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New Jersey Rett Syndrome Association

  • Freehold, NJ
  • Tax-exempt since Dec. 2008
  • EIN: 26-1359425

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Specifically Named Diseases Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$29.8k (2024)

Expenses
$5.71k (2024)

Total Assets
$63.2k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending June
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$29,783
Expenses
$5,705
Net Income
$24,078
Net Assets
$63,152
Notable Sources of Revenue Percent of Total Revenue
Contributions $15,273
51.3%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $14,510
48.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $63,152
Total Liabilities $0
Net Assets $63,152
Compensation
Key Employees and Officers Compensation Related Other
Carla Benetatos (Trustee) $0 $0 $0
Robin Diamond (Treasurer) $0 $0 $0
Leslie Greenfield (Exec. Direct) $0 $0 $0
Carl Raso Md (Trustee) $0 $0 $0
Steve Medlin (Trustee) $0 $0 $0
Gerard Saydah (Trustee) $0 $0 $0
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Document Links

990
Filed on May 13, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending June
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$21,485
Expenses
$45,829
Net Income
-$24,344
Net Assets
$39,074
Notable Sources of Revenue Percent of Total Revenue
Contributions $21,485
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $39,074
Total Liabilities $0
Net Assets $39,074
Compensation
Key Employees and Officers Compensation Related Other
Carla Benetatos (Trustee) $0 $0 $0
Robin Diamond (Treasurer) $0 $0 $0
Leslie Greenfield (Exec. Direct) $0 $0 $0
Carl Raso Md (Trustee) $0 $0 $0
Steve Medlin (Trustee) $0 $0 $0
Gerard Saydah (Trustee) $0 $0 $0
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Document Links

990
Filed on May 10, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending June
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$56,958
Expenses
$62,199
Net Income
-$5,241
Net Assets
$63,418
Notable Sources of Revenue Percent of Total Revenue
Contributions $45,548
80.0%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $11,410
20.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $63,418
Total Liabilities $0
Net Assets $63,418
Compensation
Key Employees and Officers Compensation Related Other
Carla Benetatos (Trustee) $0 $0 $0
Robin Diamond (Treasurer) $0 $0 $0
Leslie Greenfield (Exec. Direct) $0 $0 $0
Carl Raso Md (Trustee) $0 $0 $0
Steve Medlin (Trustee) $0 $0 $0
Gerard Saydah (Trustee) $0 $0 $0
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Document Links

990
Filed on May 15, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending June
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$55,470
Expenses
$74,873
Net Income
-$19,403
Net Assets
$68,659
Notable Sources of Revenue Percent of Total Revenue
Contributions $23,174
41.8%
Program Services $0
Investment Income $63
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $32,233
58.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $68,659
Total Liabilities $0
Net Assets $68,659
Compensation
Key Employees and Officers Compensation Related Other
Leslie Greenfield (Exec. Direct) $0 $0 $0
Steve Medlin (Trustee) $0 $0 $0
Sharon Lutz Hornaday Mswlswcps (Trustee) $0 $0 $0
Robin Diamond (Treasurer) $0 $0 $0
James E Wark Md (Vice Pres) $0 $0 $0
Kapila Seshadri Md (President) $0 $0 $0
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Document Links

990
Filed on May 13, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending June
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$81,939
Expenses
$75,977
Net Income
$5,962
Net Assets
$88,062
Notable Sources of Revenue Percent of Total Revenue
Contributions $30,666
37.4%
Program Services $0
Investment Income $64
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $51,209
62.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $88,062
Total Liabilities $0
Net Assets $88,062

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$71,815
Expenses
$65,707
Net Income
$6,108
Net Assets
$82,100
Notable Sources of Revenue Percent of Total Revenue
Contributions $35,176
49.0%
Program Services $0
Investment Income $61
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $36,578
50.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $82,100
Total Liabilities $0
Net Assets $82,100

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$68,099
Expenses
$62,833
Net Income
$5,266
Net Assets
$75,992
Notable Sources of Revenue Percent of Total Revenue
Contributions $39,830
58.5%
Program Services $53
0.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $28,216
41.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $75,992
Total Liabilities $0
Net Assets $75,992

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$68,069
Expenses
$60,740
Net Income
$7,329
Net Assets
$70,726
Notable Sources of Revenue Percent of Total Revenue
Contributions $30,879
45.4%
Program Services $0
Investment Income $42
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $37,148
54.6%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $70,726
Total Liabilities $0
Net Assets $70,726

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$60,631
Expenses
$61,769
Net Income
-$1,138
Net Assets
$63,397
Notable Sources of Revenue Percent of Total Revenue
Contributions $26,212
43.2%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $34,419
56.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $64,697
Total Liabilities $1,300
Net Assets $63,397

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$64,935
Expenses
$8,462
Net Income
$56,473
Net Assets
$64,535
Notable Sources of Revenue Percent of Total Revenue
Contributions $27,250
42.0%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $37,685
58.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $65,835
Total Liabilities $1,300
Net Assets $64,535

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$67,363
Expenses
$71,388
Net Income
-$4,025
Net Assets
$8,062
Notable Sources of Revenue Percent of Total Revenue
Contributions $23,773
35.3%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $43,590
64.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $9,362
Total Liabilities $1,300
Net Assets $8,062

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$57,351
Expenses
$73,405
Net Income
-$16,054
Net Assets
$12,087
Notable Sources of Revenue Percent of Total Revenue
Contributions $68,026
> 100%
Program Services $0
Investment Income $9
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$10,684
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $13,387
Total Liabilities $1,300
Net Assets $12,087

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$62,946
Expenses
$136,127
Net Income
-$73,181
Net Assets
$28,141
Notable Sources of Revenue Percent of Total Revenue
Contributions $84,832
> 100%
Program Services $0
Investment Income $13
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$21,899
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $29,441
Total Liabilities $1,300
Net Assets $28,141

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$102,745
Expenses
$45,129
Net Income
$57,616
Net Assets
$101,322
Notable Sources of Revenue Percent of Total Revenue
Contributions $102,941
> 100%
Program Services $0
Investment Income $20
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$216
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $101,822
Total Liabilities $500
Net Assets $101,322

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending June
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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