Gorlin Syndrome Alliance

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Specifically Named Diseases (NTEE)

Donations to this organization are tax deductible.

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$489,524
Expenses
$430,424
Net Income
$59,100
Net Assets
$394,671
Notable Sources of Revenue Percent of Total Revenue
Contributions $480,996
98.3%
Program Services $0
Investment Income $10,499
2.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,971
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $133,265
31.0%
Professional Fundraising Fees $0
Other Salaries and Wages $174,855
40.6%
Assets/Debt
Total Assets $670,207
Total Liabilities $275,536
Net Assets $394,671
Compensation
Key Employees and Officers Compensation Related Other
Julia Breneiser (Executive Director) $84,517 $0 $7,612
Meredith Weiss (Executive Director) $41,136 $0 $0
Stacy Bissell (Director) $0 $0 $0
Taylor Hodge (Vice President) $0 $0 $0
Beth Spiegel (Treasurer) $0 $0 $0
Roni Rubenstein (Secretary) $0 $0 $0
Dr Jim Swift (Director) $0 $0 $0
Jenni Werkmeister (Director Rolled Off Board In June) $0 $0 $0
Kevin Gullatt (President Starting In March) $0 $0 $0
Michael Rainen (Director) $0 $0 $0
Samuel Breneiser (Director) $0 $0 $0
Dr Elena Hawryluk (Director) $0 $0 $0
Alix Alderman (Director Joined Board In Sep.) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$307,070
Expenses
$359,081
Net Income
-$52,011
Net Assets
$335,571
Notable Sources of Revenue Percent of Total Revenue
Contributions $293,741
95.7%
Program Services $12,056
3.9%
Investment Income $3,252
1.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$1,979
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $89,342
24.9%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $337,186
Total Liabilities $1,615
Net Assets $335,571
Compensation
Key Employees and Officers Compensation Related Other
Julia Breneiser (Executive Director) $74,996 $0 $14,347
Meredith Weiss (President) $0 $0 $0
Stacy Bissell (Vice President) $0 $0 $0
Taylor Hodge (Vice President) $0 $0 $0
Beth Spiegel (Treasurer) $0 $0 $0
Roni Rubenstein (Secretary) $0 $0 $0
Dr Jim Swift (Director) $0 $0 $0
Jenni Werkmeister (Director) $0 $0 $0
Kevin Gullatt (Director) $0 $0 $0
Michael Rainen (Director) $0 $0 $0
Samuel Breneiser (Director) $0 $0 $0
Dr Elena Hawryluk (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$503,388
Expenses
$302,326
Net Income
$201,062
Net Assets
$387,582
Notable Sources of Revenue Percent of Total Revenue
Contributions $501,827
99.7%
Program Services $1,561
0.3%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $94,756
31.3%
Professional Fundraising Fees $0
Other Salaries and Wages $38,077
12.6%
Assets/Debt
Total Assets $391,014
Total Liabilities $3,432
Net Assets $387,582
Compensation
Key Employees and Officers Compensation Related Other
Julia Breneiser (Executive Director) $74,996 $0 $19,680
Meredith Weiss (President) $0 $0 $0
Stacy Bissell (Vice President) $0 $0 $0
Beth Spiegel (Treasurer) $0 $0 $0
Roni Rubenstein (Secretary) $0 $0 $0
Dr Elena Hawryluk (Director) $0 $0 $0
Dr Jim Swift (Director) $0 $0 $0
Jenni Werkmeister (Director) $0 $0 $0
Kevin Gullatt (Director) $0 $0 $0
Michael Rainen (Director) $0 $0 $0
Samuel Breneiser (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990-PF
Revenue
$361,122
Expenses
$363,534
Net Income
-$2,412
Net Assets
$186,520
Notable Sources of Revenue Percent of Total Revenue
Contributions Received $361,122
100%
Interest Revenue $0
Dividends $0
Sales of Assets $0
Other Income $0
Notable Expenses Percent of Total Expenses
Charitable Disbursements $346,084
95.2%
Compensation of Officers* $75,615
20.8%
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.
Assets/Debt
Total Assets $216,745
Total Liabilities $30,225
Net Assets $186,520
Compensation
Key Employees and Officers Compensation Other
Julie Breneiser (Executive Director) $75,614 $21,312
Stacy Bissell (Trustee) $0 $0
Sam Breneiser (Treasurer) $0 $0
Kevin Gullatt (Trustee) $0 $0
Michael Rainen (Trustee) $0 $0
Roni Rubenstein (Secretary) $0 $0
Beth Spiegel (Vice President) $0 $0
Dr James Swift (Trustee) $0 $0
Meredith Weiss (President) $0 $0
Jenni Werkmeister (Trustee) $0 $0
Dr Elena Hawryluk (Trustee) $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$390,417
Expenses
$255,392
Net Income
$135,025
Net Assets
$188,932
Notable Sources of Revenue Percent of Total Revenue
Contributions $390,417
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $63,389
24.8%
Professional Fundraising Fees $0
Other Salaries and Wages $35,508
13.9%
Assets/Debt
Total Assets $201,655
Total Liabilities $12,723
Net Assets $188,932
Compensation
Key Employees and Officers Compensation Related Other
Julie Breneiser (Exec Director) $64,869 $0 $0
Meredith Weiss (President) $0 $0 $0
Kevin Gullatt (Trustee) $0 $0 $0
Roni Rubenstein (Secretary) $0 $0 $0
Beth Spiegel (Vice President) $0 $0 $0
John Wood (Trustee) $0 $0 $0
Jenni Werkmeister (Trustee) $0 $0 $0
Sam Breneiser (Treasurer) $0 $0 $0
Michael Rainen (Trustee) $0 $0 $0
James Swift Md (Trustee) $0 $0 $0
Stacy Bissell (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$262,683
Expenses
$295,833
Net Income
-$33,150
Net Assets
$24,188
Notable Sources of Revenue Percent of Total Revenue
Contributions $253,744
96.6%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $8,939
3.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $16,727
5.7%
Professional Fundraising Fees $0
Other Salaries and Wages $12,147
4.1%
Assets/Debt
Total Assets $32,342
Total Liabilities $8,154
Net Assets $24,188
Compensation
Key Employees and Officers Compensation Related Other
Julie Breneiser (Exec Director) $14,423 $0 $0
Meredith Weiss (President) $0 $0 $0
Kevin Gullatt (Treasurer) $0 $0 $0
Roni Rubenstein (Secretary) $0 $0 $0
Sam Breneiser (Trustee) $0 $0 $0
John Wood (Trustee) $0 $0 $0
Jenni Werkmeister (Trustee) $0 $0 $0
Lisa Tack (Trustee) $0 $0 $0
Michael Rainen (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$204,686
Expenses
$194,486
Net Income
$10,200
Net Assets
$57,338
Notable Sources of Revenue Percent of Total Revenue
Contributions $220,926
> 100%
Program Services $150
0.1%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets -$16,390
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $57,338
Total Liabilities $0
Net Assets $57,338

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$194,027
Expenses
$297,802
Net Income
-$103,775
Net Assets
$17,467
Notable Sources of Revenue Percent of Total Revenue
Contributions $193,977
100.0%
Program Services $0
Investment Income $50
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $77,350
Total Liabilities $59,883
Net Assets $17,467
Compensation
Key Employees and Officers Compensation Other
Bryant Bradley (Emeritus Trustee (Non Voting)) $0 $0
Abby Dockemeyer (Trustee) $0 $0
William Ginn (Emeritus Trustee (Non Voting)) $0 $0
Lisa Tack (Trustee) $0 $0
Jennifer Werkmeister (Trustee) $0 $0
Regan Brandt (Treasurer) $0 $0
Julie Breneiser (President, Trustee) $0 $0
Kathy Rainen (Vice President) $0 $0
Joyce Rancourt (Secretary) $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$220,131
Expenses
$197,078
Net Income
$23,053
Net Assets
$120,129
Notable Sources of Revenue Percent of Total Revenue
Contributions $220,105
100.0%
Program Services $0
Investment Income $26
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $65,985
33.5%
Professional Fundraising Fees $0
Other Salaries and Wages $35,896
18.2%
Assets/Debt
Total Assets $181,917
Total Liabilities $61,788
Net Assets $120,129
Compensation
Key Employees and Officers Compensation Related Other
William Ginn (Emeritus Trustee (Non Voting)) $0 $0 $0
Regan Brandt (Treasurer) $0 $0 $0
Bryant Bradley (Emeritus Trustee (Non Voting)) $0 $0 $0
Julia Breneiser (President, Trustee) $0 $0 $0
Kathy Rainen (Vice President) $0 $0 $0
Jennifer Werkmeisterapptd 2016 (Trustee) $0 $0 $0
Joyce Rancourt Appointed 2016 (Secretary) $0 $0 $0
Michael Rainen Resigned 2016 (Trustee) $0 $0 $0
Meredith Weiss Resigned 2016 (Trustee) $0 $0 $0
Kevin Gullatt Resigned 2016 (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$248,150
Expenses
$173,033
Net Income
$75,117
Net Assets
$97,076
Notable Sources of Revenue Percent of Total Revenue
Contributions $248,142
100.0%
Program Services $0
Investment Income $8
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $34,632
20.0%
Professional Fundraising Fees $0
Other Salaries and Wages $9,485
5.5%
Assets/Debt
Total Assets $101,332
Total Liabilities $4,256
Net Assets $97,076
Compensation
Key Employees and Officers Compensation Related Other
Kristi Schmitt Burr (Executive Director) $34,632 $0 $0
William Ginn (Emeritus Trustee) $0 $0 $0
Regan Brandt (Trustee) $0 $0 $0
Michael Rainen (Trustee) $0 $0 $0
Bryant Bradley (Emeritus Trustee) $0 $0 $0
Julie Breneiser (President, Trustee) $0 $0 $0
Meredith Weiss (Trustee) $0 $0 $0
Kevin Gullatt (Trustee) $0 $0 $0
Kathy Rainen (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$168,049
Expenses
$190,981
Net Income
-$22,932
Net Assets
$21,959
Notable Sources of Revenue Percent of Total Revenue
Contributions $168,035
100.0%
Program Services $0
Investment Income $14
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $12,339
6.5%
Professional Fundraising Fees $0
Other Salaries and Wages $22,973
12.0%
Assets/Debt
Total Assets $33,137
Total Liabilities $11,178
Net Assets $21,959
Compensation
Key Employees and Officers Compensation Related Other
Kristi Schmitt Burr (Executive Di) $12,339 $0 $0
William Ginn (President) $0 $0 $0
Kathlyn Roth (Secretary) $0 $0 $0
Michael Rainen (Trustee) $0 $0 $0
Bryant Bradley (Trustee) $0 $0 $0
Julie Breneiser (Trustee) $0 $0 $0
Alan Roth (Trustee) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$259,869
Expenses
$204,989
Net Income
$54,880
Net Assets
$44,891
Notable Sources of Revenue Percent of Total Revenue
Contributions $259,631
99.9%
Program Services $0
Investment Income $14
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $224
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $83,263
Total Liabilities $38,372
Net Assets $44,891
Compensation
Key Employees and Officers Compensation Related Other
Michael Rainen (Trustee) $0 $0 $0
William Ginn (President) $0 $0 $0
Bryant Bradley (Trustee) $0 $0 $0
Julie Breneiser (Trustee) $0 $0 $0
Alan Roth (Trustee) $0 $0 $0
Ellen Mccabe (Treasurer) $0 $0 $0
Kathlyn Roth (Secretary) $0 $0 $0
Ric Jones (Trustee) $0 $0 $0
Kristi Schmitt Burr (Executive Di) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$170,930
Expenses
$265,410
Net Income
-$94,480
Net Assets
-$9,989
Notable Sources of Revenue Percent of Total Revenue
Contributions $155,272
90.8%
Program Services $15,736
9.2%
Investment Income $125
0.1%
Net Fundraising -$203
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $41,775
Total Liabilities $51,764
Net Assets -$9,989

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$235,532
Expenses
$275,965
Net Income
-$40,433
Net Assets
$84,491
Notable Sources of Revenue Percent of Total Revenue
Contributions $199,232
84.6%
Program Services $13,059
5.5%
Investment Income $385
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $22,856
9.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $123,252
Total Liabilities $38,761
Net Assets $84,491

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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