Foundation For Children With Atypical Hus

Penfield, NY
Tax-exempt since Aug. 2001
EIN: 43-1934565

Receive an email when new data is available for this organization.

Type of Nonprofit

Designated as a 501(c)(3) Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Diseases, Disorders, Medical Disciplines / Fund Raising and/or Fund Distribution (NTEE)

Donations to this organization are tax deductible.

Revenue

$127k (2024)

Expenses

$166k (2024)

Total Assets

$87.3k (2024)

Total Liabilities

$0 (2024)

Years with multiple filings

Source: Form 990 tax filings from 2011 to 2024

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2024

Revenue

$126,958

Expenses

$165,826

Net Income

-$38,868

Net Assets

$87,302

Notable Sources of Revenue		Percent of Total Revenue
Contributions Received	$127,383	> 100%
Interest Revenue	$0
Dividends	$0
Sales of Assets	$0
Other Income	$0

Notable Expenses		Percent of Total Expenses
Charitable Disbursements	$163,308	98.5%
Compensation of Officers*	$0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.

Assets/Debt
Total Assets	$87,302
Total Liabilities	$0
Net Assets	$87,302

Compensation

Key Employees and Officers	Compensation	Other
David Deffenbaugh (President)	$0	$0
Amber Schlaht (Secretary (Through 6/24))	$0	$0
Donna Kolp (Treasurer)	$0	$0
Fran Pecor (Secretary (Beginning 6/24))	$0	$0

+ View more people

990-PF

Filed on Oct. 27, 2025

Primary tax return for a private foundation's activities, finances, and governance

View Filing

Schedules ▼

XML

Fiscal Year Ending Dec.
2023

Revenue

$111,240

Expenses

$116,408

Net Income

-$5,168

Net Assets

$126,170

Notable Sources of Revenue		Percent of Total Revenue
Contributions Received	$111,846	> 100%
Interest Revenue	$0
Dividends	$0
Sales of Assets	$0
Other Income	$0

Notable Expenses		Percent of Total Expenses
Charitable Disbursements	$113,054	97.1%
Compensation of Officers*	$0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.

Assets/Debt
Total Assets	$127,228
Total Liabilities	$1,058
Net Assets	$126,170

Compensation

Key Employees and Officers	Compensation	Other
David Deffenbaugh (President)	$0	$0
Amber Schlaht (Secretary)	$0	$0
Donna Kolp (Treasurer)	$0	$0

990-PF

Filed on Nov. 8, 2024

Primary tax return for a private foundation's activities, finances, and governance

View Filing

Schedules ▼

XML

Fiscal Year Ending Dec.
2022

Revenue

$1,319

Expenses

$22,426

Net Income

-$21,107

Net Assets

$131,338

Notable Sources of Revenue		Percent of Total Revenue
Contributions Received	$1,651	> 100%
Interest Revenue	$0
Dividends	$0
Sales of Assets	$0
Other Income	$0

Notable Expenses		Percent of Total Expenses
Charitable Disbursements	$19,596	87.4%
Compensation of Officers*	$0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.

Assets/Debt
Total Assets	$131,338
Total Liabilities	$0
Net Assets	$131,338

Compensation

Key Employees and Officers	Compensation	Other
David Deffenbaugh (President)	$0	$0
Amber Schlaht (Secretary)	$0	$0
Donna Kolp (Treasurer)	$0	$0

990-PF

Filed on Nov. 14, 2023

Primary tax return for a private foundation's activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2021

Revenue

$29,675

Expenses

$21,250

Net Income

$8,425

Net Assets

$152,445

Notable Sources of Revenue		Percent of Total Revenue
Contributions Received	$25,179	84.8%
Interest Revenue	$0
Dividends	$0
Sales of Assets	$0
Other Income	$0

Notable Expenses		Percent of Total Expenses
Charitable Disbursements	$0
Compensation of Officers*	$0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.

Assets/Debt
Total Assets	$152,445
Total Liabilities	$0
Net Assets	$152,445

Compensation

Key Employees and Officers	Compensation	Other
David Deffenbaugh (Pres.)	$0	$0
Amber Schlaht (Secretary)	$0	$0
Donna Kolp (Treasurer)	$0	$0

990-PF

Filed on Aug. 25, 2022

Primary tax return for a private foundation's activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2020

Revenue

$24,466

Expenses

$26,378

Net Income

-$1,912

Net Assets

$147,399

Notable Sources of Revenue		Percent of Total Revenue
Contributions Received	$16,392	67.0%
Interest Revenue	$0
Dividends	$0
Sales of Assets	$0
Other Income	$0

Notable Expenses		Percent of Total Expenses
Charitable Disbursements	$0
Compensation of Officers*	$0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.

Assets/Debt
Total Assets	$147,400
Total Liabilities	$1
Net Assets	$147,399

Compensation

Key Employees and Officers	Compensation	Other
David Deffenbaugh (Pres.)	$0	$0
Amber Schlaht (Secretary)	$0	$0
Donna Kolp (Treasurer)	$0	$0

990-PF

Filed on Nov. 12, 2021

Primary tax return for a private foundation's activities, finances, and governance

View Filing

Schedules ▼

XML

Fiscal Year Ending Dec.
2019

Revenue

$132,881

Expenses

$118,126

Net Income

$14,755

Net Assets

$149,265

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$132,881	100%
Program Services	$0
Investment Income	$0
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$0
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$0
Professional Fundraising Fees	$0
Other Salaries and Wages	$11,600	9.8%

Assets/Debt
Total Assets	$149,265
Total Liabilities	$0
Net Assets	$149,265

Revenue

$132,881

Expenses

$118,079

Net Income

$14,802

Net Assets

$149,312

Notable Sources of Revenue		Percent of Total Revenue
Contributions Received	$132,881	100%
Interest Revenue	$0
Dividends	$0
Sales of Assets	$0
Other Income	$0

Notable Expenses		Percent of Total Expenses
Charitable Disbursements	$0
Compensation of Officers*	$0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.

Assets/Debt
Total Assets	$149,312
Total Liabilities	$0
Net Assets	$149,312

Compensation

Key Employees and Officers	Compensation	Other
David Deffenbaugh (Pres.)	$0	$0
Amber Schlaht (Secretary)	$0	$0
Donna Kolp (Treasurer)	$0	$0

990

Primary tax return for a nonprofit’s activities, finances, and governance

PDF

990-PF

Filed on Nov. 15, 2021

Primary tax return for a private foundation's activities, finances, and governance

View Filing

Schedules ▼

XML

Fiscal Year Ending Dec.
2018

Revenue

$308,706

Expenses

$291,458

Net Income

$17,248

Net Assets

$134,509

Notable Sources of Revenue		Percent of Total Revenue
Contributions Received	$308,706	100%
Interest Revenue	$0
Dividends	$0
Sales of Assets	$0
Other Income	$0

Notable Expenses		Percent of Total Expenses
Charitable Disbursements	$0
Compensation of Officers*	$0
* Officer compensation may be included in charitable disbursements, so Percent of Total Expenses may add up to greater than 100%.

Assets/Debt
Total Assets	$134,510
Total Liabilities	$1
Net Assets	$134,509

Compensation

Key Employees and Officers	Compensation	Other
David Deffenbaugh (Pres.)	$0	$0
Amber Schlaht (Secretary)	$0	$0
Donna Kolp (Treasurer)	$0	$0
Sarah Wright (Director)	$0	$0

+ View more people

990-PF

Filed on Nov. 15, 2019

Primary tax return for a private foundation's activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2017

Revenue

$337,164

Expenses

$341,821

Net Income

-$4,657

Net Assets

$153,683

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$337,146	100.0%
Program Services	$0
Investment Income	$18	0.0%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$0
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$42,115	12.3%
Professional Fundraising Fees	$0
Other Salaries and Wages	$0

Assets/Debt
Total Assets	$156,005
Total Liabilities	$2,322
Net Assets	$153,683

Reported conflict of interest transactions

Compensation

Key Employees and Officers	Compensation	Related	Other
David Deffenbaugh (President)	$0	$0	$0
Amber Schlaht (Director)	$0	$0	$0
Barbara Farcher (Director)	$0	$0	$0
Nicole Donnelly (Director)	$0	$0	$0
Donna Kolp (Treasurer)	$0	$0	$0
Sarah Wright (Director)	$0	$0	$0

+ View more people

990

Filed on Nov. 14, 2018

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2016

Revenue

$289,920

Expenses

$228,097

Net Income

$61,823

Net Assets

$158,340

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$287,933	99.3%
Program Services	$0
Investment Income	$842	0.3%
Bond Proceeds	$0
Royalties	$0
Rental Property Income	$0
Net Fundraising	$1,145	0.4%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Notable Expenses		Percent of Total Expenses
Executive Compensation	$21,881	9.6%
Professional Fundraising Fees	$0
Other Salaries and Wages	$0

Assets/Debt
Total Assets	$158,340
Total Liabilities	$0
Net Assets	$158,340

Reported conflict of interest transactions

Compensation

Key Employees and Officers	Compensation	Related	Other
Anne Bruns (Vice President)	$16,750	$0	$0
David Deffenbaugh (President)	$3,281	$0	$0
Nicole Donnelly (Director)	$1,000	$0	$0
Barbara Farcher (Director)	$750	$0	$0
Donna Kolp (Director)	$100	$0	$0

+ View more people

990

Filed on Nov. 15, 2017

Primary tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2015

Revenue

$162,471

Expenses

$118,567

Net Income

$43,904

Net Assets

$96,517

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$160,589	98.8%
Program Services	$0
Investment Income	$605	0.4%
Net Fundraising	$1,277	0.8%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Assets/Debt
Total Assets	$97,677
Total Liabilities	$1,160
Net Assets	$96,517

Compensation

Key Employees and Officers	Compensation	Other
Anne Bruns (Vice President/Sec/Dir)	$1,500	$0
David Deffenbaugh (Director)	$0	$0
Bill Biermann (President/Chairman/Dir)	$0	$0

990-EZ

Filed on Aug. 15, 2016

Short form tax return for a nonprofit’s activities, finances, and governance

View Filing

Schedules ▼

PDF XML

Fiscal Year Ending Dec.
2014

Revenue

$168,891

Expenses

$174,661

Net Income

-$5,770

Net Assets

$52,613

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$164,793	97.6%
Program Services	$0
Investment Income	$864	0.5%
Net Fundraising	$3,222	1.9%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$12	0.0%

Assets/Debt
Total Assets	$52,613
Total Liabilities	$0
Net Assets	$52,613

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2013

Revenue

$50,296

Expenses

$92,816

Net Income

-$42,520

Net Assets

$58,383

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$33,167	65.9%
Program Services	$0
Investment Income	$534	1.1%
Net Fundraising	$16,891	33.6%
Sales of Assets	-$296
Net Inventory Sales	$0
Other Revenue	$0

Assets/Debt
Total Assets	$58,383
Total Liabilities	$0
Net Assets	$58,383

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2012

Revenue

$46,920

Expenses

$63,499

Net Income

-$16,579

Net Assets

$100,903

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$10,212	21.8%
Program Services	$0
Investment Income	$3,043	6.5%
Net Fundraising	$33,665	71.7%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$0

Assets/Debt
Total Assets	$100,903
Total Liabilities	$0
Net Assets	$100,903

990-EZ

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

Fiscal Year Ending Dec.
2011

Revenue

$129,012

Expenses

$58,940

Net Income

$70,072

Net Assets

$117,482

Notable Sources of Revenue		Percent of Total Revenue
Contributions	$8,005	6.2%
Program Services	$0
Investment Income	$0
Net Fundraising	$51,719	40.1%
Sales of Assets	$0
Net Inventory Sales	$0
Other Revenue	$69,288	53.7%

Assets/Debt
Total Assets	$117,482
Total Liabilities	$0
Net Assets	$117,482

Short form tax return for a nonprofit’s activities, finances, and governance

PDF

About This Data

What Is This Data?

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

Which Organizations Are Here?

Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

There are 27 nonprofit designations based on the numbered subsections of section 501(c) of the tax code. See the list »

Get the Data

For those interested in acquiring the original data from the source, here’s where our data comes from:

Raw filing data. Includes EINs and summary financials as structured data.
Exempt Organization profiles. Includes organization names, addresses, etc. You can merge this with the raw filing data using EIN numbers.
Form 990 documents. Prior to 2017, these documents were obtained and processed by Public.Resource.org and ProPublica. Bulk PDF downloads since 2017 are available from the IRS.
Form 990 documents as XML files. Includes complete filing data (financial details, names of officers, tax schedules, etc.) in machine-readable format. Only available for electronically filed documents. Electronic data released prior to October 2021 is also available through Amazon Web Services.
Audits. PDFs of single or program-specific audits for nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year. Available for fiscal year 2015 and later.

API

The data powering this website is available programmatically, via an API. Read the API documentation »

See an issue with the data?

Nonprofit Explorer

Browse millions of annual returns filed by tax-exempt organizations with ProPublica’s Nonprofit Explorer. See details like executive compensation, revenue, expenses and more. Search for an organization or a person, or search the full text of filings.

By Andrea Suozzo, Alec Glassford, Ash Ngu and Brandon Roberts.

Design by Jeff Frankl. Additional development by Ken Schwencke, Mike Tigas, and Sisi Wei.

E-file viewer adapted from IRS e-File Viewer by Ben Getson. Code for scraping audit documents adapated from Govwiki.

Updated March 23, 2026

Foundation For Children With Atypical Hus

Organization summary

Type of Nonprofit

Summary charts: organization finances over time

Revenue $127k (2024)

Expenses $166k (2024)

Total Assets $87.3k (2024)

Total Liabilities $0 (2024)

Tax Filings by Year

Fiscal Year Ending Dec. 2024

Extracted Financial Data

Extracted Financial Data from Form 990-PF

Compensation

Document Links

990-PF

Fiscal Year Ending Dec. 2023

Extracted Financial Data

Extracted Financial Data from Form 990-PF

Compensation

Document Links

990-PF

Fiscal Year Ending Dec. 2022

Extracted Financial Data

Extracted Financial Data from Form 990-PF

Compensation

Document Links

990-PF

Fiscal Year Ending Dec. 2021

Extracted Financial Data

Extracted Financial Data from Form 990-PF

Compensation

Document Links

990-PF

Fiscal Year Ending Dec. 2020

Extracted Financial Data

Extracted Financial Data from Form 990-PF

Compensation

Document Links

990-PF

Fiscal Year Ending Dec. 2019

Extracted Financial Data

Extracted Financial Data from Form 990

Extracted Financial Data from Form 990-PF

Compensation

Document Links

990

990-PF

Fiscal Year Ending Dec. 2018

Extracted Financial Data

Extracted Financial Data from Form 990-PF

Compensation

Document Links

990-PF

Fiscal Year Ending Dec. 2017

Extracted Financial Data

Extracted Financial Data from Form 990

Other

Compensation

Document Links

990

Fiscal Year Ending Dec. 2016

Extracted Financial Data

Extracted Financial Data from Form 990

Other

Compensation

Document Links

990

Fiscal Year Ending Dec. 2015

Extracted Financial Data

Extracted Financial Data from 990-EZ

Compensation

Document Links

990-EZ

Fiscal Year Ending Dec. 2014

Extracted Financial Data

Extracted Financial Data from 990-EZ

Document Links

990-EZ

Fiscal Year Ending Dec. 2013

Extracted Financial Data

Revenue

$127k (2024)

Expenses

$166k (2024)

Total Assets

$87.3k (2024)

Total Liabilities

$0 (2024)

Fiscal Year Ending Dec.
2024

Fiscal Year Ending Dec.
2023

Fiscal Year Ending Dec.
2022

Fiscal Year Ending Dec.
2021

Fiscal Year Ending Dec.
2020

Fiscal Year Ending Dec.
2019

Fiscal Year Ending Dec.
2018

Fiscal Year Ending Dec.
2017

Fiscal Year Ending Dec.
2016

Fiscal Year Ending Dec.
2015

Fiscal Year Ending Dec.
2014

Fiscal Year Ending Dec.
2013

Fiscal Year Ending Dec.
2012

Fiscal Year Ending Dec.
2011

Fiscal Year Ending Dec.
2010

Fiscal Year Ending Dec.
2008

Fiscal Year Ending Dec.
2007

Fiscal Year Ending Dec.
2006

Fiscal Year Ending Dec.
2005

Fiscal Year Ending Dec.
2004

Fiscal Year Ending Dec.
2003

Fiscal Year Ending Dec.
2002