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Rothmund Thomson Syndrome Foundation

  • Chantilly, VA
  • Tax-exempt since April 2010
  • EIN: 30-0585106

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Fund Raising and/or Fund Distribution (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$48k (2024)

Expenses
$53.1k (2024)

Total Assets
$54.6k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2013 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Sept.
2024

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$47,972
Expenses
$53,063
Net Income
-$5,091
Net Assets
$54,636
Notable Sources of Revenue Percent of Total Revenue
Contributions $32,835
68.4%
Program Services $0
Investment Income $0
Net Fundraising $15,057
31.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $80
0.2%
Assets/Debt
Total Assets $54,636
Total Liabilities $0
Net Assets $54,636
Compensation
Key Employees and Officers Compensation Other
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Sylvie Plante (Secretary) $0 $0
Sean Mc Murray (Director) $0 $0
Sheila Townsend (Directer) $0 $0
Staci Hanson (Chair) $0 $0
Kara Hanson (Director) $0 $0
Bekkah Blankers (Director) $0 $0
Tamara Madsen (Director) $0 $0
Austin Kimmel (Director) $0 $0
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Document Links

990-EZ
Filed on Dec. 30, 2024

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Sept.
2023

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$60,413
Expenses
$64,542
Net Income
-$4,129
Net Assets
$59,727
Notable Sources of Revenue Percent of Total Revenue
Contributions $34,872
57.7%
Program Services $0
Investment Income $0
Net Fundraising $25,466
42.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $75
0.1%
Assets/Debt
Total Assets $59,727
Total Liabilities $0
Net Assets $59,727
Compensation
Key Employees and Officers Compensation Other
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Sylvie Plante (Secretary) $0 $0
Sean Mc Murray (Director) $0 $0
Sheila Townsend (Directer) $0 $0
Staci Hanson (Chair) $0 $0
Kara Hanson (Director) $0 $0
Bekkah Blankers (Director) $0 $0
Tamara Madsen (Director) $0 $0
Austin Kimmel (Director) $0 $0
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990-EZ
Filed on Nov. 28, 2023

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2022

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$77,171
Expenses
$93,501
Net Income
-$16,330
Net Assets
$63,856
Notable Sources of Revenue Percent of Total Revenue
Contributions $57,168
74.1%
Program Services $0
Investment Income $0
Net Fundraising $19,938
25.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $65
0.1%
Assets/Debt
Total Assets $63,856
Total Liabilities $0
Net Assets $63,856
Compensation
Key Employees and Officers Compensation Other
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Ta Tara Rideau (Secretary) $0 $0
Emil Zakutny (Chair) $0 $0
Sheila Townsend (Directer) $0 $0
Staci Hanson (Director) $0 $0
Kara Hanson (Director) $0 $0
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990-EZ
Filed on Jan. 6, 2023

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Sept.
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$85,876
Expenses
$52,387
Net Income
$33,489
Net Assets
$80,186
Notable Sources of Revenue Percent of Total Revenue
Contributions $61,557
71.7%
Program Services $0
Investment Income $0
Net Fundraising $24,159
28.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $160
0.2%
Assets/Debt
Total Assets $80,186
Total Liabilities $0
Net Assets $80,186
Compensation
Key Employees and Officers Compensation Other
John Kimmel (Chair) $0 $0
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Ta Tara Rideau (Secretary) $0 $0
Emil Zakutny (Director) $0 $0
Sheila Townsend (Directer) $0 $0
Staci Hanson (Director) $0 $0
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990-EZ
Filed on Nov. 19, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Sept.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$65,900
Expenses
$51,191
Net Income
$14,709
Net Assets
$46,697
Notable Sources of Revenue Percent of Total Revenue
Contributions $60,399
91.7%
Program Services $0
Investment Income $0
Net Fundraising $5,382
8.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $119
0.2%
Assets/Debt
Total Assets $46,697
Total Liabilities $0
Net Assets $46,697
Compensation
Key Employees and Officers Compensation Other
John Kimmel (Chair) $0 $0
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Ta Tara Rideau (Secretary) $0 $0
Emil Zakutny (Director) $0 $0
Sheila Townsend (Directer) $0 $0
+ View more people

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990-EZ
Filed on Jan. 11, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$42,456
Expenses
$59,431
Net Income
-$16,975
Net Assets
$31,988
Notable Sources of Revenue Percent of Total Revenue
Contributions $31,548
74.3%
Program Services $0
Investment Income $0
Net Fundraising $10,840
25.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $68
0.2%
Assets/Debt
Total Assets $31,988
Total Liabilities $0
Net Assets $31,988
Compensation
Key Employees and Officers Compensation Other
John Kimmel (Chair) $0 $0
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Ta Tara Rideau (Secretary) $0 $0
Emil Zakutny (Director) $0 $0
Sheila Townsend (Directer) $0 $0
+ View more people

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990-EZ
Filed on Dec. 30, 2019

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$30,021
Expenses
$32,359
Net Income
-$2,338
Net Assets
$48,963
Notable Sources of Revenue Percent of Total Revenue
Contributions $15,834
52.7%
Program Services $0
Investment Income $0
Net Fundraising $14,020
46.7%
Sales of Assets $0
Net Inventory Sales $167
0.6%
Other Revenue $0
Assets/Debt
Total Assets $48,963
Total Liabilities $0
Net Assets $48,963
Compensation
Key Employees and Officers Compensation Other
John Kimmel (Chair) $0 $0
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Ta Tara Rideau (Secretary) $0 $0
Emil Zakutny (Director) $0 $0
Sheila Townsend (Directer) $0 $0
+ View more people

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990-EZ
Filed on Nov. 7, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$34,675
Expenses
$36,215
Net Income
-$1,540
Net Assets
$51,226
Notable Sources of Revenue Percent of Total Revenue
Contributions $12,542
36.2%
Program Services $0
Investment Income $0
Net Fundraising $16,329
47.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $5,804
16.7%
Assets/Debt
Total Assets $51,226
Total Liabilities $0
Net Assets $51,226
Compensation
Key Employees and Officers Compensation Other
John Kimmel (Chair) $0 $0
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Ta Tara Rideau (Secretary) $0 $0
Emil Zakutny (Director) $0 $0
Komilla Chadha (Director) $0 $0
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990-EZ
Filed on Jan. 9, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Sept.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$27,205
Expenses
$50,225
Net Income
-$23,020
Net Assets
$52,766
Notable Sources of Revenue Percent of Total Revenue
Contributions $11,367
41.8%
Program Services $0
Investment Income $0
Net Fundraising $15,838
58.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $52,766
Total Liabilities $0
Net Assets $52,766
Compensation
Key Employees and Officers Compensation Other
John Kimmel (Chair) $0 $0
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Ta Tara Rideau (Secretary) $0 $0
Emil Zakutny (Director) $0 $0
Peter Chadha (Director) $0 $0
+ View more people

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990-EZ
Filed on Jan. 28, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$24,795
Expenses
$6,491
Net Income
$18,304
Net Assets
$75,786
Notable Sources of Revenue Percent of Total Revenue
Contributions $8,357
33.7%
Program Services $0
Investment Income $0
Net Fundraising $16,438
66.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $75,786
Total Liabilities $0
Net Assets $75,786
Compensation
Key Employees and Officers Compensation Other
John Kimmel (Chair) $0 $0
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Ta Tara Rideau (Secretary) $0 $0
Emil Zakutny (Director) $0 $0
Peter Chadha (Director) $0 $0
Gillian O'reilly (Director) $0 $0
+ View more people

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990-EZ
Filed on Jan. 25, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$26,076
Expenses
$18,140
Net Income
$7,936
Net Assets
$57,482
Notable Sources of Revenue Percent of Total Revenue
Contributions $10,745
41.2%
Program Services $0
Investment Income $0
Net Fundraising $15,331
58.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $57,482
Total Liabilities $0
Net Assets $57,482
Compensation
Key Employees and Officers Compensation Other
John Kimmel (Chair) $0 $0
Laurie Sperou (Vice Chair) $0 $0
Shelley Sanders (Treasurer) $0 $0
Ta Tara Rideau (Secretary) $0 $0
Emil Zakutny (Director) $0 $0
Peter Chadha (Director) $0 $0
Gillian O'reilly (Director) $0 $0
Sandra Sperou (Director) $0 $0
+ View more people

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990-EZ
Filed on Jan. 18, 2015

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Sept.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$22,718
Expenses
$1,593
Net Income
$21,125
Net Assets
$49,546
Notable Sources of Revenue Percent of Total Revenue
Contributions $10,256
45.1%
Program Services $0
Investment Income $0
Net Fundraising $12,462
54.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $49,546
Total Liabilities $0
Net Assets $49,546

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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