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Orphan Disease Pathway Project

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Specifically Named Diseases Research (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$1.7M (2022)

Expenses
$2.19M (2022)

Total Assets
$79.4k (2022)

Total Liabilities
$23.5k (2022)

Source: Form 990 tax filings from 2011 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,702,639
Expenses
$2,185,270
Net Income
-$482,631
Net Assets
$55,880
Notable Sources of Revenue Percent of Total Revenue
Contributions $750,561
44.1%
Program Services $0
Investment Income $2
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $951,969
55.9%
Sales of Assets $107
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $79,380
Total Liabilities $23,500
Net Assets $55,880
Compensation
Key Employees and Officers Compensation Related Other
George A Weiss (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$210,632
Expenses
$4,698
Net Income
$205,934
Net Assets
$538,511
Notable Sources of Revenue Percent of Total Revenue
Contributions $210,630
100.0%
Program Services $0
Investment Income $2
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $538,511
Total Liabilities $0
Net Assets $538,511
Compensation
Key Employees and Officers Compensation Related Other
George A Weiss (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,479,904
Expenses
$1,734,442
Net Income
-$254,538
Net Assets
$332,577
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,057,210
71.4%
Program Services $0
Investment Income $3
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $422,470
28.5%
Sales of Assets $221
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $356,177
Total Liabilities $23,600
Net Assets $332,577
Compensation
Key Employees and Officers Compensation Related Other
George A Weiss (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$170,603
Expenses
$4,095
Net Income
$166,508
Net Assets
$600,115
Notable Sources of Revenue Percent of Total Revenue
Contributions $170,600
100.0%
Program Services $0
Investment Income $3
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $600,115
Total Liabilities $0
Net Assets $600,115
Compensation
Key Employees and Officers Compensation Related Other
George A Weiss (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,712,042
Expenses
$2,536,076
Net Income
$175,966
Net Assets
$433,607
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,204,863
81.3%
Program Services $0
Investment Income $5
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $507,047
18.7%
Sales of Assets $127
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $453,607
Total Liabilities $20,000
Net Assets $433,607
Compensation
Key Employees and Officers Compensation Related Other
George A Weiss (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$130,501
Expenses
$1,428
Net Income
$129,073
Net Assets
$270,642
Notable Sources of Revenue Percent of Total Revenue
Contributions $130,500
100.0%
Program Services $0
Investment Income $1
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $270,642
Total Liabilities $0
Net Assets $270,642
Compensation
Key Employees and Officers Compensation Related Other
George A Weiss (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,489,353
Expenses
$1,464,266
Net Income
$25,087
Net Assets
$141,569
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,248,461
83.8%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $240,892
16.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $160,569
Total Liabilities $19,000
Net Assets $141,569
Compensation
Key Employees and Officers Compensation Related Other
George A Weiss (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$36,185
Expenses
$21,092
Net Income
$15,093
Net Assets
$46,232
Notable Sources of Revenue Percent of Total Revenue
Contributions $36,180
100.0%
Program Services $0
Investment Income $5
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $153,857
Total Liabilities $107,625
Net Assets $46,232
Compensation
Key Employees and Officers Compensation Related Other
George A Weiss (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$858,974
Expenses
$948,057
Net Income
-$89,083
Net Assets
$31,139
Notable Sources of Revenue Percent of Total Revenue
Contributions $722,305
84.1%
Program Services $0
Investment Income $40
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $136,629
15.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $31,139
Total Liabilities $0
Net Assets $31,139
Compensation
Key Employees and Officers Compensation Related Other
George A Weiss (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$125,786
Expenses
$11,096
Net Income
$114,690
Net Assets
$120,222
Notable Sources of Revenue Percent of Total Revenue
Contributions $125,700
99.9%
Program Services $0
Investment Income $86
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $120,222
Total Liabilities $0
Net Assets $120,222
Compensation
Key Employees and Officers Compensation Related Other
George A Weiss (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$75,361
Expenses
$81,800
Net Income
-$6,439
Net Assets
$5,532
Notable Sources of Revenue Percent of Total Revenue
Contributions $75,302
99.9%
Program Services $0
Investment Income $59
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $5,532
Total Liabilities $0
Net Assets $5,532

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$304,016
Expenses
$299,639
Net Income
$4,377
Net Assets
$11,971
Notable Sources of Revenue Percent of Total Revenue
Contributions $303,700
99.9%
Program Services $0
Investment Income $316
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $11,971
Total Liabilities $0
Net Assets $11,971

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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