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Spina Bifida Association Of Greater New England Inc

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Nerve, Muscle and Bone Diseases (G55Z) (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$277k (2024)

Expenses
$267k (2024)

Total Assets
$162k (2024)

Total Liabilities
$26k (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$276,967
Expenses
$266,672
Net Income
$10,295
Net Assets
$136,204
Notable Sources of Revenue Percent of Total Revenue
Contributions $289,959
> 100%
Program Services $0
Investment Income $930
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$14,719
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $797
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $76,998
28.9%
Professional Fundraising Fees $0
Other Salaries and Wages $23,347
8.8%
Assets/Debt
Total Assets $162,251
Total Liabilities $26,047
Net Assets $136,204
Compensation
Key Employees and Officers Compensation Related Other
Jean Bertschmann (Executive Director) $75,070 $0 $0
Amie Richards (Immediate Past Chair) $0 $0 $0
Nicol Hernandez (Chair) $0 $0 $0
Nathan Bellerose (Chair Elect) $0 $0 $0
Brendan Sullivan (Treasurer) $0 $0 $0
Linda Long Bellil (Secretary) $0 $0 $0
Alex Danahy (Director) $0 $0 $0
Amy Bois (Director) $0 $0 $0
Ashley Birch (Director) $0 $0 $0
Francesca Wood (Director) $0 $0 $0
Jim Elliott (Director) $0 $0 $0
Kim Farrell (Director) $0 $0 $0
Parker Smith (Director) $0 $0 $0
Steve Hornsby (Director) $0 $0 $0
Tom Bodden (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$261,683
Expenses
$232,283
Net Income
$29,400
Net Assets
$125,909
Notable Sources of Revenue Percent of Total Revenue
Contributions $272,823
> 100%
Program Services $0
Investment Income $141
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$11,721
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $440
0.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $72,256
31.1%
Professional Fundraising Fees $0
Other Salaries and Wages $17,801
7.7%
Assets/Debt
Total Assets $156,391
Total Liabilities $30,482
Net Assets $125,909
Compensation
Key Employees and Officers Compensation Related Other
Jean Bertschmann (Executive Director) $72,478 $0 $0
Brendan Sullivan (Treasurer) $0 $0 $0
Amie Richards (Chair) $0 $0 $0
Jamie Curtis (Secretary) $0 $0 $0
Linda Long Bellil (Chair Elect) $0 $0 $0
Ashley Birch (Director) $0 $0 $0
Jennifer Leidner (Director) $0 $0 $0
Nathan Bellerose (Director) $0 $0 $0
Tom Bodden (Director) $0 $0 $0
Steve Hornsby (Director) $0 $0 $0
Andrew White (Director) $0 $0 $0
Lena Williamson (Former Director) $0 $0 $0
Alex Danahy (Director) $0 $0 $0
Jim Elliott (Director) $0 $0 $0
Nicol Hernandez (Director) $0 $0 $0
Jan Terlaje (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$226,254
Expenses
$253,131
Net Income
-$26,877
Net Assets
$96,509
Notable Sources of Revenue Percent of Total Revenue
Contributions $236,061
> 100%
Program Services $0
Investment Income $51
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$11,254
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,396
0.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $69,875
27.6%
Professional Fundraising Fees $0
Other Salaries and Wages $33,839
13.4%
Assets/Debt
Total Assets $104,984
Total Liabilities $8,475
Net Assets $96,509
Compensation
Key Employees and Officers Compensation Related Other
Jean Bertschmann (Executive Director) $69,875 $0 $0
Amy Bois (Immediate Past Chair) $0 $0 $0
Brendan Sullivan (Treasurer) $0 $0 $0
Amie Richards (Chair) $0 $0 $0
Jamie Curtis (Secretary) $0 $0 $0
Linda Long Bellil (Chair Elect) $0 $0 $0
Ashley Birch (Director) $0 $0 $0
Jennifer Leidner (Director) $0 $0 $0
Nathan Bellerose (Director) $0 $0 $0
Tom Bodden (Director) $0 $0 $0
Steve Hornsby (Director) $0 $0 $0
Andrew White (Director) $0 $0 $0
Lena Williamson (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$225,839
Expenses
$207,711
Net Income
$18,128
Net Assets
$123,386
Notable Sources of Revenue Percent of Total Revenue
Contributions $228,604
> 100%
Program Services $0
Investment Income $64
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$7,737
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $4,908
2.2%
Notable Expenses Percent of Total Expenses
Executive Compensation $64,021
30.8%
Professional Fundraising Fees $0
Other Salaries and Wages $31,063
15.0%
Assets/Debt
Total Assets $134,182
Total Liabilities $10,796
Net Assets $123,386
Compensation
Key Employees and Officers Compensation Related Other
Jean Bertschmann (Executive Director) $64,020 $0 $0
Amy Bois (Chair) $0 $0 $0
Brendan Sullivan (Treasurer) $0 $0 $0
John Wendell (Clerk) $0 $0 $0
Amie Richards (Chair Elect) $0 $0 $0
Jamie Curtis (Director) $0 $0 $0
Lauren Dyer (Director) $0 $0 $0
Linda Long Bellil (Director) $0 $0 $0
Enock Glidden (Director) $0 $0 $0
Mary Holleran (Director) $0 $0 $0
Ashley Birch (Director) $0 $0 $0
Sarah Haywood (Director) $0 $0 $0
Kristin Marquis (Director) $0 $0 $0
Jennifer Leidner (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$174,338
Expenses
$181,100
Net Income
-$6,762
Net Assets
$105,066
Notable Sources of Revenue Percent of Total Revenue
Contributions $185,226
> 100%
Program Services $0
Investment Income $49
0.0%
Net Fundraising -$11,772
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $835
0.5%
Assets/Debt
Total Assets $118,158
Total Liabilities $13,092
Net Assets $105,066
Compensation
Key Employees and Officers Compensation Other
Jean Bertschmann (Executive Director) $52,963 $0
Amy Bois (Chair) $0 $0
Brendan Sullivan (Treasurer) $0 $0
John Wendell (Clerk) $0 $0
Jason Paynich (Chair Elect) $0 $0
Amie Richards (Director) $0 $0
Dr Robert Burke (Director) $0 $0
Linda Long Bellil (Director) $0 $0
Virginia Briggs Neal (Immediate Past Chair) $0 $0
Dan Holleran (Director) $0 $0
Ashley Birch (Director) $0 $0
Sarah Haywood (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$203,715
Expenses
$172,624
Net Income
$31,091
Net Assets
$111,828
Notable Sources of Revenue Percent of Total Revenue
Contributions $223,105
> 100%
Program Services $0
Investment Income $36
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$19,426
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $50,545
29.3%
Professional Fundraising Fees $0
Other Salaries and Wages $27,902
16.2%
Assets/Debt
Total Assets $126,512
Total Liabilities $14,684
Net Assets $111,828
Compensation
Key Employees and Officers Compensation Related Other
Jean Bertschmann (Executive Director) $25,192 $0 $0
Kirk Joslin (Former Interim Executive Director) $18,922 $0 $0
Andrew Vacca (Former Executive Director) $8,842 $0 $0
Amy Bois (Vice Chair) $0 $0 $0
Brendan Sullivan (Treasurer) $0 $0 $0
John Wendell (Clerk) $0 $0 $0
Jason Paynich (Director) $0 $0 $0
Amie Richards (Director) $0 $0 $0
Dr Bob Burke (Director) $0 $0 $0
Linda Long Bellil (Director) $0 $0 $0
Virginia Briggs (Board Chair) $0 $0 $0
Dan Holleran (Director) $0 $0 $0
Aimee Williamson (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$152,869
Expenses
$143,188
Net Income
$9,681
Net Assets
$80,738
Notable Sources of Revenue Percent of Total Revenue
Contributions $152,832
100.0%
Program Services $0
Investment Income $37
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $93,452
Total Liabilities $12,714
Net Assets $80,738
Compensation
Key Employees and Officers Compensation Other
Andrew Vacca (Exec Dir) $36,539 $0
Amy Bois (Vice Chair) $0 $0
Brendan Sullivan (Treasurer) $0 $0
Emily Cooke (Director) $0 $0
John Wendell (Clerk) $0 $0
Jason Paynich (Director) $0 $0
Fiona Paul (Director) $0 $0
Dr Bob Burke (Director) $0 $0
Santara Sen (Director) $0 $0
Virginia Briggs (Board Chair) $0 $0
Dan Holleran (Director) $0 $0
Amy Williamson (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$167,441
Expenses
$176,846
Net Income
-$9,405
Net Assets
$71,057
Notable Sources of Revenue Percent of Total Revenue
Contributions $166,894
99.7%
Program Services $500
0.3%
Investment Income $47
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $77,111
Total Liabilities $6,054
Net Assets $71,057
Compensation
Key Employees and Officers Compensation Other
Ellen Heffernan Dugan (Fmr. Exec. D) $34,615 $0
Andrew Vacca (Executive Di) $11,449 $0
Emily Cooke (Director) $0 $0
Ashok Vichare (Director) $0 $0
Jason Paynich (Clerk) $0 $0
Fiona Paul (Director) $0 $0
Linda Long Bellil (Treasurer) $0 $0
Abigail Bordeaux (Director) $0 $0
Aimee Williamson (Director) $0 $0
Ginny Briggs (Vice Chair) $0 $0
Rebecca Sherlock (Chair) $0 $0
John Wendell (Director) $0 $0
Aimee Williamson (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$155,708
Expenses
$177,979
Net Income
-$22,271
Net Assets
$80,462
Notable Sources of Revenue Percent of Total Revenue
Contributions $155,638
100.0%
Program Services $0
Investment Income $70
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $90,192
Total Liabilities $9,730
Net Assets $80,462
Compensation
Key Employees and Officers Compensation Other
Ellen Heffernan Dugan (Executive Di) $59,415 $0
Emily Cooke (Director) $0 $0
Shannon Cutter (Director) $0 $0
Jason Paynich (Clerk) $0 $0
Stuart Bauer (Director) $0 $0
Linda Long Bellil (Treasurer) $0 $0
Abigail Bordeaux (Director) $0 $0
Aimee Williamson (Director) $0 $0
Ginny Briggs (Vice Chair) $0 $0
Rebecca Sherlock (Chair) $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$169,797
Expenses
$163,517
Net Income
$6,280
Net Assets
$102,733
Notable Sources of Revenue Percent of Total Revenue
Contributions $169,708
99.9%
Program Services $0
Investment Income $89
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $121,236
Total Liabilities $18,503
Net Assets $102,733
Compensation
Key Employees and Officers Compensation Other
Ellen Heffernan Dugan (Executive Di) $50,241 $5,303
Emily Cooke (Director) $0 $0
Shannon Cutter (Director) $0 $0
Barbara Lee (Chair) $0 $0
Stuart Bauer (Director) $0 $0
Linda Long Bellil (Treasurer) $0 $0
Ashley Robinson (Director) $0 $0
Stefan Gagnon (Director) $0 $0
Ginny Briggs (Clerk) $0 $0
Rebecca Sherlock (Vice Chair) $0 $0
Jessica Guest (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$172,312
Expenses
$201,688
Net Income
-$29,376
Net Assets
$96,453
Notable Sources of Revenue Percent of Total Revenue
Contributions $172,206
99.9%
Program Services $0
Investment Income $106
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $103,437
Total Liabilities $6,984
Net Assets $96,453
Compensation
Key Employees and Officers Compensation Other
Ellen Heffernan Dugan (Executive Di) $54,443 $4,895
Emily Cooke (Director) $0 $0
Jan Terlaje (Director) $0 $0
Barbara Lee (Chair) $0 $0
Stuart Bauer (Director) $0 $0
Linda Long Bellil (Treasurer) $0 $0
Ashley Robinson (Director) $0 $0
Stefan Gagnon (Director) $0 $0
Ginny Briggs (Clerk) $0 $0
Rebecca Sherlock (Vice Chair) $0 $0
Jessica Guest (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$193,023
Expenses
$177,122
Net Income
$15,901
Net Assets
$125,829
Notable Sources of Revenue Percent of Total Revenue
Contributions $192,843
99.9%
Program Services $0
Investment Income $180
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $142,647
Total Liabilities $16,818
Net Assets $125,829
Compensation
Key Employees and Officers Compensation Other
Ellen Heffernan Dugan (Executive Di) $44,829 $0
Emily Cooke (Director) $0 $0
Matt Neal (Chair) $0 $0
Barbara Lee (Vice Chair) $0 $0
Stuart Bauer (Director) $0 $0
Linda Long Bellil (Director) $0 $0
Jen Fitz Roy (Director) $0 $0
Brandon Casten (Treasurer) $0 $0
Karen Sites (Director) $0 $0
Rebecca Sherlock (Clerk) $0 $0
Jessica Guest (Director) $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$152,347
Expenses
$186,114
Net Income
-$33,767
Net Assets
$109,928
Notable Sources of Revenue Percent of Total Revenue
Contributions $152,170
99.9%
Program Services $0
Investment Income $177
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $113,928
Total Liabilities $4,000
Net Assets $109,928

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$141,468
Expenses
$172,597
Net Income
-$31,129
Net Assets
$143,695
Notable Sources of Revenue Percent of Total Revenue
Contributions $141,282
99.9%
Program Services $0
Investment Income $186
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $151,042
Total Liabilities $7,347
Net Assets $143,695

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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  • Raw filing data. Includes EINs and summary financials as structured data.
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