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Neurofibromatosis Michigan

  • Grand Rapids, MI
  • Tax-exempt since May 2001
  • EIN: 38-3501633

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Health — General and Rehabilitative / Health Support Services (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$66.6k (2023)

Expenses
$74.1k (2023)

Total Assets
$285k (2023)

Total Liabilities
$0 (2023)

Source: Form 990 tax filings from 2010 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$66,598
Expenses
$74,136
Net Income
-$7,538
Net Assets
$284,681
Notable Sources of Revenue Percent of Total Revenue
Contributions $66,598
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $284,681
Total Liabilities $0
Net Assets $284,681
Compensation
Key Employees and Officers Compensation Other
Terri Rausch (President) $0 $0
Rosemary Anderson (Treasurer) $0 $0
Kristin Bradley (Secretary) $0 $0
Shelley Volkert (Board Member) $0 $0
Stacey Goodwin (Board Member) $0 $0
Margaret Crummel (Board Member) $0 $0
Tricia Ratell (Board Member) $0 $0
Dorothy Pope (Board Member) $0 $0
Shane Forfar (Vice President) $0 $0
Hilary Berens (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Aug. 7, 2024

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$64,406
Expenses
$64,003
Net Income
$403
Net Assets
$256,511
Notable Sources of Revenue Percent of Total Revenue
Contributions $64,406
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $256,511
Total Liabilities $0
Net Assets $256,511
Compensation
Key Employees and Officers Compensation Other
Terri Rausch (President) $0 $0
Rosemary Anderson (Treasurer) $0 $0
Kristin Bradley (Secretary) $0 $0
Shelley Volkert (Board Member) $0 $0
Stacey Goodwin (Board Member) $0 $0
Margaret Crummel (Board Member) $0 $0
Tricia Ratell (Board Member) $0 $0
Dorothy Pope (Board Member) $0 $0
Shane Forfar (Vice President) $0 $0
Hilary Berens (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on June 7, 2023

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$76,289
Expenses
$92,011
Net Income
-$15,722
Net Assets
$299,207
Notable Sources of Revenue Percent of Total Revenue
Contributions $76,214
99.9%
Program Services $0
Investment Income $75
0.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $299,207
Total Liabilities $0
Net Assets $299,207
Compensation
Key Employees and Officers Compensation Other
Terri Rausch (President) $0 $0
Rosemary Anderson (Treasurer) $0 $0
Kristin Bradley (Secretary) $0 $0
Shelley Volkert (Board Member) $0 $0
Stacey Goodwin (Board Member) $0 $0
Margaret Crummel (Board Member) $0 $0
Tricia Ratell (Board Member) $0 $0
Dorothy Pope (Board Member) $0 $0
Shane Forfar (Vice President) $0 $0
+ View more people

Document Links

990-EZ
Filed on June 24, 2022

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$53,276
Expenses
$65,414
Net Income
-$12,138
Net Assets
$288,869
Notable Sources of Revenue Percent of Total Revenue
Contributions $53,276
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $288,869
Total Liabilities $0
Net Assets $288,869
Compensation
Key Employees and Officers Compensation Other
Shelley Volkert (President) $0 $0
Rosemary Anderson (Treasurer) $0 $0
Kristin Bradley (Secretary) $0 $0
Terri Rausch (Board Member) $0 $0
Stacey Goodwin (Board Member) $0 $0
Margaret Crummel (Board Member) $0 $0
Tricia Ratell (Board Member) $0 $0
Jay Kakaty (Board Member) $0 $0
Steve Canum (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Oct. 14, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$101,714
Expenses
$125,343
Net Income
-$23,629
Net Assets
$265,590
Notable Sources of Revenue Percent of Total Revenue
Contributions $101,714
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $265,590
Total Liabilities $0
Net Assets $265,590
Compensation
Key Employees and Officers Compensation Other
Scott Volkert (President) $0 $0
Rosemary Anderson (Treasurer) $0 $0
Kristin Bradley (Secretary) $0 $0
Bob Jones (Board Member) $0 $0
Terri Rausch (Board Member) $0 $0
Stacey Goodwin (Board Member) $0 $0
Margaret Crummel (Board Member) $0 $0
Tricia Ratell (Board Member) $0 $0
Jay Kakaty (Board Member) $0 $0
Steve Canum (Board Member) $0 $0
Shelley Volkert (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Oct. 26, 2020

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$85,788
Expenses
$107,881
Net Income
-$22,093
Net Assets
$253,874
Notable Sources of Revenue Percent of Total Revenue
Contributions $85,788
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $253,874
Total Liabilities $0
Net Assets $253,874

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$69,717
Expenses
$126,554
Net Income
-$56,837
Net Assets
$283,782
Notable Sources of Revenue Percent of Total Revenue
Contributions $69,717
100%
Program Services $0
Investment Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $283,782
Total Liabilities $0
Net Assets $283,782
Compensation
Key Employees and Officers Compensation Other
Scott Volkert (President) $0 $0
Shelley Volkert (Vice President) $0 $0
Rosemary Anderson (Treasurer) $0 $0
Kristin Bradley (Secretary) $0 $0
Cathie Carpenter (Board Member) $0 $0
David Gladyness (Board Member) $0 $0
Bob Jones (Board Member) $0 $0
Terri Rausch (Board Member) $0 $0
Stacey Goodwin (Board Member) $0 $0
Margaret Crummel (Board Member) $0 $0
Chuck Kimmel (Board Member) $0 $0
Tricia Ratell (Board Member) $0 $0
+ View more people

Document Links

990-EZ
Filed on Nov. 12, 2018

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$71,434
Expenses
$82,870
Net Income
-$11,436
Net Assets
$318,173
Notable Sources of Revenue Percent of Total Revenue
Contributions $76,987
> 100%
Program Services $0
Investment Income $0
Net Fundraising -$5,553
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $318,173
Total Liabilities $0
Net Assets $318,173
Compensation
Key Employees and Officers Compensation Other
Shelly Vokert (Secretary) $0 $0
Rosemary Anderson (President) $0 $0
David Gladyness (Vice President) $0 $0
Kristen Bradley (Director) $0 $0
Mike Cooper (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Aug. 28, 2017

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$39,917
Expenses
$58,821
Net Income
-$18,904
Net Assets
$329,609
Notable Sources of Revenue Percent of Total Revenue
Contributions $49,776
> 100%
Program Services $0
Investment Income $0
Net Fundraising -$9,859
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $329,609
Total Liabilities $0
Net Assets $329,609
Compensation
Key Employees and Officers Compensation Other
Shelly Vokert (Secretary) $0 $0
Rosemary Anderson (President) $0 $0
David Gladyness (Vice President) $0 $0
Kristen Bradley (Director) $0 $0
Mike Cooper (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Aug. 15, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML
PDF (2 of 2)

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$377,447
Expenses
$96,923
Net Income
$280,524
Net Assets
$348,513
Notable Sources of Revenue Percent of Total Revenue
Contributions $327,778
86.8%
Program Services $0
Investment Income $14
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $49,655
13.2%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $30,000
31.0%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $348,513
Total Liabilities $0
Net Assets $348,513
Compensation
Key Employees and Officers Compensation Related Other
Debbi Hanlon (Executive Director) $30,000 $0 $0
Shelly Vokert (Secretary) $0 $0 $0
Kristen Bradley (Director) $0 $0 $0
Mike Cooper (Director) $0 $0 $0
Cathie Carpenter (Director) $0 $0 $0
Rosemary Anderson (President) $0 $0 $0
David Gladyness (Vice President) $0 $0 $0
Rodney Robinson (Treasurer) $0 $0 $0
+ View more people

Document Links

990
Filed on Aug. 17, 2015

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$53,131
Expenses
$83,706
Net Income
-$30,575
Net Assets
$67,270
Notable Sources of Revenue Percent of Total Revenue
Contributions $9,676
18.2%
Program Services $0
Investment Income $31
0.1%
Net Fundraising $43,424
81.7%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $67,270
Total Liabilities $0
Net Assets $67,270

No Document Links

The IRS has provided extracted financial data for this filing, but has not yet released the source documents.

Fiscal Year Ending Jan.
2013

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$82,939
Expenses
$74,158
Net Income
$8,781
Net Assets
$84,350
Notable Sources of Revenue Percent of Total Revenue
Contributions $15,755
19.0%
Program Services $0
Investment Income $30
0.0%
Net Fundraising $67,154
81.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Assets/Debt
Total Assets $84,350
Total Liabilities $0
Net Assets $84,350

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$83,723
Expenses
$65,829
Net Income
$17,894
Net Assets
$75,569
Notable Sources of Revenue Percent of Total Revenue
Contributions $21,225
25.4%
Program Services $0
Investment Income $31
0.0%
Net Fundraising $62,061
74.1%
Sales of Assets $0
Net Inventory Sales $406
0.5%
Other Revenue $0
Assets/Debt
Total Assets $75,569
Total Liabilities $0
Net Assets $75,569

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2010

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$46,548
Expenses
$28,400
Net Income
$18,148
Net Assets
$57,675
Notable Sources of Revenue Percent of Total Revenue
Contributions $5,896
12.7%
Program Services $0
Investment Income $31
0.1%
Net Fundraising $42,200
90.7%
Sales of Assets $0
Net Inventory Sales -$1,579
Other Revenue $0
Assets/Debt
Total Assets $57,675
Total Liabilities $0
Net Assets $57,675

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF
PDF (2 of 2)

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

Byline

By Andrea Suozzo, Alec Glassford and Ash Ngu, ProPublica, and Brandon Roberts, Special to ProPublica.
Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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