Skip to content
ProPublica Donate
ProPublica Donate

Barth Syndrome Foundation Inc

  • Larchmont, NY
  • Tax-exempt since Jan. 2001
  • EIN: 22-3755704

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Philanthropy, Voluntarism and Grantmaking Foundations / Public Foundations (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$1.33M (2023)

Expenses
$1.42M (2023)

Total Assets
$5.49M (2023)

Total Liabilities
$206k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,334,806
Expenses
$1,421,717
Net Income
-$86,911
Net Assets
$5,285,354
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,228,396
92.0%
Program Services $0
Investment Income $131,351
9.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$24,941
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $229,984
16.2%
Professional Fundraising Fees $0
Other Salaries and Wages $410,056
28.8%
Assets/Debt
Total Assets $5,491,330
Total Liabilities $205,976
Net Assets $5,285,354
Compensation
Key Employees and Officers Compensation Related Other
Emily Milligan (Executive Director) $210,452 $0 $19,442
Andrew Buddemeyer (Board Member) $0 $0 $0
Brandi Dague (Board Member) $0 $0 $0
Bruce Develle (Board Member) $0 $0 $0
Florence Mannes (Board Member) $0 $0 $0
Jonathan Stokes (Board Member) $0 $0 $0
Megan Branagh (Board Member) $0 $0 $0
Michelle Florez (Board Member) $0 $0 $0
Nina Russell (Board Member) $0 $0 $0
Peter Van Loo (Board Member) $0 $0 $0
Miriam Greenberg (Board Member) $0 $0 $0
Katherine Mccurdy (Chair) $0 $0 $0
Mark Greene (Treasurer) $0 $0 $0
James Baffa (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on June 13, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,387,712
Expenses
$1,367,327
Net Income
$20,385
Net Assets
$5,013,330
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,397,138
> 100%
Program Services $0
Investment Income $97,359
7.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$106,785
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $207,242
15.2%
Professional Fundraising Fees $0
Other Salaries and Wages $377,013
27.6%
Assets/Debt
Total Assets $5,372,000
Total Liabilities $358,670
Net Assets $5,013,330
Compensation
Key Employees and Officers Compensation Related Other
Emily Milligan (Executive Director) $198,896 $0 $8,346
Erik Lontok (Director Of Research) $130,646 $0 $5,477
Andrew Buddemeyer (Board Member) $0 $0 $0
Brandi Dague (Board Member) $0 $0 $0
Bruce Develle (Board Member) $0 $0 $0
Florence Mannes (Board Member) $0 $0 $0
Maryanne Chrisant (Board Member) $0 $0 $0
Megan Branagh (Board Member) $0 $0 $0
Michelle Florez (Board Member) $0 $0 $0
Nina Russell (Board Member) $0 $0 $0
Peter Van Loo (Board Member) $0 $0 $0
Miriam Greenberg (Board Member) $0 $0 $0
Mark Greene (Board Member) $0 $0 $0
Katherine Mccurdy (Chair) $0 $0 $0
Kevin G Woodward (Treasurer) $0 $0 $0
James Baffa (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 2, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,563,641
Expenses
$1,010,732
Net Income
$552,909
Net Assets
$5,701,689
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,214,336
77.7%
Program Services $0
Investment Income $72,734
4.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $276,571
17.7%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $179,468
17.8%
Professional Fundraising Fees $0
Other Salaries and Wages $308,917
30.6%
Assets/Debt
Total Assets $5,986,941
Total Liabilities $285,252
Net Assets $5,701,689
Compensation
Key Employees and Officers Compensation Related Other
Emily Milligan (Executive Director) $169,692 $0 $9,777
Erik Lontok (Director Of Research) $116,501 $0 $5,527
Andrew Buddemeyer (Board Member) $0 $0 $0
Brandi Dague (Board Member) $0 $0 $0
Bruce Develle (Board Member) $0 $0 $0
Florence Mannes (Board Member) $0 $0 $0
Maryanne Chrisant (Board Member) $0 $0 $0
Megan Branagh (Board Member) $0 $0 $0
Michelle Florez (Board Member) $0 $0 $0
Nina Russell (Board Member) $0 $0 $0
Peter Van Loo (Board Member) $0 $0 $0
Katherine Mccurdy (Chair) $0 $0 $0
Kevin G Woodward (Treasurer) $0 $0 $0
James Baffa (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on July 13, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,267,165
Expenses
$1,001,933
Net Income
$265,232
Net Assets
$5,280,639
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,162,206
91.7%
Program Services $0
Investment Income $98,869
7.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $6,090
0.5%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $205,812
20.5%
Professional Fundraising Fees $0
Other Salaries and Wages $280,943
28.0%
Assets/Debt
Total Assets $5,553,199
Total Liabilities $272,560
Net Assets $5,280,639
Compensation
Key Employees and Officers Compensation Related Other
Emily Milligan (Executive Director) $184,188 $0 $10,812
Erik Lontok (Director Of Research) $108,881 $0 $6,119
Matthew Blumenthal (Board Member) $0 $0 $0
Florence Mannes (Board Member) $0 $0 $0
Megan Branagh (Board Member) $0 $0 $0
David Axelrod Md (Board Member) $0 $0 $0
Bruce J Develle (Board Member) $0 $0 $0
Nicole Derusha Mackey (Board Member) $0 $0 $0
Brandi Dague (Board Member) $0 $0 $0
Michelle Florez (Board Member) $0 $0 $0
Peter Van Loo (Board Member) $0 $0 $0
Nina Russell (Board Member) $0 $0 $0
Susan A Mccormack (Chair (Former)) $0 $0 $0
Katherine Mccurdy (Chair) $0 $0 $0
Kevin G Woodward (Treasurer) $0 $0 $0
John Wilkins (Secretary (Former)) $0 $0 $0
James Baffa (Acting Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 12, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,135,762
Expenses
$1,301,376
Net Income
-$165,614
Net Assets
$4,706,418
Notable Sources of Revenue Percent of Total Revenue
Contributions $935,649
82.4%
Program Services $0
Investment Income $121,894
10.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $78,219
6.9%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $190,000
14.6%
Professional Fundraising Fees $0
Other Salaries and Wages $313,283
24.1%
Assets/Debt
Total Assets $4,993,243
Total Liabilities $286,825
Net Assets $4,706,418
Compensation
Key Employees and Officers Compensation Related Other
Emily Milligan (Executive Director) $190,000 $0 $0
Matthew Toth (Dir Of Science) $110,808 $0 $8,389
Matthew Blumenthal (Board Member) $0 $0 $0
Florence Mannes (Board Member) $0 $0 $0
Megan Branagh (Board Member) $0 $0 $0
David Axelrod Md (Board Member) $0 $0 $0
Catharine Lynne Ritter (Board Member Term 9/2019) $0 $0 $0
Bruce J Develle (Board Member) $0 $0 $0
Nicole Derusha Mackey (Board Member) $0 $0 $0
Brandi Dague (Board Member) $0 $0 $0
Michelle Florez (Board Member) $0 $0 $0
Peter Van Loo (Board Member) $0 $0 $0
Susan A Mccormack (Chair) $0 $0 $0
Kevin G Woodward (Treasurer) $0 $0 $0
John Wilkins (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on June 10, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,291,095
Expenses
$1,155,310
Net Income
$1,135,785
Net Assets
$4,591,271
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,997,067
87.2%
Program Services $156,766
6.8%
Investment Income $98,494
4.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $38,768
1.7%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $110,769
9.6%
Professional Fundraising Fees $0
Other Salaries and Wages $311,792
27.0%
Assets/Debt
Total Assets $4,750,350
Total Liabilities $159,079
Net Assets $4,591,271
Compensation
Key Employees and Officers Compensation Related Other
Matthew Toth (Dir Of Science) $144,207 $0 $10,595
Emily Milligan (Executive Director) $110,769 $0 $0
Matthew Blumenthal (Board Member) $0 $0 $0
Florence Mannes (Board Member) $0 $0 $0
Megan Branagh (Board Member) $0 $0 $0
David Axelrod Md (Board Member) $0 $0 $0
Catharine Lynne Ritter (Board Member) $0 $0 $0
Bruce J Develle (Board Member) $0 $0 $0
Nicole Derusha Mackey (Board Member) $0 $0 $0
Brandi Dague (Board Member) $0 $0 $0
Michelle Florez (Board Member) $0 $0 $0
Susan Osnos (Board Member Term 5/2018) $0 $0 $0
Susan A Mccormack (Chair) $0 $0 $0
Kevin G Woodward (Treasurer) $0 $0 $0
John Wilkins (Secretary) $0 $0 $0
Marcus Sernel (Chairman Term 5/2018) $0 $0 $0
+ View more people

Document Links

990
Filed on May 14, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$963,264
Expenses
$930,832
Net Income
$32,432
Net Assets
$3,712,671
Notable Sources of Revenue Percent of Total Revenue
Contributions $865,365
89.8%
Program Services $0
Investment Income $64,705
6.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $33,194
3.4%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $136,007
14.6%
Professional Fundraising Fees $0
Other Salaries and Wages $303,596
32.6%
Assets/Debt
Total Assets $3,971,455
Total Liabilities $258,784
Net Assets $3,712,671
Compensation
Key Employees and Officers Compensation Related Other
Matthew Toth (Dir Of Science) $144,368 $0 $8,794
Lindsay B Groff (Executive Director) $116,940 $0 $3,089
Matthew Blumenthal (Board Member) $0 $0 $0
Florence Mannes (Board Member) $0 $0 $0
Susan Osnos (Board Member) $0 $0 $0
John Wilkins (Board Member) $0 $0 $0
David Axelrod Md (Board Member) $0 $0 $0
Catharine Lynne Ritter (Board Member) $0 $0 $0
Kevin G Woodward (Board Member) $0 $0 $0
Bruce J Develle (Board Member) $0 $0 $0
Nicole Derusha Mackey (Board Member) $0 $0 $0
Randy Buddemeyer (Treasurer) $0 $0 $0
Marcus Sernel (Chairman) $0 $0 $0
Susan A Mccormack (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 13, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,082,407
Expenses
$1,231,511
Net Income
-$149,104
Net Assets
$3,577,557
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,026,616
94.8%
Program Services $0
Investment Income $56,492
5.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$701
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $200,385
16.3%
Professional Fundraising Fees $0
Other Salaries and Wages $219,551
17.8%
Assets/Debt
Total Assets $3,793,936
Total Liabilities $216,379
Net Assets $3,577,557
Compensation
Key Employees and Officers Compensation Related Other
Matthew Toth (Dir Of Science) $152,870 $0 $11,192
Lindsay B Groff (Executive Director) $120,666 $0 $233
Valerie Bowen (President, Former) $79,719 $0 $4,093
Matthew Blumenthal (Board Member) $0 $0 $0
Florence Mannes (Board Member) $0 $0 $0
Susan Osnos (Board Member) $0 $0 $0
Randy Buddemeyer (Treasurer) $0 $0 $0
Marcus Sernel (Chairman) $0 $0 $0
Susan A Mccormack (Secretary) $0 $0 $0
John Wilkins (Board Member) $0 $0 $0
David Axelrod Md (Board Member) $0 $0 $0
Catharine Lynne Ritter (Board Member) $0 $0 $0
Kevin G Woodward (Board Member) $0 $0 $0
Bruce J Develle (Board Member) $0 $0 $0
Nicole Derusha Mackey (Board Member) $0 $0 $0
+ View more people

Document Links

990
Filed on May 3, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,165,453
Expenses
$1,232,310
Net Income
$1,933,143
Net Assets
$3,673,079
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,138,821
99.2%
Program Services $0
Investment Income $9,671
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $16,961
0.5%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $190,304
15.4%
Professional Fundraising Fees $0
Other Salaries and Wages $245,873
20.0%
Assets/Debt
Total Assets $3,913,906
Total Liabilities $240,827
Net Assets $3,673,079
Compensation
Key Employees and Officers Compensation Related Other
Matthew Toth (Dir Of Science) $157,877 $0 $7,911
Lindsay B Groff (Executive Director) $117,316 $0 $1,014
Valerie Bowen (President, Former) $79,848 $0 $4,456
Matthew Blumenthal (Board Member) $0 $0 $0
Florence Mannes (Board Member) $0 $0 $0
Susan Osnos (Board Member) $0 $0 $0
Randy Buddemeyer (Treasurer) $0 $0 $0
Marcus Sernel (Chairman) $0 $0 $0
Susan A Mccormack (Secretary) $0 $0 $0
John Wilkins (Board Member) $0 $0 $0
David Axelrod Md (Board Member) $0 $0 $0
Catharine Lynne Ritter (Board Member) $0 $0 $0
Kevin G Woodward (Board Member) $0 $0 $0
+ View more people

Document Links

990
Filed on May 12, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,107,097
Expenses
$1,195,629
Net Income
-$88,532
Net Assets
$1,758,008
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,102,246
99.6%
Program Services $0
Investment Income $4,925
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$74
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $431,556
36.1%
Assets/Debt
Total Assets $1,874,325
Total Liabilities $116,317
Net Assets $1,758,008
Compensation
Key Employees and Officers Compensation Related Other
Matthew Toth (Dir Of Science) $147,358 $0 $7,306
Lindsay B Groff (Executive Director) $109,984 $0 $0
Valerie Bowen (President, Former) $74,831 $0 $3,772
Stephen Kugelmann (Board Member) $0 $0 $0
Katherine Mccurdy (Board Member) $0 $0 $0
Susan Osnos (Board Member) $0 $0 $0
Susan Wilkins (Board Member) $0 $0 $0
Randy Buddemeyer (Treasurer) $0 $0 $0
Marcus Sernel (Chairman) $0 $0 $0
Susan A Mccormack (Secretary) $0 $0 $0
John Wilkins (Board Member) $0 $0 $0
David Axelrod Md (Board Member) $0 $0 $0
Cathy Ritter (Board Member) $0 $0 $0
Kevin G Woodward (Board Member) $0 $0 $0
+ View more people

Document Links

990
Filed on May 6, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$824,655
Expenses
$796,952
Net Income
$27,703
Net Assets
$1,846,257
Notable Sources of Revenue Percent of Total Revenue
Contributions $824,480
100.0%
Program Services $0
Investment Income $5,481
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$5,306
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $205,246
25.8%
Assets/Debt
Total Assets $1,908,550
Total Liabilities $62,293
Net Assets $1,846,257
Compensation
Key Employees and Officers Compensation Related Other
Matthew Toth (Dir Of Science) $143,781 $0 $7,209
Lindsay B Groff (Executive Director) $110,308 $0 $0
Valerie Bowen (President, Former) $72,526 $0 $7,266
Stephen Kugelmann (Board Member) $0 $0 $0
Katherine Mccurdy (Board Member) $0 $0 $0
Susan Osnos (Board Member) $0 $0 $0
Susan Wilkins (Board Member) $0 $0 $0
Randy Buddemeyer (Treasurer) $0 $0 $0
Marcus Sernel (Chairman) $0 $0 $0
Susan A Mccormack (Secretary) $0 $0 $0
John Wilkins (Board Member) $0 $0 $0
David Axelrod Md (Board Member) $0 $0 $0
Cathy Ritter (Board Member) $0 $0 $0
+ View more people

Document Links

990
Filed on May 8, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$879,455
Expenses
$956,309
Net Income
-$76,854
Net Assets
$1,819,347
Notable Sources of Revenue Percent of Total Revenue
Contributions $871,480
99.1%
Program Services $0
Investment Income $7,975
0.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $304,802
31.9%
Professional Fundraising Fees $0
Other Salaries and Wages $56,688
5.9%
Assets/Debt
Total Assets $1,909,785
Total Liabilities $90,438
Net Assets $1,819,347

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$717,184
Expenses
$752,666
Net Income
-$35,482
Net Assets
$1,895,211
Notable Sources of Revenue Percent of Total Revenue
Contributions $706,090
98.5%
Program Services $0
Investment Income $11,094
1.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $274,398
36.5%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,994,513
Total Liabilities $99,302
Net Assets $1,895,211

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

Byline

By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated