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Amyotrophic Lateral Sclerosis Association

Upstate New York Chapter
  • Liverpool, NY
  • Tax-exempt since July 1990
  • EIN: 37-1667986

Organization summary

Organization summary might be incomplete or out of date

This organization is not listed in the IRS's most recent list of tax exempt organizations, but we have data associated with this Employer Identification Number.

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Summary charts: organization finances over time

Revenue
$0 (2023)

Expenses
$0 (2023)

Total Assets
$0 (2023)

Total Liabilities
$0 (2023)

Years with multiple filings
Source: Form 990 tax filings from 2013 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Sept.
2023

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$58,278
Expenses
$36,767
Net Income
$21,511
Net Assets
$0
Notable Sources of Revenue Percent of Total Revenue
Contributions $50,490
86.6%
Program Services $0
Investment Income $0
Net Fundraising $7,776
13.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $12
0.0%
Assets/Debt
Total Assets $0
Total Liabilities $0
Net Assets $0
Compensation
Key Employees and Officers Compensation Other
Bill Soffel (Director) $0 $0
Russ Fuller (Director) $0 $0
Jeff Thomas (Director) $0 $0
Charles Robinson (Director) $0 $0
Julie Burgess (Director) $0 $0
Joe Viviano (Director) $0 $0
Eileen Jevis (Director) $0 $0
Brian Dumond (Chair) $0 $0
Tom Brown (Vice Chair) $0 $0
Nicole Woodall (Treasurer) $0 $0
Katrina Fulcher (Secretary) $0 $0
Elizabeth Krisanda (Executive Director) $0 $0
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Document Links

990-EZ
Filed on April 10, 2024

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Jan.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,095,012
Expenses
$1,089,830
Net Income
$5,182
Net Assets
$2,081,628
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,088,451
99.4%
Program Services $0
Investment Income $6,561
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $149,669
13.7%
Professional Fundraising Fees $0
Other Salaries and Wages $352,881
32.4%
Assets/Debt
Total Assets $2,170,858
Total Liabilities $89,230
Net Assets $2,081,628
Compensation
Key Employees and Officers Compensation Related Other
Elizabeth Krisanda (Executive Director) $114,119 $0 $26,821
Robert Doren (Director) $0 $0 $0
Brian Dumond (President) $0 $0 $0
Bill Soffel (Director) $0 $0 $0
Julie Burgess (Director) $0 $0 $0
Charlie Robinson (Director) $0 $0 $0
Tom Brown (Vice President) $0 $0 $0
Nicole Woodall (Treasurer) $0 $0 $0
Jeffrey Thomas (Director) $0 $0 $0
Russ Fuller (Director) $0 $0 $0
Joe Viviano (Director) $0 $0 $0
Eileen Jevis (Director) $0 $0 $0
Katrina Fulcher (Secretary) $0 $0 $0
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Document Links

990
Filed on Nov. 15, 2023

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Jan.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,082,289
Expenses
$922,518
Net Income
$159,771
Net Assets
$2,153,958
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,078,866
99.7%
Program Services $0
Investment Income $3,423
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $120,025
13.0%
Professional Fundraising Fees $0
Other Salaries and Wages $238,295
25.8%
Assets/Debt
Total Assets $2,245,425
Total Liabilities $91,467
Net Assets $2,153,958
Compensation
Key Employees and Officers Compensation Related Other
Elizabeth Krisanda (Executive Director) $91,982 $0 $28,587
Bob Doren (President) $0 $0 $0
Brian Dumond (Vice President) $0 $0 $0
Bill Soffel (Secretary) $0 $0 $0
Julie Burgess (Director) $0 $0 $0
Charlie Robinson (Director) $0 $0 $0
Tom Brown (Director) $0 $0 $0
Patrick O'neil (Director) $0 $0 $0
Craig Jacobs (Director) $0 $0 $0
Mary Lou Watson (Director) $0 $0 $0
Nicole Woodall (Treasurer) $0 $0 $0
Jeffrey Thomas (Director) $0 $0 $0
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Document Links

990
Filed on Nov. 2, 2022

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Jan.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,001,847
Expenses
$865,760
Net Income
$136,087
Net Assets
$1,972,052
Notable Sources of Revenue Percent of Total Revenue
Contributions $998,306
99.6%
Program Services $0
Investment Income $3,541
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $126,043
14.6%
Professional Fundraising Fees $0
Other Salaries and Wages $252,105
29.1%
Assets/Debt
Total Assets $2,040,082
Total Liabilities $68,030
Net Assets $1,972,052
Compensation
Key Employees and Officers Compensation Related Other
Elizabeth Krisanda (Executive Director) $95,627 $0 $23,209
Bob Doren (President) $0 $0 $0
Brian Dumond (Vice President) $0 $0 $0
Bill Soffel (Secretary) $0 $0 $0
Julie Burgess (Director) $0 $0 $0
Charlie Robinson (Director) $0 $0 $0
Tom Brown (Director) $0 $0 $0
Russ Fuller (Director) $0 $0 $0
Craig Jacobs (Director) $0 $0 $0
Mary Lou Watson (Director) $0 $0 $0
Nicole Woodall (Treasurer) $0 $0 $0
Jeffrey Thomas (Director) $0 $0 $0
Eileen Jevis (Director) $0 $0 $0
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Document Links

990
Filed on Oct. 28, 2021

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Jan.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,075,944
Expenses
$947,373
Net Income
$128,571
Net Assets
$1,719,313
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,074,231
99.8%
Program Services $0
Investment Income $1,637
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $76
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $95,501
10.1%
Professional Fundraising Fees $0
Other Salaries and Wages $208,452
22.0%
Assets/Debt
Total Assets $1,787,541
Total Liabilities $68,228
Net Assets $1,719,313
Compensation
Key Employees and Officers Compensation Related Other
Elizabeth Krisanda (Executive Director) $83,043 $0 $5,301
Bob Doren (President) $0 $0 $0
Brian Dumond (Vice President) $0 $0 $0
Bill Soffel (Secretary) $0 $0 $0
Julie Burgess (Treasurer) $0 $0 $0
Charles Robinson (Director) $0 $0 $0
Tom Brown (Director) $0 $0 $0
Patrick O'neil (Director) $0 $0 $0
Craig Jacobs (Director) $0 $0 $0
Mary Lou Watson (Director) $0 $0 $0
Nicole Woodall (Director) $0 $0 $0
Jeffrey Thomas (Director) $0 $0 $0
Scott Solomon (President (2/2019 To 4/2019)) $0 $0 $0
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Document Links

990
Filed on Nov. 19, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Jan.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$960,017
Expenses
$842,468
Net Income
$117,549
Net Assets
$1,518,105
Notable Sources of Revenue Percent of Total Revenue
Contributions $954,737
99.5%
Program Services $0
Investment Income $5,080
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $200
0.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $91,940
10.9%
Professional Fundraising Fees $0
Other Salaries and Wages $228,696
27.1%
Assets/Debt
Total Assets $1,570,075
Total Liabilities $51,970
Net Assets $1,518,105
Compensation
Key Employees and Officers Compensation Related Other
Elizabeth Krisanda (Executive Director) $83,323 $0 $0
Brian Dumond (Vice President) $0 $0 $0
Julie Burgess (Treasurer) $0 $0 $0
Bill Soffel (Secretary) $0 $0 $0
Tom Brown (Member) $0 $0 $0
Craig Jacobs (Member) $0 $0 $0
Patrick O'neil (Member) $0 $0 $0
Charles Robinson (Member) $0 $0 $0
Mary Lou Watson (Member) $0 $0 $0
Nicole Woodall (Member) $0 $0 $0
Bob Doren (President) $0 $0 $0
Jeffrey Thomas (Member) $0 $0 $0
+ View more people

Document Links

990
Filed on Jan. 31, 2020

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
View Filing (2 of 2) PDF (2 of 2)

Fiscal Year Ending Jan.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$920,141
Expenses
$757,895
Net Income
$162,246
Net Assets
$1,414,595
Notable Sources of Revenue Percent of Total Revenue
Contributions $944,518
> 100%
Program Services $0
Investment Income $4,158
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$28,535
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $87,118
11.5%
Professional Fundraising Fees $0
Other Salaries and Wages $208,895
27.6%
Assets/Debt
Total Assets $1,502,472
Total Liabilities $87,877
Net Assets $1,414,595
Compensation
Key Employees and Officers Compensation Related Other
Elizabeth Krisanda (Executive Director) $81,973 $0 $0
Tom Brown (Member) $0 $0 $0
Craig Jacobs (Member) $0 $0 $0
Patrick O'neil (Member) $0 $0 $0
Charlie Robinson (Member) $0 $0 $0
Mary Lou Watson (Member) $0 $0 $0
Nicole Woodall (Member) $0 $0 $0
Robert Zaffram (Member) $0 $0 $0
Diane Zunic (Member) $0 $0 $0
Brian Dumond (President) $0 $0 $0
Scott Solomon (Vice President) $0 $0 $0
Julie Burgess (Treasurer) $0 $0 $0
Bill Soffel (Secretary) $0 $0 $0
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Document Links

990
Filed on Nov. 27, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Jan.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$676,083
Expenses
$739,095
Net Income
-$63,012
Net Assets
$1,188,198
Notable Sources of Revenue Percent of Total Revenue
Contributions $692,731
> 100%
Program Services $0
Investment Income $8,389
1.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$25,037
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $73,167
9.9%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,281,796
Total Liabilities $93,598
Net Assets $1,188,198
Compensation
Key Employees and Officers Compensation Related Other
Elizabeth Krisanda (Executive Director) $63,076 $0 $0
Patrick O'neil (Member) $0 $0 $0
Charlie Robinson (Member) $0 $0 $0
Tim Virgil (Member) $0 $0 $0
Robert Zaffram (Member) $0 $0 $0
Thomas Byrnes (Member) $0 $0 $0
Matthew Ramsey (Member) $0 $0 $0
Roy Cunningham (Member) $0 $0 $0
Scott Solomon (Member) $0 $0 $0
Diane Zunic (Member) $0 $0 $0
Brian Dumond (President) $0 $0 $0
Robert Doren (Vice President) $0 $0 $0
Julie Burgess (Treasurer) $0 $0 $0
Bill Soffel (Secretary) $0 $0 $0
+ View more people

Document Links

990
Filed on Dec. 5, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Jan.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$702,124
Expenses
$565,064
Net Income
$137,060
Net Assets
$1,204,581
Notable Sources of Revenue Percent of Total Revenue
Contributions $728,015
> 100%
Program Services $0
Investment Income $2,539
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$28,430
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $84,820
15.0%
Professional Fundraising Fees $0
Other Salaries and Wages $105,483
18.7%
Assets/Debt
Total Assets $1,266,661
Total Liabilities $62,080
Net Assets $1,204,581
Compensation
Key Employees and Officers Compensation Related Other
Kathryn Lahey (Executive Director Thru Sept. 2015) $74,346 $0 $0
Charlie Robinson (Member) $0 $0 $0
Robert Zaffram (Member) $0 $0 $0
Thomas Byrnes (Member) $0 $0 $0
Matthew Ramsey (Member) $0 $0 $0
Roy Cunningham (Member) $0 $0 $0
Julie Burgess (Member) $0 $0 $0
Scott Solomon (Member) $0 $0 $0
Patrick O'neil (President (Current)) $0 $0 $0
Brian Dumond (Treasuer) $0 $0 $0
Kim Lynch (Secretary) $0 $0 $0
Tim Virgil (Vice President) $0 $0 $0
Robert Doren (Member) $0 $0 $0
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Document Links

990
Filed on Oct. 24, 2016

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
PDF (2 of 2)

Fiscal Year Ending Jan.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,035,106
Expenses
$454,423
Net Income
$580,683
Net Assets
$1,069,174
Notable Sources of Revenue Percent of Total Revenue
Contributions $1,025,174
99.0%
Program Services $0
Investment Income $1,521
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $8,411
0.8%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $92,729
20.4%
Professional Fundraising Fees $0
Other Salaries and Wages $123,267
27.1%
Assets/Debt
Total Assets $1,086,837
Total Liabilities $17,663
Net Assets $1,069,174
Compensation
Key Employees and Officers Compensation Related Other
Kathryn Lahey (Executive Director) $75,699 $0 $0
Tim Virgil (Member) $0 $0 $0
Charlie Robinson (Member) $0 $0 $0
Robert Zaffram (Member) $0 $0 $0
Thomas Byrnes (Member) $0 $0 $0
Matthew Ramsey (Member) $0 $0 $0
Roy Cunningham (Member) $0 $0 $0
Jennifer Devoe (President (Former)) $0 $0 $0
Patrick O'neil (President (Current)) $0 $0 $0
Brian Dumond (Treasuer) $0 $0 $0
Kim Lynch (Secretary) $0 $0 $0
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990
Filed on Sept. 14, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Jan.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$620,612
Expenses
$479,718
Net Income
$140,894
Net Assets
$488,491
Notable Sources of Revenue Percent of Total Revenue
Contributions $642,817
> 100%
Program Services $0
Investment Income $1,664
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$23,869
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $96,115
20.0%
Professional Fundraising Fees $0
Other Salaries and Wages $109,632
22.9%
Assets/Debt
Total Assets $525,437
Total Liabilities $36,946
Net Assets $488,491
Compensation
Key Employees and Officers Compensation Related Other
Kathryn Lahey (Executive Director) $69,758 $0 $0
Tim Virgil (Member) $0 $0 $0
Charlie Robinson (Member) $0 $0 $0
Robert Zaffram (Member) $0 $0 $0
Thomas Byrnes (Member) $0 $0 $0
Matthew Ramsey (Member) $0 $0 $0
Jennifer Devoe (President) $0 $0 $0
Patrick O'neil (Vice President) $0 $0 $0
Brian Dumond (Treasuer) $0 $0 $0
Kim Lynch (Secretary) $0 $0 $0
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990
Filed on Dec. 9, 2014

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Jan.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$555,013
Expenses
$403,398
Net Income
$151,615
Net Assets
$347,597
Notable Sources of Revenue Percent of Total Revenue
Contributions $554,142
99.8%
Program Services $0
Investment Income $871
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $47,934
11.9%
Professional Fundraising Fees $0
Other Salaries and Wages $106,753
26.5%
Assets/Debt
Total Assets $369,410
Total Liabilities $21,813
Net Assets $347,597

No Document Links

The IRS has provided extracted financial data for this filing, but has not yet released the source documents.

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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About Nonprofit Explorer

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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