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National Niemann Pick Disease Foundation

  • Fort Atkinson, WI
  • Tax-exempt since April 1993
  • EIN: 35-1844264

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Medical Research / Single Organization Support (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$591k (2023)

Expenses
$797k (2023)

Total Assets
$581k (2023)

Total Liabilities
$81.9k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$591,177
Expenses
$796,672
Net Income
-$205,495
Net Assets
$499,512
Notable Sources of Revenue Percent of Total Revenue
Contributions $552,816
93.5%
Program Services $26,030
4.4%
Investment Income $4,934
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $7,397
1.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $135,068
17.0%
Professional Fundraising Fees $0
Other Salaries and Wages $91,664
11.5%
Assets/Debt
Total Assets $581,378
Total Liabilities $81,866
Net Assets $499,512
Compensation
Key Employees and Officers Compensation Related Other
Joslyn Crowe (Executive Director) $130,060 $0 $5,009
Becky Mcguire (Chair) $0 $0 $0
Elizabeth Heinze (Vice Chair) $0 $0 $0
Meghann Ferguson (Director) $0 $0 $0
Mike Smith (Treasurer) $0 $0 $0
Mary Frances Harmon (Director) $0 $0 $0
Chrystelle Bougault (Director) $0 $0 $0
Gail Koujaian (Director) $0 $0 $0
Cara Gilmore (Director) $0 $0 $0
Kari Lato (Director) $0 $0 $0
Anthony Leoni (Director) $0 $0 $0
Paul Merrigan (Director) $0 $0 $0
Travis Obermeyer (Director) $0 $0 $0
Taylor Sabky (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on Oct. 4, 2024

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$556,671
Expenses
$725,852
Net Income
-$169,181
Net Assets
$625,007
Notable Sources of Revenue Percent of Total Revenue
Contributions $526,689
94.6%
Program Services $24,017
4.3%
Investment Income $1,551
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $4,414
0.8%
Notable Expenses Percent of Total Expenses
Executive Compensation $134,895
18.6%
Professional Fundraising Fees $0
Other Salaries and Wages $84,877
11.7%
Assets/Debt
Total Assets $698,723
Total Liabilities $73,716
Net Assets $625,007
Compensation
Key Employees and Officers Compensation Related Other
Joslyn Crowe (Executive Director) $128,530 $0 $4,603
Becky Mcguire (Chair) $0 $0 $0
Liz Heinze (Vice Chair) $0 $0 $0
Meghann Ferguson (Secretary) $0 $0 $0
Mike Smith (Treasurer) $0 $0 $0
Mary Frances Harmon (Director) $0 $0 $0
Chrystelle Bougault (Director) $0 $0 $0
Gail Koujaian (Director) $0 $0 $0
Cara Gilmore (Director) $0 $0 $0
Kari Lato (Director) $0 $0 $0
Anthony Leoni (Director) $0 $0 $0
Paul Merrigan (Director) $0 $0 $0
Travis Obermeyer (Director) $0 $0 $0
Taylor Sabky (Director) $0 $0 $0
Justin Hopkin (Chair Emeritus) $0 $0 $0
+ View more people

Document Links

990
Filed on June 15, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$499,229
Expenses
$479,388
Net Income
$19,841
Net Assets
$794,188
Notable Sources of Revenue Percent of Total Revenue
Contributions $490,047
98.2%
Program Services $3,400
0.7%
Investment Income $328
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $5,454
1.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $134,567
28.1%
Professional Fundraising Fees $0
Other Salaries and Wages $77,993
16.3%
Assets/Debt
Total Assets $850,802
Total Liabilities $56,614
Net Assets $794,188
Compensation
Key Employees and Officers Compensation Related Other
Joslyn Crowe (Executive Director) $128,432 $0 $4,122
Justin Hopkin (Chair) $0 $0 $0
Becky Mcguire (Vice Chair) $0 $0 $0
Liz Heinze (Secretary) $0 $0 $0
Mike Smith (Treasurer) $0 $0 $0
Mary Frances Harmon (Director (Since June)) $0 $0 $0
Chrystelle Bougault (Director) $0 $0 $0
Meghann Ferguson (Director) $0 $0 $0
Cara Gilmore (Director (Since June)) $0 $0 $0
Kari Lato (Director (Since June)) $0 $0 $0
Anthony Leoni (Director) $0 $0 $0
Paul Merrigan (Director) $0 $0 $0
Missy Ward (Secretary (Thru June)) $0 $0 $0
Kara Avik (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on May 10, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$674,861
Expenses
$675,000
Net Income
-$139
Net Assets
$774,347
Notable Sources of Revenue Percent of Total Revenue
Contributions $663,734
98.4%
Program Services $7,710
1.1%
Investment Income $1,511
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,906
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $130,801
19.4%
Professional Fundraising Fees $0
Other Salaries and Wages $83,328
12.3%
Assets/Debt
Total Assets $799,194
Total Liabilities $24,847
Net Assets $774,347
Compensation
Key Employees and Officers Compensation Related Other
Joslyn Crowe (Executive Director) $125,802 $0 $5,000
Justin Hopkin (Chair) $0 $0 $0
Becky Mcguire (Vice Chair) $0 $0 $0
Missy Ward (Secretary) $0 $0 $0
Anne Oconnor Smith (Interim Treasurer (Thru May)) $0 $0 $0
Chrystelle Bougault (Director) $0 $0 $0
Kara Ayik (Director) $0 $0 $0
Meghann Ferguson (Director) $0 $0 $0
Liz Heinze (Director) $0 $0 $0
Anthony Leoni (Director) $0 $0 $0
Paul Merrigan (Director) $0 $0 $0
Mike Smith (Treasurer (From June)) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 1, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$766,399
Expenses
$508,539
Net Income
$257,860
Net Assets
$774,486
Notable Sources of Revenue Percent of Total Revenue
Contributions $686,056
89.5%
Program Services $50,905
6.6%
Investment Income $3,704
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $25,734
3.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $127,480
25.1%
Professional Fundraising Fees $0
Other Salaries and Wages $51,596
10.1%
Assets/Debt
Total Assets $794,988
Total Liabilities $20,502
Net Assets $774,486
Compensation
Key Employees and Officers Compensation Related Other
Joslyn Crowe (Executive Director) $127,480 $0 $0
Justin Hopkin (Chair) $0 $0 $0
Lisa Chavez (Vice Chair) $0 $0 $0
Corinne Ward (Secretary) $0 $0 $0
Anne Oconnor Smith (Interim Treasurer) $0 $0 $0
Chrystelle Bougault (Director) $0 $0 $0
Darrile Papier (Director) $0 $0 $0
Meghann Ferguson (Director) $0 $0 $0
Liz Heinze (Director) $0 $0 $0
Becky Mcguire (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 13, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$743,556
Expenses
$471,117
Net Income
$272,439
Net Assets
$516,626
Notable Sources of Revenue Percent of Total Revenue
Contributions $725,414
97.6%
Program Services $16,494
2.2%
Investment Income $1,648
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $90,288
19.2%
Professional Fundraising Fees $0
Other Salaries and Wages $63,819
13.5%
Assets/Debt
Total Assets $548,210
Total Liabilities $31,584
Net Assets $516,626
Compensation
Key Employees and Officers Compensation Related Other
Joslyn Crowe (Executive Director) $85,288 $0 $0
Justin Hopkin (Chair) $0 $0 $0
Lisa Chavez (Vice Chair) $0 $0 $0
Corinne Ward (Secretary) $0 $0 $0
Jill Flinton (Treasurer) $0 $0 $0
Anne O'connor Smith (Director) $0 $0 $0
Darrile Papier (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 7, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$562,396
Expenses
$449,950
Net Income
$112,446
Net Assets
$244,187
Notable Sources of Revenue Percent of Total Revenue
Contributions $541,637
96.3%
Program Services $18,748
3.3%
Investment Income $2,011
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $73,059
16.2%
Assets/Debt
Total Assets $419,556
Total Liabilities $175,369
Net Assets $244,187
Compensation
Key Employees and Officers Compensation Related Other
Lisa Chavez (Chair) $0 $0 $0
Justin Hopkin (Vice Chair) $0 $0 $0
Corinne Ward (Secretary) $0 $0 $0
Jill Flinton (Treasurer) $0 $0 $0
Rhonda Brown Kehoe (Director) $0 $0 $0
Anne O'connor Smith (Director) $0 $0 $0
Margo Frey (Director) $0 $0 $0
Elissa Miller Visoky (Director) $0 $0 $0
Darrile Papier (Director) $0 $0 $0
Tammy Vaughan (Secretary) $0 $0 $0
Wayne Palmiter (Vice Chair) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 12, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$326,537
Expenses
$476,271
Net Income
-$149,734
Net Assets
$106,741
Notable Sources of Revenue Percent of Total Revenue
Contributions $306,750
93.9%
Program Services $17,576
5.4%
Investment Income $2,211
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $78,072
16.4%
Professional Fundraising Fees $0
Other Salaries and Wages $66,859
14.0%
Assets/Debt
Total Assets $436,134
Total Liabilities $329,393
Net Assets $106,741
Compensation
Key Employees and Officers Compensation Related Other
Nadine Hill (Executive Director) $73,072 $0 $5,000
Lisa Chavez (Chair) $0 $0 $0
Wayne Palmiter (Vice Chair) $0 $0 $0
Tammy Vaughan (Secretary) $0 $0 $0
Jill Flinton (Treasurer) $0 $0 $0
Rhonda Brown Kehoe (Director) $0 $0 $0
Anne O'connor Smith (Director) $0 $0 $0
Margo Frey (Director) $0 $0 $0
Elissa Miller Visoky (Director) $0 $0 $0
Darrile Papier (Director) $0 $0 $0
Missy Ward (Director) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 13, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$402,657
Expenses
$469,106
Net Income
-$66,449
Net Assets
$222,416
Notable Sources of Revenue Percent of Total Revenue
Contributions $165,174
41.0%
Program Services $59,471
14.8%
Investment Income $3,858
1.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $171,417
42.6%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,737
0.7%
Notable Expenses Percent of Total Expenses
Executive Compensation $72,348
15.4%
Professional Fundraising Fees $0
Other Salaries and Wages $62,303
13.3%
Assets/Debt
Total Assets $510,273
Total Liabilities $287,857
Net Assets $222,416

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$376,550
Expenses
$541,399
Net Income
-$164,849
Net Assets
$288,865
Notable Sources of Revenue Percent of Total Revenue
Contributions $179,582
47.7%
Program Services $29,125
7.7%
Investment Income $604
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $165,012
43.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,227
0.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $71,458
13.2%
Professional Fundraising Fees $0
Other Salaries and Wages $30,881
5.7%
Assets/Debt
Total Assets $562,753
Total Liabilities $273,888
Net Assets $288,865

No Document Links

The IRS has provided extracted financial data for this filing, but has not yet released the source documents.

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$491,087
Expenses
$399,760
Net Income
$91,327
Net Assets
$453,714
Notable Sources of Revenue Percent of Total Revenue
Contributions $206,393
42.0%
Program Services $34,152
7.0%
Investment Income $2,669
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $244,920
49.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $2,953
0.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $70,000
17.5%
Professional Fundraising Fees $0
Other Salaries and Wages $41,706
10.4%
Assets/Debt
Total Assets $633,214
Total Liabilities $179,500
Net Assets $453,714

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$416,982
Expenses
$499,399
Net Income
-$82,417
Net Assets
$362,387
Notable Sources of Revenue Percent of Total Revenue
Contributions $153,279
36.8%
Program Services $22,979
5.5%
Investment Income $2,041
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $236,882
56.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,801
0.4%
Notable Expenses Percent of Total Expenses
Executive Compensation $67,428
13.5%
Professional Fundraising Fees $0
Other Salaries and Wages $37,955
7.6%
Assets/Debt
Total Assets $698,335
Total Liabilities $335,948
Net Assets $362,387

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$447,588
Expenses
$524,533
Net Income
-$76,945
Net Assets
$444,804
Notable Sources of Revenue Percent of Total Revenue
Contributions $135,053
30.2%
Program Services $28,675
6.4%
Investment Income $3,341
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $263,818
58.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $16,701
3.7%
Notable Expenses Percent of Total Expenses
Executive Compensation $49,304
9.4%
Professional Fundraising Fees $0
Other Salaries and Wages $39,015
7.4%
Assets/Debt
Total Assets $745,298
Total Liabilities $300,494
Net Assets $444,804

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

Byline

By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated