Skip to content
ProPublica Donate
ProPublica Donate

Wake Up Narcolepsy Inc

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Specifically Named Diseases (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$535k (2022)

Expenses
$499k (2022)

Total Assets
$642k (2022)

Total Liabilities
$25.5k (2022)

Source: Form 990 tax filings from 2011 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$535,258
Expenses
$499,286
Net Income
$35,972
Net Assets
$616,737
Notable Sources of Revenue Percent of Total Revenue
Contributions $534,040
99.8%
Program Services $0
Investment Income $1,218
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $77,083
15.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $642,220
Total Liabilities $25,483
Net Assets $616,737
Compensation
Key Employees and Officers Compensation Related Other
Monica Gow (Executive Director) $70,000 $0 $0
Deborah Pollock (Director Of Philanthropy) $7,083 $0 $0
Gordon Gow (President And Ceo) $0 $0 $0
David Gow (Director) $0 $0 $0
Anne Samarawickrama (Director) $0 $0 $0
Nicole Jeray (Director) $0 $0 $0
Kevin Guckian (Treasurer) $0 $0 $0
Kelsey Biddle (Director) $0 $0 $0
Mary Beth Guckian (Board Chair) $0 $0 $0
Gregg Levethan (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$498,207
Expenses
$340,001
Net Income
$158,206
Net Assets
$580,548
Notable Sources of Revenue Percent of Total Revenue
Contributions $498,207
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $57,840
17.0%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $596,931
Total Liabilities $16,383
Net Assets $580,548
Compensation
Key Employees and Officers Compensation Related Other
Claire Crisp (Former Executive Director) $59,929 $0 $0
Lindsay Jesteadt (Director Of Development) $47,500 $0 $0
Gordon Gow (Board Member Emeritus) $0 $0 $0
David Gow (Director) $0 $0 $0
Anne Samarawickrama (Director) $0 $0 $0
Nicole Jeray (Director) $0 $0 $0
Kevin Guckian (Treasurer) $0 $0 $0
Monica Gow (Executive Director) $0 $0 $0
Tamara Smith (Director And Secretary) $0 $0 $0
Kelsey Biddle (Director) $0 $0 $0
Mary Beth Guckian (Chair) $0 $0 $0
Gregg Levethan (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$453,917
Expenses
$289,823
Net Income
$164,094
Net Assets
$422,342
Notable Sources of Revenue Percent of Total Revenue
Contributions $453,917
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $62,500
21.6%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $435,669
Total Liabilities $13,327
Net Assets $422,342
Compensation
Key Employees and Officers Compensation Related Other
Claire Crisp (Executive Director) $72,000 $0 $0
Lindsay Jesteadt (Director Of Development) $62,500 $0 $0
Gordon Gow (Board Member Emeritus) $0 $0 $0
David Gow (Director) $0 $0 $0
Anne Samarawickrama (Director) $0 $0 $0
Nicole Jeray (Director) $0 $0 $0
Kevin Guckian (Treasurer) $0 $0 $0
Jeff Nouhan (Secretary) $0 $0 $0
Monica Gow (Chair) $0 $0 $0
Tamara Smith (Director) $0 $0 $0
Kelsey Biddle (Director) $0 $0 $0
Mary Beth Guckian (Vice Chair) $0 $0 $0
Gregg Levethan (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$373,279
Expenses
$452,228
Net Income
-$78,949
Net Assets
$258,248
Notable Sources of Revenue Percent of Total Revenue
Contributions $358,125
95.9%
Program Services $15,154
4.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $63,102
14.0%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $259,796
Total Liabilities $1,548
Net Assets $258,248
Compensation
Key Employees and Officers Compensation Related Other
Claire Crisp (Executive Director) $68,644 $0 $0
Lindsay Jesteadt (Director Of Development) $52,458 $0 $0
Anne Samarawickrama (Director) $0 $0 $0
Nicole Jeray (Director) $0 $0 $0
Kevin Guckian (Treasurer) $0 $0 $0
Jeff Nouhan (Secretary) $0 $0 $0
Monica Gow (Chair) $0 $0 $0
Tammy Smith (Director) $0 $0 $0
Kelsey Biddle (Director) $0 $0 $0
Gordon Gow (Board Member Emeritus) $0 $0 $0
David Gow (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$462,139
Expenses
$380,963
Net Income
$81,176
Net Assets
$337,197
Notable Sources of Revenue Percent of Total Revenue
Contributions $446,517
96.6%
Program Services $15,622
3.4%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $37,301
9.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $337,797
Total Liabilities $600
Net Assets $337,197
Compensation
Key Employees and Officers Compensation Related Other
Claire Crisp (Executive Director) $59,543 $0 $0
Lindsay Jesteadt (Director Of Development) $31,466 $0 $0
Anne Samarawickrama (Director) $0 $0 $0
Nicole Jeray (Director) $0 $0 $0
Kevin Guckian (Treasurer) $0 $0 $0
Jeff Nouhan (Director) $0 $0 $0
Suzanne Rispoli (Director) $0 $0 $0
Monica Gow (Chair) $0 $0 $0
Julea Steiner (Director) $0 $0 $0
Tammy Smith (Director) $0 $0 $0
Gordon Gow (Board Member Emeritus) $0 $0 $0
David Gow (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$199,332
Expenses
$159,947
Net Income
$39,385
Net Assets
$256,021
Notable Sources of Revenue Percent of Total Revenue
Contributions $194,240
97.4%
Program Services $5,092
2.6%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $257,733
Total Liabilities $1,712
Net Assets $256,021
Compensation
Key Employees and Officers Compensation Related Other
Anne Samarawickrama (Director) $0 $0 $0
Nicole Jeray (Director) $0 $0 $0
Kevin Guckian (Director) $0 $0 $0
Jeff Nouhan (Director) $0 $0 $0
Suzanne Rispoli (Director) $0 $0 $0
Monica Gow (Director) $0 $0 $0
Julea Steiner (Director) $0 $0 $0
Tammy Smith (Director) $0 $0 $0
Gordon Gow (Board Member Emeritus) $0 $0 $0
David Gow (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$250,479
Expenses
$165,217
Net Income
$85,262
Net Assets
$216,636
Notable Sources of Revenue Percent of Total Revenue
Contributions $213,647
85.3%
Program Services $25,367
10.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $11,465
4.6%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $216,636
Total Liabilities $0
Net Assets $216,636
Compensation
Key Employees and Officers Compensation Related Other
Anne Samarawickrama (Board Member) $0 $0 $0
Nicole Jeray (Vice President) $0 $0 $0
Kim Grady (Director) $0 $0 $0
Kevin Guckian (Treasurer) $0 $0 $0
Jeff Nouhan (Clerk) $0 $0 $0
Suzanne Rispoli (Director) $0 $0 $0
Rose Marie Brook (Director) $0 $0 $0
Gordon Gow (Director) $0 $0 $0
Laura Fabrizio (President) $0 $0 $0
David Gow (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$315,476
Expenses
$282,033
Net Income
$33,443
Net Assets
$131,374
Notable Sources of Revenue Percent of Total Revenue
Contributions $246,713
78.2%
Program Services $61,903
19.6%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $6,860
2.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $2,906
1.0%
Assets/Debt
Total Assets $131,374
Total Liabilities $0
Net Assets $131,374
Compensation
Key Employees and Officers Compensation Related Other
Julie Frasher (Board Member) $0 $0 $0
Kim Grady (Board Member) $0 $0 $0
Anne Samarawickrama (Board Member) $0 $0 $0
Gordon Gow (President) $0 $0 $0
Monica Gow (Executive Director) $0 $0 $0
Laura Fabrizio (Vice Chair) $0 $0 $0
David Gow (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$507,196
Expenses
$545,966
Net Income
-$38,770
Net Assets
$97,931
Notable Sources of Revenue Percent of Total Revenue
Contributions $410,275
80.9%
Program Services $91,929
18.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $4,992
1.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $89,250
16.3%
Assets/Debt
Total Assets $111,758
Total Liabilities $13,827
Net Assets $97,931
Compensation
Key Employees and Officers Compensation Related Other
Tabitha Crawford (Board Member) $0 $0 $0
Kevin J Cosgrove (President) $0 $0 $0
Monica Gow (Executive Director) $0 $0 $0
Sean R Higgins (Secretary) $0 $0 $0
David Gow (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$389,189
Expenses
$410,236
Net Income
-$21,047
Net Assets
$136,701
Notable Sources of Revenue Percent of Total Revenue
Contributions $306,607
78.8%
Program Services $27,587
7.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $54,995
14.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $7,083
1.7%
Assets/Debt
Total Assets $136,701
Total Liabilities $0
Net Assets $136,701
Compensation
Key Employees and Officers Compensation Related Other
Tabitha Crawford (Board Member) $0 $0 $0
Kevin J Cosgrove (President) $0 $0 $0
Monica Gow (Executive Director) $0 $0 $0
Sean R Higgins (Secretary) $0 $0 $0
David Gow (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$303,876
Expenses
$166,176
Net Income
$137,700
Net Assets
$157,748
Notable Sources of Revenue Percent of Total Revenue
Contributions $241,459
79.5%
Program Services $11,849
3.9%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $50,568
16.6%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $157,748
Total Liabilities $0
Net Assets $157,748

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$65,678
Expenses
$69,438
Net Income
-$3,760
Net Assets
$20,048
Notable Sources of Revenue Percent of Total Revenue
Contributions $79,049
> 100%
Program Services $0
Investment Income $0
Net Fundraising -$13,371
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $20,048
Total Liabilities $0
Net Assets $20,048

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »