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Lumind Idsc Foundation

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Down Syndrome (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$3.16M (2023)

Expenses
$3.98M (2023)

Total Assets
$1.26M (2023)

Total Liabilities
$632k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Sept.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,159,544
Expenses
$3,979,523
Net Income
-$819,979
Net Assets
$626,489
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,191,064
> 100%
Program Services $0
Investment Income $14,309
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$46,621
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $792
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $873,907
22.0%
Professional Fundraising Fees $0
Other Salaries and Wages $544,537
13.7%
Assets/Debt
Total Assets $1,258,775
Total Liabilities $632,286
Net Assets $626,489
Compensation
Key Employees and Officers Compensation Related Other
Hampus Hillerstrom (President And Ceo) $286,161 $0 $34,394
Angela Britton (Vp Of Clinical Officer) $208,000 $0 $0
Michelle Petronio (Chief Development Officer) $162,311 $0 $34,394
Katherine O'neill (Chief Operating Officer) $94,103 $0 $14,530
Anthony Providenti (Board Chair) $0 $0 $0
Tony Hung (Board Vice Chair) $0 $0 $0
Lasandra Brill (Director) $0 $0 $0
Ann Caldwell (Director) $0 $0 $0
Hector Guinness (Director) $0 $0 $0
Sohail Masood (Director) $0 $0 $0
Claudia Moreira (Director) $0 $0 $0
Paul Murasko (Director) $0 $0 $0
Beverly Paperiello (Director) $0 $0 $0
Chris Senna (Director) $0 $0 $0
Jeff Strobel (Director) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,742,364
Expenses
$4,726,857
Net Income
-$1,984,493
Net Assets
$1,446,468
Notable Sources of Revenue Percent of Total Revenue
Contributions $2,544,017
92.8%
Program Services $0
Investment Income $2,465
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $195,882
7.1%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $907,439
19.2%
Professional Fundraising Fees $0
Other Salaries and Wages $911,951
19.3%
Assets/Debt
Total Assets $2,166,575
Total Liabilities $720,107
Net Assets $1,446,468
Compensation
Key Employees and Officers Compensation Related Other
Hampus Hillerstrom (President And Ceo) $318,264 $0 $24,045
Angela Britton (Vp Of Clinical Officer) $213,833 $0 $0
Dr James Hendrix (Chief Science Officer) $211,409 $0 $24,045
Michelle Petronio (Chief Development Officer) $163,933 $0 $24,045
Chris Senna (Director) $0 $0 $0
Claudia Moreira (Director) $0 $0 $0
Jeff Strobel (Director) $0 $0 $0
Beverly Paperiello (Director) $0 $0 $0
Collette Devitto (Director) $0 $0 $0
Hector Guinness (Director) $0 $0 $0
Paul Murasko (Director) $0 $0 $0
Tony Hung (Board Vice Chair) $0 $0 $0
Sohail Masood (Director) $0 $0 $0
Patrick Kannan (Treasurer) $0 $0 $0
Anthony Providenti (Board Chair) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$5,267,215
Expenses
$3,367,926
Net Income
$1,899,289
Net Assets
$2,740,445
Notable Sources of Revenue Percent of Total Revenue
Contributions $5,112,405
97.1%
Program Services $0
Investment Income $1,503
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $153,307
2.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $894,922
26.6%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $4,487,214
Total Liabilities $1,746,769
Net Assets $2,740,445
Compensation
Key Employees and Officers Compensation Related Other
Hampus Hillerstrom (President And Ceo) $278,723 $0 $25,869
Dr James Hendrix (Chief Scientific Officer) $181,202 $0 $29,271
Michelle Petronio (Chief Development Officer) $156,294 $0 $17,261
Angella Britton (Vice President, Clinical Operations) $105,250 $0 $0
Patrick Kannan (Board Member Treasurer) $0 $0 $0
Michael J Mannor Phd (Board Chair) $0 $0 $0
Paul Murasko (Member) $0 $0 $0
Tony Hung (Vice Chair) $0 $0 $0
Hector Guinness (Member) $0 $0 $0
Anthony Providenti (Member) $0 $0 $0
Christopher Lis (Member) $0 $0 $0
Jeff W Strobel (Member) $0 $0 $0
Claudia Moreira (Member) $0 $0 $0
Sohail Masood (Member) $0 $0 $0
Bev Paperiello (Member) $0 $0 $0
Maria Dellapina (Member) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,863,831
Expenses
$2,570,792
Net Income
-$706,961
Net Assets
$841,156
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,577,945
84.7%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $258,541
13.9%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $27,345
1.5%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $765,166
29.8%
Assets/Debt
Total Assets $2,462,353
Total Liabilities $1,621,197
Net Assets $841,156
Compensation
Key Employees and Officers Compensation Related Other
Hampus Hillerstrom (President And Ceo) $313,978 $0 $15,186
Dr James Hendrix (Chief Scientific Officer) $170,105 $0 $17,667
Michelle Petronio (Chief Development Officer) $128,032 $0 $4,261
Patrick Kannan (Board Member) $0 $0 $0
Michael J Mannor Phd (Board Chair) $0 $0 $0
Paul Murasko (Member) $0 $0 $0
Tony Hung (Vice Chair) $0 $0 $0
Hector Guinness (Member) $0 $0 $0
Anula Jayasurya (Secretary) $0 $0 $0
Anthony Providenti (Member) $0 $0 $0
Christopher Lis (Member) $0 $0 $0
Jeff W Strobel (Member) $0 $0 $0
Claudia Moreira (Member) $0 $0 $0
Sohail Masood (Member) $0 $0 $0
Bev Paperiello (Member) $0 $0 $0
Jennifer Smolka (Member) $0 $0 $0
Kim Warren (Member) $0 $0 $0
Maria Dellapina (Member) $0 $0 $0
Paul Murasko (Member) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,832,527
Expenses
$3,485,278
Net Income
$347,249
Net Assets
$1,548,117
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,589,169
93.7%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $222,066
5.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $21,292
0.6%
Notable Expenses Percent of Total Expenses
Executive Compensation $330,000
9.5%
Professional Fundraising Fees $0
Other Salaries and Wages $478,215
13.7%
Assets/Debt
Total Assets $3,828,926
Total Liabilities $2,280,809
Net Assets $1,548,117
Compensation
Key Employees and Officers Compensation Related Other
Hampus Hillerstrom (President And Ceo) $331,908 $0 $35,250
Ryan M Hartman (Member) $0 $0 $0
Patrick Kannan (Board Member Treasurer) $0 $0 $0
Michael J Mannor Phd (Board Chair) $0 $0 $0
Paul Murasko (Member, Executive Committee) $0 $0 $0
Tony Hung (Board Vice Chair) $0 $0 $0
Hector Guinness (Member) $0 $0 $0
Anula Jayasurya (Member) $0 $0 $0
Anthony Providenti (Member) $0 $0 $0
Christopher Lis (Member) $0 $0 $0
Jeff W Strobel (Member) $0 $0 $0
Claudia Moreira (Member) $0 $0 $0
Sohail Masood (Member) $0 $0 $0
Maria Dellapina (Member, Executive Committee) $0 $0 $0
Jennifer Smolka (Member) $0 $0 $0
Kim Warren (Member) $0 $0 $0
Beverly Paperiello (Member) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$3,604,558
Expenses
$2,597,429
Net Income
$1,007,129
Net Assets
$1,200,869
Notable Sources of Revenue Percent of Total Revenue
Contributions $3,261,080
90.5%
Program Services $0
Investment Income $1,265
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $342,637
9.5%
Sales of Assets -$664
Net Inventory Sales $0
Other Revenue $240
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $544,127
20.9%
Assets/Debt
Total Assets $3,084,421
Total Liabilities $1,883,552
Net Assets $1,200,869
Compensation
Key Employees and Officers Compensation Related Other
Association Development Solutions (Fundraising And Consultin) $196,245 $0 $0
Michael M Harpold Phd (Former Chief Scientific Officer) $147,375 $0 $0
Hampus Hillerstrom (President And Ceo) $90,988 $0 $7,715
Ryan M Hartman (Member) $0 $0 $0
Bjoern Sperling Md (Board Chair) $0 $0 $0
Patrick Kannan (Board Member Treasurer) $0 $0 $0
Michael J Mannor Phd (Board Vice Chair) $0 $0 $0
Paul Murasko (Member) $0 $0 $0
Tony Hung (Member) $0 $0 $0
Hector Guinness (Member) $0 $0 $0
Anula Jayasurya (Member) $0 $0 $0
Anthony Providenti (Member) $0 $0 $0
Christopher Lis (Member) $0 $0 $0
Jeff W Strobel (Member) $0 $0 $0
Claudia Moreira (Member) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,238,631
Expenses
$2,821,799
Net Income
-$583,168
Net Assets
$193,740
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,698,058
75.9%
Program Services $0
Investment Income $1,398
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $539,322
24.1%
Sales of Assets -$157
Net Inventory Sales $0
Other Revenue $10
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $500,478
17.7%
Assets/Debt
Total Assets $2,225,185
Total Liabilities $2,031,445
Net Assets $193,740
Compensation
Key Employees and Officers Compensation Related Other
Michael M Harpold Phd (Chief Scientific Officer) $185,452 $0 $0
Carolyn Cronin (Former Executive Director) $130,789 $0 $0
Ryan M Hartman (Board Chair And President) $0 $0 $0
Bjoern Sperling Md (Member) $0 $0 $0
Patrick Kannan (Treasurer, Finance Chair) $0 $0 $0
Michael J Mannor Phd (Secretary) $0 $0 $0
Amy Allison (Member) $0 $0 $0
Hampus Hillerstrom (President And Ceo) $0 $0 $0
Hector Guinness (Member) $0 $0 $0
Sarah Wernikoff (Member At Large) $0 $0 $0
Paul Murasko (Member, Marketing Chair) $0 $0 $0
Christopher Lis (Member) $0 $0 $0
Virginia Bennett Flynn (Audit Committee Chair) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,509,676
Expenses
$2,584,886
Net Income
-$75,210
Net Assets
$776,908
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,576,150
62.8%
Program Services $0
Investment Income $420
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $933,373
37.2%
Sales of Assets -$267
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $566,560
21.9%
Assets/Debt
Total Assets $2,247,784
Total Liabilities $1,470,876
Net Assets $776,908
Compensation
Key Employees and Officers Compensation Related Other
Carolyn Cronin (Executive Director) $177,274 $0 $0
Michael M Harpold Phd (Chief Scientific Officer) $155,058 $0 $0
Ryan M Hartman (Board Chair And President) $0 $0 $0
Patrick Kannan (Board Treasurer And Financ) $0 $0 $0
Michael J Mannor Phd (Board Secretary) $0 $0 $0
Terry W Ancel (Board Fundraising Chair) $0 $0 $0
Amy Allison (Audit Committee) $0 $0 $0
Hampus Hillerstrom (Board Vice Chair) $0 $0 $0
Debbie Morris (Member) $0 $0 $0
Margie Doyle (Member At Large) $0 $0 $0
Virginia Bennett Flynn (Audit Chair) $0 $0 $0
Christopher Lis (Member) $0 $0 $0
Karen Shea (Member) $0 $0 $0

Document Links

Fiscal Year Ending Sept.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,475,484
Expenses
$2,346,973
Net Income
$128,511
Net Assets
$852,118
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,423,052
57.5%
Program Services $0
Investment Income $150
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $804,576
32.5%
Sales of Assets $156
0.0%
Net Inventory Sales $0
Other Revenue $247,550
10.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $501,817
21.4%
Assets/Debt
Total Assets $2,287,753
Total Liabilities $1,435,635
Net Assets $852,118

Document Links

Fiscal Year Ending Sept.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$2,203,494
Expenses
$2,006,180
Net Income
$197,314
Net Assets
$723,607
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,530,791
69.5%
Program Services $0
Investment Income $77
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $670,910
30.4%
Sales of Assets $1,716
0.1%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $407,440
20.3%
Assets/Debt
Total Assets $1,879,415
Total Liabilities $1,155,808
Net Assets $723,607

Document Links

Fiscal Year Ending Sept.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,937,815
Expenses
$1,757,367
Net Income
$180,448
Net Assets
$526,294
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,539,394
79.4%
Program Services $0
Investment Income $321
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $396,092
20.4%
Sales of Assets $972
0.1%
Net Inventory Sales $0
Other Revenue $1,036
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $362,736
20.6%
Assets/Debt
Total Assets $1,469,558
Total Liabilities $943,264
Net Assets $526,294

Document Links

Fiscal Year Ending Sept.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,860,905
Expenses
$1,584,681
Net Income
$276,224
Net Assets
$345,847
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,400,378
75.3%
Program Services $0
Investment Income $1,575
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $458,326
24.6%
Sales of Assets $58
0.0%
Net Inventory Sales $0
Other Revenue $568
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $289,442
18.3%
Assets/Debt
Total Assets $1,207,969
Total Liabilities $862,122
Net Assets $345,847

Document Links

Fiscal Year Ending Sept.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,692,949
Expenses
$1,991,056
Net Income
-$298,107
Net Assets
$69,623
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,274,822
75.3%
Program Services $0
Investment Income $1,834
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $415,936
24.6%
Sales of Assets $357
0.0%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $355,845
17.9%
Assets/Debt
Total Assets $1,404,023
Total Liabilities $1,334,400
Net Assets $69,623

Document Links

Fiscal Year Ending Sept.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Sept.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
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  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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