International Restless Legs Syndrome Study Group Foundation

  • Rochester, MN
  • Tax-exempt since Jan. 2011
  • EIN: 27-1611756

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Educational Institutions and Related Activities / Educational Services and Schools - Other (NTEE)

Donations to this organization are tax deductible.

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$12,315
Expenses
$40,212
Net Income
-$27,897
Net Assets
$176,552
Notable Sources of Revenue Percent of Total Revenue
Contributions $10,117
82.2%
Program Services $0
Investment Income $2,198
17.8%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $176,552
Total Liabilities $0
Net Assets $176,552
Compensation
Key Employees and Officers Compensation Other
Allan Obryan (Director) $0 $0
John Winkelman (President) $0 $0
Mauro Manconi (Vice President) $0 $0
Ambra Stefani (Secretary) $0 $0
Shelley Zak (Treasurer) $0 $0
Cornelius Bachmann (Director) $0 $0
Gulcin Benbir Senel (Director) $0 $0
Christopher Earley (Director) $0 $0
Maria Paola Mogavero (Director) $0 $0
Ravi Gupta (Director) $0 $0
Yuichi Inoue (Director) $0 $0
Ki Young Jung (Director) $0 $0
Elias Karroum (Director) $0 $0
Karem Parejo (Director) $0 $0
Denise Sharon (Director) $0 $0
Rosalia Silvestri (Director) $0 $0
Oli Polo (Director) $0 $0
Fang Han (Director) $0 $0
K Ray Chaudhuri (Director) $0 $0
David Anguizola (Director) $0 $0
Murat Aksu (Director) $0 $0
Ghulam Mastafa (Director) $0 $0
Stefan Clemens (Director) $0 $0
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Document Links

990-EZ
Filed on Nov. 14, 2025

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$17,560
Expenses
$66,708
Net Income
-$49,148
Net Assets
$217,216
Notable Sources of Revenue Percent of Total Revenue
Contributions $17,083
97.3%
Program Services $0
Investment Income $477
2.7%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $219,817
Total Liabilities $2,601
Net Assets $217,216
Compensation
Key Employees and Officers Compensation Other
Allan O'bryan (Administrato) $0 $0
Diego Garcia Borreguero (Chairperson) $0 $0
Richard Allen (Past Chairpe) $0 $0
Shelly Zak (Treasurer) $0 $0
Birgit Hogl (Secretary) $0 $0
Cornelius Bachmann (Director) $0 $0
Federica Provini (Director) $0 $0
Denise Sharon (Director) $0 $0
Art Walters (Director) $0 $0
Juliane Winkelmann (Director) $0 $0
Roselyne Rijsman (Director) $0 $0
Yuichi Inoue (Director) $0 $0
Shon Swieca (Director) $0 $0
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990-EZ
Filed on Nov. 15, 2019

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$62,624
Expenses
$33,459
Net Income
$29,165
Net Assets
$266,363
Notable Sources of Revenue Percent of Total Revenue
Contributions $700
1.1%
Program Services $0
Investment Income $61,924
98.9%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $266,363
Total Liabilities $0
Net Assets $266,363
Compensation
Key Employees and Officers Compensation Other
Allan O'bryan (Administrato) $0 $0
Diego Garcia Borreguero (Chairperson) $0 $0
Richard Allen (Past Chairpe) $0 $0
Shelly Zak (Treasurer) $0 $0
Birgit Hogl (Secretary) $0 $0
Cornelius Bachmann (Director) $0 $0
Federica Provini (Director) $0 $0
Denise Sharon (Director) $0 $0
Art Walters (Director) $0 $0
Juliane Winkelmann (Director) $0 $0
Roselyne Rijsman (Director) $0 $0
Yuichi Inoue (Director) $0 $0
Shon Swieca (Director) $0 $0
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990-EZ
Filed on Nov. 16, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$94,345
Expenses
$53,599
Net Income
$40,746
Net Assets
$237,198
Notable Sources of Revenue Percent of Total Revenue
Contributions $0
Program Services $20,000
21.2%
Investment Income $74,345
78.8%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $244,198
Total Liabilities $7,000
Net Assets $237,198
Compensation
Key Employees and Officers Compensation Other
Allan O'bryan (Administrato) $15,600 $0
Diego Garcia Borreguero (Chairperson) $0 $0
Richard Allen (Past Chairpe) $0 $0
Shelly Zak (Treasurer) $0 $0
Birgit Hogl (Secretary) $0 $0
Cornelius Bachmann (Director) $0 $0
Federica Provini (Director) $0 $0
Denise Sharon (Director) $0 $0
Art Walters (Director) $0 $0
Juliane Winkelmann (Director) $0 $0
Roselyne Rijsman (Director) $0 $0
Yuichi Inoue (Director) $0 $0
Shon Swieca (Director) $0 $0
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990-EZ
Filed on Nov. 15, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$180,671
Expenses
$281,698
Net Income
-$101,027
Net Assets
$196,452
Notable Sources of Revenue Percent of Total Revenue
Contributions $0
Program Services $162,776
90.1%
Investment Income $439
0.2%
Bond Proceeds $0
Royalties $17,456
9.7%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $15,600
5.5%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $206,312
Total Liabilities $9,860
Net Assets $196,452
Compensation
Key Employees and Officers Compensation Related Other
Allan O'bryan (Administrato) $15,600 $0 $0
Diego Garcia Borreguero (Chairperson) $0 $0 $0
Richard Allen (Past Chairpe) $0 $0 $0
Shelly Zak (Treasurer) $0 $0 $0
Birgit Hogl (Secretary) $0 $0 $0
Cornelius Bachmann (Director) $0 $0 $0
Federica Provini (Director) $0 $0 $0
Denise Sharon (Director) $0 $0 $0
Art Walters (Director) $0 $0 $0
Juliane Winkelmann (Director) $0 $0 $0
Roselyne Rijsman (Director) $0 $0 $0
Yuichi Inoue (Director) $0 $0 $0
Richard Allen (Director) $0 $0 $0
Shon Swieca (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$59,351
Expenses
$64,432
Net Income
-$5,081
Net Assets
$297,479
Notable Sources of Revenue Percent of Total Revenue
Contributions $29,281
49.3%
Program Services $0
Investment Income $641
1.1%
Bond Proceeds $0
Royalties $29,429
49.6%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $13,800
21.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $297,479
Total Liabilities $0
Net Assets $297,479
Compensation
Key Employees and Officers Compensation Related Other
Richard P Allen (Past Chair) $0 $0 $0
Diego Garcia Borreguero (Chair) $0 $0 $0
Birgit Hogl (Secretary) $0 $0 $0
Shelly Zak (Treasurer) $0 $0 $0
Allan Obryan (Administrator) $0 $0 $0
Marco Zucconi (Vice Chair) $0 $0 $0
Raffaele Ferri (Director) $0 $0 $0
Rosalia Silvestri (Director) $0 $0 $0
Claudia Trenkwalder (Director) $0 $0 $0
Arthur Walters (Director) $0 $0 $0
John Winkelman (Director) $0 $0 $0
Juliane Winklemann (Director) $0 $0 $0
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990
Filed on Nov. 16, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$127,110
Expenses
$58,811
Net Income
$68,299
Net Assets
$302,560
Notable Sources of Revenue Percent of Total Revenue
Contributions $58,500
46.0%
Program Services $0
Investment Income $868
0.7%
Bond Proceeds $0
Royalties $67,742
53.3%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $12,000
20.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $307,560
Total Liabilities $5,000
Net Assets $302,560
Compensation
Key Employees and Officers Compensation Related Other
Allan Obryan (Administrator) $12,000 $0 $0
Richard P Allen (Past Chair) $0 $0 $0
Diego Garcia Borreguero (Chair) $0 $0 $0
Birgit Hogl (Secretary) $0 $0 $0
Shelly Zak (Treasurer) $0 $0 $0
Marco Zucconi (Vice Chair) $0 $0 $0
Raffaele Ferri (Director) $0 $0 $0
Rosalia Silvestri (Director) $0 $0 $0
Claudia Trenkwalder (Director) $0 $0 $0
Arthur Walters (Director) $0 $0 $0
John Winkelman (Director) $0 $0 $0
Juliane Winklemann (Director) $0 $0 $0
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990
Filed on Aug. 3, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$168,320
Expenses
$73,627
Net Income
$94,693
Net Assets
$234,261
Notable Sources of Revenue Percent of Total Revenue
Contributions $69,415
41.2%
Program Services $0
Investment Income $866
0.5%
Bond Proceeds $0
Royalties $98,039
58.2%
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $10,900
14.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $234,261
Total Liabilities $0
Net Assets $234,261

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$97,284
Expenses
$49,839
Net Income
$47,445
Net Assets
$139,568
Notable Sources of Revenue Percent of Total Revenue
Contributions $96,699
99.4%
Program Services $0
Investment Income $585
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $5,400
10.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $139,568
Total Liabilities $0
Net Assets $139,568

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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