Neurofibromatosis Midwest

Saint Charles, IL
Tax-exempt since Oct. 1993
EIN: 22-2580173

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Type of Nonprofit

Designated as a 501(c)(3) Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Neurology, Neuroscience Research (NTEE)

Donations to this organization are tax deductible.

Revenue

$241k (2023)

Expenses

$263k (2023)

Total Assets

$294k (2023)

Total Liabilities

$874 (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Sept.
2023

Revenue

$241,223

Expenses

$262,588

Net Income

-$21,365

Net Assets

$292,724

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$230,293	95.5%
Program Services	$0
Investment Income	$7,244	3.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$3,711	1.5%
Sales of Assets	$0
Net Inventory Sales	-$75
Other Revenue	$50	0.0%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$108,070	41.2%

Assets/Debt
Total Assets	$293,598
Total Liabilities	$874
Net Assets	$292,724

Compensation

Key Employees and Officers	Compensation	Related	Other
Denise Dulceak (Board Chair)	$0	$0	$0
Diana Haberkamp (Executive Di)	$0	$0	$0
Gail Mavrogenes (Board Member)	$0	$0	$0
Andy Ringo (Treasurer)	$0	$0	$0
Lesli Wegner (Vice Chair)	$0	$0	$0

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990

Filed on Feb. 28, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Sept.
2022

Revenue

$220,690

Expenses

$218,142

Net Income

$2,548

Net Assets

$315,315

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$183,921	83.3%
Program Services	$0
Investment Income	$3,042	1.4%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$32,499	14.7%
Sales of Assets	$0
Net Inventory Sales	$1,227	0.6%
Other Revenue	$1	0.0%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$84,246	38.6%

Assets/Debt
Total Assets	$317,579
Total Liabilities	$2,264
Net Assets	$315,315

Compensation

Key Employees and Officers	Compensation	Related	Other
Denise Dulceak (Board Chair)	$0	$0	$0
Diana Haberkamp (Executive Di)	$0	$0	$0
Dena Hasselberg (Secretary)	$0	$0	$0
Gail Mavrogenes (Board Member)	$0	$0	$0
Gail Mavrogenes (Board Member)	$0	$0	$0
Andy Ringo (Treasurer)	$0	$0	$0
Peter Oswald Sr (Vice Chair)	$0	$0	$0

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990

Filed on March 6, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

PDF XML

Fiscal Year Ending Sept.
2021

Revenue

$209,965

Expenses

$175,928

Net Income

$34,037

Net Assets

$347,867

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$145,261	69.2%
Program Services	$0
Investment Income	$2,121	1.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$62,214	29.6%
Sales of Assets	$0
Net Inventory Sales	$366	0.2%
Other Revenue	$3	0.0%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$85,069	48.4%

Assets/Debt
Total Assets	$351,353
Total Liabilities	$3,486
Net Assets	$347,867

Compensation

Key Employees and Officers	Compensation	Related	Other
Gordon Cummings (Treasurer)	$0	$0	$0
Denise Dulceak (Board Chair)	$0	$0	$0
Diana Haberkamp (Executive Di)	$0	$0	$0
Dena Hasselberg (Secretary)	$0	$0	$0
Gail Mavrogenes (Board Member)	$0	$0	$0
Gail Mavrogenes (Board Member)	$0	$0	$0
Peter Oswald Sr (Vice Chair)	$0	$0	$0

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990

Filed on March 4, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

XML

Fiscal Year Ending Sept.
2020

Revenue

$179,571

Expenses

$214,976

Net Income

-$35,405

Net Assets

$312,925

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$140,948	78.5%
Program Services	$0
Investment Income	$4,700	2.6%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$29,974	16.7%
Sales of Assets	$0
Net Inventory Sales	$1,266	0.7%
Other Revenue	$2,683	1.5%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$85,841	39.9%

Assets/Debt
Total Assets	$332,706
Total Liabilities	$19,781
Net Assets	$312,925

Compensation

Key Employees and Officers	Compensation	Related	Other
Gordon Cummings (Treasurer)	$0	$0	$0
Denise Dulceak (Board Chair)	$0	$0	$0
Diana Haberkamp (Executive Di)	$0	$0	$0
Dena Hasselberg (Secretary)	$0	$0	$0
Gail Mavrogenes (Board Member)	$0	$0	$0
Peter Oswald Sr (Vice Chair)	$0	$0	$0
Lesli Wegner (Board Member)	$0	$0	$0

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990

Filed on Feb. 9, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

PDF XML

Fiscal Year Ending Sept.
2019

Revenue

$257,121

Expenses

$209,751

Net Income

$47,370

Net Assets

$342,460

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$139,726	54.3%
Program Services	$0
Investment Income	$5,725	2.2%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$109,755	42.7%
Sales of Assets	$0
Net Inventory Sales	$460	0.2%
Other Revenue	$1,455	0.6%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$85,066	40.6%

Assets/Debt
Total Assets	$350,786
Total Liabilities	$8,326
Net Assets	$342,460

Compensation

Key Employees and Officers	Compensation	Related	Other
Dena Hasselberg (Secretary)	$0	$0	$0
Lesli Wegner (Board Member)	$0	$0	$0
Peter Oswald Sr (Vice Chair)	$0	$0	$0
Gail Mavrogenes (Board Member)	$0	$0	$0
Gordon Cummings (Treasurer)	$0	$0	$0
Denise Dulceak (Board Chair)	$0	$0	$0
Diana Haberkamp (Executive Di)	$0	$0	$0

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990

Filed on March 10, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

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Schedules ▼

PDF XML

Fiscal Year Ending Sept.
2018

Revenue

$277,690

Expenses

$323,157

Net Income

-$45,467

Net Assets

$283,191

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$137,391	49.5%
Program Services	$0
Investment Income	$5,605	2.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$130,573	47.0%
Sales of Assets	$0
Net Inventory Sales	$2,120	0.8%
Other Revenue	$2,001	0.7%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$60,000	18.6%
Professional Fundraising Fees	$0
Other Salaries and Wages	$55,345	17.1%

Assets/Debt
Total Assets	$296,479
Total Liabilities	$13,288
Net Assets	$283,191

Compensation

Key Employees and Officers	Compensation	Related	Other
Charles R Todd Jr (Board Member)	$0	$0	$0
Lesli Wegner (Secretary)	$0	$0	$0
Peter Oswald Sr (Vice Chair)	$0	$0	$0
Gail Mavrogenes (Board Member)	$0	$0	$0
Gordon Cummings (Treasurer)	$0	$0	$0
Denise Dulceak (Board Chair)	$0	$0	$0
Diana Haberkamp (Executive Di)	$0	$0	$0

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990

Filed on July 11, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Sept.
2017

Revenue

$248,339

Expenses

$266,338

Net Income

-$17,999

Net Assets

$335,978

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$84,680	34.1%
Program Services	$3,350	1.3%
Investment Income	$4,151	1.7%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$156,014	62.8%
Sales of Assets	$0
Net Inventory Sales	$144	0.1%
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$60,000	22.5%
Professional Fundraising Fees	$0
Other Salaries and Wages	$48,147	18.1%

Assets/Debt
Total Assets	$345,443
Total Liabilities	$9,465
Net Assets	$335,978

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2016

Revenue

$260,197

Expenses

$250,490

Net Income

$9,707

Net Assets

$353,977

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$71,635	27.5%
Program Services	$2,164	0.8%
Investment Income	$2,449	0.9%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$178,235	68.5%
Sales of Assets	$0
Net Inventory Sales	$1,863	0.7%
Other Revenue	$3,851	1.5%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$58,850	23.5%
Professional Fundraising Fees	$0
Other Salaries and Wages	$64,540	25.8%

Assets/Debt
Total Assets	$368,822
Total Liabilities	$14,845
Net Assets	$353,977

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2015

Revenue

$269,672

Expenses

$244,361

Net Income

$25,311

Net Assets

$340,343

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$136,641	50.7%
Program Services	$2,290	0.8%
Investment Income	$2,643	1.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$117,335	43.5%
Sales of Assets	$0
Net Inventory Sales	$1,694	0.6%
Other Revenue	$9,069	3.4%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$116,725	47.8%

Assets/Debt
Total Assets	$347,191
Total Liabilities	$6,848
Net Assets	$340,343

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2014

Revenue

$455,646

Expenses

$341,762

Net Income

$113,884

Net Assets

$312,140

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$447,356	98.2%
Program Services	$1,230	0.3%
Investment Income	$5,382	1.2%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$148	0.0%
Sales of Assets	$0
Net Inventory Sales	$922	0.2%
Other Revenue	$608	0.1%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$58,527	17.1%
Professional Fundraising Fees	$0
Other Salaries and Wages	$134,695	39.4%

Assets/Debt
Total Assets	$325,786
Total Liabilities	$13,646
Net Assets	$312,140

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2013

Revenue

$266,362

Expenses

$305,366

Net Income

-$39,004

Net Assets

$198,256

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$83,904	31.5%
Program Services	$0
Investment Income	$1,825	0.7%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$178,280	66.9%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$2,353	0.9%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$56,000	18.3%
Professional Fundraising Fees	$0
Other Salaries and Wages	$63,481	20.8%

Assets/Debt
Total Assets	$216,573
Total Liabilities	$18,317
Net Assets	$198,256

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2012

Revenue

$282,332

Expenses

$321,971

Net Income

-$39,639

Net Assets

$237,260

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$214,848	76.1%
Program Services	$0
Investment Income	$4,628	1.6%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$59,684	21.1%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$3,172	1.1%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$52,000	16.2%
Professional Fundraising Fees	$0
Other Salaries and Wages	$53,081	16.5%

Assets/Debt
Total Assets	$240,811
Total Liabilities	$3,551
Net Assets	$237,260

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2011

Revenue

$269,667

Expenses

$258,981

Net Income

$10,686

Net Assets

$274,716

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$222,882	82.7%
Program Services	$0
Investment Income	$3,676	1.4%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$43,105	16.0%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$4	0.0%

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$75,618	29.2%

Assets/Debt
Total Assets	$276,493
Total Liabilities	$1,777
Net Assets	$274,716

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2010

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2009

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2008

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2007

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2006

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2005

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2004

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2003

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2002

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Sept.
2001

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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Raw filing data. Includes EINs and summary financials as structured data.
Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated December 20, 2024

Neurofibromatosis Midwest

Organization summary

Type of Nonprofit

Summary charts: organization finances over time

Revenue $241k (2023)

Expenses $263k (2023)

Total Assets $294k (2023)

Total Liabilities $874 (2023)

Tax Filings by Year

Fiscal Year Ending Sept. 2023

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Sept. 2022

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Sept. 2021

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Sept. 2020

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

Document Links

990

Fiscal Year Ending Sept. 2019

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

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990

Fiscal Year Ending Sept. 2018

Extracted Financial Data

Extracted Financial Data from Form 990

Compensation

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990

Fiscal Year Ending Sept. 2017

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Fiscal Year Ending Sept. 2016

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Fiscal Year Ending Sept. 2015

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Fiscal Year Ending Sept. 2014

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Fiscal Year Ending Sept. 2013

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Fiscal Year Ending Sept. 2012

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Fiscal Year Ending Sept. 2011

Extracted Financial Data

Extracted Financial Data from Form 990

Document Links

990

Revenue

$241k (2023)

Expenses

$263k (2023)

Total Assets

$294k (2023)

Total Liabilities

$874 (2023)

Fiscal Year Ending Sept.
2023

Fiscal Year Ending Sept.
2022

Fiscal Year Ending Sept.
2021

Fiscal Year Ending Sept.
2020

Fiscal Year Ending Sept.
2019

Fiscal Year Ending Sept.
2018

Fiscal Year Ending Sept.
2017

Fiscal Year Ending Sept.
2016

Fiscal Year Ending Sept.
2015

Fiscal Year Ending Sept.
2014

Fiscal Year Ending Sept.
2013

Fiscal Year Ending Sept.
2012

Fiscal Year Ending Sept.
2011

Fiscal Year Ending Sept.
2010

Fiscal Year Ending Sept.
2009

Fiscal Year Ending Sept.
2008

Fiscal Year Ending Sept.
2007

Fiscal Year Ending Sept.
2006

Fiscal Year Ending Sept.
2005

Fiscal Year Ending Sept.
2004

Fiscal Year Ending Sept.
2003

Fiscal Year Ending Sept.
2002

Fiscal Year Ending Sept.
2001