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Turner Syndrome Society Of The United States

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$1.11M (2023)

Expenses
$557k (2023)

Total Assets
$1.29M (2023)

Total Liabilities
$15.6k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,110,552
Expenses
$556,677
Net Income
$553,875
Net Assets
$1,272,143
Notable Sources of Revenue Percent of Total Revenue
Contributions $915,062
82.4%
Program Services $183,691
16.5%
Investment Income $136
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $8,663
0.8%
Other Revenue $3,000
0.3%
Notable Expenses Percent of Total Expenses
Executive Compensation $95,529
17.2%
Professional Fundraising Fees $0
Other Salaries and Wages $111,821
20.1%
Assets/Debt
Total Assets $1,287,754
Total Liabilities $15,611
Net Assets $1,272,143
Compensation
Key Employees and Officers Compensation Related Other
Cindy Scurlock (President & Ceo) $90,729 $0 $4,800
Kristen Mckenney (Director) $0 $0 $0
Jennifer Steele (Director) $0 $0 $0
Dawn Aye (Director) $0 $0 $0
Elizabeth Dabrowski (Director) $0 $0 $0
Bria Kelly (Director) $0 $0 $0
Danielle Smith (Director) $0 $0 $0
Kimberly Walker Vanover (Director) $0 $0 $0
Laura Wuertele (Director) $0 $0 $0
Jeanna Lee (Board Chair) $0 $0 $0
Sarah Bauer (Board Chair Elect) $0 $0 $0
Daniel Tompkins (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$522,013
Expenses
$350,675
Net Income
$171,338
Net Assets
$703,311
Notable Sources of Revenue Percent of Total Revenue
Contributions $502,046
96.2%
Program Services $10,440
2.0%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $5,183
1.0%
Other Revenue $4,344
0.8%
Notable Expenses Percent of Total Expenses
Executive Compensation $90,492
25.8%
Professional Fundraising Fees $0
Other Salaries and Wages $106,744
30.4%
Assets/Debt
Total Assets $723,870
Total Liabilities $20,559
Net Assets $703,311
Compensation
Key Employees and Officers Compensation Related Other
Cindy C Scurlock (President & Ceo) $90,492 $0 $0
Kristen Mckenney (Director) $0 $0 $0
Laura Wuertele (Director) $0 $0 $0
Christine Haley (Director) $0 $0 $0
Sarah Bauer (Director) $0 $0 $0
Kimberly Walker Vanover (Director) $0 $0 $0
Janine Reyes (Director) $0 $0 $0
Jennifer Steele (Director) $0 $0 $0
Brittani Laski (Board Chair) $0 $0 $0
Jeanna Lee (Board Chair Elect) $0 $0 $0
Daniel Tomkins (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$482,741
Expenses
$345,098
Net Income
$137,643
Net Assets
$531,973
Notable Sources of Revenue Percent of Total Revenue
Contributions $471,783
97.7%
Program Services $5,045
1.0%
Investment Income $18
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $5,545
1.1%
Other Revenue $350
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $84,048
24.4%
Professional Fundraising Fees $0
Other Salaries and Wages $109,760
31.8%
Assets/Debt
Total Assets $549,602
Total Liabilities $17,629
Net Assets $531,973
Compensation
Key Employees and Officers Compensation Related Other
Cindy C Scurlock (President & Ceo) $84,048 $0 $0
Jeff Hynes (Director) $0 $0 $0
Kimberly Walker (Director) $0 $0 $0
Michael Silberbach (Director) $0 $0 $0
Meagan Given (Director) $0 $0 $0
Melissa Caulum (Director) $0 $0 $0
Jennifer Steele (Director) $0 $0 $0
Erica Melman (Director) $0 $0 $0
Nancy Bryant (Board Chair) $0 $0 $0
Brittani Ehrhorn (Board Chair Elect) $0 $0 $0
Carolyn Gibbs (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$400,483
Expenses
$378,615
Net Income
$21,868
Net Assets
$394,330
Notable Sources of Revenue Percent of Total Revenue
Contributions $365,075
91.2%
Program Services $28,878
7.2%
Investment Income $724
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $5,716
1.4%
Other Revenue $90
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $86,622
22.9%
Professional Fundraising Fees $0
Other Salaries and Wages $128,710
34.0%
Assets/Debt
Total Assets $462,005
Total Liabilities $67,675
Net Assets $394,330
Compensation
Key Employees and Officers Compensation Related Other
Cindy C Scurlock (President & Ceo) $86,622 $0 $0
Jeff Hynes (Director) $0 $0 $0
Rosemary Morris (Director) $0 $0 $0
Michael Silberbach (Director) $0 $0 $0
Meagan Given (Director) $0 $0 $0
Melissa Caulum (Director) $0 $0 $0
Kathleen Maley (Director) $0 $0 $0
Erica Melman (Director) $0 $0 $0
Brittani Ehrhorn (Board Chair Elect) $0 $0 $0
Nancy Bryant (Board Chair) $0 $0 $0
Sarah Sullivan (Treasurer) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$642,665
Expenses
$626,905
Net Income
$15,760
Net Assets
$372,462
Notable Sources of Revenue Percent of Total Revenue
Contributions $426,921
66.4%
Program Services $197,530
30.7%
Investment Income $3,294
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $14,920
2.3%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $81,600
13.0%
Professional Fundraising Fees $0
Other Salaries and Wages $142,722
22.8%
Assets/Debt
Total Assets $396,921
Total Liabilities $24,459
Net Assets $372,462
Compensation
Key Employees and Officers Compensation Related Other
Cindy Scurlock (President & Ceo) $81,600 $0 $0
Emily Havrilak (Board Chair) $0 $0 $0
Sarah Sullivan (Treasurer) $0 $0 $0
Jeff Hynes (Director) $0 $0 $0
Rosemary Morris (Director) $0 $0 $0
Dorothy Baume (Director) $0 $0 $0
Mysti Harrison (Director) $0 $0 $0
Michael Silberbach (Director) $0 $0 $0
Elizabeth Fontenot (Director) $0 $0 $0
Nancy Bryant (Board Chair Elect) $0 $0 $0
Brittani Ehrhorn (Director) $0 $0 $0
Mandy Long (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$718,943
Expenses
$779,052
Net Income
-$60,109
Net Assets
$356,702
Notable Sources of Revenue Percent of Total Revenue
Contributions $537,626
74.8%
Program Services $183,582
25.5%
Investment Income $973
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $686
0.1%
Net Inventory Sales -$3,924
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $81,169
10.4%
Professional Fundraising Fees $0
Other Salaries and Wages $145,232
18.6%
Assets/Debt
Total Assets $380,998
Total Liabilities $24,296
Net Assets $356,702
Compensation
Key Employees and Officers Compensation Related Other
Cindy Scurlock (President & Ceo) $81,169 $0 $0
Emily Havrilak (Board Chair) $0 $0 $0
Sarah Sullivan (Treasurer) $0 $0 $0
Jeff Hynes (Director) $0 $0 $0
Rosemary Morris (Director) $0 $0 $0
Dorothy Baume (Director) $0 $0 $0
Mysti Harrison (Director) $0 $0 $0
Michael Silberbach (Director) $0 $0 $0
Elizabeth Fontenot (Director) $0 $0 $0
Nancy Bryant (Board Chair Elect) $0 $0 $0
Brittani Ehrhorn (Director) $0 $0 $0
Mandy Long (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$684,796
Expenses
$677,981
Net Income
$6,815
Net Assets
$415,204
Notable Sources of Revenue Percent of Total Revenue
Contributions $494,611
72.2%
Program Services $187,566
27.4%
Investment Income $659
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $1,788
0.3%
Other Revenue $172
0.0%
Notable Expenses Percent of Total Expenses
Executive Compensation $80,980
11.9%
Professional Fundraising Fees $0
Other Salaries and Wages $133,531
19.7%
Assets/Debt
Total Assets $440,882
Total Liabilities $25,678
Net Assets $415,204
Compensation
Key Employees and Officers Compensation Related Other
Cindy Scurlock (President & Ceo) $80,980 $0 $0
Emily Havrilak (President Elect) $0 $0 $0
Sarah Sullivan (Treasurer) $0 $0 $0
Jeff Hynes (Director) $0 $0 $0
Rosemary Morris (Director) $0 $0 $0
Kim Graham (Director) $0 $0 $0
Dorothy Baume (Director) $0 $0 $0
Carol Crawford (President) $0 $0 $0
Mysti Harrison (Director) $0 $0 $0
Michael Silberbach (Director) $0 $0 $0
Elizabeth Fontenot (Director) $0 $0 $0
Reena Kaushik (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$650,510
Expenses
$717,063
Net Income
-$66,553
Net Assets
$406,553
Notable Sources of Revenue Percent of Total Revenue
Contributions $482,639
74.2%
Program Services $161,355
24.8%
Investment Income $167
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $6,349
1.0%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $78,625
11.0%
Professional Fundraising Fees $0
Other Salaries and Wages $92,708
12.9%
Assets/Debt
Total Assets $417,952
Total Liabilities $11,399
Net Assets $406,553
Compensation
Key Employees and Officers Compensation Related Other
Cindy Scurlock (Nat'l Ex Dir) $78,625 $0 $0
Emily Havrilak (President Elect) $0 $0 $0
Sarah Sullivan (Treasurer) $0 $0 $0
Carol Crawford (President) $0 $0 $0
Callie Shaffer (Secretary) $0 $0 $0
Kim Graham (Director) $0 $0 $0
Dorothy Baume (Director) $0 $0 $0
Andrea Silver (Director) $0 $0 $0
Mysti Harrison (Director) $0 $0 $0
Michael Silberbach (Director) $0 $0 $0
Elizabeth Fontenot (Director) $0 $0 $0
Carrie Odom (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$601,420
Expenses
$498,105
Net Income
$103,315
Net Assets
$473,106
Notable Sources of Revenue Percent of Total Revenue
Contributions $406,568
67.6%
Program Services $191,264
31.8%
Investment Income $191
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $3,397
0.6%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $84,294
16.9%
Professional Fundraising Fees $0
Other Salaries and Wages $55,880
11.2%
Assets/Debt
Total Assets $483,518
Total Liabilities $10,412
Net Assets $473,106
Compensation
Key Employees and Officers Compensation Related Other
Cindy Scurlock (Nat'l Ex Dir) $84,294 $0 $0
Emily Havrilak (Secretary) $0 $0 $0
Sarah Sullivan (Treasurer) $0 $0 $0
Carol Crawford (President Elect) $0 $0 $0
Kim Graham (Director) $0 $0 $0
Dorothy Baume (Director) $0 $0 $0
Amanda Anderson (Director) $0 $0 $0
Courtney Strauss (Director) $0 $0 $0
Trudy Mc Carthy (President) $0 $0 $0
Michael Silberbach (Director) $0 $0 $0
Elizabeth Fontenot (Director) $0 $0 $0
Nancy Bryant (Director) $0 $0 $0
Carrie Odom (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$548,684
Expenses
$494,661
Net Income
$54,023
Net Assets
$369,791
Notable Sources of Revenue Percent of Total Revenue
Contributions $332,343
60.6%
Program Services $213,793
39.0%
Investment Income $219
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $2,329
0.4%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $75,976
15.4%
Professional Fundraising Fees $0
Other Salaries and Wages $40,653
8.2%
Assets/Debt
Total Assets $388,858
Total Liabilities $19,067
Net Assets $369,791
Compensation
Key Employees and Officers Compensation Related Other
Cindy Scurlock (Nat'l Ex Dir) $75,975 $0 $0
Emily Havrilak (Secretary) $0 $0 $0
Sarah Sullivan (Treasurer) $0 $0 $0
Carol Crawford (President Elect) $0 $0 $0
Anne Naber (Director) $0 $0 $0
Kim Graham (Director) $0 $0 $0
Yvonne Erdman (Director) $0 $0 $0
Trudy Mc Carthy (President) $0 $0 $0
Michael Silberbach (Director) $0 $0 $0
Cindy Kenward (Director) $0 $0 $0
Shawn Wier (Director) $0 $0 $0
Nancy Bryant (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$512,539
Expenses
$445,504
Net Income
$67,035
Net Assets
$315,768
Notable Sources of Revenue Percent of Total Revenue
Contributions $267,944
52.3%
Program Services $243,739
47.6%
Investment Income $216
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $640
0.1%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $75,975
17.1%
Professional Fundraising Fees $0
Other Salaries and Wages $38,933
8.7%
Assets/Debt
Total Assets $319,716
Total Liabilities $3,948
Net Assets $315,768
Compensation
Key Employees and Officers Compensation Related Other
Cindy Scurlock (Nat'l Ex Dir) $75,975 $0 $0
Emily Havrilak (Secretary) $0 $0 $0
Carol Crawford (Treasurer) $0 $0 $0
Anne Naber (Director) $0 $0 $0
Brenda Gruwell (President) $0 $0 $0
Yvonne Erdman (Director) $0 $0 $0
Trudy Mc Carthy (President Elect) $0 $0 $0
Michael Silberbach (Director) $0 $0 $0
Cindy Kenward (Director) $0 $0 $0
Trisha Howard (Director) $0 $0 $0
Shawn Wier (Director) $0 $0 $0
Nancy Bryant (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$476,545
Expenses
$481,497
Net Income
-$4,952
Net Assets
$248,733
Notable Sources of Revenue Percent of Total Revenue
Contributions $215,347
45.2%
Program Services $254,271
53.4%
Investment Income $252
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $6,675
1.4%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $75,713
15.7%
Professional Fundraising Fees $0
Other Salaries and Wages $35,394
7.4%
Assets/Debt
Total Assets $251,673
Total Liabilities $2,940
Net Assets $248,733

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$417,927
Expenses
$439,810
Net Income
-$21,883
Net Assets
$253,685
Notable Sources of Revenue Percent of Total Revenue
Contributions $188,706
45.2%
Program Services $226,718
54.2%
Investment Income $799
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $1,704
0.4%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $75,000
17.1%
Professional Fundraising Fees $0
Other Salaries and Wages $33,538
7.6%
Assets/Debt
Total Assets $257,418
Total Liabilities $3,733
Net Assets $253,685

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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