Sotos Syndrome Support Association

C-o Jean Neshek-dowe
  • Wheaton, IL
  • Tax exemption issued: Aug. 1991
  • EIN: 43-1568496

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Specifically Named Diseases (NTEE)

Donations to this organization are tax deductible.

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Organizations with gross receipts of less than $50,000 can file the form 990-N postcard filing, which doesn’t include financial details. All Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2025

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$109,127
Expenses
$44,038
Net Income
$65,089
Net Assets
$294,367
Notable Sources of Revenue Percent of Total Revenue
Contributions $28,211
25.9%
Program Services $43,355
39.7%
Investment Income $2,347
2.2%
Net Fundraising $26,558
24.3%
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,026
0.9%
Assets/Debt
Total Assets $294,367
Total Liabilities $0
Net Assets $294,367
Compensation
Key Employees and Officers Compensation Other
Michelle Mercado (President &) $0 $0
Brian Hays (Vice Preside) $0 $0
Deja Cruz (Vice Preside) $0 $0
Kayla Seif (Secretary) $0 $0
Michele Marshal (Treasurer) $0 $0
Linnea Dugan (Director) $0 $0
Racheal Riefler (Director) $0 $0
Roberta Morgan (Director) $0 $0
Owen Eigenberg (Director) $0 $0
Sonny Mercado (Director) $0 $0
Desray Reeb (Director) $0 $0
Robert Nakao (Director) $0 $0
Monique Alloway (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on Sept. 21, 2026

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2024

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$119,595
Expenses
$116,140
Net Income
$3,455
Net Assets
$229,278
Notable Sources of Revenue Percent of Total Revenue
Contributions $42,222
35.3%
Program Services $68,036
56.9%
Investment Income $1,098
0.9%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $749
0.6%
Assets/Debt
Total Assets $229,278
Total Liabilities $0
Net Assets $229,278
Compensation
Key Employees and Officers Compensation Other
Michelle Mercado (President &) $0 $0
Brian Hays (Vice Preside) $0 $0
Deja Cruz (Vice Preside) $0 $0
Kayla Seif (Secretary) $0 $0
Michele Marshal (Treasurer) $0 $0
Linnea Dugan (Director) $0 $0
Racheal Riefler (Director) $0 $0
Roberta Morgan (Director) $0 $0
Owen Eigenberg (Director) $0 $0
Sonny Mercado (Director) $0 $0
Desray Reeb (Director) $0 $0
Robert Nakao (Director) $0 $0
Monique Alloway (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on April 4, 2025

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2023

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$64,185
Expenses
$97,804
Net Income
-$33,619
Net Assets
$225,823
Notable Sources of Revenue Percent of Total Revenue
Contributions $28,141
43.8%
Program Services $28,291
44.1%
Investment Income $708
1.1%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $445
0.7%
Assets/Debt
Total Assets $225,823
Total Liabilities $0
Net Assets $225,823
Compensation
Key Employees and Officers Compensation Other
Michelle Mercado (President &) $0 $0
Brian Hays (Vice Preside) $0 $0
Deja Cruz (Vice Preside) $0 $0
Kayla Seif (Secretary) $0 $0
Michele Marshal (Treasurer) $0 $0
Linnea Dugan (Director) $0 $0
Racheal Riefler (Director) $0 $0
Roberta Morgan (Director) $0 $0
Owen Eigenberg (Director) $0 $0
Sonny Mercado (Director) $0 $0
Desray Reeb (Director) $0 $0
Robert Nakao (Director) $0 $0
Monique Alloway (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on May 20, 2024

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$25,349
Expenses
$13,887
Net Income
$11,462
Net Assets
$259,441
Notable Sources of Revenue Percent of Total Revenue
Contributions $17,215
67.9%
Program Services $650
2.6%
Investment Income $304
1.2%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $485
1.9%
Assets/Debt
Total Assets $259,441
Total Liabilities $0
Net Assets $259,441
Compensation
Key Employees and Officers Compensation Other
Ms Linnea Dugan (President &) $0 $0
Ms Michele Marshal (Treasurer) $0 $0
Ms Whitney George (Director) $0 $0
Ms Roberta Morgan (Director) $0 $0
Mr Dan Place (Director) $0 $0
Mr Brian Hays (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on April 27, 2023

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$36,305
Expenses
$5,338
Net Income
$30,967
Net Assets
$247,980
Notable Sources of Revenue Percent of Total Revenue
Contributions $27,250
75.1%
Program Services $305
0.8%
Investment Income $475
1.3%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $775
2.1%
Assets/Debt
Total Assets $247,980
Total Liabilities $0
Net Assets $247,980
Compensation
Key Employees and Officers Compensation Other
Ms Linnea Dugan (President &) $0 $0
Ms Michele Marshal (Treasurer &) $0 $0
Ms Whitney George (Director) $0 $0
Ms Roberta Morgan (Director) $0 $0
Mr Dan Place (Director) $0 $0
Mr Brian Hays (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on May 13, 2022

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
PDF XML

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$31,318
Expenses
$4,008
Net Income
$27,310
Net Assets
$217,014
Notable Sources of Revenue Percent of Total Revenue
Contributions $23,246
74.2%
Program Services $390
1.2%
Investment Income $747
2.4%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $525
1.7%
Assets/Debt
Total Assets $217,014
Total Liabilities $0
Net Assets $217,014
Compensation
Key Employees and Officers Compensation Other
Ms Linnea Dugan (President &) $0 $0
Ms Michele Marshal (Treasurer &) $0 $0
Ms Whitney George (Director) $0 $0
Ms Roberta Morgan (Director) $0 $0
Mr Dan Place (Director) $0 $0
Mr Brian Hays (Director) $0 $0
+ View more people

Document Links

990-EZ
Filed on May 11, 2021

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing
XML

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$56,425
Expenses
$59,535
Net Income
-$3,110
Net Assets
$189,704
Notable Sources of Revenue Percent of Total Revenue
Contributions $19,278
34.2%
Program Services $28,947
51.3%
Investment Income $805
1.4%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $625
1.1%
Assets/Debt
Total Assets $189,704
Total Liabilities $0
Net Assets $189,704

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$65,955
Expenses
$39,206
Net Income
$26,749
Net Assets
$192,814
Notable Sources of Revenue Percent of Total Revenue
Contributions $20,018
30.4%
Program Services $38,602
58.5%
Investment Income $635
1.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $950
1.4%
Assets/Debt
Total Assets $192,814
Total Liabilities $0
Net Assets $192,814

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$60,083
Expenses
$40,093
Net Income
$19,990
Net Assets
$166,065
Notable Sources of Revenue Percent of Total Revenue
Contributions $22,110
36.8%
Program Services $32,721
54.5%
Investment Income $602
1.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $810
1.3%
Assets/Debt
Total Assets $166,065
Total Liabilities $0
Net Assets $166,065

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$59,478
Expenses
$59,382
Net Income
$96
Net Assets
$146,075
Notable Sources of Revenue Percent of Total Revenue
Contributions $6,362
10.7%
Program Services $45,341
76.2%
Investment Income $570
1.0%
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $1,600
2.7%
Assets/Debt
Total Assets $146,075
Total Liabilities $0
Net Assets $146,075

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2015

Gross receipts
Less than $50,000

Postcard filings do not ask for a specific revenue amount and provide no additional financial details.

Document Links

990-N

Postcard filing for an organization with gross receipts less than $50,000. These filings do not generate a downloadable form.

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from 990-EZ
Revenue
$54,407
Expenses
$53,115
Net Income
$1,292
Net Assets
$140,750
Notable Sources of Revenue Percent of Total Revenue
Contributions $9,159
16.8%
Program Services $35,948
66.1%
Investment Income $1,836
3.4%
Net Fundraising $0
Sales of Assets -$8
Net Inventory Sales $0
Other Revenue $1,672
3.1%
Assets/Debt
Total Assets $140,750
Total Liabilities $0
Net Assets $140,750

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Aug.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Aug.
2006

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Aug.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Aug.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Aug.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains financial information from tax returns processed by the IRS since the 2012 calendar years, as well as data extracted from digital filings. IRS summary data also includes limited older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits for nonprofit organizations that spent $750,000 or more in federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Most organizations that have been recognized as tax exempt by the IRS have to file the Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file the Form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard," which does not contain financial details. Churches are not required to file Form 990.

Nonprofit Explorer has organizations that are claiming tax exemption in any of the 27 subsections of the 501(c) section of the tax code. Taxable trusts and private foundations that are required to file a form 990PF are also included.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

  • Raw filing data. Includes Employer Identification Numbers and summary financials as structured data.
  • Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
  • Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica.
  • Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
  • Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

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Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

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