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Osteogenesis Imperfecta Foundation Inc

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Nerve, Muscle, Bone Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$2.21M (2023)

Expenses
$2.09M (2023)

Total Assets
$2.35M (2023)

Total Liabilities
$671k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending June
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,214,512
Expenses
$2,085,298
Net Income
$129,214
Net Assets
$1,675,247
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,159,567
97.5%
Program Services $0
Investment Income $36,689
1.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$33,346
Sales of Assets $14,158
0.6%
Net Inventory Sales $549
0.0%
Other Revenue $36,895
1.7%
Notable Expenses Percent of Total Expenses
Executive Compensation $235,937
11.3%
Professional Fundraising Fees $0
Other Salaries and Wages $734,890
35.2%
Assets/Debt
Total Assets $2,346,165
Total Liabilities $670,918
Net Assets $1,675,247
Compensation
Key Employees and Officers Compensation Related Other
Tracy Smith Hart (Chief Executive Officer) $194,513 $0 $26,900
Katherine E Carter (Chief Program Officer) $123,543 $0 $6,287
Ted Trahan (President) $0 $0 $0
James M Early (Vice President) $0 $0 $0
Christine Wyman Rossi (Vice President) $0 $0 $0
Sharon Mutnick (Treasurer) $0 $0 $0
Kenneth Finkel (Secretary) $0 $0 $0
Francis Glorieux (Medical Advisor Council Chair) $0 $0 $0
Karen Braitmayer (Board Member) $0 $0 $0
Michelle Fynan (Board Member) $0 $0 $0
Billy Huang (Board Member) $0 $0 $0
Tracy L Mulroy (Board Member) $0 $0 $0
Wendy E Sacks (Board Member) $0 $0 $0
James Sharples (Board Member) $0 $0 $0
Michael Sheridan (Board Member) $0 $0 $0
V Reid Sutton Md (Board Member) $0 $0 $0
S Jacinta Whyte (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending June
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,112,061
Expenses
$2,287,948
Net Income
-$175,887
Net Assets
$1,479,309
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,961,638
92.9%
Program Services $0
Investment Income $34,807
1.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$119,543
Sales of Assets $199,506
9.4%
Net Inventory Sales $672
0.0%
Other Revenue $34,981
1.7%
Notable Expenses Percent of Total Expenses
Executive Compensation $246,343
10.8%
Professional Fundraising Fees $0
Other Salaries and Wages $683,027
29.9%
Assets/Debt
Total Assets $2,054,090
Total Liabilities $574,781
Net Assets $1,479,309
Compensation
Key Employees and Officers Compensation Related Other
Tracy Smith Hart (Chief Executive Officer) $205,452 $0 $27,011
Katherine E Carter (Chief Program Officer) $117,319 $0 $5,976
Ted Trahan (President) $0 $0 $0
Cameron R Penn (Previous President) $0 $0 $0
James M Early (Vice President) $0 $0 $0
Christine Wyman Rossi (Vice President) $0 $0 $0
Sharon Mutnick (Treasurer) $0 $0 $0
Kenneth Finkel (Secretary) $0 $0 $0
Francis Glorieux (Medical Advisor Council Chair) $0 $0 $0
Karen Braitmayer (Board Member) $0 $0 $0
Michelle Fynan (Board Member) $0 $0 $0
Tracy Mulroy (Board Member) $0 $0 $0
Wendy Sacks (Board Member) $0 $0 $0
James Sharples (Board Member) $0 $0 $0
Michael Sheridan (Board Member) $0 $0 $0
V Reid Sutton Md (Board Member) $0 $0 $0
S Jacinta Whyte (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending June
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,897,607
Expenses
$1,624,284
Net Income
$273,323
Net Assets
$2,038,098
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,862,472
98.1%
Program Services $55,467
2.9%
Investment Income $32,461
1.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$64,232
Sales of Assets $10,469
0.6%
Net Inventory Sales $970
0.1%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $234,868
14.5%
Professional Fundraising Fees $0
Other Salaries and Wages $581,563
35.8%
Assets/Debt
Total Assets $2,230,527
Total Liabilities $192,429
Net Assets $2,038,098
Compensation
Key Employees and Officers Compensation Related Other
Tracy Smith Hart (Chief Executive Officer) $190,324 $0 $33,421
Erika Carter (Chief Program Officer) $105,886 $0 $4,323
Cameron R Penn (President) $0 $0 $0
James M Early (Vice President) $0 $0 $0
Christine Rossi (Vice President) $0 $0 $0
Sharon Mutnick (Secretary) $0 $0 $0
Ted Trahan (Treasurer) $0 $0 $0
Francis Glorieux (Medical Advisor Council Chair) $0 $0 $0
Michele Burka (Board Member) $0 $0 $0
Brett Eisenberg (Board Member) $0 $0 $0
Kenneth Finkel (Board Member) $0 $0 $0
Eric Gould (Board Member) $0 $0 $0
Joe Hall (Board Member) $0 $0 $0
Tracy Mulroy (Board Member) $0 $0 $0
Wendy Sacks (Board Member) $0 $0 $0
Michael Sheridan (Board Member) $0 $0 $0
Laura Tosi (Board Member) $0 $0 $0
S Jacinda Whyte (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending June
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,544,189
Expenses
$1,643,730
Net Income
-$99,541
Net Assets
$1,363,687
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,514,210
98.1%
Program Services $115,045
7.5%
Investment Income $43,646
2.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$143,255
Sales of Assets $18,511
1.2%
Net Inventory Sales -$3,968
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $226,022
13.8%
Professional Fundraising Fees $0
Other Salaries and Wages $647,102
39.4%
Assets/Debt
Total Assets $1,745,584
Total Liabilities $381,897
Net Assets $1,363,687
Compensation
Key Employees and Officers Compensation Related Other
Tracy Smith Hart (Chief Executive Officer) $184,852 $0 $20,908
Cameron R Penn (President) $0 $0 $0
Kara Ayers (Vice President) $0 $0 $0
Christine Rossi (Secretary) $0 $0 $0
Ted Trahan (Treasurer) $0 $0 $0
Kenneth W Gudek (Immediate Past President) $0 $0 $0
Michele Burka (Board Member) $0 $0 $0
James M Early (Board Member) $0 $0 $0
Brett Eisenberg (Board Member) $0 $0 $0
Kenneth Finkel (Board Member) $0 $0 $0
Francis Glorieux (Board Member) $0 $0 $0
Eric Gould (Board Member) $0 $0 $0
Joe Hall (Board Member) $0 $0 $0
Sharon Mutnick (Board Member) $0 $0 $0
Laura Tosi (Board Member) $0 $0 $0
S Jacinda Whyte (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending June
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,835,341
Expenses
$2,109,750
Net Income
-$274,409
Net Assets
$1,496,703
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,659,231
90.4%
Program Services $0
Investment Income $42,952
2.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $134,231
7.3%
Net Inventory Sales -$1,073
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $218,703
10.4%
Professional Fundraising Fees $0
Other Salaries and Wages $622,706
29.5%
Assets/Debt
Total Assets $1,768,258
Total Liabilities $271,555
Net Assets $1,496,703
Compensation
Key Employees and Officers Compensation Related Other
Tracy Smith Hart (Chief Executive Officer) $183,382 $0 $30,026
Marcial T Costanzo (Director Of Finance) $113,085 $0 $5,634
Eric Gould (Board Member) $0 $0 $0
Kenneth W Gudek Sr (President) $0 $0 $0
Joe Hall (Board Member) $0 $0 $0
Ted Trahan (Treasurer) $0 $0 $0
Kara B Ayers Phd (Secretary) $0 $0 $0
Brett Eisenberg (Board Member) $0 $0 $0
Sharon Mutnick (Board Member) $0 $0 $0
S Jacinta Whyte (Board Member) $0 $0 $0
Christine Rossi (Board Member) $0 $0 $0
Michele Burka (Board Member) $0 $0 $0
Cameron R Penn (First Vice President) $0 $0 $0
Francis Glorieux Oc Md Phd (Chairman Medical Advisory Committee) $0 $0 $0
Ken Finkel (Board Member) $0 $0 $0
Laura Tosi Md (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending June
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,691,980
Expenses
$1,667,141
Net Income
$24,839
Net Assets
$1,839,479
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,485,493
87.8%
Program Services $0
Investment Income $42,137
2.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $162,640
9.6%
Net Inventory Sales $1,710
0.1%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $206,373
12.4%
Professional Fundraising Fees $0
Other Salaries and Wages $551,917
33.1%
Assets/Debt
Total Assets $2,287,475
Total Liabilities $447,996
Net Assets $1,839,479

Document Links

Fiscal Year Ending June
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,751,152
Expenses
$1,948,774
Net Income
-$197,622
Net Assets
$1,883,995
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,532,881
87.5%
Program Services $80,689
4.6%
Investment Income $37,809
2.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $98,073
5.6%
Net Inventory Sales $1,700
0.1%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $210,147
10.8%
Professional Fundraising Fees $0
Other Salaries and Wages $560,575
28.8%
Assets/Debt
Total Assets $2,311,968
Total Liabilities $427,973
Net Assets $1,883,995

Document Links

Fiscal Year Ending June
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,348,513
Expenses
$1,665,159
Net Income
-$316,646
Net Assets
$2,035,739
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,263,238
93.7%
Program Services $0
Investment Income $46,248
3.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $37,269
2.8%
Net Inventory Sales $1,758
0.1%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $209,510
12.6%
Professional Fundraising Fees $0
Other Salaries and Wages $562,976
33.8%
Assets/Debt
Total Assets $2,489,056
Total Liabilities $453,317
Net Assets $2,035,739

Document Links

Fiscal Year Ending June
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,798,883
Expenses
$1,711,381
Net Income
$87,502
Net Assets
$2,397,280
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,612,358
89.6%
Program Services $0
Investment Income $40,090
2.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $141,990
7.9%
Net Inventory Sales $4,445
0.2%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $179,468
10.5%
Professional Fundraising Fees $0
Other Salaries and Wages $502,092
29.3%
Assets/Debt
Total Assets $2,703,753
Total Liabilities $306,473
Net Assets $2,397,280

Document Links

Fiscal Year Ending June
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,336,777
Expenses
$1,415,602
Net Income
-$78,825
Net Assets
$2,384,768
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,204,935
90.1%
Program Services $0
Investment Income $42,937
3.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $88,028
6.6%
Net Inventory Sales $877
0.1%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $181,890
12.8%
Professional Fundraising Fees $0
Other Salaries and Wages $494,174
34.9%
Assets/Debt
Total Assets $2,700,159
Total Liabilities $315,391
Net Assets $2,384,768

Document Links

Fiscal Year Ending June
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,449,492
Expenses
$1,652,475
Net Income
-$202,983
Net Assets
$2,302,378
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,362,661
94.0%
Program Services $0
Investment Income $42,547
2.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $41,166
2.8%
Net Inventory Sales $3,118
0.2%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $173,998
10.5%
Professional Fundraising Fees $0
Other Salaries and Wages $460,614
27.9%
Assets/Debt
Total Assets $2,561,113
Total Liabilities $258,735
Net Assets $2,302,378

Document Links

Fiscal Year Ending June
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,558,328
Expenses
$1,464,888
Net Income
$93,440
Net Assets
$2,314,307
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,452,624
93.2%
Program Services $0
Investment Income $44,785
2.9%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $53,535
3.4%
Net Inventory Sales $7,384
0.5%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $158,605
10.8%
Professional Fundraising Fees $0
Other Salaries and Wages $444,709
30.4%
Assets/Debt
Total Assets $2,762,282
Total Liabilities $447,975
Net Assets $2,314,307

Document Links

Fiscal Year Ending June
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,594,218
Expenses
$1,623,512
Net Income
-$29,294
Net Assets
$2,259,109
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,458,571
91.5%
Program Services $58,023
3.6%
Investment Income $44,473
2.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $24,047
1.5%
Net Inventory Sales $9,104
0.6%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $148,739
9.2%
Professional Fundraising Fees $0
Other Salaries and Wages $478,897
29.5%
Assets/Debt
Total Assets $2,600,850
Total Liabilities $341,741
Net Assets $2,259,109

Document Links

Fiscal Year Ending June
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending June
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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