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Cystinosis Research Network Incorporated

Organization summary

Type of Nonprofit

Designated as a Organizations for any of the following purposes: religious, educational, charitable, scientific, literary, testing for public safety, fostering national or international amateur sports competition (as long as it doesn't provide athletic facilities or equipment), or the prevention of cruelty to children or animals.

Category: Education N.E.C. (NTEE)

Donations to this organization are tax deductible.

Summary charts: organization finances over time

Revenue
$346k (2022)

Expenses
$537k (2022)

Total Assets
$505k (2022)

Total Liabilities
$53.7k (2022)

Source: Form 990 tax filings from 2011 to 2022

Tax Filings by Year

Form 990 is an information return that most organizations claiming federal tax-exempt status must file yearly with the IRS. Nonprofit Explorer has IRS digitized Form 990 data for filings processed in 2012 and later. If this organization filed an amended return, it may not be reflected below. Duplicate download links may indicate a resubmission or amendment to this organization's original return. Form 990 data is from the IRS.

Fiscal Year Ending Dec.
2022

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$346,267
Expenses
$537,436
Net Income
-$191,169
Net Assets
$451,691
Notable Sources of Revenue Percent of Total Revenue
Contributions $345,873
99.9%
Program Services $0
Investment Income $394
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $505,368
Total Liabilities $53,677
Net Assets $451,691
Compensation
Key Employees and Officers Compensation Related Other
Christy Greeley (Exec Dir & Vp Research) $0 $0 $0
Johnathan Dicks (President, Vp Development) $0 $0 $0
Tim Wyman (Treasurer) $0 $0 $0
Karen Gledhill (Secretary) $0 $0 $0
Marybeth Krummenacker (Vp Education & Awareness) $0 $0 $0
Kristina Sevel (Vp Research) $0 $0 $0
Carol Hughes (Director) $0 $0 $0
Gail Potts (Director) $0 $0 $0
Heather Fields Rothrock (Director) $0 $0 $0
Terri Schleuder (Director) $0 $0 $0
Herberth Sigler (Director) $0 $0 $0
Jen Wyman (Director) $0 $0 $0
Chelsea Meschke (Vp Family Support (Until 10/22)) $0 $0 $0
Megan Morrill (Director (Until 10/22)) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2021

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$543,210
Expenses
$412,057
Net Income
$131,153
Net Assets
$642,860
Notable Sources of Revenue Percent of Total Revenue
Contributions $542,497
99.9%
Program Services $0
Investment Income $713
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $679,647
Total Liabilities $36,787
Net Assets $642,860
Compensation
Key Employees and Officers Compensation Related Other
Christy Greeley (Exec Dir & Vp, Research) $0 $0 $0
Tim Wyman (Treasurer) $0 $0 $0
Karen Gledhill (Secretary) $0 $0 $0
Johnathan Dicks (Vp, Development) $0 $0 $0
Marybeth Krummenacker (Vp, Education & Awareness) $0 $0 $0
Jen Wyman (Vp, Family Support) $0 $0 $0
Clinton Moore (President Term) $0 $0 $0
Ina Gardener (Secretary Term) $0 $0 $0
Jenni Sexstone (Treasurer Term) $0 $0 $0
Carol Hughes (Director) $0 $0 $0
Gail Potts (Director) $0 $0 $0
Kristina Sevel (Director) $0 $0 $0
Herberth Sigler (Director) $0 $0 $0
Andrea Carr (Director Term) $0 $0 $0
Jennifer Loglisci (Director Term) $0 $0 $0
John Maccarone (Director Term) $0 $0 $0
Anna Pruitt (Director Term) $0 $0 $0
Kristen Stilke (Director Term) $0 $0 $0
Larry Thomas (Director Term) $0 $0 $0
Melanie Vachon (Director Term) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2020

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$527,497
Expenses
$200,789
Net Income
$326,708
Net Assets
$511,707
Notable Sources of Revenue Percent of Total Revenue
Contributions $526,401
99.8%
Program Services $0
Investment Income $1,096
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $540,033
Total Liabilities $28,326
Net Assets $511,707
Compensation
Key Employees and Officers Compensation Related Other
Clinton Moore (President) $0 $0 $0
Christy Greeley (Exec Dir & Vp, Research) $0 $0 $0
Ina Gardener (Secretary) $0 $0 $0
Jenni Sexstone (Treasurer) $0 $0 $0
Johnathan Dicks (Vp, Development) $0 $0 $0
Marybeth Krummenacker (Vp, Education & Awareness) $0 $0 $0
Jen Wyman (Vp, Family Support) $0 $0 $0
Andrea Carr (Director) $0 $0 $0
Carol Hughes (Director) $0 $0 $0
Jennifer Loglisci (Director) $0 $0 $0
John Maccarone (Director) $0 $0 $0
Gail Potts (Director) $0 $0 $0
Anna Pruitt (Director) $0 $0 $0
Herberth Sigler (Director) $0 $0 $0
Kristen Stilke (Director) $0 $0 $0
Larry Thomas (Director) $0 $0 $0
Melanie Vachon (Director) $0 $0 $0
Tim Wyman (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2019

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$408,570
Expenses
$568,997
Net Income
-$160,427
Net Assets
$184,999
Notable Sources of Revenue Percent of Total Revenue
Contributions $405,278
99.2%
Program Services $0
Investment Income $3,292
0.8%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $215,527
Total Liabilities $30,528
Net Assets $184,999
Compensation
Key Employees and Officers Compensation Related Other
Clinton Moore (President) $0 $0 $0
Christy Greeley (Exec Dir & Vp, Research) $0 $0 $0
Ina Gardener (Secretary) $0 $0 $0
Jenni Sexstone (Treasurer) $0 $0 $0
Marybeth Krummenacker (Vp, Education & Awareness) $0 $0 $0
Herberth Sigler (Vp, Development) $0 $0 $0
Jen Wyman (Vp, Family Support) $0 $0 $0
Gail Potts (Director) $0 $0 $0
Larry Thomas (Director) $0 $0 $0
Jennifer Loglisci (Director) $0 $0 $0
Carol Hughes (Director) $0 $0 $0
Pam Woodward (Director) $0 $0 $0
John Maccarone (Director) $0 $0 $0
Kristen Stilke (Director) $0 $0 $0
Anna Pruitt (Director) $0 $0 $0
Jeff Larimore (Director) $0 $0 $0
Dawn Strickland (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2018

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$537,875
Expenses
$369,378
Net Income
$168,497
Net Assets
$345,426
Notable Sources of Revenue Percent of Total Revenue
Contributions $536,279
99.7%
Program Services $0
Investment Income $1,596
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $391,665
Total Liabilities $46,239
Net Assets $345,426
Compensation
Key Employees and Officers Compensation Related Other
Clinton Moore (President) $0 $0 $0
Christy Greeley (Exec Dir & Vp, Research) $0 $0 $0
Ina Gardener (Secretary) $0 $0 $0
Jenni Sexstone (Treasurer) $0 $0 $0
Marybeth Krummenacker (Vp, Education & Awareness) $0 $0 $0
Herberth Sigler (Vp, Development) $0 $0 $0
Jen Wyman (Vp, Family Support) $0 $0 $0
Gail Potts (Director) $0 $0 $0
Larry Thomas (Director) $0 $0 $0
Jennifer Loglisci (Director) $0 $0 $0
Carol Hughes (Director) $0 $0 $0
Pam Woodward (Director) $0 $0 $0
John Maccarone (Director) $0 $0 $0
Kristen Stilke (Director) $0 $0 $0
Anna Pruitt (Director) $0 $0 $0
Jeff Larimore (Director) $0 $0 $0
Dawn Strickland (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2017

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$395,493
Expenses
$665,838
Net Income
-$270,345
Net Assets
$176,929
Notable Sources of Revenue Percent of Total Revenue
Contributions $394,682
99.8%
Program Services $0
Investment Income $811
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $205,041
Total Liabilities $28,112
Net Assets $176,929
Compensation
Key Employees and Officers Compensation Related Other
Clinton Moore (President) $0 $0 $0
Christy Greeley (Exec Dir & Vp, Research) $0 $0 $0
Ina Gardener (Secretary) $0 $0 $0
Jenni Sexstone (Treasurer) $0 $0 $0
Terri Schleuder (Vp, Education & Awareness) $0 $0 $0
Jose Morales (Vp, Development) $0 $0 $0
Jen Wyman (Vp, Family Support) $0 $0 $0
Jill Emerson (Director) $0 $0 $0
Larry Thomas (Director) $0 $0 $0
Carol Hughes (Director) $0 $0 $0
John Maccarone (Director) $0 $0 $0
Marybeth Krummenacker (Director) $0 $0 $0
Jeff Larimore (Director) $0 $0 $0
Jennifer Loglisci (Director) $0 $0 $0
Pam Woodward (Director) $0 $0 $0
Herberth Sigler (Director) $0 $0 $0
Stephanie Sorensen (Director) $0 $0 $0
Aimee Adelmann (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2016

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$412,415
Expenses
$281,642
Net Income
$130,773
Net Assets
$447,274
Notable Sources of Revenue Percent of Total Revenue
Contributions $411,391
99.8%
Program Services $0
Investment Income $1,024
0.2%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $480,370
Total Liabilities $33,096
Net Assets $447,274
Compensation
Key Employees and Officers Compensation Related Other
Jeff Larimore (President & Treasurer) $0 $0 $0
Christy Greeley (Exec Dir & Vp, Research) $0 $0 $0
Rachel Dalomba (Secretary) $0 $0 $0
Terri Schleuder (Vice President, Awareness) $0 $0 $0
Jose Morales (Vice President, Developmen) $0 $0 $0
Clinton Moore (Vice President, Family Support) $0 $0 $0
Ina Gardener (Director) $0 $0 $0
Carol Hughes (Director) $0 $0 $0
Marybeth Krummenacker (Director) $0 $0 $0
Jennifer Loglisci (Director) $0 $0 $0
John Maccarone (Director) $0 $0 $0
Jenni Sexstone (Director) $0 $0 $0
Herberth Sigler (Director) $0 $0 $0
Stephanie Sorensen (Director) $0 $0 $0
Pam Woodward (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2015

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$617,319
Expenses
$693,077
Net Income
-$75,758
Net Assets
$316,501
Notable Sources of Revenue Percent of Total Revenue
Contributions $615,747
99.7%
Program Services $0
Investment Income $1,572
0.3%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $331,344
Total Liabilities $14,843
Net Assets $316,501
Compensation
Key Employees and Officers Compensation Related Other
Jeff Larimore (President & Treasurer) $0 $0 $0
Terri Schleuder (Vice President, Awareness) $0 $0 $0
Jose Morales (Vice President, Development) $0 $0 $0
Pam Woodward (Vice President, Family Support) $0 $0 $0
Christy Greeley (Exec Dir & Vp, Research) $0 $0 $0
Rachel Dalomba (Secretary) $0 $0 $0
Ina Gardener (Director) $0 $0 $0
Rich Jordan (Director) $0 $0 $0
Marybeth Krummenacker (Director) $0 $0 $0
John Maccarone (Director) $0 $0 $0
Clinton Moore (Director) $0 $0 $0
Katherine Morrison (Director) $0 $0 $0
Jenni Sexstone (Director) $0 $0 $0
Lynn Thomas (Director) $0 $0 $0
Jennifer Loglisci (Director) $0 $0 $0
Carol Hughes (Director) $0 $0 $0
Herberth Sigler (Director) $0 $0 $0
Stephanie Sorensen (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2014

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$652,835
Expenses
$358,530
Net Income
$294,305
Net Assets
$392,259
Notable Sources of Revenue Percent of Total Revenue
Contributions $652,363
99.9%
Program Services $0
Investment Income $472
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $430,403
Total Liabilities $38,144
Net Assets $392,259
Compensation
Key Employees and Officers Compensation Related Other
Jeff Larimore (President & Treasurer) $0 $0 $0
Terri Schleuder (Vice President, Awareness) $0 $0 $0
Jose Morales (Vice President, Development) $0 $0 $0
Pam Woodward (Vice President, Family Support) $0 $0 $0
Christy Greeley (Exec Dir & Vp, Research) $0 $0 $0
Rachel Dalomba (Secretary) $0 $0 $0
Ina Gardener (Director) $0 $0 $0
Rich Jordan (Director) $0 $0 $0
Marybeth Krummenacker (Director) $0 $0 $0
John Maccarone (Director) $0 $0 $0
Clinton Moore (Director) $0 $0 $0
Katherine Morrison (Director) $0 $0 $0
Jenni Sexstone (Director) $0 $0 $0
Lynn Thomas (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2013

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$510,293
Expenses
$505,210
Net Income
$5,083
Net Assets
$97,954
Notable Sources of Revenue Percent of Total Revenue
Contributions $506,493
99.3%
Program Services $3,600
0.7%
Investment Income $200
0.0%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $198,264
Total Liabilities $100,310
Net Assets $97,954
Compensation
Key Employees and Officers Compensation Related Other
Jeff Larimore (President) $0 $0 $0
Terri Schleuder (Vice President, Awareness) $0 $0 $0
Jose Morales (Vice President, Development) $0 $0 $0
Pam Woodward (Vice President, Family Support) $0 $0 $0
Jenni Sexstone (Treasurer) $0 $0 $0
Deb Reed (Secretary) $0 $0 $0
Christy Greeley (Executive Director & Vp Of Research) $0 $0 $0
Rachel Dalomba (Director) $0 $0 $0
Rich Jordan (Director) $0 $0 $0
Marybeth Krummenacker (Director) $0 $0 $0
Brittney Lebeau (Director) $0 $0 $0
John Maccarone (Director) $0 $0 $0
Kathy M Mandrel (Director) $0 $0 $0
Tim Miller (Director) $0 $0 $0
Lynn Thomas (Director) $0 $0 $0
Patty Blais (Director) $0 $0 $0
Jen Wyman (Director) $0 $0 $0

Document Links

Fiscal Year Ending Dec.
2012

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$370,984
Expenses
$468,748
Net Income
-$97,764
Net Assets
$92,871
Notable Sources of Revenue Percent of Total Revenue
Contributions $370,565
99.9%
Program Services $0
Investment Income $419
0.1%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $0
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $128,654
Total Liabilities $35,783
Net Assets $92,871

Document Links

Fiscal Year Ending Dec.
2011

Extracted Financial Data

Extracted Financial Data from Form 990
Revenue
$329,987
Expenses
$493,276
Net Income
-$163,289
Net Assets
$190,635
Notable Sources of Revenue Percent of Total Revenue
Contributions $323,360
98.0%
Program Services $0
Investment Income $1,677
0.5%
Bond Proceeds $0
Royalties $0
Rental Property Income $0
Net Fundraising $0
Sales of Assets $0
Net Inventory Sales $0
Other Revenue $4,950
1.5%
Notable Expenses Percent of Total Expenses
Executive Compensation $0
Professional Fundraising Fees $0
Other Salaries and Wages $0
Assets/Debt
Total Assets $214,241
Total Liabilities $23,606
Net Assets $190,635

Document Links

Fiscal Year Ending Dec.
2010

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2009

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2008

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2007

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2005

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2004

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2003

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2002

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

Fiscal Year Ending Dec.
2001

No Extracted Financial Data

Extracted financial data is not available for the forms filed in this tax period, but Form 990 documents are available for download.

Document Links

About This Data

Nonprofit Explorer includes summary data for nonprofit tax returns and full Form 990 documents, in both PDF and digital formats.

The summary data contains information processed by the IRS during the 2012-2019 calendar years; this generally consists of filings for the 2011-2018 fiscal years, but may include older records. This data release includes only a subset of what can be found in the full Form 990s.

In addition to the raw summary data, we link to PDFs and digital copies of full Form 990 documents wherever possible. This consists of separate releases by the IRS of Form 990 documents processed by the agency, which we update regularly.

We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. These audits are copied from the Federal Audit Clearinghouse.

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Every organization that has been recognized as tax exempt by the IRS has to file Form 990 every year, unless they make less than $200,000 in revenue and have less than $500,000 in assets, in which case they have to file form 990-EZ. Organizations making less than $50,000 don’t have to file either form but do have to let the IRS they’re still in business via a Form 990N "e-Postcard."

Nonprofit Explorer has organizations claiming tax exemption in each of the 27 subsections of the 501(c) section of the tax code, and which have filed a Form 990, Form 990EZ or Form 990PF. Taxable trusts and private foundations that are required to file a form 990PF are also included. Small organizations filing a Form 990N "e-Postcard" are not included in this data.

Types of Nonprofits

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