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International 22 Q11 2 Deletion Syndrome Foundation Inc

  • Matawan, NJ
  • Tax-exempt since April 2024
  • EIN: 36-4540878

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Human Services — Multipurpose and Other / Human Service Organizations - Multipurpose (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$82.9k (2024)

Expenses
$120k (2024)

Total Assets
$190k (2024)

Total Liabilities
$0 (2024)

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$82,853
Expenses
$120,252
Net Income
-$37,399
Net Assets
$190,374
Notable Sources of Revenue Percent of Total Revenue
Contributions $82,764
99.9%
Program Services $0
Investment Income $89
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $190,374
Total Liabilities $0
Net Assets $190,374
Compensation
Key Employees and Officers Compensation Other
Marc Weinberg (Chairman) $0 $0
Missy Disibio (Chairman) $0 $0
Melissa Maisenbacher (Secretary) $0 $0
Suzanne Dicamillo (Treasurer) $0 $0
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Document Links

990-EZ
Filed on June 10, 2025

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$366,363
Expenses
$314,751
Net Income
$51,612
Net Assets
$227,878
Notable Sources of Revenue Percent of Total Revenue
Contributions $366,272
100.0%
Program Services $0
Investment Income $91
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $227,878
Total Liabilities $0
Net Assets $227,878
Compensation
Key Employees and Officers Compensation Related Other
Marc Weinberg (Chairman) $0 $0 $0
Missy Disibio (Chairman) $0 $0 $0
Melissa Maisenbacher (Secretary) $0 $0 $0
Suzanne Dicamillo (Treasurer) $0 $0 $0
+ View more people

Document Links

990
Filed on Jan. 27, 2025

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$139,077
Expenses
$82,431
Net Income
$56,646
Net Assets
$73,069
Notable Sources of Revenue Percent of Total Revenue
Contributions $139,041
100.0%
Program Services $0
Investment Income $36
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $73,069
Total Liabilities $0
Net Assets $73,069

Document Links

990-T

For unrelated business income from activities not substantially related to the organization's tax-exempt purpose

PDF

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$83,558
Expenses
$88,795
Net Income
-$5,237
Net Assets
$16,423
Notable Sources of Revenue Percent of Total Revenue
Contributions $83,530
100.0%
Program Services $0
Investment Income $28
0.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $16,423
Total Liabilities $0
Net Assets $16,423

Document Links

990-T

For unrelated business income from activities not substantially related to the organization's tax-exempt purpose

PDF

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$84,646
Expenses
$62,986
Net Income
$21,660
Net Assets
$21,660
Notable Sources of Revenue Percent of Total Revenue
Contributions $85,905
> 100%
Program Services $1,248
1.5%
Investment Income $52
0.1%
Net Fundraising -$2,559
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $139,454
Total Liabilities $117,794
Net Assets $21,660

No Document Links

The IRS has provided extracted financial data for this filing, but has not yet released the source documents.

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$282,506
Expenses
$260,907
Net Income
$21,599
Net Assets
$110,830
Notable Sources of Revenue Percent of Total Revenue
Contributions $253,410
89.7%
Program Services $21,451
7.6%
Investment Income $76
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $7,569
2.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $116,624
Total Liabilities $5,794
Net Assets $110,830
Compensation
Key Employees and Officers Compensation Related Other
Arora Manish (Trustee) $0 $0 $0
Donna Mcdonald Mcginn Ms Cgc (Trustee) $0 $0 $0
Christine Moriconi Psyd Rnc (Trustee) $0 $0 $0
Edward Moss Phd (Trustee) $0 $0 $0
Melinda Taylor (Trustee) $0 $0 $0
Donna Cutler Landsman Ms (Trustee) $0 $0 $0
Nicole Mark (Trustee) $0 $0 $0
Paula Uccello (Trustee) $0 $0 $0
Anne Bassett Md (Medical Director) $0 $0 $0
Debbie Deloach (Trustee) $0 $0 $0
Elizabeth Vinhal (Trustee) $0 $0 $0
Marc Weinberg Esq (Chairperson) $0 $0 $0
Missy Disibio (Vice Chairperson) $0 $0 $0
Suzanne Dicamillo (Treasurer) $0 $0 $0
Melissa Maisenbacher Ms Cgc (Secretary) $0 $0 $0
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Document Links

990
Filed on Nov. 16, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$273,481
Expenses
$256,056
Net Income
$17,425
Net Assets
$89,231
Notable Sources of Revenue Percent of Total Revenue
Contributions $237,014
86.7%
Program Services $27,629
10.1%
Investment Income $74
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $8,764
3.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $107,076
Total Liabilities $17,845
Net Assets $89,231
Compensation
Key Employees and Officers Compensation Related Other
Missy Disibio (Trustee) $0 $0 $0
Melissa Maisenbacher Ms Cgc (Trustee) $0 $0 $0
Donna Mcdonald Mcginn Ms Cgc (Trustee) $0 $0 $0
Christine Moriconi Psyd Rnc (Trustee) $0 $0 $0
Edward Moss Phd (Trustee) $0 $0 $0
Melinda Taylor (Trustee) $0 $0 $0
Donna Cutler Landsman Ms (Trustee) $0 $0 $0
Nicole Mark (Trustee) $0 $0 $0
Paula Uccello (Trustee) $0 $0 $0
Sheila Kambin Md (Chairperson) $0 $0 $0
Marc Weinberg Esq (Vice Chairperson) $0 $0 $0
Suzanne Dicamillo (Treasurer) $0 $0 $0
+ View more people

Document Links

990
Filed on Nov. 15, 2019

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$67,833
Expenses
$99,401
Net Income
-$31,568
Net Assets
$71,806
Notable Sources of Revenue Percent of Total Revenue
Contributions $27,462
40.5%
Program Services $32,151
47.4%
Investment Income $42
0.1%
Net Fundraising $8,178
12.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $74,520
Total Liabilities $2,714
Net Assets $71,806
Compensation
Key Employees and Officers Compensation Other
Sheila Kambin Md (Chairperson) $0 $0
Marc Weinberg Esq (Vice Chairperson) $0 $0
Suzanne Dicamillo (Treasurer) $0 $0
Anne Bassett Md (Trustee) $0 $0
Missy Disibio (Trustee) $0 $0
Donna M Mcdonald Mcginn Ms Cgc (Trustee) $0 $0
Melissa Maisenbacher Ms Cggc (Trustee) $0 $0
Christine Moriconi Psy D Rnc L (Trustee) $0 $0
Edward M Moss Phd (Trustee) $0 $0
Paula Uccello (Trustee) $0 $0
Donna Cutler Landsman Ms (Trustee) $0 $0
Carol Cavana (Trustee) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 13, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$128,737
Expenses
$88,246
Net Income
$40,491
Net Assets
$103,374
Notable Sources of Revenue Percent of Total Revenue
Contributions $75,647
58.8%
Program Services $32,212
25.0%
Investment Income $48
0.0%
Net Fundraising $19,860
15.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $103,374
Total Liabilities $0
Net Assets $103,374
Compensation
Key Employees and Officers Compensation Other
Sheila Kambin Md (Chairperson) $0 $0
Marc Weinberg Esq (Vice Chairperson) $0 $0
Suzanne Dicamillo (Treasurer) $0 $0
Anne Bassett Md (Trustee) $0 $0
Missy Disibio (Trustee) $0 $0
Donna M Mcdonald Mcginn Ms Cgc (Trustee) $0 $0
Melissa Maisenbacher Ms Cggc (Trustee) $0 $0
Christine Moriconi Psy D Rnc L (Trustee) $0 $0
Edward M Moss Phd (Trustee) $0 $0
Paula Uccello (Trustee) $0 $0
Donna Cutler Landsman Ms (Trustee) $0 $0
Fiona Blasius (Trustee) $0 $0
+ View more people

Document Links

990-EZ
Filed on Oct. 23, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$84,723
Expenses
$109,084
Net Income
-$24,361
Net Assets
$62,883
Notable Sources of Revenue Percent of Total Revenue
Contributions $36,037
42.5%
Program Services $23,910
28.2%
Investment Income $34
0.0%
Net Fundraising $23,665
27.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $62,883
Total Liabilities $0
Net Assets $62,883
Compensation
Key Employees and Officers Compensation Other
Sheila Kambin Md (Chairperson) $0 $0
Marc Weinberg Esq (Vice Chairperson) $0 $0
Suzanne Dicamillo (Treasurer) $0 $0
Anne Bassett Md (Trustee) $0 $0
Missy Disibio (Trustee) $0 $0
Donna M Mcdonald Mcginn Ms Cgc (Trustee) $0 $0
Melissa Maisenbacher Ms Cggc (Trustee) $0 $0
Christine Moriconi Psy D Rnc L (Trustee) $0 $0
Edward M Moss Phd (Trustee) $0 $0
Paula Uccello (Trustee) $0 $0
Donna Cutler Landsman Ms (Trustee) $0 $0
Fiona Blasius (Trustee) $0 $0
+ View more people

Document Links

990-EZ
Filed on Oct. 3, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
PDF (2 of 2)

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$120,377
Expenses
$75,887
Net Income
$44,490
Net Assets
$87,244
Notable Sources of Revenue Percent of Total Revenue
Contributions $66,817
55.5%
Program Services $27,012
22.4%
Investment Income $28
0.0%
Net Fundraising $26,387
21.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $87,244
Total Liabilities $0
Net Assets $87,244
Compensation
Key Employees and Officers Compensation Other
Sheila Kambin Md (Chairperson) $0 $0
Marc Weinberg Esq (Vice Chairperson) $0 $0
Suzanne Dicamillo (Treasurer) $0 $0
Colleen Ciak (Secretary) $0 $0
Anne Bassett Md (Trustee) $0 $0
Marilyn Cohen Bs (Trustee) $0 $0
Missy Disibio (Trustee) $0 $0
Donna M Mcdonald Mcginn Ms Cgc (Trustee) $0 $0
Melissa Maisenbacher Ms Cggc (Trustee) $0 $0
Christine Moriconi Psy D Rnc L (Trustee) $0 $0
Edward M Moss Phd (Trustee) $0 $0
Paula Uccello (Trustee) $0 $0
+ View more people

Document Links

990-EZ
Filed on Sept. 22, 2015

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$51,259
Expenses
$57,986
Net Income
-$6,727
Net Assets
$42,754
Notable Sources of Revenue Percent of Total Revenue
Contributions $26,354
51.4%
Program Services $0
Investment Income $35
0.1%
Net Fundraising $24,870
48.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $42,754
Total Liabilities $0
Net Assets $42,754

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$222,657
Expenses
$235,484
Net Income
-$12,827
Net Assets
$49,481
Notable Sources of Revenue Percent of Total Revenue
Contributions $50,896
22.9%
Program Services $181,460
81.5%
Investment Income $70
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$9,769
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $49,481
Total Liabilities $0
Net Assets $49,481

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$60,951
Expenses
$74,124
Net Income
-$13,173
Net Assets
$62,308
Notable Sources of Revenue Percent of Total Revenue
Contributions $60,904
99.9%
Program Services $0
Investment Income $47
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $62,308
Total Liabilities $0
Net Assets $62,308

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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