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Fibrolamellar Cancer Foundation

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Nonmonetary Support N.E.C. (NTEE)

Donations to this organization are tax deductible.

Details

According to its Dec. 2022 tax filing, this nonprofit:

Operated a donor-advised fund
Organization maintained a donor-advised fund or similar account through which donors could direct the distribution or investment of funds. Details are reported on Schedule D.

Summary charts: organization finances over time

Revenue
$6.08M (2022)

Expenses
$2.56M (2022)

Total Assets
$11M (2022)

Total Liabilities
$1.71M (2022)

Source: Form 990 tax filings from 2011 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$6,076,635
Expenses
$2,563,688
Net Income
$3,512,947
Net Assets
$9,273,502
Notable Sources of Revenue Percent of Total Revenue
Contributions $6,073,580
99.9%
Program Services $0
Investment Income $3,055
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $200,000
7.8%
Professional Fundraising Fees $0
Other Salaries and Wages $286,543
11.2%
Assets/Debt
Total Assets $10,981,422
Total Liabilities $1,707,920
Net Assets $9,273,502
Other
Operated a donor-advised fund
Compensation
Key Employees and Officers Compensation Related Other
John Hopper (President (Thru 9/30/22)) $200,000 $0 $31,391
Dr Mark Furth (Scientific Director) $159,650 $0 $16,079
Marna O Davis (Co Chairperson) $0 $0 $0
Charles W Beerman (Director) $0 $0 $0
Derek Gilchrist (Director, Secretary) $0 $0 $0
Anne Adler (Director) $0 $0 $0
John Craig (Director) $0 $0 $0
Tal Friedman (Director) $0 $0 $0
Charles A Davis (Co Chairperson) $0 $0 $0
Leslie Graves (Treasurer) $0 $0 $0
Craig Martin (Director) $0 $0 $0
Kurt Losert (Ceo (From 10/4/22)) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$4,041,093
Expenses
$1,865,036
Net Income
$2,176,057
Net Assets
$6,061,159
Notable Sources of Revenue Percent of Total Revenue
Contributions $4,039,921
100.0%
Program Services $0
Investment Income $3,726
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$13,296
Sales of Assets $10,742
0.3%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $211,500
11.3%
Professional Fundraising Fees $0
Other Salaries and Wages $227,122
12.2%
Assets/Debt
Total Assets $7,664,472
Total Liabilities $1,603,313
Net Assets $6,061,159
Other
Operated a donor-advised fund
Compensation
Key Employees and Officers Compensation Related Other
John Hopper (President) $211,500 $0 $20,307
Dr Mark Furth (Director) $159,650 $0 $6,750
Marna O Davis (Chairperson) $0 $0 $0
Charles W Beerman (Director) $0 $0 $0
Derek Gilchrist (Director, Secretary) $0 $0 $0
Alisha Sternenberger (Director) $0 $0 $0
Anne Adler (Director) $0 $0 $0
John Craig (Director) $0 $0 $0
Tal Friedman (Director) $0 $0 $0
Charles A Davis (Director) $0 $0 $0
David J Wermuth (Director) $0 $0 $0
Leslie Graves (Treasurer) $0 $0 $0
Craig Martin (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,841,395
Expenses
$2,741,615
Net Income
-$900,220
Net Assets
$3,555,046
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,838,453
99.8%
Program Services $0
Investment Income $2,942
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $199,522
7.3%
Professional Fundraising Fees $0
Other Salaries and Wages $216,630
7.9%
Assets/Debt
Total Assets $5,395,682
Total Liabilities $1,840,636
Net Assets $3,555,046
Other
Operated a donor-advised fund
Compensation
Key Employees and Officers Compensation Related Other
John Hopper (President) $199,522 $0 $22,821
Dr Mark Furth (Director) $157,412 $0 $6,608
Marna O Davis (Chai Rperson) $0 $0 $0
Charles W Beerman (Director) $0 $0 $0
Derek Gilchrist (Director, Secretary) $0 $0 $0
Alisha Sternenberger (Director) $0 $0 $0
Anne Adler (Director) $0 $0 $0
John Craig (Director) $0 $0 $0
Tal Friedman (Director) $0 $0 $0
Charles A Davis (Director) $0 $0 $0
David J Wermuth (Director) $0 $0 $0
Leslie Graves (Treasurer) $0 $0 $0
Craig Martin (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,772,024
Expenses
$1,757,184
Net Income
$14,840
Net Assets
$4,275,160
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,802,375
> 100%
Program Services $0
Investment Income $3,185
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$37,111
Sales of Assets $3,575
0.2%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $168,667
9.6%
Professional Fundraising Fees $0
Other Salaries and Wages $200,678
11.4%
Assets/Debt
Total Assets $5,019,229
Total Liabilities $744,069
Net Assets $4,275,160
Compensation
Key Employees and Officers Compensation Related Other
John Hopper (President) $168,667 $0 $25,904
Dr Mark Furth (Director) $150,000 $0 $5,184
Marna O Davis (Chai Rperson) $0 $0 $0
Charles W Beerman (Director) $0 $0 $0
Derek Gilchrist (Director, Secretary) $0 $0 $0
Alisha Sternenberger (Director) $0 $0 $0
Anne Adler (Director) $0 $0 $0
John Craig (Director) $0 $0 $0
Tal Friedman (Director) $0 $0 $0
Charles A Davis (Director) $0 $0 $0
David J Wermuth (Director) $0 $0 $0
Leslie Graves (Treasurer) $0 $0 $0
Craig Martin (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,712,900
Expenses
$1,073,035
Net Income
$639,865
Net Assets
$4,168,654
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,719,733
> 100%
Program Services $0
Investment Income $3,106
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$9,507
Sales of Assets -$432
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $178,000
16.6%
Professional Fundraising Fees $0
Other Salaries and Wages $67,601
6.3%
Assets/Debt
Total Assets $4,969,117
Total Liabilities $800,463
Net Assets $4,168,654
Compensation
Key Employees and Officers Compensation Related Other
John Hopper (President) $178,000 $0 $23,454
Marna O Davis (Chai Rperson) $0 $0 $0
Charles W Beermann (Director) $0 $0 $0
Derek Gilchrist (Director, Secretary) $0 $0 $0
Alisha Sternenberger (Director) $0 $0 $0
Anne Adler (Director) $0 $0 $0
John Craig (Director) $0 $0 $0
Tal Friedman (Director) $0 $0 $0
Charles A Davis (Director) $0 $0 $0
David J Wermuth (Director) $0 $0 $0
Leslie Graves (Treasurer) $0 $0 $0
Craig Martin (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,606,246
Expenses
$801,271
Net Income
$804,975
Net Assets
$3,258,781
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,609,707
> 100%
Program Services $0
Investment Income $2,658
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$12,218
Sales of Assets $6,099
0.4%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $170,000
21.2%
Professional Fundraising Fees $0
Other Salaries and Wages $27,737
3.5%
Assets/Debt
Total Assets $4,471,719
Total Liabilities $1,212,938
Net Assets $3,258,781
Compensation
Key Employees and Officers Compensation Related Other
John Hopper (President) $170,000 $0 $19,601
Marna O Davis (Chairwoman, President) $0 $0 $0
Charles W Beermann (Director) $0 $0 $0
Derek Gilchrist (Director, Secretary) $0 $0 $0
Alisha Sternenberger (Director) $0 $0 $0
Anne Adler (Director) $0 $0 $0
John Craig (Director) $0 $0 $0
Tal Friedman (Director) $0 $0 $0
Charles A Davis (Director) $0 $0 $0
David J Wermuth (Director) $0 $0 $0
Leslie Graves (Treasurer) $0 $0 $0
Craig Martin (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,525,060
Expenses
$2,314,245
Net Income
-$789,185
Net Assets
$1,969,122
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,529,179
> 100%
Program Services $0
Investment Income $4,700
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$9,079
Sales of Assets $260
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $160,000
6.9%
Professional Fundraising Fees $0
Other Salaries and Wages $21,056
0.9%
Assets/Debt
Total Assets $3,692,767
Total Liabilities $1,723,645
Net Assets $1,969,122
Compensation
Key Employees and Officers Compensation Related Other
John Hopper (Executive Director) $160,000 $0 $15,977
Marna O Davis (Chairwoman, President) $0 $0 $0
Charles W Beermann (Director) $0 $0 $0
Derek Gilchrist (Director, Secretary) $0 $0 $0
Alisha Sternenberger (Director) $0 $0 $0
Anne Adler (Director) $0 $0 $0
John Craig (Director) $0 $0 $0
Tal Friedman (Director) $0 $0 $0
Charles A Davis (Director) $0 $0 $0
David J Wermuth (Director) $0 $0 $0
Leslie Graves (Treasurer) $0 $0 $0
Craig Martin (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,372,976
Expenses
$625,566
Net Income
$747,410
Net Assets
$2,566,937
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,379,099
> 100%
Program Services $0
Investment Income $5,011
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$11,134
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $102,500
16.4%
Professional Fundraising Fees $0
Other Salaries and Wages $19,113
3.1%
Assets/Debt
Total Assets $3,336,386
Total Liabilities $769,449
Net Assets $2,566,937
Compensation
Key Employees and Officers Compensation Related Other
John Hopper (Executive Director) $90,000 $0 $12,288
William Beermann (Director, Vp, Treasurer) $12,500 $0 $0
Marna O Davis (Chairwoman, President) $0 $0 $0
Charles W Beermann (Director) $0 $0 $0
Derek Gilchrist (Director, Secretary) $0 $0 $0
Alisha Sternenberger (Director) $0 $0 $0
Anne Adler (Director) $0 $0 $0
John Craig (Director) $0 $0 $0
Tal Friedman (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,113,398
Expenses
$916,340
Net Income
$197,058
Net Assets
$1,818,312
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,163,124
> 100%
Program Services $0
Investment Income $3,125
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$52,758
Sales of Assets -$93
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $37,500
4.1%
Professional Fundraising Fees $0
Other Salaries and Wages $5,075
0.6%
Assets/Debt
Total Assets $2,596,182
Total Liabilities $777,870
Net Assets $1,818,312
Compensation
Key Employees and Officers Compensation Related Other
William Beermann (Director, Vp, Treasurer) $37,500 $0 $4,708
Marna O Davis (Chairwoman, President) $0 $0 $0
Charles W Beermann (Director) $0 $0 $0
Derek Gilchrist (Director, Secretary) $0 $0 $0
Alisha Sternenberger (Director) $0 $0 $0
Anne Adler (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$868,526
Expenses
$962,993
Net Income
-$94,467
Net Assets
$1,614,574
Notable Sources of Revenue Percent of Total Revenue
Contributions $868,397
100.0%
Program Services $0
Investment Income $129
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $37,500
3.9%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $2,064,271
Total Liabilities $449,697
Net Assets $1,614,574
Compensation
Key Employees and Officers Compensation Related Other
William Beermann (Director, Vp, Treasurer) $37,500 $0 $2,779
Marna O Davis (Chairwoman, President) $0 $0 $0
Charles W Beermann (Director) $0 $0 $0
Derek Gilchrist (Director, Secretary) $0 $0 $0
Alisha Sternenberger (Director) $0 $0 $0
Anne Adler (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$863,678
Expenses
$98,758
Net Income
$764,920
Net Assets
$1,709,041
Notable Sources of Revenue Percent of Total Revenue
Contributions $863,537
100.0%
Program Services $0
Investment Income $131
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $10
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $37,500
38.0%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,721,200
Total Liabilities $12,159
Net Assets $1,709,041

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$818,362
Expenses
$401,162
Net Income
$417,200
Net Assets
$944,121
Notable Sources of Revenue Percent of Total Revenue
Contributions $818,360
100.0%
Program Services $0
Investment Income $2
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $44,698
11.1%
Assets/Debt
Total Assets $1,208,407
Total Liabilities $264,286
Net Assets $944,121

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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  • Raw filing data. Includes EINs and summary financials as structured data.
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  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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