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Hypertrophic Cardiomyopathy Association

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Heart and Circulatory System Diseases, Disorders (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$1.33M (2023)

Expenses
$1.08M (2023)

Total Assets
$1.4M (2023)

Total Liabilities
$247k (2023)

Source: Form 990 tax filings from 2010 to 2023

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,326,262
Expenses
$1,080,476
Net Income
$245,786
Net Assets
$1,151,960
Notable Sources of Revenue Percent of Total Revenue
Contributions $979,965
73.9%
Program Services $247,716
18.7%
Investment Income $10,816
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $82,657
6.2%
Sales of Assets $0
Net Inventory Sales $3,634
0.3%
Other Revenue $1,474
0.1%
Notable Expenses Percent of Total Expenses
Executive Compensation $105,000
9.7%
Professional Fundraising Fees $0
Other Salaries and Wages $417,838
38.7%
Assets/Debt
Total Assets $1,398,852
Total Liabilities $246,892
Net Assets $1,151,960
Compensation
Key Employees and Officers Compensation Related Other
Lisa Salberg (Ceo/Vice Chair) $98,908 $0 $6,092
Gordon Fox Phd (Chair) $0 $0 $0
Adam Salberg (Secretary) $0 $0 $0
Rob Lorfink (Treasurer) $0 $0 $0
Amit Kalia Phd (Director) $0 $0 $0
Rosemary Conlon (Director) $0 $0 $0
Billur Dowse (Director) $0 $0 $0
Martin Maron Md (Director) $0 $0 $0
Mike Lynch Md (Director) $0 $0 $0
Kevin O'connor Md (Director) $0 $0 $0
Isaac Rodriguez Chavez Phd Mhs Ms (Director) $0 $0 $0
Bill Rossi (Director) $0 $0 $0
Richard Melia Phd Emeritus (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$1,106,885
Expenses
$796,317
Net Income
$310,568
Net Assets
$912,460
Notable Sources of Revenue Percent of Total Revenue
Contributions $833,561
75.3%
Program Services $261,455
23.6%
Investment Income $1,204
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $9,960
0.9%
Sales of Assets $0
Net Inventory Sales $705
0.1%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $105,192
13.2%
Professional Fundraising Fees $0
Other Salaries and Wages $284,270
35.7%
Assets/Debt
Total Assets $1,085,584
Total Liabilities $173,124
Net Assets $912,460
Compensation
Key Employees and Officers Compensation Related Other
Lisa Salberg (Ceo) $99,596 $0 $5,596
Amit Kalia (Chair) $0 $0 $0
Susan Blakey (Director) $0 $0 $0
Billur Dowse (Legislative Committee Chair) $0 $0 $0
Gordon Fox (Education Committee Chair) $0 $0 $0
Carlton Hornung (Medical Affairs Committee) $0 $0 $0
Robert Lorfink (Director) $0 $0 $0
Martin Maron Md (Medical Affairs Committee) $0 $0 $0
Richard Melia (Director) $0 $0 $0
Lynn Perry (Director) $0 $0 $0
Isaac Rodriguez Chavez (Director) $0 $0 $0
Adam Salberg (Director) $0 $0 $0
Stephen Winters Md (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$804,960
Expenses
$531,813
Net Income
$273,147
Net Assets
$570,653
Notable Sources of Revenue Percent of Total Revenue
Contributions $593,489
73.7%
Program Services $145,675
18.1%
Investment Income $20,980
2.6%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $44,816
5.6%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $86,027
16.2%
Professional Fundraising Fees $0
Other Salaries and Wages $158,623
29.8%
Assets/Debt
Total Assets $577,031
Total Liabilities $6,378
Net Assets $570,653
Compensation
Key Employees and Officers Compensation Related Other
Lisa Salberg (Ceo) $86,027 $0 $0
Amit Kalia (Chair) $0 $0 $0
Susan Blakey (Director) $0 $0 $0
Billur Dowse (Legislative Committee Chair) $0 $0 $0
Gordon Fox (Education Committee Chair) $0 $0 $0
Carlton Hornung (Medical Affairs Committee Co Chair) $0 $0 $0
Robert Lorfink (Director) $0 $0 $0
Martin Maron Md (Medical Affairs Committee Co Chair) $0 $0 $0
Richard Melia (Director) $0 $0 $0
Lynn Perry (Director) $0 $0 $0
Isaac Rodriguez Chavez (Director) $0 $0 $0
Adam Salberg (Director) $0 $0 $0
Stephen Winters Md (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$390,972
Expenses
$374,280
Net Income
$16,692
Net Assets
$313,163
Notable Sources of Revenue Percent of Total Revenue
Contributions $385,315
98.6%
Program Services $0
Investment Income $6
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $11
0.0%
Net Inventory Sales $5,640
1.4%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $77,530
20.7%
Professional Fundraising Fees $0
Other Salaries and Wages $64,929
17.3%
Assets/Debt
Total Assets $313,163
Total Liabilities $0
Net Assets $313,163
Compensation
Key Employees and Officers Compensation Related Other
Lisa Salberg (Ceo/Vice Cha) $77,530 $0 $0
Susan Blakely (Member) $0 $0 $0
Isaac Rodriguez Chavez (Member) $0 $0 $0
Billur Dowse (Member) $0 $0 $0
Robert Lorfink (Member) $0 $0 $0
Martin Maron Md (Member) $0 $0 $0
Lynn Perry (Member) $0 $0 $0
Adam Salberg (Member) $0 $0 $0
Steven Winters (Member) $0 $0 $0
Amit Kalia (Chairman) $0 $0 $0
Richard Melia (Finance) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$320,578
Expenses
$191,775
Net Income
$128,803
Net Assets
$296,471
Notable Sources of Revenue Percent of Total Revenue
Contributions $320,503
100.0%
Program Services $0
Investment Income $75
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $124,205
64.8%
Assets/Debt
Total Assets $296,471
Total Liabilities $0
Net Assets $296,471
Compensation
Key Employees and Officers Compensation Related Other
Amit Kalia (Member/Chair) $0 $0 $0
Robert Lorfink (Member) $0 $0 $0
Martin Maron Md (Member) $0 $0 $0
Richard Melia (Member) $0 $0 $0
Lynn Perry (Member) $0 $0 $0
Emily Gerson Saines (Member) $0 $0 $0
Adam Salberg (Member) $0 $0 $0
Lisa Salberg (Ceo) $0 $0 $0
James Sheridan (Member) $0 $0 $0
Steven Winters (Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$355,678
Expenses
$192,098
Net Income
$163,580
Net Assets
$167,668
Notable Sources of Revenue Percent of Total Revenue
Contributions $321,990
90.5%
Program Services $0
Investment Income $462
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $33,226
9.3%
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $87,042
45.3%
Assets/Debt
Total Assets $167,668
Total Liabilities $0
Net Assets $167,668
Compensation
Key Employees and Officers Compensation Related Other
Lisa Salberg (Ceo) $54,707 $0 $0
Amit Kalia (Member/Chair) $0 $0 $0
Robert Lorfink (Member) $0 $0 $0
Martin Maron Md (Member) $0 $0 $0
Richard Melia (Member) $0 $0 $0
Lynn Perry (Member) $0 $0 $0
Adam Salberg (Member) $0 $0 $0
Emily Gerson Saines (Member) $0 $0 $0
James Sheridan (Member) $0 $0 $0
Steven Winters (Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$129,019
Expenses
$177,921
Net Income
-$48,902
Net Assets
$4,088
Notable Sources of Revenue Percent of Total Revenue
Contributions $129,019
100%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $63,982
36.0%
Assets/Debt
Total Assets $5,546
Total Liabilities $1,458
Net Assets $4,088
Compensation
Key Employees and Officers Compensation Related Other
Lynn Perry (President) $0 $0 $0
Lisa Salberg (Member/Ceo) $0 $0 $0
Pamela Cohen (Member) $0 $0 $0
Robert Lorfink (Member) $0 $0 $0
Martin Maron (Member) $0 $0 $0
Amit Kalia (Member) $0 $0 $0
Richard Melia (Member) $0 $0 $0
Adam Salberg (Member) $0 $0 $0
Stephen Winters (Member) $0 $0 $0
James Sheridan (Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$184,771
Expenses
$192,260
Net Income
-$7,489
Net Assets
$52,990
Notable Sources of Revenue Percent of Total Revenue
Contributions $164,525
89.0%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $20,246
11.0%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $84,331
43.9%
Assets/Debt
Total Assets $52,990
Total Liabilities $0
Net Assets $52,990
Compensation
Key Employees and Officers Compensation Related Other
L Joshua Eikov (President) $0 $0 $0
Pamela Cohen (Member) $0 $0 $0
Robert Lorfink (Member) $0 $0 $0
Martin Maron (Member) $0 $0 $0
Amit Kalia (Member) $0 $0 $0
Richard Melia (Member) $0 $0 $0
Lynn Perry (Member) $0 $0 $0
Adam Salberg (Member) $0 $0 $0
Stephen Winters (Member) $0 $0 $0
James Sheridan (Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$186,702
Expenses
$170,271
Net Income
$16,431
Net Assets
$60,479
Notable Sources of Revenue Percent of Total Revenue
Contributions $187,536
> 100%
Program Services $1,375
0.7%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales -$2,209
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $29,615
17.4%
Professional Fundraising Fees $0
Other Salaries and Wages $6,054
3.6%
Assets/Debt
Total Assets $64,240
Total Liabilities $3,761
Net Assets $60,479
Compensation
Key Employees and Officers Compensation Related Other
Lisa Salber (Member/Ceo) $29,615 $0 $0
L Joshua Eikov (President) $0 $0 $0
Pamela Cohen (Member) $0 $0 $0
Robert Lorfink (Member) $0 $0 $0
Martin Maron (Member) $0 $0 $0
Amit Kalia (Member) $0 $0 $0
Richard Melia (Member) $0 $0 $0
Lynn Perry (Member) $0 $0 $0
Adam Salberg (Member) $0 $0 $0
Stephen Winters (Member) $0 $0 $0
James Sheridan (Member) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$208,597
Expenses
$221,716
Net Income
-$13,119
Net Assets
$44,048
Notable Sources of Revenue Percent of Total Revenue
Contributions $83,399
40.0%
Program Services $86,223
41.3%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $25,613
12.3%
Sales of Assets $0
Net Inventory Sales $13,362
6.4%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $55,000
24.8%
Professional Fundraising Fees $0
Other Salaries and Wages $22,369
10.1%
Assets/Debt
Total Assets $44,700
Total Liabilities $652
Net Assets $44,048

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$185,681
Expenses
$155,466
Net Income
$30,215
Net Assets
$57,167
Notable Sources of Revenue Percent of Total Revenue
Contributions $170,716
91.9%
Program Services $0
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $12,794
6.9%
Sales of Assets $0
Net Inventory Sales $2,171
1.2%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $55,625
35.8%
Professional Fundraising Fees $0
Other Salaries and Wages $24,650
15.9%
Assets/Debt
Total Assets $62,473
Total Liabilities $5,306
Net Assets $57,167

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$243,145
Expenses
$256,397
Net Income
-$13,252
Net Assets
$26,952
Notable Sources of Revenue Percent of Total Revenue
Contributions $141,792
58.3%
Program Services $91,243
37.5%
Investment Income $0
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $4,661
1.9%
Sales of Assets $0
Net Inventory Sales $5,449
2.2%
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $61,346
23.9%
Professional Fundraising Fees $0
Other Salaries and Wages $27,627
10.8%
Assets/Debt
Total Assets $31,013
Total Liabilities $4,061
Net Assets $26,952

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$242,741
Expenses
$239,561
Net Income
$3,180
Net Assets
$40,204
Notable Sources of Revenue Percent of Total Revenue
Contributions $210,540
86.7%
Program Services $32,181
13.3%
Investment Income $20
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $58,565
24.4%
Professional Fundraising Fees $0
Other Salaries and Wages $30,777
12.8%
Assets/Debt
Total Assets $45,353
Total Liabilities $5,149
Net Assets $40,204

Document Links

Fiscal Year Ending Dec.
2010

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$219,459
Expenses
$265,958
Net Income
-$46,499
Net Assets
$37,024
Notable Sources of Revenue Percent of Total Revenue
Contributions $210,550
95.9%
Program Services $0
Investment Income $46
0.0%
Bond Proceeds $0
Royalties $2,204
1.0%
Rental Property Income $0
Net Fundraising $6,659
3.0%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $86,206
32.4%
Professional Fundraising Fees $2,525
0.9%
Other Salaries and Wages $0
Assets/Debt
Total Assets $37,024
Total Liabilities $0
Net Assets $37,024

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

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For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes EINs and summary financials as structured data.
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