	83.5%
Program Services	$0
Investment Income	$1	0.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$66,708	16.5%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$57,430	13.3%
Professional Fundraising Fees	$0
Other Salaries and Wages	$0

Assets/Debt
Total Assets	$560,766
Total Liabilities	$1,282
Net Assets	$559,484

Compensation

Key Employees and Officers	Compensation	Related	Other
David Giannetto (Chairman)	$0	$0	$0
Millie Gonzales (Vice Chairman)	$0	$0	$0
John Keith (Treasurer)	$0	$0	$0
Eileen Creenan (Secretary)	$0	$0	$0
Roy Peterson (Director)	$0	$0	$0
Anthony You (Director)	$0	$0	$0
Roberta Kestenbaum (Director)	$0	$0	$0

+ View more people

990

Filed on July 11, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2012

Revenue

$414,550

Expenses

$445,911

Net Income

-$31,361

Net Assets

$533,870

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$355,492	85.8%
Program Services	$0
Investment Income	$8	0.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$59,050	14.2%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$53,459	12.0%
Professional Fundraising Fees	$0
Other Salaries and Wages	$200,717	45.0%

Assets/Debt
Total Assets	$535,372
Total Liabilities	$1,502
Net Assets	$533,870

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Revenue

$507,926

Expenses

$589,867

Net Income

-$81,941

Net Assets

$521,159

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$450,385	88.7%
Program Services	$0
Investment Income	$5	0.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$57,536	11.3%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$74,099	12.6%
Professional Fundraising Fees	$0
Other Salaries and Wages	$279,836	47.4%

Assets/Debt
Total Assets	$522,817
Total Liabilities	$1,658
Net Assets	$521,159

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990

Primary tax return for a nonprofit’s activities, finances, and governance

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

PDF (2 of 2)

Fiscal Year Ending Dec.
2001

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

Raw filing data. Includes EINs and summary financials as structured data.
Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated March 27, 2025

Spina Bifida Resource Network

Organization summary

Type of Nonprofit

Summary charts: organization finances over time

Revenue $97k (2023)

Expenses $117k (2023)

Total Assets $117k (2023)

Total Liabilities $247 (2023)

Tax Filings by Year

Fiscal Year Ending Dec. 2023

Extracted Financial Data

Extracted Financial Data from 990-EZ

Compensation

Document Links

990-EZ

Fiscal Year Ending Dec. 2022

Extracted Financial Data

Extracted Financial Data from 990-EZ

Compensation

Document Links

990-EZ

Fiscal Year Ending Dec. 2021

Extracted Financial Data

Extracted Financial Data from 990-EZ

Compensation

Document Links

990-EZ

Fiscal Year Ending Dec. 2020

Extracted Financial Data

Extracted Financial Data from 990-EZ

Compensation

Document Links

990-EZ

Fiscal Year Ending Dec. 2019

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Dec. 2018

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Dec. 2017

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Dec. 2016

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Dec. 2015

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Fiscal Year Ending Dec. 2014

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Fiscal Year Ending Dec. 2013

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Dec. 2012

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Fiscal Year Ending Dec. 2011

Extracted Financial Data

Revenue

$97k (2023)

Expenses

$117k (2023)

Total Assets

$117k (2023)

Total Liabilities

$247 (2023)

Fiscal Year Ending Dec.
2023

Fiscal Year Ending Dec.
2022

Fiscal Year Ending Dec.
2021

Fiscal Year Ending Dec.
2020

Fiscal Year Ending Dec.
2019

Fiscal Year Ending Dec.
2018

Fiscal Year Ending Dec.
2017

Fiscal Year Ending Dec.
2016

Fiscal Year Ending Dec.
2015

Fiscal Year Ending Dec.
2014

Fiscal Year Ending Dec.
2013

Fiscal Year Ending Dec.
2012

Fiscal Year Ending Dec.
2011

Fiscal Year Ending Dec.
2010

Fiscal Year Ending Dec.
2009

Fiscal Year Ending Dec.
2008

Fiscal Year Ending Dec.
2007

Fiscal Year Ending Dec.
2006

Fiscal Year Ending Dec.
2005

Fiscal Year Ending Dec.
2004

Fiscal Year Ending Dec.
2003

Fiscal Year Ending Dec.
2002

Fiscal Year Ending Dec.
2001