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National Urea Cycle Disorders Foundation

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Health - General and Rehabilitative N.E.C. (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$518k (2023)

Expenses
$193k (2023)

Total Assets
$1.16M (2023)

Total Liabilities
$16.5k (2023)

Source: Form 990 tax filings from 2011 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$518,249
Expenses
$193,381
Net Income
$324,868
Net Assets
$1,146,196
Notable Sources of Revenue Percent of Total Revenue
Contributions $517,831
99.9%
Program Services $0
Investment Income $418
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $78,915
40.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,162,732
Total Liabilities $16,536
Net Assets $1,146,196
Compensation
Key Employees and Officers Compensation Related Other
Tresa Warner (President) $45,000 $0 $0
Eva Oseland (Secretary/Treasurer) $6,319 $0 $0
Amanda Sonntag (Board Member) $0 $0 $0
Lori Shockey (Board Member) $0 $0 $0
Mary Alice O'malley (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$96,373
Expenses
$194,539
Net Income
-$98,166
Net Assets
$821,328
Notable Sources of Revenue Percent of Total Revenue
Contributions $96,013
99.6%
Program Services $0
Investment Income $360
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $821,328
Total Liabilities $0
Net Assets $821,328
Compensation
Key Employees and Officers Compensation Related Other
Cynthia Le Mons (Executive Director) $99,038 $0 $0
Tresa Warner (President) $0 $0 $0
Eva Oseland (Secretary/Treasurer) $0 $0 $0
Amanda Sonntag (Board Member) $0 $0 $0
Lori Shockey (Board Member) $0 $0 $0
Mary Alice O'malley (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$115,207
Expenses
$174,579
Net Income
-$59,372
Net Assets
$919,494
Notable Sources of Revenue Percent of Total Revenue
Contributions $113,710
98.7%
Program Services $0
Investment Income $1,497
1.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $922,408
Total Liabilities $2,914
Net Assets $919,494
Compensation
Key Employees and Officers Compensation Related Other
Cynthia Le Mons (Executive Directors) $100,000 $0 $0
Tresa Warner (President) $0 $0 $0
Eva Oseland (Secretary/Treasurer) $0 $0 $0
Amanda Sonntag (Board Member) $0 $0 $0
Lori Shockey (Board Member) $0 $0 $0
Mary Alice O'malley (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$127,073
Expenses
$195,240
Net Income
-$68,167
Net Assets
$978,866
Notable Sources of Revenue Percent of Total Revenue
Contributions $124,870
98.3%
Program Services $0
Investment Income $2,203
1.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $100,000
51.2%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $999,699
Total Liabilities $20,833
Net Assets $978,866
Compensation
Key Employees and Officers Compensation Related Other
Cynthia Le Mons (Executive Directors) $100,000 $0 $0
Tresa Warner (President) $0 $0 $0
Eva Oseland (Secretary/Treasurer) $0 $0 $0
Amanda Sonntag (Board Member) $0 $0 $0
Lori Shockey (Board Member) $0 $0 $0
Mary Alice O'malley (Board Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$220,918
Expenses
$371,157
Net Income
-$150,239
Net Assets
$1,047,032
Notable Sources of Revenue Percent of Total Revenue
Contributions $218,408
98.9%
Program Services $0
Investment Income $1,317
0.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $1,193
0.5%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $100,000
26.9%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,049,966
Total Liabilities $2,934
Net Assets $1,047,032

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$199,889
Expenses
$305,661
Net Income
-$105,772
Net Assets
$1,197,271
Notable Sources of Revenue Percent of Total Revenue
Contributions $198,074
99.1%
Program Services $0
Investment Income $1,048
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $767
0.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $100,000
32.7%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,197,271
Total Liabilities $0
Net Assets $1,197,271

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$208,051
Expenses
$526,415
Net Income
-$318,364
Net Assets
$1,303,043
Notable Sources of Revenue Percent of Total Revenue
Contributions $206,325
99.2%
Program Services $0
Investment Income $814
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $912
0.4%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $96,667
18.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,303,043
Total Liabilities $0
Net Assets $1,303,043

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$522,561
Expenses
$286,091
Net Income
$236,470
Net Assets
$1,621,407
Notable Sources of Revenue Percent of Total Revenue
Contributions $522,271
99.9%
Program Services $0
Investment Income $1,014
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$724
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $90,000
31.5%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,624,157
Total Liabilities $2,750
Net Assets $1,621,407

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$318,828
Expenses
$253,590
Net Income
$65,238
Net Assets
$1,384,937
Notable Sources of Revenue Percent of Total Revenue
Contributions $323,690
> 100%
Program Services $0
Investment Income $1,183
0.4%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$6,045
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $90,000
35.5%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,387,697
Total Liabilities $2,760
Net Assets $1,384,937

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$359,373
Expenses
$277,480
Net Income
$81,893
Net Assets
$1,319,699
Notable Sources of Revenue Percent of Total Revenue
Contributions $381,440
> 100%
Program Services $0
Investment Income $1,190
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising -$23,257
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $90,000
32.4%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,319,699
Total Liabilities $0
Net Assets $1,319,699

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$386,932
Expenses
$188,394
Net Income
$198,538
Net Assets
$1,237,806
Notable Sources of Revenue Percent of Total Revenue
Contributions $385,994
99.8%
Program Services $0
Investment Income $938
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $90,000
47.8%
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $1,240,608
Total Liabilities $2,802
Net Assets $1,237,806

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$241,514
Expenses
$301,083
Net Income
-$59,569
Net Assets
$1,039,268
Notable Sources of Revenue Percent of Total Revenue
Contributions $239,713
99.3%
Program Services $0
Investment Income $1,801
0.7%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $90,000
29.9%
Professional Fundraising Fees $0
Other Salaries and Wages $11,033
3.7%
Assets/Debt
Total Assets $1,041,933
Total Liabilities $2,665
Net Assets $1,039,268

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$341,333
Expenses
$291,481
Net Income
$49,852
Net Assets
$1,098,836
Notable Sources of Revenue Percent of Total Revenue
Contributions $338,479
99.2%
Program Services $0
Investment Income $2,854
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $90,000
30.9%
Professional Fundraising Fees $0
Other Salaries and Wages $46,000
15.8%
Assets/Debt
Total Assets $1,102,192
Total Liabilities $3,356
Net Assets $1,098,836

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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