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Nbia Disorders Association

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Professional Societies, Associations (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$241k (2024)

Expenses
$290k (2024)

Total Assets
$997k (2024)

Total Liabilities
$283k (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Sept.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$241,251
Expenses
$290,069
Net Income
-$48,818
Net Assets
$713,937
Notable Sources of Revenue Percent of Total Revenue
Contributions $225,799
93.6%
Program Services $0
Investment Income $15,297
6.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $155
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $87,292
30.1%
Professional Fundraising Fees $0
Other Salaries and Wages $52,679
18.2%
Assets/Debt
Total Assets $997,387
Total Liabilities $283,450
Net Assets $713,937
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (Former President) $63,959 $0 $0
Amber Denton (President) $23,333 $0 $0
Carolyn Banik (Treasurer) $0 $0 $0
Meg Talley Dyer (Vice President) $0 $0 $0
Matthew Ritzman (Secretary) $0 $0 $0
Sarah Doerr (Trustee) $0 $0 $0
Jeffrey Gartman (Trustee) $0 $0 $0
Vanessa Smith (Trustee) $0 $0 $0
Jennifer Sanchez (Trustee) $0 $0 $0
Jennifer Wildvank (Trustee) $0 $0 $0
Dr James Bourgeois (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$532,494
Expenses
$428,286
Net Income
$104,208
Net Assets
$762,754
Notable Sources of Revenue Percent of Total Revenue
Contributions $517,788
97.2%
Program Services $0
Investment Income $12,323
2.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,383
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $74,587
17.4%
Professional Fundraising Fees $0
Other Salaries and Wages $26,954
6.3%
Assets/Debt
Total Assets $918,162
Total Liabilities $155,408
Net Assets $762,754
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (Former President) $62,920 $0 $0
Amber Denton (President) $11,667 $0 $0
Carolyn Banik (Treasurer) $0 $0 $0
Meg Talley Dyer (Vice President) $0 $0 $0
Matthew Ritzman (Secretary) $0 $0 $0
Sarah Doerr (Trustee) $0 $0 $0
Jeffrey Gartman (Trustee) $0 $0 $0
Vanessa Smith (Trustee) $0 $0 $0
Jennifer Sanchez (Trustee) $0 $0 $0
Jennifer Wildvank (Trustee) $0 $0 $0
Dr James Bourgeois (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$276,389
Expenses
$267,629
Net Income
$8,760
Net Assets
$658,546
Notable Sources of Revenue Percent of Total Revenue
Contributions $276,079
99.9%
Program Services $0
Investment Income $310
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $57,200
21.4%
Professional Fundraising Fees $0
Other Salaries and Wages $22,866
8.5%
Assets/Debt
Total Assets $846,663
Total Liabilities $188,117
Net Assets $658,546
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (President) $53,733 $0 $0
Carolyn Banik (Trustee) $0 $0 $0
Jeff Gartman (Trustee) $0 $0 $0
Jennifer Sanchez (Trustee) $0 $0 $0
Vanessa Smith (Trustee) $0 $0 $0
Jennifer Wildvank (Trustee) $0 $0 $0
James Bourgeois (Trustee) $0 $0 $0
Sara Doerr (Trustee) $0 $0 $0
Amber Denton (Vice President) $0 $0 $0
Matthew Ritzman (Chair) $0 $0 $0
Mary Tapke (Secretary) $0 $0 $0
Richard Tifone (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$564,871
Expenses
$285,400
Net Income
$279,471
Net Assets
$649,786
Notable Sources of Revenue Percent of Total Revenue
Contributions $564,618
100.0%
Program Services $0
Investment Income $253
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $53,040
18.6%
Professional Fundraising Fees $0
Other Salaries and Wages $21,760
7.6%
Assets/Debt
Total Assets $786,180
Total Liabilities $136,394
Net Assets $649,786
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (President) $45,760 $0 $0
Mary Ann Roser (Vice President) $0 $0 $0
Veronica Bonfiglio (Trustee) $0 $0 $0
Kimberly Burke (Trustee) $0 $0 $0
James Bourgeois (Trustee) $0 $0 $0
Sara Doerr (Trustee) $0 $0 $0
Amber Denton (Trustee) $0 $0 $0
Stephanie Zhadkevich (Trustee) $0 $0 $0
Matthew Ritzman (Chair) $0 $0 $0
Mary Tapke (Secretary) $0 $0 $0
Richard Tifone (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$231,050
Expenses
$238,596
Net Income
-$7,546
Net Assets
$370,317
Notable Sources of Revenue Percent of Total Revenue
Contributions $230,671
99.8%
Program Services $0
Investment Income $377
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $2
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $48,686
20.4%
Professional Fundraising Fees $0
Other Salaries and Wages $33,463
14.0%
Assets/Debt
Total Assets $477,142
Total Liabilities $106,825
Net Assets $370,317
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (President) $49,595 $0 $0
Susan Laupola (Trustee) $0 $0 $0
Mary Ann Roser (Vice President) $0 $0 $0
Veronica Bonfiglio (Trustee) $0 $0 $0
Meg Talley Dyer (Trustee) $0 $0 $0
Kimberly Burke (Trustee) $0 $0 $0
James Bourgeois (Trustee) $0 $0 $0
Sara Doerr (Trustee) $0 $0 $0
Amber Denton (Trustee) $0 $0 $0
Stephanie Zhadkevich (Trustee) $0 $0 $0
Matthew Ritzman (Chair) $0 $0 $0
Erin Davis (Trustee) $0 $0 $0
Mary Tapke (Secretary) $0 $0 $0
Richard Tifone (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$315,788
Expenses
$367,191
Net Income
-$51,403
Net Assets
$377,863
Notable Sources of Revenue Percent of Total Revenue
Contributions $315,204
99.8%
Program Services $0
Investment Income $519
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $65
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $45,780
12.5%
Professional Fundraising Fees $0
Other Salaries and Wages $66,600
18.1%
Assets/Debt
Total Assets $538,549
Total Liabilities $160,686
Net Assets $377,863
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (President) $45,465 $0 $0
Susan Laupola (Trustee) $0 $0 $0
Mary Ann Roser (Vice President) $0 $0 $0
Veronica Bonfiglio (Trustee) $0 $0 $0
Meg Talley Dyer (Trustee) $0 $0 $0
Kimberly Burke (Trustee) $0 $0 $0
Pamela Craft (Trustee) $0 $0 $0
Sara Doerr (Trustee) $0 $0 $0
Kathryn Kadamus (Trustee) $0 $0 $0
Matthew Ritzman (Chair) $0 $0 $0
Erin Davis (Trustee) $0 $0 $0
Mary Tapke (Secretary) $0 $0 $0
Richard Tifone (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$361,690
Expenses
$488,749
Net Income
-$127,059
Net Assets
$429,268
Notable Sources of Revenue Percent of Total Revenue
Contributions $361,085
99.8%
Program Services $0
Investment Income $581
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $24
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $44,835
9.2%
Professional Fundraising Fees $0
Other Salaries and Wages $62,361
12.8%
Assets/Debt
Total Assets $619,259
Total Liabilities $189,991
Net Assets $429,268
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (President) $42,000 $0 $0
Richard Tifone (Treasurer) $0 $0 $0
Susan Laupola (Trustee) $0 $0 $0
Mary Ann Roser (Vice President) $0 $0 $0
Veronica Bonfiglio (Trustee) $0 $0 $0
Meg Talley Dyer (Chair) $0 $0 $0
Kimberly Burke (Trustee) $0 $0 $0
Pamela Craft (Trustee) $0 $0 $0
Ronda Inman (Trustee) $0 $0 $0
Kathryn Kadamus (Trustee) $0 $0 $0
Matthew Ritzman (Trustee) $0 $0 $0
Erin Davis (Trustee) $0 $0 $0
Mary Tapke (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$517,076
Expenses
$326,668
Net Income
$190,408
Net Assets
$556,326
Notable Sources of Revenue Percent of Total Revenue
Contributions $516,630
99.9%
Program Services $0
Investment Income $446
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $42,000
12.9%
Professional Fundraising Fees $0
Other Salaries and Wages $44,059
13.5%
Assets/Debt
Total Assets $676,371
Total Liabilities $120,045
Net Assets $556,326
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (President) $42,000 $0 $0
Mark Karakourtis (Trustee) $0 $0 $0
Richard Tifone (Trustee) $0 $0 $0
Susan Laupola (Trustee) $0 $0 $0
Mary Ann Roser (Vice President) $0 $0 $0
Veronica Bonfiglio (Trustee) $0 $0 $0
Meg Talley Dyer (Chairman) $0 $0 $0
Kimberly Burke (Trustee) $0 $0 $0
Pamela Craft (Trustee) $0 $0 $0
Melissa Woods (Treasurer) $0 $0 $0
Ronda Inman (Trustee) $0 $0 $0
Kathryn Kadamus (Trustee) $0 $0 $0
Matthew Ritzman (Trustee) $0 $0 $0
Mary Tapke (Secretary) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$411,198
Expenses
$256,860
Net Income
$154,338
Net Assets
$365,915
Notable Sources of Revenue Percent of Total Revenue
Contributions $410,814
99.9%
Program Services $0
Investment Income $384
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $47,869
18.6%
Professional Fundraising Fees $0
Other Salaries and Wages $38,855
15.1%
Assets/Debt
Total Assets $537,584
Total Liabilities $171,669
Net Assets $365,915
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (President) $66,250 $0 $0
Mark Karakourtis (Chair) $0 $0 $0
Mary Tapke (Secretary) $0 $0 $0
Richard Tifone (Treasurer) $0 $0 $0
Susan Laupola (Vice President) $0 $0 $0
Mary Ann Roser (Trustee) $0 $0 $0
Veronica Bonfiglio (Trustee) $0 $0 $0
Meg Talley Dyer (Trustee) $0 $0 $0
Megan Thomas (Trustee) $0 $0 $0
Melissa Woods (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$349,752
Expenses
$406,700
Net Income
-$56,948
Net Assets
$211,578
Notable Sources of Revenue Percent of Total Revenue
Contributions $349,163
99.8%
Program Services $0
Investment Income $589
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $62,679
15.4%
Professional Fundraising Fees $0
Other Salaries and Wages $27,513
6.8%
Assets/Debt
Total Assets $472,727
Total Liabilities $261,149
Net Assets $211,578
Other
Reported conflict of interest transactions
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (President) $51,027 $0 $0
Mark Karakourtis (Chair) $0 $0 $0
Mary Tapke (Secretary) $0 $0 $0
Richard Tifone (Trustee) $0 $0 $0
Susan Laupola (Vice President) $0 $0 $0
Mary Ann Roser (Trustee) $0 $0 $0
Veronica Bonfiglio (Trustee) $0 $0 $0
Richard Leap (Trustee) $0 $0 $0
Megan Thomas (Trustee) $0 $0 $0
Melissa Woods (Trustee) $0 $0 $0
Jeffrey Doerner (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$346,626
Expenses
$356,904
Net Income
-$10,278
Net Assets
$268,526
Notable Sources of Revenue Percent of Total Revenue
Contributions $345,968
99.8%
Program Services $0
Investment Income $658
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $32,517
9.1%
Professional Fundraising Fees $0
Other Salaries and Wages $24,964
7.0%
Assets/Debt
Total Assets $600,063
Total Liabilities $331,537
Net Assets $268,526
Compensation
Key Employees and Officers Compensation Related Other
Patricia V Wood (President) $11,367 $0 $0
Mark Karakourtis (Chair) $0 $0 $0
Mary Tapke (Secretary) $0 $0 $0
Richard Tifone (Trustee) $0 $0 $0
Susan Laupola (Vice President) $0 $0 $0
Mary Ann Roser (Trustee) $0 $0 $0
Veronica Bonfiglio (Trustee) $0 $0 $0
Richard Leap (Trustee) $0 $0 $0
Megan Thomas (Trustee) $0 $0 $0
Melissa Woods (Trustee) $0 $0 $0
Jeffrey Doerner (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$280,367
Expenses
$243,995
Net Income
$36,372
Net Assets
$278,803
Notable Sources of Revenue Percent of Total Revenue
Contributions $280,014
99.9%
Program Services $0
Investment Income $353
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $13,927
5.7%
Professional Fundraising Fees $0
Other Salaries and Wages $24,313
10.0%
Assets/Debt
Total Assets $510,308
Total Liabilities $231,505
Net Assets $278,803

Document Links

Fiscal Year Ending Sept.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$350,690
Expenses
$351,968
Net Income
-$1,278
Net Assets
$242,429
Notable Sources of Revenue Percent of Total Revenue
Contributions $349,948
99.8%
Program Services $0
Investment Income $742
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $480,442
Total Liabilities $238,013
Net Assets $242,429

Document Links

Fiscal Year Ending Sept.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$176,117
Expenses
$71,560
Net Income
$104,557
Net Assets
$243,707
Notable Sources of Revenue Percent of Total Revenue
Contributions $175,815
99.8%
Program Services $0
Investment Income $302
0.2%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $255,351
Total Liabilities $11,644
Net Assets $243,707

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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